Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Do You Recommend The Specific Carbohydrate Diet?


Jeansy

Recommended Posts

Jeansy Newbie

Hi everyone,

I'm new to the forum. I was diagnosed with Celiac Disease in February and I have been gluten free ever since except for a couple of mistakes. The D stopped long ago, but by and large I am not feeling better. I'm still having pretty serious bowel activity and I typically have only minutes to get to a bathroom when I need one. Sorry for that detail.

I've also gained 10 lbs since February which is making me very uncomfortable. I'm worried that the weight gain isn't going to stop because I have put on all this weight while running around 20 miles a week.

I was wondering if people have had success with the Specific Carbohydrate Diet for weight loss and intestinal healing. I'm almost ready to try anything, but this diet seems very difficult to follow so any encouragement or advice you have would be appreciated!

Thank you!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



newlyfree Rookie

Hi Jeansy, welcome to the board!

I went on the SCD to speed my recovery, and it helped me tremendously. Make sure to do the homemade yogurt if you can - I was scared of it at first but it helped my digestion a lot more than doing the diet without it.

I did lose about 7 pounds over 6 weeks on it, but I have a problem with nuts so I was cutting out a major source of calories in the diet. Also - not being allowed to eat anything processed or packaged... cooking everything from scratch with limited time to do so... my calorie intake had nowhere to go but down :)

That said, the SCD is not a weight-loss regimen per se, and you can still be getting lots of calories depending on your approach, but if it can reboot your insides and balance out the bugs in your gut, I would guess that your weight could normalize a bit.

The other thing to consider, though, i s a possible thyroid problem. It's not uncommon in Celiacs, and if you're running 20 miles a week and still gaining I think it's worth getting checked.

Jeansy Newbie

Hi newlyfree,

I will ask my doctor to check my thyroid. I was took so many tests before my celiac diagnosis that I think my thyroid was fine but it's worth double checking. As I sit here will my belly rolling over my belt I think definitely worth double checking! :(

Are you still following the SCD and if not how long did you manage to do it? It certainly will take me a lot of time to prepare the food and at my first read of the Vicious Cycle book I was a little confused about the order in which foods should be introduced. I guess I'll have to reread it and take notes! I have a 16 month old daughter and I always plan and prepare great things for her meals but there doesn't seem to be time for me to do the same for myself.

One last question (for now!). What do you think of the author's claim that some cases of Celiac Disease can be cured by following the SCD for a year? I'm sure that if I managed to follow the diet for an entire year I wouldn't go anywhere near gluten for fear of messing up my hard earned healthy intestines!

Thank you for your response and congratulations on the healing you accomplished with the diet!

newlyfree Rookie

Hi Jeansy -

I am just now starting to go off the diet (adding rice in now, seeing how that goes). I was on it for about 2 months.

The food introduction section confused me too! I couldn't find anything at all about introducing the yogurt, though there were several warnings to 'follow the advice for when to add the yogurt' :o

So I started with just meat, eggs and veggies for a couple of days (along the lines of the 'starter diet') then added in whatever I wanted after that. But it was two weeks before I got up the nerve to make the yogurt.

Oh - another thing, they talk about dry curd cottage cheese a lot, but I've only ever found it in the store as 'farmer's cheese', make sure it's the soft kind (looks kinda like ricotta) not the hard cheddar-ish kind.

As to curing Celiac with the diet... I think the author wrote a lot of the book before much of the current Celiac research had been done. It was revised in 2004 and then included references to current research, but I think the author still had a bias towards the older ideas on Celiac. Myself, I don't think can cure celiac, because no diet can change your genes, but it will make the symptoms go away.

Sweetfudge Community Regular

Where can i find more information on the SCD? And how do you think it would work with me as a hypoglycemic? I don't know anything about it, so I am just asking.

melrobsings Contributor

What's SCD?

newlyfree Rookie

SCD is shorthand for "The Specific Carbohydrate Diet", published in the book "Breaking the Vicious Cycle" available at Amazon. It was written by a woman who used the diet to cure her daughter's colitis in the 50's.

Open Original Shared Link

The diet restricts carbohydrate intake to those that are simplest to digest - eliminating grains, sugars (except honey, which is a monosaccharide), and starchy veggies. It also incorporates probiotics through yogurt and doesn't let you eat any packaged foods or artificial ingredients, also stuff that the body doesn't digest well.

I don't know anything about hypoglycemia, so I don't know if the diet would be helpful for that, but it does help speed the process of intestinal healing by giving your body a break from the more difficult-to-break-down foods.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jeansy Newbie

I started to take a stab at concisely describing the diet and gave up. Nice job, newlyfree!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    2. - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    3. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    4. - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    5. - Scott Adams replied to Russ H's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Anti-endomysial Antibody (EMA) Testing

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,870
    • Most Online (within 30 mins)
      7,748

    KABoston
    Newest Member
    KABoston
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      Blood tests for thiamine are unreliable.  The nutrients from your food get absorbed into the bloodstream and travel around the body.  So, a steak dinner can falsely raise thiamine blood levels in the following days.  Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte Transketolace Activity test.  But even that test has been questioned as to accuracy.  It is expensive and takes time to do.   Because of the discrepancies with thiamine tests and urgency with correcting thiamine deficiency, the World Health Organization recommends giving thiamine for several weeks and looking for health improvement.  Thiamine is water soluble, safe and nontoxic even in high doses.   Many doctors are not given sufficient education in nutrition and deficiency symptoms, and may not be familiar with how often they occur in Celiac disease.  B12 and Vitamin D can be stored for as long as a year in the liver, so not having deficiencies in these two vitamins is not a good indicator of the status of the other seven water soluble B vitamins.  It is possible to have deficiency symptoms BEFORE there's changes in the blood levels.   Ask your doctor about Benfotiamine, a form of thiamine that is better absorbed than Thiamine Mononitrate.  Thiamine Mononitrate is used in many vitamins because it is shelf-stable, a form of thiamine that won't break down sitting around on a store shelf.  This form is difficult for the body to turn into a usable form.  Only thirty percent is absorbed in the intestine, and less is actually used.   Thiamine interacts with all of the other B vitamins, so they should all be supplemented together.  Magnesium is needed to make life sustaining enzymes with thiamine, so a magnesium supplement should be added if magnesium levels are low.   Thiamine is water soluble, safe and nontoxic even in high doses.  There's no harm in trying.
    • lizzie42
      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine? 
    • knitty kitty
      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
    • lizzie42
      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
    • Scott Adams
      That is interesting, and it's the first time I heard about the umbilical cord beings used for that test. Thanks for sharing!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.