Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

The Dq1 Gene

confused

Recommended Posts

confused Community Regular
confused
Posted

I have been reading and thinking about everyone and their enterolab test. I seem to find that most of us that have a dq1 gene have malabsorption when we get tested threw enterolab. Has anyone else noticed this.

So if you have the dq1, what was your malabsorption score.

paula

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


hathor Contributor
hathor
Posted

See below.

zarfkitty Explorer
zarfkitty
Posted

(edit)

My daughter had malabsorption somewhere in the low 300's range. She's double dq1.

confused Community Regular
confused
Posted
  • Author

I only carry one and had i think 374 i would have to look it up, but my stepson had no malabsorption but the celiac gene wiht dq1, i just find it odd that dq1 seem to have an high malabsorption compared to others.

what do others think about this.

paula

k-amy32 Rookie
k-amy32
Posted

Hi! I am a double DQ1 and my score was 1480!

bugstabber Rookie
bugstabber
Posted

I have double DQ1, malabsorbtion is 487.

stephanie19 Newbie
stephanie19
Posted

I don't mean to hijack this thread, but since it's about double DQ1, which I am as well, I hope you don't mind. I had a mildly elevated malabsorption score (346), but in addition to this question of malabsorption, I'm wondering if any of you know of any further characteristics associated with double DQ1. I've heard it's associated with neurological symptoms, but I don't really know what that means. Anyone know anything further about this or any other problems related to these genes? I'm trying to learn as much as I can about the genetics of this, so any input would be helpful.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


zarfkitty Explorer
zarfkitty
Posted
I don't mean to hijack this thread, but since it's about double DQ1, which I am as well, I hope you don't mind. I had a mildly elevated malabsorption score (346), but in addition to this question of malabsorption, I'm wondering if any of you know of any further characteristics associated with double DQ1. I've heard it's associated with neurological symptoms, but I don't really know what that means. Anyone know anything further about this or any other problems related to these genes? I'm trying to learn as much as I can about the genetics of this, so any input would be helpful.

I can't answer this question with any level of authority. But, my daughter is a very cranky, uncooperative, DRAMATIC little girl on gluten. I mean hysterics of gargantuan proportions, completely inappropriate for her age. When we started the diet, her true personality came back.

hathor Contributor
hathor
Posted
I don't mean to hijack this thread, but since it's about double DQ1, which I am as well, I hope you don't mind. I had a mildly elevated malabsorption score (346), but in addition to this question of malabsorption, I'm wondering if any of you know of any further characteristics associated with double DQ1. I've heard it's associated with neurological symptoms, but I don't really know what that means. Anyone know anything further about this or any other problems related to these genes? I'm trying to learn as much as I can about the genetics of this, so any input would be helpful.

Here are a couple abstracts. I don't know if the disorders mentioned exhaust the possibilities of neurological reactions to gluten. Probably not. I recall seeing one article, I think it was by the doctor here with the long name that mentioned the prevalence of DQ1 in the population he was examining, not just the typical "celiac genes." I don't recall him mentioning double DQ1, though. I wish I could figure out how I got access to that article for free one time! I should have printed it or bookmarked it.

Open Original Shared Link

Open Original Shared Link

BensMom Rookie
BensMom
Posted

My son is a double DQ1, and he was in the low 300 range. He has been dairy and wheat free for over a year and now we are pulling out gluten.

confused Community Regular
confused
Posted
  • Author

It is interesting to read how many dq1 people have malabsorption scores that are high or above the 300 mark. It just makes me wonder if maybe we have some sort of diease that is not proven yet but correlates with celiac. I am having a hard time putting what im thinking into words here. Im still ercovering from being glutened this week. When i can think more clearly i will type it all out. But do oyu all think, or am i just pulling at straws trying to figure this out.

paula

Rachel--24 Collaborator
Rachel--24
Posted

Single DQ1 gene.....malabsorption score = 912.

Even though Enterolab tests were positive (IgA and tTG) the cause of malabsorption was/is unrelated to gluten. Not to say that gluten didnt contribute...but there were other issues causing the malabsorption in my case.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,564
    • Most Online (within 30 mins)
      7,748
    Anne65
    Newest Member
    Anne65
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • petitojou
      How long does it take to gain weight?

      By petitojou · Posted

      Thank you so much for sharing your experience and I found myself giggling with happiness as I read how your body reached such spring! And I hope that your current journey is also successful!! Definitely starting the food diary! So many amazing advices. And it’s very scary. It really hits all our soft spots as well as our confidence system. Most doctors I went thought I was underage despite being in my late 20s. Right now I look like am I twelve, but is also this body that’s taking so much, so I might as well love it too! Going to make the necessary changes and stay in this path. Thank you again! 🫶
    • petitojou
      How long does it take to gain weight?

      By petitojou · Posted

      Thank you so much for the information and kind message! Reading this transformed how I’ve been viewing my efforts and progress. Guess there’s still a lot to celebrate and also heal 😌  Yes, I’ve been taking it! Just recently started taking a multivitamin supplement and separated vitamin D! I also took chewable Iron polymaltose for ferritin deficiency 2 months ago but was unable to absorb any of it.  Thank you again! Hearing such gentle words from the community makes my body and heart more patient and excited for the future. 
    • ckeyser88
      Roommate search

      By ckeyser88 · Posted

      I am looking for a roomie in Chicago, Denver or Nashville! 
    • Scott Adams
      Taken Seriously

      By Scott Adams · Posted

      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      Looking for a gluten-free roomie in Denver CO

      By Scott Adams · Posted

      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.