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Symptom Check


bloatedntexas

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Janeti Apprentice

I have been gluten free for 5 months, with the occasional, oops I think I was glutened...How long does it take for the muscle and joint pain to go away? Every morning I wake up, I feel like I was run over. Also, how long does it take for your intestines to stop dancing around? I don't know how else to describe it. I guess maybe they are spasming, healing, I'm not sure whats going on. But does anyone know what thats all about? Thanks, Janet


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Betty in Texas Newbie

I have had lots of these you all have talked about one time are another but my most common is

bloating really bad in the top of my stomacha

acid reflux

tightness in the chest

acessive sweating

Betty in Texas Newbie

I have had lot of these symptoms you all have talked about one time are another but my most common are

bloating really big

acid reflux

tightness in the chest

acessive sweating

Betty in Texas Newbie

I am sorry for the double post my comuter was doing something weird

JustMeInMD Rookie

I'm newly gluten-free (well, permanently anyway), but my lifelong symptoms (that went away after I did a gluten-free trial) are:

-Bloating

-Gas (especially at night)

-D and C (mostly in the a.m.)

-Horrible, gnawing hunger pain about 1 hour after eating

-nausea

-vomiting

-headache

-indigestion

-intermittent tingly fingers/toes

-spacey-ness

deesmith Apprentice
thanks angel! I wasn't sure... usually when I eat my stomach will get pretty big. Now I'm a skinny guy (6' and 170 lbs), but how do you tell if it's bloating or just because you ate a lot? I did a google search but it's too hard to even focus right now. If I don't feel rumbling or feel anything there really, can it still be bloating?

edit: Also, are there any Celiacs here that would say there main symptoms are C and brain fog by far?

Bloating- my mom had skinny pants and fat pants, depending on what she had eaten. Also, the best ways I can think of to describe it is a really bad beer gut (that seems to go away) or you look pregnant (you know, if you were a woman). My daughter asked me, before I knew anything about Celiac, why so many people in our family have a gut!

I would definatley say my main symptoms are C and brain fog. But also coupled with fatigue and really bad bone pain. But the C is awful! Sometimes I just want to stop eating all together because it's painful and I think I probably can't fit anymore in. I take Metamusil, but I think I need to increase it, especially when glutened. I can go days and days without going. Those are definately fat pant days!

And the brain fog.... it gets pretty bad. I think I'm a relatively smart person. But the other day I called my son and told him to pick me up after work. He said "Mom, you have your car today"!!!

:o

Luisa2552 Apprentice

Here are mine. Not sure if all celiac related 'cause I'm new to this

Bloating

Painful gas

Fecal leaking (gross I know, but I had to mention..)

brain fog

irritability

fatigue

itchy eyes

post nasal drip

I go for my upper gi biopsy on Friday. How long 'till you get results??


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Mickide Apprentice
Here are mine. Not sure if all celiac related 'cause I'm new to this

Bloating

Painful gas

Fecal leaking (gross I know, but I had to mention..)

brain fog

irritability

fatigue

itchy eyes

post nasal drip

I go for my upper gi biopsy on Friday. How long 'till you get results??

My biopsy was Monday and had the results yesterday, although there was no question on Monday after the biopsy. Goodluck with your biopsy!

This is such an interesting Topic. I thought my symptoms were just me and normal for me.

Brain Fog- yup have that, so I guess I am not just an airhead :lol: good to know.

Constipation

Bloatedness

Irritability- DH is glad to know this is a symptom and not my new personality :D

Weightloss- does that count as a symptom?

PeggyV Apprentice

1. Usually D

2. Next Bloating (looks like I am pregnant)

3. gas

4 c

5 joint pain (usually lower back)

6. sometimes mouth sores

7. sometimes what I think is DH - this usually happens if I accidently injest several times close together - mainly during traveling

8. fatigue

9. brain fog

Rick45 Rookie

Bright Light, Bright Light, Bright light, I didn't know it was from the poision. bad sinus headach, back to bed after a strong pot of coffee, sore bone and joints, Anger and all the rest, sores on my scalp?

7-cody Apprentice
Bloating- my mom had skinny pants and fat pants, depending on what she had eaten. Also, the best ways I can think of to describe it is a really bad beer gut (that seems to go away) or you look pregnant (you know, if you were a woman). My daughter asked me, before I knew anything about Celiac, why so many people in our family have a gut!

I would definatley say my main symptoms are C and brain fog. But also coupled with fatigue and really bad bone pain. But the C is awful! Sometimes I just want to stop eating all together because it's painful and I think I probably can't fit anymore in. I take Metamusil, but I think I need to increase it, especially when glutened. I can go days and days without going. Those are definately fat pant days!

And the brain fog.... it gets pretty bad. I think I'm a relatively smart person. But the other day I called my son and told him to pick me up after work. He said "Mom, you have your car today"!!!

:o

That's nothing! I forget to start up my car. Forget to grab something in the morning multiple days in a row. Often forget what I'm doing. Just pretty much feel like I can't use my brain at all.

