Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Do You Recommend The Specific Carbohydrate Diet?


Jeansy

Recommended Posts

Jeansy Newbie

Hi everyone,

I'm new to the forum. I was diagnosed with Celiac Disease in February and I have been gluten free ever since except for a couple of mistakes. The D stopped long ago, but by and large I am not feeling better. I'm still having pretty serious bowel activity and I typically have only minutes to get to a bathroom when I need one. Sorry for that detail.

I've also gained 10 lbs since February which is making me very uncomfortable. I'm worried that the weight gain isn't going to stop because I have put on all this weight while running around 20 miles a week.

I was wondering if people have had success with the Specific Carbohydrate Diet for weight loss and intestinal healing. I'm almost ready to try anything, but this diet seems very difficult to follow so any encouragement or advice you have would be appreciated!

Thank you!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



newlyfree Rookie

Hi Jeansy, welcome to the board!

I went on the SCD to speed my recovery, and it helped me tremendously. Make sure to do the homemade yogurt if you can - I was scared of it at first but it helped my digestion a lot more than doing the diet without it.

I did lose about 7 pounds over 6 weeks on it, but I have a problem with nuts so I was cutting out a major source of calories in the diet. Also - not being allowed to eat anything processed or packaged... cooking everything from scratch with limited time to do so... my calorie intake had nowhere to go but down :)

That said, the SCD is not a weight-loss regimen per se, and you can still be getting lots of calories depending on your approach, but if it can reboot your insides and balance out the bugs in your gut, I would guess that your weight could normalize a bit.

The other thing to consider, though, i s a possible thyroid problem. It's not uncommon in Celiacs, and if you're running 20 miles a week and still gaining I think it's worth getting checked.

Jeansy Newbie

Hi newlyfree,

I will ask my doctor to check my thyroid. I was took so many tests before my celiac diagnosis that I think my thyroid was fine but it's worth double checking. As I sit here will my belly rolling over my belt I think definitely worth double checking! :(

Are you still following the SCD and if not how long did you manage to do it? It certainly will take me a lot of time to prepare the food and at my first read of the Vicious Cycle book I was a little confused about the order in which foods should be introduced. I guess I'll have to reread it and take notes! I have a 16 month old daughter and I always plan and prepare great things for her meals but there doesn't seem to be time for me to do the same for myself.

One last question (for now!). What do you think of the author's claim that some cases of Celiac Disease can be cured by following the SCD for a year? I'm sure that if I managed to follow the diet for an entire year I wouldn't go anywhere near gluten for fear of messing up my hard earned healthy intestines!

Thank you for your response and congratulations on the healing you accomplished with the diet!

newlyfree Rookie

Hi Jeansy -

I am just now starting to go off the diet (adding rice in now, seeing how that goes). I was on it for about 2 months.

The food introduction section confused me too! I couldn't find anything at all about introducing the yogurt, though there were several warnings to 'follow the advice for when to add the yogurt' :o

So I started with just meat, eggs and veggies for a couple of days (along the lines of the 'starter diet') then added in whatever I wanted after that. But it was two weeks before I got up the nerve to make the yogurt.

Oh - another thing, they talk about dry curd cottage cheese a lot, but I've only ever found it in the store as 'farmer's cheese', make sure it's the soft kind (looks kinda like ricotta) not the hard cheddar-ish kind.

As to curing Celiac with the diet... I think the author wrote a lot of the book before much of the current Celiac research had been done. It was revised in 2004 and then included references to current research, but I think the author still had a bias towards the older ideas on Celiac. Myself, I don't think can cure celiac, because no diet can change your genes, but it will make the symptoms go away.

Sweetfudge Community Regular

Where can i find more information on the SCD? And how do you think it would work with me as a hypoglycemic? I don't know anything about it, so I am just asking.

melrobsings Contributor

What's SCD?

newlyfree Rookie

SCD is shorthand for "The Specific Carbohydrate Diet", published in the book "Breaking the Vicious Cycle" available at Amazon. It was written by a woman who used the diet to cure her daughter's colitis in the 50's.

