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Anyone Out There Have "bladder Spasms"?

Anonymousgurl

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Anonymousgurl Contributor
Anonymousgurl
Posted

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jmengert Enthusiast
jmengert
Posted

My mom has interstitial cystitis, which sounds a lot like what you're describing. I don't know a lot about it, but try poking around the internet some and see what you can find. I do know that it is an autoimmune disease, and I've heard that it can be linked to celiac disease.

I hope you find some relief soon! If it turns out that is what it is, my mom found a lot of relief by changing her diet and by being on some minor medications for a few months.

trents Grand Master
trents
Posted

I wouldn't think bladder spasms would give you bloating. You may have a bladder problem, the frequent voiding suggests that (UTI?) but you may also have an intestinal malady like colitis.

Steve

jerseyangel Proficient
jerseyangel
Posted

I had diagnosed bladder spasms after my hysterectomy. They are quite common after abdominal surgery.

They don't cause bloating--the main symptom is pain while urinating. Not to be confused with the burning of an infection, this pain is sharp and in the area of the bladder.

loraleena Contributor
loraleena
Posted

I too have intersticial cystitis which includes these symtoms. Google it to read more. It can come and go, but I have been flaring for a couple months now. Bloating happens a lot with this. I can be fine, then I flare up, am uncomfortable and have to pee a lot. The bloating is crazy. Way more than from when I eat. Sometimes I look 5 months pregnant!

imsohungry Collaborator
imsohungry
Posted
I too have intersticial cystitis which includes these symtoms. Google it to read more. It can come and go, but I have been flaring for a couple months now. Bloating happens a lot with this. I can be fine, then I flare up, am uncomfortable and have to pee a lot. The bloating is crazy. Way more than from when I eat. Sometimes I look 5 months pregnant!

Yep, I have the same issue with the bloating b/c of IC. I often can't zip my pants all the way...when that's the case, I just put on a long t-shirt to hide my underwear :ph34r: (It's nobody's business if I'm wearing bikini cut or my "granny panties" that day!) :P

Good luck to you, Peacenlove, bladder spasms can indicate any number of things. Make an appointment with your OB/GYN and see if she'll refer you to a urologist if she can't find the problem.

Best wishes. -Julie

Anonymousgurl Contributor
Anonymousgurl
Posted
  • Author

Thank you so much, all of you, for your input.

Have any of you found any relief when you're spasming (or i jmengert's case, relief for your mom)? I tried to look up natural remedies for interstitial cystitis but I didn't come up with anything.

I hope you're all feeling well and your spasms are under control! I'm having a good today and haven't had any (though I do still have some boating, gosh I feel your pain with that one!). Does anyone know of any specific foods that cause their spasms? I know gluten is a huge one for me, but I also can't seem to tolerate oil at all...my diet has to be nonfat, which I know isn't the healthiest thing in the world.

But anyways, thanks so much...it helps to know that other people have experienced some of the same things I have!

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jmengert Enthusiast
jmengert
Posted

I know the big trigger foods for my mom are anything with acid--tomatoes, lemons, etc. Bananas are also bad, as are cranberries, interestingly since they are supposed to help UTIs. Her doctor (a specialist in IC) gave her a long list of foods to avoid. Between that and the antibiotics, she's pretty much in remission. She does avoid those foods, though, all the time.

She told me that she took Uristat (the OTC meds for UTI infection pain relief) for when the spasms got really bad, and that helped somewhat.

Betty in Texas Newbie
Betty in Texas
Posted

What a connection I had bladder problems all my life I was 52 when I got dig with celiac. I would have to soak in hot bath water for hours sometimes it would happen at 3;00 in the morning I would cry, I would have to be dialated to help with the pain and that would help to urinen to come out easier. I have been gluten free for 4 years and not more problems with the bladder it is like a miracal. Thank God.

loraleena Contributor
loraleena
Posted

There is an IC diet. It includes acidic foods , but also a lot more. Check it out on line. I use a homeopathic remedy called Cantharsis at 30c. It helps a lot. I also use a natural remedy called Cysta Q. Both seem to be helping. I take the Cantharsis 6pellets four times a day. I take 2 Cysta Q a day. One with breakfast and one with dinner. I also follow the diet.

imsohungry Collaborator
imsohungry
Posted

How ya feeling peacenlove,

Have your bladder spasms calmed down?

Take Care,

Julie :)

Anonymousgurl Contributor
Anonymousgurl
Posted
  • Author
How ya feeling peacenlove,

Have your bladder spasms calmed down?

Take Care,

Julie :)

Thanks Everyone, I really appreciate the input.