Janeti Apprentice

Did anyone get symptoms that came and went, and never happened again?? At one point, I had a burning rash on my face, the Dr was baffled, and also for a couple of days in a row, I had a metallic taste in my mouth, and also, yuk, mouth sores too. Anyone know what that is? :unsure:

tmk Explorer

haven't been diagnosed yet (GI appt. next week), but these are my symptoms: chronic diarrhea for the last 18 years, nausea, gurgling stomach, bloating, occassional abdominal pain, urgency, gas, lightheaded & sweaty before BM, anemia, low WBC, chronic fatigue, joint pain, mouth sores, tingling in hands & feet, back pain, night sweats, cramping in legs, body jerks, increased appetite, moody. :blink:

zkat Apprentice

I have a pretty set course

1. Extreme fatigue-I just can't stay awake, even with starbucks or red bull

2. Swelling and water retention-about 10 lbs worth

3. Sinus type headache for 3 days

4. Constipation the first day

5. Day 2-5 Horrible toxic gas

6. Diarrhea and loose stools for about a week

7. Brain fog stays pretty constant for at least 3-4 days

8. Terrible cramps after I eat in my upper digestive track for about 2 week

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      @Mark Conway, here is an article outlining the various tests that can be used to diagnose celiac disease. By far, the most popular one ordered by physicians is the tTG-IGA. But almost all of these tests are known by different names so the terminology will vary from place to place and lab to lab. The article gives common variant names for each test.  In addition to IGA tests there are IGG tests which are particularly useful in the case of IGA deficiency.  
    • JudyLou
      Thank you so much @knitty kitty! My feet aren’t dry or ashy and I don’t have a rash that gets scaly. It’s like very itchy/burning vesicles that are symmetrical - on both arms, both legs, etc. They actually feel better in direct sunlight as long as it isn’t really hot or I’m not exercising outside, but gets worse if I sweat (especially if the area is covered up). It’s not usually on the outside of my elbows and knees which seems more typical of dermatitis herpetiformis (unless it spreads there). It tends to first hit the inside of those areas. Interestingly, twice the rash broke out soon after eating an unhealthy meal and having an alcoholic drink (I only drink a few times a year, no more alcohol content than a glass of wine).  So I wonder if there is a connection. I’m halfway considering doing a gluten challenge for a few months to see what happens, knowing I can stop if I have any symptoms, and asking for a full celiac disease panel at the end. I really appreciate your thoughts! 
    • knitty kitty
      Welcome, @JudyLou, Your rash sounds very similar to the one I experienced.  Mine was due to a deficiency in Niacin B3, although I had deficiencies in other nutrients as well.  Celiac disease causes malabsorption of all the essential nutrients, but eating a poor diet, taking certain medications, or drinking alcohol can result in deficiency diseases outside of Celiac, too.  Symptoms can wax and wane depending on dietary intake.  I knew an alcoholic who had the "boots" of Pellagra, which would get worse when he was drinking more heavily, and improve when he was drinking less.   Niacin deficiency is called Pellagra.  Symptoms consist of dermatitis, diarrhea, dementia, and death (the four D's).  A scaly rash on the feet and hands and arms are called the "boots" and "gloves" of Pellagra.  Darkened skin around the neck exposed to the sun is Casal's necklace.  Poor farmers with niacin deficient diets were called "red necks" because of this.    Does your rash get worse if you're in the sun?  Mine did.  Any skin exposed to the sun got blistered and scaly.  Arms, legs, neck, head.  Do you have dry, ashy skin on your feet?  The itchiness was not only from the rash, but neuropathy.   My doctors were clueless.  They didn't put all my symptoms together into the three D's.  But I did.  I'd learned about Pellagra at university.  But there weren't supposed to be deficiency diseases anymore in the developed world.  Doubtful it could be that simple, I started supplementing with Niacin and other essential nutrients.  I got better.   One of Niacinamide functions is to help stop mast cells from releasing histamine.  Your allergist gave you doxepin, an antihistamine which stops mast cells from releasing histamine.   Since you do have a Celiac gene, staying on the gluten free diet can prevent Celiac disease from being triggered again.   Interesting Reading: These case studies have pictures... Pellgra revisited.  https://pmc.ncbi.nlm.nih.gov/articles/PMC4228662/ Steroid-Resistant Rash With Neuropsychiatric Deterioration and Weight Loss: A Modern-Day Case of Pellagra https://pmc.ncbi.nlm.nih.gov/articles/PMC12532421/#:~:text=Figure 2.,(right panel) upper limbs.&text=The distribution of the rash,patient's substantial response to treatment.   Cutaneous signs of nutritional disorders https://pmc.ncbi.nlm.nih.gov/articles/PMC8721081/#:~:text=Additional causes of yellow skin,the clinical features of Kwashiorkor.   Hello, @Staticgypsy, I would not recommend cutting so many nutritious foods out of ones diet.  Oxalates can cause problems like kidney stones, but our bodies can process oxalates out of our systems with certain vitamins like Vitamins A and D and Pyridoxine B 6.   People with Celiac disease are often low in fat soluble vitamins A and D, as well as the water soluble B vitamins like Pyridoxine B 6.  Focus on serving your granddaughter nutrient dense meals to ensure she gets essential vitamins and minerals that will help her grow. Micronutrient inadequacy and urinary stone disease: an analysis of the National Health and Nutrition Examination Survey 2007-2018 https://pubmed.ncbi.nlm.nih.gov/36976348/ Multivitamins co-intake can reduce the prevalence of kidney stones: a large-scale cross-sectional study https://pubmed.ncbi.nlm.nih.gov/38564076/
    • Wheatwacked
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    • Jmartes71
      I saw the thing for testing for gluten when at public places.I absolutely love but I wonder if they would come up with a bracelet or necklace that can detect gluten in the air.I would LOVE that, i know i get debilitating migraine from smelling gluten wheat what have you, all I know is when I go into places like Chevron- gluten Subway, migraine, Costco that food smell of nasty gluten- migraine and same with Walmart subway.I absolutely HATE im that sensitive, my body reacts.Sadly medical hasn't taken core issue of celiac being an issue considering glutenfree ever since 1994 and in their eyes not because they didn't diagnose me. I am and wish I wasn't. If there was a detector of gluten in the air it would make a world of difference. 
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