Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Testing For Lactose And Casein Intolerances

Guhlia

By Guhlia
in Related Issues & Disorders

Recommended Posts

Guhlia Rising Star
Guhlia
Posted

Lately I'm suspecting that I have some sort of a lactose or casein intolerance. Its really hard to tell because I'm 8 months pregnant. I could just be having irregular, painful contractions I suppose. It feels to me though like Celiac pains. I know I'm not getting glutened, so I'm looking elsewhere. Is there any other way to test for a true casein intolerance other than an elimination diet? Is there any way to test for lactose intolerance at home? I really don't want anything additional on my medical records.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


blueeyedmanda Community Regular
blueeyedmanda
Posted

Angie,

I hope its contractions, maybe it's Anika telling you she wants to meet you early :)

happygirl Collaborator
happygirl
Posted

Angie,

One of the things that I have heard is to do a milk challenge of sorts. If you know you react to plain milk, then try drinking lactaid milk (and no other dairy products before or after). If you do ok with it, then it indicates it is a lactose problem, versus a casein problem.

hathor Contributor
hathor
Posted

If you have problems with lactose free dairy, you can be tested for casein intolerance. This is something Enterolab does.

happygirl Collaborator
happygirl
Posted

Quest (conventional blood work lab) also does IgG testing via blood work and I know they do casein.

Guhlia Rising Star
Guhlia
Posted
  • Author

I'm assuming Quest would have to go through my doctor, right?

I think maybe I'll just go ahead and go through Enterolab. I forgot that they tested for other intolerances. I seem to be able to get away with eating anything with dairy, even cheese, but as soon as I take a few sips of milk I get the same old Celiac type cramping and soft stools. I am SO hoping it's just the pregnancy, but I guess I know in my heart it probably isn't. I've suspected a dairy problem of some sort for quite some time now, I just never had any real symptoms to back up my suspicions.

Do you guys think I should wait until I'm not pregnant before pursuing testing? Could that skew the results? I definitely don't want to feel like I need to doubt my test results.

Also, what are the symptoms of lactose intolerance vs. casein intolerance? Are they generally similar? What's the reaction time for lactose vs. casein? Any difference?

hathor Contributor
hathor
Posted

I don't see why pregnancy would affect the test results. The anticasein antibodies would be there in a specific quantity or they wouldn't be. You can always email them or call if you are uncertain.

Have your symptoms gotten worse during pregnancy? It could be your body, especially now, is telling you to stay away from things you can't handle. This, of course, is the sheerest of speculation on my part.

If something bothers you everytime you eat it, it is a good sign you shouldn't eat it :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


happygirl Collaborator
happygirl
Posted
I'm assuming Quest would have to go through my doctor, right?

I think maybe I'll just go ahead and go through Enterolab. I forgot that they tested for other intolerances. I seem to be able to get away with eating anything with dairy, even cheese, but as soon as I take a few sips of milk I get the same old Celiac type cramping and soft stools. I am SO hoping it's just the pregnancy, but I guess I know in my heart it probably isn't. I've suspected a dairy problem of some sort for quite some time now, I just never had any real symptoms to back up my suspicions.

Do you guys think I should wait until I'm not pregnant before pursuing testing? Could that skew the results? I definitely don't want to feel like I need to doubt my test results.

Also, what are the symptoms of lactose intolerance vs. casein intolerance? Are they generally similar? What's the reaction time for lactose vs. casein? Any difference?

Yes, the Quest is bloodwork, so it would be run through your dr. I'm assuming labcorp (one of the other major testing labs) does it also.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. rei.b
      - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      High DGP-A with normal IGA

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and...
    2. knitty kitty
      - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      High DGP-A with normal IGA

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long? DGP IgG antibodies are produced in response to a partial gluten molecule. This is different than what tissue transglutaminase antibodies are produced in response to. TTg IgA antibodies are produced in the intestines in response to...
    3. rei.b
      - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      High DGP-A with normal IGA

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
    4. knitty kitty
      - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      High DGP-A with normal IGA

      Food and environmental allergies involve IgE antibodies. IgE antibodies provoke histamine release from mast cells. Celiac disease is not always visible to the naked eye during endoscopy. Much of the damage is microscopic and patchy or out of reach of the scope. Did they take any biopsies of your small intestine for a pathologist to examine? Were...
    5. rei.b
      - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      High DGP-A with normal IGA

      I was tested for food allergies and environmental allergies about 7 months before I started taking Naltrexone, so I don't think that is the cause for me, but that's interesting! The main thing with the celiac thing that is throwing me off is these symptoms are lifelong, but I don't have intestinal damage to correlate with lifelong undiagnosed celiac...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,130
    • Most Online (within 30 mins)
      7,748
    Tony White
    Newest Member
    Tony White
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      Food and environmental allergies involve IgE antibodies.  IgE antibodies provoke histamine release from mast cells.   Celiac disease is not always visible to the naked eye during endoscopy.  Much of the damage is microscopic and patchy or out of reach of the scope.  Did they take any biopsies of your small intestine for a pathologist to examine?  Were you given a Marsh score? Why do you say you "don't have intestinal damage to correlate with lifelong undiagnosed celiac disease"?   Just curious.  
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for food allergies and environmental allergies about 7 months before I started taking Naltrexone, so I don't think that is the cause for me, but that's interesting!  The main thing with the celiac thing that is throwing me off is these symptoms are lifelong, but I don't have intestinal damage to correlate with lifelong undiagnosed celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.