Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Do You Recommend The Specific Carbohydrate Diet?


Jeansy

Recommended Posts

Jeansy Newbie

Hi everyone,

I'm new to the forum. I was diagnosed with Celiac Disease in February and I have been gluten free ever since except for a couple of mistakes. The D stopped long ago, but by and large I am not feeling better. I'm still having pretty serious bowel activity and I typically have only minutes to get to a bathroom when I need one. Sorry for that detail.

I've also gained 10 lbs since February which is making me very uncomfortable. I'm worried that the weight gain isn't going to stop because I have put on all this weight while running around 20 miles a week.

I was wondering if people have had success with the Specific Carbohydrate Diet for weight loss and intestinal healing. I'm almost ready to try anything, but this diet seems very difficult to follow so any encouragement or advice you have would be appreciated!

Thank you!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



newlyfree Rookie

Hi Jeansy, welcome to the board!

I went on the SCD to speed my recovery, and it helped me tremendously. Make sure to do the homemade yogurt if you can - I was scared of it at first but it helped my digestion a lot more than doing the diet without it.

I did lose about 7 pounds over 6 weeks on it, but I have a problem with nuts so I was cutting out a major source of calories in the diet. Also - not being allowed to eat anything processed or packaged... cooking everything from scratch with limited time to do so... my calorie intake had nowhere to go but down :)

That said, the SCD is not a weight-loss regimen per se, and you can still be getting lots of calories depending on your approach, but if it can reboot your insides and balance out the bugs in your gut, I would guess that your weight could normalize a bit.

The other thing to consider, though, i s a possible thyroid problem. It's not uncommon in Celiacs, and if you're running 20 miles a week and still gaining I think it's worth getting checked.

Jeansy Newbie

Hi newlyfree,

I will ask my doctor to check my thyroid. I was took so many tests before my celiac diagnosis that I think my thyroid was fine but it's worth double checking. As I sit here will my belly rolling over my belt I think definitely worth double checking! :(

Are you still following the SCD and if not how long did you manage to do it? It certainly will take me a lot of time to prepare the food and at my first read of the Vicious Cycle book I was a little confused about the order in which foods should be introduced. I guess I'll have to reread it and take notes! I have a 16 month old daughter and I always plan and prepare great things for her meals but there doesn't seem to be time for me to do the same for myself.

One last question (for now!). What do you think of the author's claim that some cases of Celiac Disease can be cured by following the SCD for a year? I'm sure that if I managed to follow the diet for an entire year I wouldn't go anywhere near gluten for fear of messing up my hard earned healthy intestines!

Thank you for your response and congratulations on the healing you accomplished with the diet!

newlyfree Rookie

Hi Jeansy -

I am just now starting to go off the diet (adding rice in now, seeing how that goes). I was on it for about 2 months.

The food introduction section confused me too! I couldn't find anything at all about introducing the yogurt, though there were several warnings to 'follow the advice for when to add the yogurt' :o

So I started with just meat, eggs and veggies for a couple of days (along the lines of the 'starter diet') then added in whatever I wanted after that. But it was two weeks before I got up the nerve to make the yogurt.

Oh - another thing, they talk about dry curd cottage cheese a lot, but I've only ever found it in the store as 'farmer's cheese', make sure it's the soft kind (looks kinda like ricotta) not the hard cheddar-ish kind.

As to curing Celiac with the diet... I think the author wrote a lot of the book before much of the current Celiac research had been done. It was revised in 2004 and then included references to current research, but I think the author still had a bias towards the older ideas on Celiac. Myself, I don't think can cure celiac, because no diet can change your genes, but it will make the symptoms go away.

Sweetfudge Community Regular

Where can i find more information on the SCD? And how do you think it would work with me as a hypoglycemic? I don't know anything about it, so I am just asking.

melrobsings Contributor

What's SCD?

newlyfree Rookie

SCD is shorthand for "The Specific Carbohydrate Diet", published in the book "Breaking the Vicious Cycle" available at Amazon. It was written by a woman who used the diet to cure her daughter's colitis in the 50's.

Open Original Shared Link

The diet restricts carbohydrate intake to those that are simplest to digest - eliminating grains, sugars (except honey, which is a monosaccharide), and starchy veggies. It also incorporates probiotics through yogurt and doesn't let you eat any packaged foods or artificial ingredients, also stuff that the body doesn't digest well.

