Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

celiac disease, Anemia, And Bone Issues?

amberleigh

Recommended Posts

amberleigh Contributor
amberleigh
Posted

I had a follow up with my GI doc yesterday (scopes and dx were just last week) and he is concerned about my anemia and calcium/vitamin absorption...and he's also sending me for a bone density test. He told me to take THREE iron pills each day (I'm currently taking one/day) and to add Viactiv calcium chews as well.

Is this pretty standard? What supplements do you take?

Oh and he also said I'm undernourished and need to gain weight. Hey buddy, I just had my 3rd kid and am trying to LOSE weight :lol:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mocajanelle Newbie
mocajanelle
Posted
I had a follow up with my GI doc yesterday (scopes and dx were just last week) and he is concerned about my anemia and calcium/vitamin absorption...and he's also sending me for a bone density test. He told me to take THREE iron pills each day (I'm currently taking one/day) and to add Viactiv calcium chews as well.

Is this pretty standard? What supplements do you take?

Oh and he also said I'm undernourished and need to gain weight. Hey buddy, I just had my 3rd kid and am trying to LOSE weight :lol:

I wish I could help you, I came looking for answers myself. My 18yr old was diagnosed with celiac 2mos ago, not they are saying her red blood count is "dangerously low" and have scheduled us with a hematologist. I am freaking out!

frec Contributor
frec
Posted
I had a follow up with my GI doc yesterday (scopes and dx were just last week) and he is concerned about my anemia and calcium/vitamin absorption...and he's also sending me for a bone density test. He told me to take THREE iron pills each day (I'm currently taking one/day) and to add Viactiv calcium chews as well.

Is this pretty standard? What supplements do you take?

Oh and he also said I'm undernourished and need to gain weight. Hey buddy, I just had my 3rd kid and am trying to LOSE weight :lol:

I was diagnosed with celiac 5 years ago and have stayed totally on the diet. I also can't eat dairy. I am 51, just started menopause, and I just found out I already have osteoporosis. I eat a pretty healthy diet (I love chocolate), I take calcium and other kinds of supplements, and I exercise regularly but I still have osteoporosis. I think it was all the years of poor absorption before I was diagnosed. I wish I'd been tested earlier. You are kind of young for it but the bone density test sounds like a good idea, at least as a baseline.

I also take B complex, C, D (to help with the calcium), and Omega 3 oils. My gastro doctor sent me to a dietician after I was diagnosed; it was very helpful.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,202
    • Most Online (within 30 mins)
      7,748
    Nana Susie
    Newest Member
    Nana Susie
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Scott Adams
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By Scott Adams · Posted

      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
    • xxnonamexx
      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      By xxnonamexx · Posted

      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By cristiana · Posted

      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By trents · Posted

      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      Brown Rice Vinegar (organic) from Eden Foods is likely gluten free

      By Scott Adams · Posted

      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.