Open Original Shared Link

The diet restricts carbohydrate intake to those that are simplest to digest - eliminating grains, sugars (except honey, which is a monosaccharide), and starchy veggies. It also incorporates probiotics through yogurt and doesn't let you eat any packaged foods or artificial ingredients, also stuff that the body doesn't digest well.

I don't know anything about hypoglycemia, so I don't know if the diet would be helpful for that, but it does help speed the process of intestinal healing by giving your body a break from the more difficult-to-break-down foods.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jeansy Newbie

I started to take a stab at concisely describing the diet and gave up. Nice job, newlyfree!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      44

      results from 13 day gluten challenge - does this mean I can't have celiac?

    2. - Wheatwacked replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      44

      results from 13 day gluten challenge - does this mean I can't have celiac?

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      44

      results from 13 day gluten challenge - does this mean I can't have celiac?

    4. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      44

      results from 13 day gluten challenge - does this mean I can't have celiac?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,427
    • Most Online (within 30 mins)
      7,748

    Elizabetht
    Newest Member
    Elizabetht
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • catnapt
      I'm not delaying my recovery- I was well on my way to recovering, IF I do have celiac disease by listening to my body and not eating the foods that made me feel ill. the drug I just stopped taking was making me incredibly ill and it's unfortunate and more than  a little frustrating that the dr  
    • Wheatwacked
      Click on the image to make it larger.  Maybe doesn't work on phone browser,  That was from 2021. Absolutely, they should be tested, The point is you have symptoms that the doctors don't understand and malabsorption may be the cause.   Not trying to.  But much of your rant includes refeferences that may indicate multiple nutritional deficiencies.     Some countries also have tax incentives and financial aid for Celiacs.   Celiac disease is recognized as a disability under the ADA because it substantially limits major life activities like eating and digestive function. Protections require reasonable accommodations in public accommodations, including schools (504 plans), colleges, and hospitals. These often include providing safe, gluten-free food, though they do not force restaurants to provide it.  As far as your recovery, eat gluten free.  Get healthier now and worry about diagnosis later.  Many here on the forum have gone ten or more years looking for a diagnosis, with many doctors and many misdiagnosis along the way. It really doesn't matter why, but you cannot eat  gluten.  That is what is important.  With gluten out of the way, maybe the doctors can make sense of your remaining symptoms.  If you need the ADA, then a medical diagnosis is the way to go.  Meantime you are delaying your recovery from whichever celiac disease or NCGS and the inevitable step one of Gluten Free Diet. tWe come to share experiences and maybe it will help someone. In reality, I don't care.  By the way I have stopped 6 medications Against Medical Advice because they did not do their job and the side effects were crippling. This is a lifelong fight for your life.  Pick you battles carefully.  Assume the worst, celiac disease, and deal with it.  Denial is not just a river in Egypt. Pleased to meet you, too.  
    • catnapt
      I can't read any of this... the print is too small and it looks like all you eat is milk, cereal cookies and some fruit..?   and some coffee?   
    • catnapt
      fortunately you don't need to understand anything that doesn't directly affect you.  🤗 you earlier assumed I was deficient in nutrients and minerals due to celiac malabsorption but...... now it doesn't matter? because why? it might mess up your deficiency argument?  if you don't know the difference between having actual celiac disease and NCGS....!!!! correct me if I'm wrong but actual celiac disease causes actual physical damage to your body and increases your risk of certain cancers... just as a start. I have an identical twin sister- IF I have celiac disease, chances are she may too. I have a daughter and other first degree relatives... you also get ADA protections with an actual celiac diagnosis.  but again, not your decision to make  nor to understand. but to suggest that there is no valid reason to find out for sure is incomprehensible on a board dedicated to celiac disease. if you ask me but you didn't so- nevermind.   don't worry though, another member has declared that in her expert opinion based on who knows what- that I don't have celiac!!!  but instead I am "full of beans" and probably killing myself for eating such scary things, I don't know.   if you think you can diagnose me off one single biomarker and a hunch of some sort...based on your history and some research study that you think is relevant- um, well, Glad to meet you, Dr McCoy aka Bones. 🫠 I did not know this was a place where strangers want to play doctor  I am hoping to hear from other members who are not so quick to make judgements and... stuff, let's just leave it at that... perhaps there aren't any.  time will tell I guess                    
    • Wheatwacked
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.