Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone Out There Have "bladder Spasms"?


Anonymousgurl

Recommended Posts

Anonymousgurl Contributor

deleted


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jmengert Enthusiast

My mom has interstitial cystitis, which sounds a lot like what you're describing. I don't know a lot about it, but try poking around the internet some and see what you can find. I do know that it is an autoimmune disease, and I've heard that it can be linked to celiac disease.

I hope you find some relief soon! If it turns out that is what it is, my mom found a lot of relief by changing her diet and by being on some minor medications for a few months.

trents Grand Master

I wouldn't think bladder spasms would give you bloating. You may have a bladder problem, the frequent voiding suggests that (UTI?) but you may also have an intestinal malady like colitis.

Steve

jerseyangel Proficient

I had diagnosed bladder spasms after my hysterectomy. They are quite common after abdominal surgery.

They don't cause bloating--the main symptom is pain while urinating. Not to be confused with the burning of an infection, this pain is sharp and in the area of the bladder.

loraleena Contributor

I too have intersticial cystitis which includes these symtoms. Google it to read more. It can come and go, but I have been flaring for a couple months now. Bloating happens a lot with this. I can be fine, then I flare up, am uncomfortable and have to pee a lot. The bloating is crazy. Way more than from when I eat. Sometimes I look 5 months pregnant!

imsohungry Collaborator
I too have intersticial cystitis which includes these symtoms. Google it to read more. It can come and go, but I have been flaring for a couple months now. Bloating happens a lot with this. I can be fine, then I flare up, am uncomfortable and have to pee a lot. The bloating is crazy. Way more than from when I eat. Sometimes I look 5 months pregnant!

Yep, I have the same issue with the bloating b/c of IC. I often can't zip my pants all the way...when that's the case, I just put on a long t-shirt to hide my underwear :ph34r: (It's nobody's business if I'm wearing bikini cut or my "granny panties" that day!) :P

Good luck to you, Peacenlove, bladder spasms can indicate any number of things. Make an appointment with your OB/GYN and see if she'll refer you to a urologist if she can't find the problem.

Best wishes. -Julie

Anonymousgurl Contributor

Thank you so much, all of you, for your input.

Have any of you found any relief when you're spasming (or i jmengert's case, relief for your mom)? I tried to look up natural remedies for interstitial cystitis but I didn't come up with anything.

I hope you're all feeling well and your spasms are under control! I'm having a good today and haven't had any (though I do still have some boating, gosh I feel your pain with that one!). Does anyone know of any specific foods that cause their spasms? I know gluten is a huge one for me, but I also can't seem to tolerate oil at all...my diet has to be nonfat, which I know isn't the healthiest thing in the world.

But anyways, thanks so much...it helps to know that other people have experienced some of the same things I have!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jmengert Enthusiast

I know the big trigger foods for my mom are anything with acid--tomatoes, lemons, etc. Bananas are also bad, as are cranberries, interestingly since they are supposed to help UTIs. Her doctor (a specialist in IC) gave her a long list of foods to avoid. Between that and the antibiotics, she's pretty much in remission. She does avoid those foods, though, all the time.

She told me that she took Uristat (the OTC meds for UTI infection pain relief) for when the spasms got really bad, and that helped somewhat.

Betty in Texas Newbie

What a connection I had bladder problems all my life I was 52 when I got dig with celiac. I would have to soak in hot bath water for hours sometimes it would happen at 3;00 in the morning I would cry, I would have to be dialated to help with the pain and that would help to urinen to come out easier. I have been gluten free for 4 years and not more problems with the bladder it is like a miracal. Thank God.

loraleena Contributor

There is an IC diet. It includes acidic foods , but also a lot more. Check it out on line. I use a homeopathic remedy called Cantharsis at 30c. It helps a lot. I also use a natural remedy called Cysta Q. Both seem to be helping. I take the Cantharsis 6pellets four times a day. I take 2 Cysta Q a day. One with breakfast and one with dinner. I also follow the diet.

imsohungry Collaborator

How ya feeling peacenlove,

Have your bladder spasms calmed down?

Take Care,

Julie :)

Anonymousgurl Contributor
How ya feeling peacenlove,

Have your bladder spasms calmed down?

Take Care,

Julie :)

Thanks Everyone, I really appreciate the input.

You're too sweet Julie :) I'm doing okay. For a few days I didn't have any spasms but today I tried to introduce an omega 6 capsule and had terrible spasms. I also had some pretty bad ones yesterday when I tried a B12 capsule. I checked to make sure that they are both gluten free and they are. I just seem to have a terrible time with fatty acids, even just a capsule full.

And how are you? I hope all is well!

