Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Why Is Dizziness A Symptom Of Cc


Guest thatchickali

Recommended Posts

Guest thatchickali

Okay I know for me (panic disorder) dizziness is my first symptom of a panic attack. People have told me it can be a symptom of CC....Is that because of panic when you read you have been contaminated or is it a symptom that the gluten creates in your body?

I hope that was understandable, I know I didn't word it well.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



angel42 Enthusiast

I get veeeeeeeeeeeery dizzy with cross contamination in addition to my gastro symptoms. I just chalked it up to the celiac.

Guest thatchickali

I've been pretty dizzy today and i've been blaming it on panic, because I feel like I've had 3 panic attacks today, which is rare for me but I am about to make a big move so i'm sure I'm stressed. Anyway I don't know what I could have eaten last night to contaminate me, but I've just been so dizzy and been going in and out of stomach aching/cramping. Had a little nausea this morning. But then I will feel fine for a while then it comes back.

I'm sure it's not a bug because I have been checking my temp and it hasn't gotten any worse.

I've only been gluten-free for 2 weeks so I don't really know what contamination feels like, esp because I didn't have diarrhea previously, I had constipation and burping.

Guest Doll

I am guessing that it is mainly due to a sudden change in blood pressure (and/or blood sugar in rare cases like mine) due to gluten exposure. For me, my body almost goes into a state of shock. Note that I am scheduled for allergy testing, as I may have a wheat allergy in addition to Celiac. I would think the vast majority of Celiacs do not develop this kind of reaction. But I could be wrong!

Some people also notice a change in heart rate (I do). That may be due to upcoming diarrhea (which causes a change in the ions of the intestines just prior), or a state of "allergic" reaction. If you are dehydrated from vomiting and the big D, this can also cause dizziness.

Lastly, there is likely also some sort of neurological connection here, if not additional reasons as well. But these are all guesses. I don't know if this has been studied or not.

NorthernElf Enthusiast

CC makes me dizzy/light headed and can give me heart palpatations/mixed up heart rate. Sometimes that's my first clue, esp. if it's just cross contamination (low dose of gluten). Before I knew anything about gluten issues, the heart palpatation thing really scared me ! It was like missing a beat here & there and then a couple of quick ones trying to catch up. I used to get tingling in my arms, foot, or my head (and that really freaked me out). Fortunately, the tingling doesn't happen anymore.

The other day I had a couple of toffees from my kids stash from a recent parade. I felt ok, a bit dizzy but didn't think much of it. The next morning I woke up and felt like I had a hangover - groggy, body sore & achy, sinus headache, gut unsettled, ugh. Delayed reaction I guess. I had chalked the evening's dizziness up to tiredness. :rolleyes:

For the most part it's my sinuses that go nuts & alert me to gluten and then the rest of it - nausea and D with more gluten or out and out gluten ingestion.

ravenwoodglass Mentor
Okay I know for me (panic disorder) dizziness is my first symptom of a panic attack. People have told me it can be a symptom of CC....Is that because of panic when you read you have been contaminated or is it a symptom that the gluten creates in your body?

I hope that was understandable, I know I didn't word it well.

You get this because for many of us gluten is a neurotoxin.

tiffjake Enthusiast
I am guessing that it is mainly due to a sudden change in blood pressure (and/or blood sugar in rare cases like mine) due to gluten exposure.

Some people also notice a change in heart rate (I do). That may be due to upcoming diarrhea (which causes a change in the ions of the intestines just prior), or a state of "allergic" reaction. If you are dehydrated from vomiting and the big D, this can also cause dizziness.

Lastly, there is likely also some sort of neurological connection here, if not additional reasons as well. But these are all guesses. I don't know if this has been studied or not.

This is my experience and belief also.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



sickchick Community Regular

I exercise every day and when I am done is when I feel the dizziest. But I definitely have that "dizzy" problem. Some days it's worse than others.

shawnatony Newbie
You get this because for many of us gluten is a neurotoxin.

Hello.

DIZZYNESS is what made me go to the dr. It was strange cause you dont hear much about the neuro. effect. Once I started digging, I knew. I found out in June and have 3 accidents since then and within that day the dizzy spells come back and IM VERY TIRED like OUT. all i can do is lay down.

Crazy.

shawnatony Newbie
You get this because for many of us gluten is a neurotoxin.

Hello.

DIZZYNESS is what made me go to the dr. It was strange cause you dont hear much about the neuro. effect. Once I started digging, I knew. I found out in June and have 3 accidents since then and within that day the dizzy spells come back and IM VERY TIRED like OUT. all i can do is lay down.

Crazy.

brendygirl Community Regular

I get VERTIGO and the dr. gives me RX kind of dramamine, but finally a new Dr. said I have fluid in my ears. Now I have an appt. with Ear/Nose/Throat specialist. So much to worry about. Sometimes I can't believe how hard it is to just take care of myself!!

