Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Do You Recommend The Specific Carbohydrate Diet?


Jeansy

Recommended Posts

Jeansy Newbie

Hi everyone,

I'm new to the forum. I was diagnosed with Celiac Disease in February and I have been gluten free ever since except for a couple of mistakes. The D stopped long ago, but by and large I am not feeling better. I'm still having pretty serious bowel activity and I typically have only minutes to get to a bathroom when I need one. Sorry for that detail.

I've also gained 10 lbs since February which is making me very uncomfortable. I'm worried that the weight gain isn't going to stop because I have put on all this weight while running around 20 miles a week.

I was wondering if people have had success with the Specific Carbohydrate Diet for weight loss and intestinal healing. I'm almost ready to try anything, but this diet seems very difficult to follow so any encouragement or advice you have would be appreciated!

Thank you!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



newlyfree Rookie

Hi Jeansy, welcome to the board!

I went on the SCD to speed my recovery, and it helped me tremendously. Make sure to do the homemade yogurt if you can - I was scared of it at first but it helped my digestion a lot more than doing the diet without it.

I did lose about 7 pounds over 6 weeks on it, but I have a problem with nuts so I was cutting out a major source of calories in the diet. Also - not being allowed to eat anything processed or packaged... cooking everything from scratch with limited time to do so... my calorie intake had nowhere to go but down :)

That said, the SCD is not a weight-loss regimen per se, and you can still be getting lots of calories depending on your approach, but if it can reboot your insides and balance out the bugs in your gut, I would guess that your weight could normalize a bit.

The other thing to consider, though, i s a possible thyroid problem. It's not uncommon in Celiacs, and if you're running 20 miles a week and still gaining I think it's worth getting checked.

Jeansy Newbie

Hi newlyfree,

I will ask my doctor to check my thyroid. I was took so many tests before my celiac diagnosis that I think my thyroid was fine but it's worth double checking. As I sit here will my belly rolling over my belt I think definitely worth double checking! :(

Are you still following the SCD and if not how long did you manage to do it? It certainly will take me a lot of time to prepare the food and at my first read of the Vicious Cycle book I was a little confused about the order in which foods should be introduced. I guess I'll have to reread it and take notes! I have a 16 month old daughter and I always plan and prepare great things for her meals but there doesn't seem to be time for me to do the same for myself.

One last question (for now!). What do you think of the author's claim that some cases of Celiac Disease can be cured by following the SCD for a year? I'm sure that if I managed to follow the diet for an entire year I wouldn't go anywhere near gluten for fear of messing up my hard earned healthy intestines!

Thank you for your response and congratulations on the healing you accomplished with the diet!

newlyfree Rookie

Hi Jeansy -

I am just now starting to go off the diet (adding rice in now, seeing how that goes). I was on it for about 2 months.

The food introduction section confused me too! I couldn't find anything at all about introducing the yogurt, though there were several warnings to 'follow the advice for when to add the yogurt' :o

So I started with just meat, eggs and veggies for a couple of days (along the lines of the 'starter diet') then added in whatever I wanted after that. But it was two weeks before I got up the nerve to make the yogurt.

Oh - another thing, they talk about dry curd cottage cheese a lot, but I've only ever found it in the store as 'farmer's cheese', make sure it's the soft kind (looks kinda like ricotta) not the hard cheddar-ish kind.

As to curing Celiac with the diet... I think the author wrote a lot of the book before much of the current Celiac research had been done. It was revised in 2004 and then included references to current research, but I think the author still had a bias towards the older ideas on Celiac. Myself, I don't think can cure celiac, because no diet can change your genes, but it will make the symptoms go away.

Sweetfudge Community Regular

Where can i find more information on the SCD? And how do you think it would work with me as a hypoglycemic? I don't know anything about it, so I am just asking.

melrobsings Contributor

What's SCD?

newlyfree Rookie

SCD is shorthand for "The Specific Carbohydrate Diet", published in the book "Breaking the Vicious Cycle" available at Amazon. It was written by a woman who used the diet to cure her daughter's colitis in the 50's.