ElenaDragon Explorer

Hello, I have Interstitial Cystitis. When it started, I had pain nearly all the time and felt like I had to pee all the time. It felt like a UTI, but without bacteria present. Early on I followed the IC diet, which is more complicated than just avoiding acidic foods... there is quite a long list of foods to avoid, foods that are safe, and foods that may or may not be okay. Still I was having problems.

There is a medication for IC called Elmiron which has helped me quite a bit once I was diagnosed. It takes many months to begin to work, but once it did I could be much more lenient with my diet and only avoid the most acidic things. I also take an over the counter supplement called Prelief before I eat acidic foods, which will take the acid out of foods when you eat them. The supplement is simply a form of calcium. Also, some people have success with freeze dried aloe vera capsules, but be careful because you would need the ones that don't have added acid and that have the laxative part of the plant removed. The most recommended brand for bladder issues is Desert Harvest.

A site I found extremely helpful for getting myself a diagnosis and figuring out the diet and other treatments is Open Original Shared Link, especially the message boards there.

Hope this helps! :)

loraleena Contributor

I would try natural stuff first if you can. I also use prelief before everything I eat. Regarding the B-vitamins. For some reason they trigger bladder symptoms in IC patients. Not sure what to do about this because I really need to take them also. A lot of people take the cysta q with the Dessert Essence aloe vera. Good luck.

DOCKLEARFAN Apprentice
Most afternoons I get these spasms in my mid section, along with some pretty bad bloating which I can't seem to get rid of (if you catch my drift...). I used to think that it was intestinal bloating and intestinal spasms, but now I'm starting to think that it may be my bladder. I have to "go" ALL the time...just about every hour or hour and a half...and I've read a little bit about "bladder spasms" and that seems to be a symptom....I was just wondering if anyone has had a similar experience with this or if they know anything about these symptoms. I just want the spasms to go away, and for my tummy to shrink back to normal!

I posted a similar response awhile ago, but its worth another post. I had massive intestinal spasms all the time. They were embarrasing as #$#@@

Anyway, there is a drug called Hyoscyamine and is controls intestinal spasms.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,590
    • Most Online (within 30 mins)
      7,748

    uhlissuh
    Newest Member
    uhlissuh
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @Ben98! If you have been consciously or unconsciously avoiding gluten because of the discomfort it produces then it is likely that your blood antibody testing for celiac disease has been rendered invalid. Valid testing requires regular consumption of generous amounts of gluten. The other strong possibility is that you have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms with celiac disease but does not have the autoimmune component and thus does not damage the small bowel lining. It is 10x mor common than celiac disease. There is currently no test for NCGS. Celiac disease must first be ruled out. Some experts in the field believe it can be a precursor to the development of celiac disease. Having one or both of the primary genes for developing celiac disease does not imply that you will develop active celiac disease. It simply establishes the potential for it. About 40% of the population has the genetic potential but only about 1% develop active celiac disease. 
    • Ben98
      TTG blood test and total IGA tested on many occasions which have always remained normal, upper GI pain under my ribs since 2022. I had an endoscopy in 2023 which showed moderate gastritis. no biopsy’s were taken unfortunately. genetic test was positive for HLADQ2. extreme bloating after eating gluten, it’ll feel like I’ve got bricks in my stomach so uncomfortably full. the pain is like a dull ache under the upper left almost like a stitch feeling after a long walk. I am just wanting some advice has anyone here experienced gastritis with a gluten issue before? thank you  
    • Wheatwacked
      "Conclusions: The urinary iodine level was significantly lower in women with postmenopausal osteoporosis, and iodine replacement may be important in preventing osteoporosis"  Body iodine status in women with postmenopausal osteoporosis Low iodine can cause thyroid problems, but Iodine deficiency will not show up in thyroid tests.  Iodine is important for healing, its job is to kill off defective and aging cells (Apoptosis). Skin, brain fog, nails, muscle tone all inproved when I started taking 600 mcg (RDA 150 - 1000 mcg) of Liquid Iodine drops. Some with dermatitis herpetiformis, Iodine exacerbates the rash.  I started at 1 drop (50 mcg) and worked up to 12 drops, but I don't have dermatitis herpetiformis.
    • cristiana
      That's great news, you can do this.  Let us know how things go and don't hesitate to ask if you have any more questions. Cristiana 😊
    • petitojou
      Thank you so much for sharing your experience and I found myself giggling with happiness as I read how your body reached such spring! And I hope that your current journey is also successful!! Definitely starting the food diary! So many amazing advices. And it’s very scary. It really hits all our soft spots as well as our confidence system. Most doctors I went thought I was underage despite being in my late 20s. Right now I look like am I twelve, but is also this body that’s taking so much, so I might as well love it too! Going to make the necessary changes and stay in this path. Thank you again! 🫶
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.