Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Do You Recommend The Specific Carbohydrate Diet?


Jeansy

Recommended Posts

Jeansy Newbie

Hi everyone,

I'm new to the forum. I was diagnosed with Celiac Disease in February and I have been gluten free ever since except for a couple of mistakes. The D stopped long ago, but by and large I am not feeling better. I'm still having pretty serious bowel activity and I typically have only minutes to get to a bathroom when I need one. Sorry for that detail.

I've also gained 10 lbs since February which is making me very uncomfortable. I'm worried that the weight gain isn't going to stop because I have put on all this weight while running around 20 miles a week.

I was wondering if people have had success with the Specific Carbohydrate Diet for weight loss and intestinal healing. I'm almost ready to try anything, but this diet seems very difficult to follow so any encouragement or advice you have would be appreciated!

Thank you!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



newlyfree Rookie

Hi Jeansy, welcome to the board!

I went on the SCD to speed my recovery, and it helped me tremendously. Make sure to do the homemade yogurt if you can - I was scared of it at first but it helped my digestion a lot more than doing the diet without it.

I did lose about 7 pounds over 6 weeks on it, but I have a problem with nuts so I was cutting out a major source of calories in the diet. Also - not being allowed to eat anything processed or packaged... cooking everything from scratch with limited time to do so... my calorie intake had nowhere to go but down :)

That said, the SCD is not a weight-loss regimen per se, and you can still be getting lots of calories depending on your approach, but if it can reboot your insides and balance out the bugs in your gut, I would guess that your weight could normalize a bit.

The other thing to consider, though, i s a possible thyroid problem. It's not uncommon in Celiacs, and if you're running 20 miles a week and still gaining I think it's worth getting checked.

Jeansy Newbie

Hi newlyfree,

I will ask my doctor to check my thyroid. I was took so many tests before my celiac diagnosis that I think my thyroid was fine but it's worth double checking. As I sit here will my belly rolling over my belt I think definitely worth double checking! :(

Are you still following the SCD and if not how long did you manage to do it? It certainly will take me a lot of time to prepare the food and at my first read of the Vicious Cycle book I was a little confused about the order in which foods should be introduced. I guess I'll have to reread it and take notes! I have a 16 month old daughter and I always plan and prepare great things for her meals but there doesn't seem to be time for me to do the same for myself.

One last question (for now!). What do you think of the author's claim that some cases of Celiac Disease can be cured by following the SCD for a year? I'm sure that if I managed to follow the diet for an entire year I wouldn't go anywhere near gluten for fear of messing up my hard earned healthy intestines!

Thank you for your response and congratulations on the healing you accomplished with the diet!

newlyfree Rookie

Hi Jeansy -

I am just now starting to go off the diet (adding rice in now, seeing how that goes). I was on it for about 2 months.

The food introduction section confused me too! I couldn't find anything at all about introducing the yogurt, though there were several warnings to 'follow the advice for when to add the yogurt' :o

So I started with just meat, eggs and veggies for a couple of days (along the lines of the 'starter diet') then added in whatever I wanted after that. But it was two weeks before I got up the nerve to make the yogurt.

Oh - another thing, they talk about dry curd cottage cheese a lot, but I've only ever found it in the store as 'farmer's cheese', make sure it's the soft kind (looks kinda like ricotta) not the hard cheddar-ish kind.

As to curing Celiac with the diet... I think the author wrote a lot of the book before much of the current Celiac research had been done. It was revised in 2004 and then included references to current research, but I think the author still had a bias towards the older ideas on Celiac. Myself, I don't think can cure celiac, because no diet can change your genes, but it will make the symptoms go away.

Sweetfudge Community Regular

Where can i find more information on the SCD? And how do you think it would work with me as a hypoglycemic? I don't know anything about it, so I am just asking.

melrobsings Contributor

What's SCD?

newlyfree Rookie

SCD is shorthand for "The Specific Carbohydrate Diet", published in the book "Breaking the Vicious Cycle" available at Amazon. It was written by a woman who used the diet to cure her daughter's colitis in the 50's.

Open Original Shared Link

The diet restricts carbohydrate intake to those that are simplest to digest - eliminating grains, sugars (except honey, which is a monosaccharide), and starchy veggies. It also incorporates probiotics through yogurt and doesn't let you eat any packaged foods or artificial ingredients, also stuff that the body doesn't digest well.

I don't know anything about hypoglycemia, so I don't know if the diet would be helpful for that, but it does help speed the process of intestinal healing by giving your body a break from the more difficult-to-break-down foods.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jeansy Newbie

I started to take a stab at concisely describing the diet and gave up. Nice job, newlyfree!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

    2. - cristiana replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

    3. - trents replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

    4. - Scott Adams replied to Aretaeus Cappadocia's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Brown Rice Vinegar (organic) from Eden Foods is likely gluten free

    5. - Scott Adams replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      nothing has changed

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,190
    • Most Online (within 30 mins)
      7,748

    Atl222
    Newest Member
    Atl222
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • xxnonamexx
      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
    • Scott Adams
      Seven months can still be early in celiac healing, especially if you were mostly asymptomatic to begin with—symptoms like low iron, vitamin D deficiency, nail changes, and hair issues often take much longer to improve because the gut needs time to recover before absorption normalizes. A tTG-IgA of 69 is not “low” in terms of immune activity, and it can take 12–24 months (sometimes longer) for antibodies and the intestinal lining to fully heal, particularly in teens and young adults. Eating gluten again to “test” things isn’t recommended and won’t give you clear answers—it’s far more likely to cause harm than clarity. Weight not changing is also very common in celiac and doesn’t rule anything out. Please know that your frustration and sadness matter; this adjustment is hard, and feeling stuck can really affect mental health. You deserve support, and if you can, reaching out to a GI dietitian or mental health professional familiar with chronic illness could really help you through this phase. This study indicates that a majority of celiacs don't recover until 5 years after diagnosis and starting a gluten-free diet: Mucosal recovery and mortality in adults with celiac disease after treatment with a gluten-free diet However, it's also possible that what the study really shows is the difficulty in maintaining a 100% gluten-free diet. I suspect that if you looked closely at the diets of those who did not recover within 2 years might be that their diets were not 100% gluten-free. Perhaps they ate out more often, or didn't understand all of the hidden ingredients where gluten can hide. Either way, it shows how difficult recovery from celiac disease can be for most people. According to this study: This article explores other causes of flattened villi:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.