Open Original Shared Link

The diet restricts carbohydrate intake to those that are simplest to digest - eliminating grains, sugars (except honey, which is a monosaccharide), and starchy veggies. It also incorporates probiotics through yogurt and doesn't let you eat any packaged foods or artificial ingredients, also stuff that the body doesn't digest well.

I don't know anything about hypoglycemia, so I don't know if the diet would be helpful for that, but it does help speed the process of intestinal healing by giving your body a break from the more difficult-to-break-down foods.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jeansy Newbie

I started to take a stab at concisely describing the diet and gave up. Nice job, newlyfree!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      how much gluten do I need to eat before blood tests?

    2. - catnapt posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      how much gluten do I need to eat before blood tests?

    3. - trents replied to McKinleyWY's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Accuracy of testing concerns

    4. - Theresa2407 replied to chrish42's topic in Doctors
      4

      Doctors and Celiac.com

    5. - Scott Adams replied to suek54's topic in Dermatitis Herpetiformis
      4

      Awaiting dermatitis herpetiformis confirmation following biopsy

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,254
    • Most Online (within 30 mins)
      7,748

    Christie Fassel
    Newest Member
    Christie Fassel
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome, @catnapt! The most recent guidelines are the daily consumption of a minimum of 10g of gluten (about the amount found in 4-6 slices of wheat bread) for a minimum of two weeks. But if possible stretching that out even more would enhance the chances of getting valid test results. These guidelines are for those who have been eating gluten free for a significant amount of time. It's called the "gluten challenge". 
    • catnapt
      after several years of issues with a para-gland issue, my endo has decided it's a good idea for me to be tested for celiac disease. I am 70 yrs old and stunned to learn that you can get celiac this late in life. I have just gradually stopped eating most foods that contain gluten over the past several years- they just make me feel ill- although I attributed it to other things like bread spiking blood sugar- or to the things I ate *with* the bread or crackers etc   I went to a party in Nov and ate a LOT of a vegan roast made with vital wheat gluten- as well as stuffing, rolls and pie crust... and OMG I was so sick! the pain, the bloating, the gas, the nausea... I didn't think it would ever end (but it did) and I was ready to go the ER but it finally subsided.   I mentioned this to my endo and now she wants me to be tested for celiac after 2 weeks of being on gluten foods. She has kind of flip flopped on how much gluten I should eat, telling me that if the symptoms are severe I can stop. I am eating 2-3 thin slices of bread per day (or english muffins) and wow- it does make me feel awful. But not as bad as when I ate that massive amnt of vital wheat gluten. so I will continue on if I have to... but what bothers me is - if it IS celiac, it seems stupid for lack of a better word, to intentionally cause more damage to my body... but I am also worried, on the other hand, that this is not a long enough challenge to make the blood work results valid.   can you give me any insight into this please?   thank you
    • trents
      The biopsy looks for damage to the mucosal lining of the small bowel from the inflammation caused by celiac disease when gluten is ingested. Once you remove gluten from the diet, inflammation subsides and the mucosal lining begins to heal. 
    • Theresa2407
      Our support groups in Iowa have tried for years to educate doctors and resource sites like this one.  We have held yearly conferences with continued education classes.   We have brought in Dr. Murray, Dr. Fasano, Dr. Green and Dr. elliott.  In those many years we may have had 2 doctors attend.  We sent them information, with no response.  I talked to my personal doctor and she said their training for Celiac was to show them a skinny man in boxer shorts and a huge stomach.  Saying if you see this, it is Celiac.  If it isn't in their playbook then they don't care.  Most call it an allergy with no mention of our immune system.  There is so much false information on the internet.  Then people don't understand why they can't get well and are acquiring more immune diseases. I mention this site to everyone.  Scott has working hard for the Celiac community.
    • Scott Adams
      If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.