I don't know anything about hypoglycemia, so I don't know if the diet would be helpful for that, but it does help speed the process of intestinal healing by giving your body a break from the more difficult-to-break-down foods.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jeansy Newbie

I started to take a stab at concisely describing the diet and gave up. Nice job, newlyfree!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - lil-oly replied to Jmartes71's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Gluten tester

    2. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    3. - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    4. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,156
    • Most Online (within 30 mins)
      7,748

    mike101020
    Newest Member
    mike101020
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • lil-oly
      Hey there, have you been tested for allergies? You may not only have celiac disease but be allergic. I have celiac disease and am allergic to Barley, wheat and rye. 
    • JudyLou
    • knitty kitty
      I have osteopenia and have cracked three vertebrae.  Niacin is connected to osteoporosis! Do talk to your nutritionist and doctor about supplementing with B vitamins.  Blood tests don't reveal the amount of vitamins stored inside cells.  The blood is a transportation system and can reflect vitamins absorbed from food eaten in the previous twenty-four to forty-eight hours.  Those "normal limits" are based on minimum amounts required to prevent disease, not levels for optimal health.   Keep us posted on your progress.   B Vitamins: Functions and Uses in Medicine https://pmc.ncbi.nlm.nih.gov/articles/PMC9662251/ Association of dietary niacin intake with osteoporosis in the postmenopausal women in the US: NHANES 2007–2018 https://pmc.ncbi.nlm.nih.gov/articles/PMC11835798/ Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/   Nutritional Imbalances in Adult Celiac Patients Following a Gluten-Free Diet https://pmc.ncbi.nlm.nih.gov/articles/PMC8398893/ Nutritional Consequences of Celiac Disease and Gluten-Free Diet https://www.mdpi.com/2036-7422/15/4/61 Simplifying the B Complex: How Vitamins B6 and B9 Modulate One Carbon Metabolism in Cancer and Beyond https://pmc.ncbi.nlm.nih.gov/articles/PMC9609401/
    • JudyLou
      Thank you so much for the clarification! Yes to these questions: Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, or vitamins? I’m within healthy range for nutritional tests, thyroid and am not anemic. I do have osteopenia. I don’t take any medications, and the dietician was actually a nutritionist (not sure if that is the same thing) recommended by my physician at the time to better understand gluten free eating.    I almost wish the gluten exposure had triggered something, so at least I’d know what’s going on. So confusing!    Many thanks! 
    • knitty kitty
      @JudyLou,  I have dermatitis herpetiformis, too!  And...big drum roll... Niacin improves dermatitis herpetiformis!   Niacin is very important to skin health and intestinal health.   You're correct.  dermatitis herpetiformis usually occurs on extensor muscles, but dermatitis herpetiformis is also pressure sensitive, so blisters can form where clothing puts pressure on the skin. Elastic waist bands, bulky seams on clothing, watch bands, hats.  Rolled up sleeves or my purse hanging on my arm would make me break out on the insides of my elbows.  I have had a blister on my finger where my pen rested as I write.  Foods high in Iodine can cause an outbreak and exacerbate dermatitis herpetiformis. You've been on the gluten free diet for a long time.  Our gluten free diet can be low in vitamins and minerals, especially if processed gluten free foods are consumed.  Those aren't fortified with vitamins like gluten containing products are.  Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, medicine, or vitamins? Niacin deficiency is connected to anemia.  Anemia can cause false negatives on tTg IgA tests.  A person can be on that borderline where symptoms wax and wane for years, surviving, but not thriving.  We have a higher metabolic need for more nutrients when we're sick or emotionally stressed which can deplete the small amount of vitamins we can store in our bodies and symptoms reappear.   Exposure to gluten (and casein in those sensitive to it) can cause an increased immune response and inflammation for months afterwards. The immune cells that make tTg IgA antibodies which are triggered today are going to live for about two years. During that time, inflammation is heightened.  Those immune cells only replicate when triggered.  If those immune cells don't get triggered again for about two years, they die without leaving any descendents programmed to trigger on gluten and casein.  The immune system forgets gluten and casein need to be attacked.  The Celiac genes turn off.  This is remission.    Some people in remission report being able to consume gluten again without consequence.   However, another triggering event can turn the Celiac genes on again.   Celiac genes are turned on by a triggering event (physical or emotional stress).  There's some evidence that thiamine insufficiency contributes to the turning on of autoimmune genes.  There is an increased biological need for thiamine when we are physically or emotionally stressed.  Thiamine cannot be stored for more than twenty-one days and may be depleted in as little as three during physical and emotional stresses. Mitochondria without sufficient thiamine become damaged and don't function properly.  This gets relayed to the genes and autoimmune disease genes turn on.  Thiamine and other B vitamins, minerals, and other nutrients are needed to replace the dysfunctional mitochondria and repair the damage to the body.   I recommend getting checked for vitamin and mineral deficiencies.  More than just Vitamin D and B12.  A gluten challenge would definitely be a stressor capable of precipitating further vitamin deficiencies and health consequences.   Best wishes!    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.