  • 2 weeks later...
Cat5 Newbie

I am freaking out here because I am newly diagnosed with Celiac disease and have read so much on this website today that describes Many and most of the symptom I have been suffereing with for years and chalked it up to just getting old! I am a product of the 60's hippie scene so am probably a lot older than most of you are, but we still suffer the same problems and symptoms which are not age specific.

I've had dizziness for the past 2 years which seems to coincide with what I now know was probably the worsening of my celiac disease.

I never would have thought that now when I get the dizziness that it could be due to Cross Contamination. Cripes, I have a lot to learn with this I can see that right now.

Thanks so much for posting about this.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - NanceK replied to Jmartes71's topic in Related Issues & Disorders
      9

      My only proof

    2. - knitty kitty replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Is this celiac?

    3. - Trish G replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Fiber Supplement

    4. - trents replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Is this celiac?

    5. - trents replied to kpf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      15

      ttg iga high (646 mg/dl) other results are normal


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,352
    • Most Online (within 30 mins)
      7,748

    Teagan
    Newest Member
    Teagan
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • NanceK
      Oh wow! Thanks for this information! I’m going to try the Benfotiamine again and will also add a B-complex to my supplements. Presently, I just take sublingual B12 (methylcobalomin). Is supplementation for celiacs always necessary even though you remain gluten-free and you’re healing as shown on endoscopy? I also take D3, mag glycinate, and try to get calcium through diet. I am trying to bump up my energy level because I don’t sleep very well and feel fatigued quite often. I’m now hopeful that adding the Benfotiamine and B-complex will help. I really appreciate your explanation and advice! Thanks again Knitty Kitty!
    • knitty kitty
      @Hmart, The reason why your intestinal damage was so severe, yet your tTg IgA was so minimal can be due to cutting back on gluten (and food in general) due to worsening symptoms.  The tTg IgA antibodies are made in the intestines.  While three grams of gluten per day for several weeks are enough to cause gastrointestinal symptoms, ten grams of gluten per day for for several weeks are required to provoke sufficient antibody production so that the antibodies move out of the intestines and into the blood stream where they can be measured in blood tests.  Since you reduced your gluten consumption before testing, the antibody production went down and did not leave the intestines, hence lower than expected tTg IgA.   Still having abdominal pain and other symptoms this far out is indicative of nutritional deficiencies.  With such a severely damaged small intestine, you are not absorbing sufficient nutrients, especially Thiamine Vitamin B 1, so your body us burning stored fat and even breaking down muscle to fuel your body.   Yes, it is a very good idea to supplement with vitamins and minerals during healing.  The eight essential B vitamins are water soluble and easily lost with diarrhea.  The B vitamins all work together interconnectedly, and should be supplemented together.  Taking vitamin supplements provides your body with greater opportunity to absorb them.  Thiamine and the other B vitamins cannot be stored for long, so they must be replenished every day.  Thiamine tends to become depleted first which leads to Gastrointestinal Beriberi, a condition that doctors frequently fail to recognize.  Symptoms of Gastrointestinal Beriberi are abdominal pain and nausea, but neuropathy can also occur, as well as body and joint pain, headaches and more.  Heart rhythm disruptions including tachycardia are classic symptoms of thiamine deficiency.  Heart attack patients are routinely administered thiamine now.   Blood tests for vitamins are notoriously inaccurate.  You can have "normal" blood levels, while tissues and organs are depleted.  Such is the case with Gastrointestinal Beriberi, a thiamine deficiency in the digestive tract.  Eating a diet high in carbohydrates, like rice, starches, and sugar, can further deplete thiamine.  The more carbohydrates one eats, the more thiamine is required per calorie to turn carbs into energy.  Burning stored fats require less thiamine, so in times of thiamine shortage, the body burns fat and muscles instead.  Muscle wasting is a classic symptoms of thiamine deficiency.  A high carbohydrate diet may also promote SIBO and/or Candida infection which can also add to symptoms.  Thiamine is required to keep SIBO and Candida in check.   Thiamine works with Pyridoxine B 6, so if Thiamine is low and can't interact with Pyridoxine, the unused B 6 accumulates and shows up as high.   Look into the Autoimmune Protocol diet.  Dr. Sarah Ballantyne is a Celiac herself.  Her book "The Paleo Approach" has been most helpful to me.  Following the AIP diet made a huge improvement in my symptoms.  Between the AIP diet and correcting nutritional deficiencies, I felt much better after a long struggle with not feeling well.   Do talk to your doctor about Gastrointestinal Beriberi.  Share the article linked below. Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Keep us posted on your progress!
    • Trish G
      Thanks, that's a great addition that I hadn't thought of. 
    • trents
      Other diseases, medical conditions, medications and even (for some people) some non-gluten foods can cause villous atrophy. There is also something called refractory celiac disease but it is pretty uncommon.
    • trents
      knitty kitty asks a very relevant question. So many people make the mistake of experimenting with the gluten free diet or even a reduced gluten diet soon before getting formally tested.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.