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If It's Not Celiac, What Is It?


tuxedocat

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tuxedocat Apprentice

My blood test just came back negative... but I've had the symptoms of celiac including DH. My doctor thinks it could be my hyperthyroidism. What do y'all think?


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CarlaB Enthusiast

Are you sure it is DH? Was it biopsied?

If you really have DH that was tested to be DH, then you do have celiac.

darkangel Rookie

And false negatives are common. I think I saw where someone else posted only 30 percent of celiacs are diagnosed via blood tests.

ravenwoodglass Mentor

Try the diet before you believe those blood tests, and as stated if you have DH you need to be on the gluten free diet, period, end of story. I was always negative on blood tests and believing them cost me many many many painful years. And some permanent damage that I would not have had if I had been diagnosed when I was first symptomatic. I also have DH but it was misdiagnosed as poison ivy for years and years. You may still have other issues going on but do get on the diet strictly and those other issues may lessen or even resolve altogether.

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