You're too sweet Julie :) I'm doing okay. For a few days I didn't have any spasms but today I tried to introduce an omega 6 capsule and had terrible spasms. I also had some pretty bad ones yesterday when I tried a B12 capsule. I checked to make sure that they are both gluten free and they are. I just seem to have a terrible time with fatty acids, even just a capsule full.

And how are you? I hope all is well!

ElenaDragon Explorer
ElenaDragon
Posted

Hello, I have Interstitial Cystitis. When it started, I had pain nearly all the time and felt like I had to pee all the time. It felt like a UTI, but without bacteria present. Early on I followed the IC diet, which is more complicated than just avoiding acidic foods... there is quite a long list of foods to avoid, foods that are safe, and foods that may or may not be okay. Still I was having problems.

There is a medication for IC called Elmiron which has helped me quite a bit once I was diagnosed. It takes many months to begin to work, but once it did I could be much more lenient with my diet and only avoid the most acidic things. I also take an over the counter supplement called Prelief before I eat acidic foods, which will take the acid out of foods when you eat them. The supplement is simply a form of calcium. Also, some people have success with freeze dried aloe vera capsules, but be careful because you would need the ones that don't have added acid and that have the laxative part of the plant removed. The most recommended brand for bladder issues is Desert Harvest.

A site I found extremely helpful for getting myself a diagnosis and figuring out the diet and other treatments is Open Original Shared Link, especially the message boards there.

Hope this helps! :)

loraleena Contributor
loraleena
Posted

I would try natural stuff first if you can. I also use prelief before everything I eat. Regarding the B-vitamins. For some reason they trigger bladder symptoms in IC patients. Not sure what to do about this because I really need to take them also. A lot of people take the cysta q with the Dessert Essence aloe vera. Good luck.

DOCKLEARFAN Apprentice
DOCKLEARFAN
Posted
Most afternoons I get these spasms in my mid section, along with some pretty bad bloating which I can't seem to get rid of (if you catch my drift...). I used to think that it was intestinal bloating and intestinal spasms, but now I'm starting to think that it may be my bladder. I have to "go" ALL the time...just about every hour or hour and a half...and I've read a little bit about "bladder spasms" and that seems to be a symptom....I was just wondering if anyone has had a similar experience with this or if they know anything about these symptoms. I just want the spasms to go away, and for my tummy to shrink back to normal!

I posted a similar response awhile ago, but its worth another post. I had massive intestinal spasms all the time. They were embarrasing as #$#@@

Anyway, there is a drug called Hyoscyamine and is controls intestinal spasms.

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    • trents
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      Good evening @EssexMum You are quite right to be concerned about this situation.  Once diagnosed as coeliac, always a coeliac, and the way to heal  is through adopting and sticking to a strict gluten diet. That said... I have travelled twice to France since my diagnosis, firstly in May 2013 and again in August 2019.   My spoken French isn't bad, and whilst there I tried my best to explain my needs to chefs and catering staff, and I read labels very carefully when shopping in supermarkets, but both times I came away with worsening gastric symptoms and pain. Interestingly,  after the second holiday, my annual coeliac review took place the following month and although I'd been very careful to avoid gluten all year, thanks to that August holiday my coeliac antibodies were elevated,  Clearly I hadn't been imagining these symptoms and they must have been caused by gluten sneaking in somehow. When I spoke to my gastroenterologist on my return, who is an excellent doctor, he told me with a smile that this was a very common experience in France among his patients, and not to worry too much about it! In fact, before we went away in May 2013, which was just after I had been formally diagnosed, he told me not to even bother trying to adopt a gluten free diet until I returned, knowing what France was like, but I was feeling so awful at that time I ignored his advice and at least tried to make a start with it. (I ought to say - both these visits were some time ago, so perhaps things are a lot better there now.) So what to do?  I would say at least try to explain to catering staff the situation - they should be able to rustle up a plate of cheese, boiled eggs, tuna, salad and fruit, and if things like crackers and gluten-free pot noodle or oats can be packed in the UK, those can be produced at mealtimes.    Of course, most larger supermarkets in France do now cater for coeliacs, but when I was last there the the choice wasn't as wide a range as we have in the UK but I think that is partly because the French like to cook from scratch, whereas our gluten-free aisles have quite a lot of dried or pre-baked goods in them/convenience foods, because I think we as a nation tend to use them more. I would be worth doing a bit of research on the internet before the trip, - the words you want are 'sans gluten'.  I've just googled 'sans gluten Disney Paris" and this came up.  I do hope at least some of this is of help. https://www.tripadvisor.co.uk/Restaurants-g2079053-zfz10992-Disneyland_Paris_Ile_de_France.html  Whatever befalls in France, at least your stepdaughter can resume her usual diet on her return. On a related tack, would you be happy to post any positive findings/tips upon her return - it might be of use to others travelling to Disneyland Paris with children in future? Cristiana
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