Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Why Is Dizziness A Symptom Of Cc

Guest thatchickali

By Guest thatchickali
in Coping with Celiac Disease

Recommended Posts

Guest thatchickali
Guest thatchickali
Posted

Okay I know for me (panic disorder) dizziness is my first symptom of a panic attack. People have told me it can be a symptom of CC....Is that because of panic when you read you have been contaminated or is it a symptom that the gluten creates in your body?

I hope that was understandable, I know I didn't word it well.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


angel42 Enthusiast
angel42
Posted

I get veeeeeeeeeeeery dizzy with cross contamination in addition to my gastro symptoms. I just chalked it up to the celiac.

Guest thatchickali
Guest thatchickali
Posted

I've been pretty dizzy today and i've been blaming it on panic, because I feel like I've had 3 panic attacks today, which is rare for me but I am about to make a big move so i'm sure I'm stressed. Anyway I don't know what I could have eaten last night to contaminate me, but I've just been so dizzy and been going in and out of stomach aching/cramping. Had a little nausea this morning. But then I will feel fine for a while then it comes back.

I'm sure it's not a bug because I have been checking my temp and it hasn't gotten any worse.

I've only been gluten-free for 2 weeks so I don't really know what contamination feels like, esp because I didn't have diarrhea previously, I had constipation and burping.

Guest Doll
Guest Doll
Posted

I am guessing that it is mainly due to a sudden change in blood pressure (and/or blood sugar in rare cases like mine) due to gluten exposure. For me, my body almost goes into a state of shock. Note that I am scheduled for allergy testing, as I may have a wheat allergy in addition to Celiac. I would think the vast majority of Celiacs do not develop this kind of reaction. But I could be wrong!

Some people also notice a change in heart rate (I do). That may be due to upcoming diarrhea (which causes a change in the ions of the intestines just prior), or a state of "allergic" reaction. If you are dehydrated from vomiting and the big D, this can also cause dizziness.

Lastly, there is likely also some sort of neurological connection here, if not additional reasons as well. But these are all guesses. I don't know if this has been studied or not.

NorthernElf Enthusiast
NorthernElf
Posted

CC makes me dizzy/light headed and can give me heart palpatations/mixed up heart rate. Sometimes that's my first clue, esp. if it's just cross contamination (low dose of gluten). Before I knew anything about gluten issues, the heart palpatation thing really scared me ! It was like missing a beat here & there and then a couple of quick ones trying to catch up. I used to get tingling in my arms, foot, or my head (and that really freaked me out). Fortunately, the tingling doesn't happen anymore.

The other day I had a couple of toffees from my kids stash from a recent parade. I felt ok, a bit dizzy but didn't think much of it. The next morning I woke up and felt like I had a hangover - groggy, body sore & achy, sinus headache, gut unsettled, ugh. Delayed reaction I guess. I had chalked the evening's dizziness up to tiredness. :rolleyes:

For the most part it's my sinuses that go nuts & alert me to gluten and then the rest of it - nausea and D with more gluten or out and out gluten ingestion.

ravenwoodglass Mentor
ravenwoodglass
Posted
Okay I know for me (panic disorder) dizziness is my first symptom of a panic attack. People have told me it can be a symptom of CC....Is that because of panic when you read you have been contaminated or is it a symptom that the gluten creates in your body?

I hope that was understandable, I know I didn't word it well.

You get this because for many of us gluten is a neurotoxin.

tiffjake Enthusiast
tiffjake
Posted
I am guessing that it is mainly due to a sudden change in blood pressure (and/or blood sugar in rare cases like mine) due to gluten exposure.

Some people also notice a change in heart rate (I do). That may be due to upcoming diarrhea (which causes a change in the ions of the intestines just prior), or a state of "allergic" reaction. If you are dehydrated from vomiting and the big D, this can also cause dizziness.

Lastly, there is likely also some sort of neurological connection here, if not additional reasons as well. But these are all guesses. I don't know if this has been studied or not.

This is my experience and belief also.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


sickchick Community Regular
sickchick
Posted

I exercise every day and when I am done is when I feel the dizziest. But I definitely have that "dizzy" problem. Some days it's worse than others.

shawnatony Newbie
shawnatony
Posted
You get this because for many of us gluten is a neurotoxin.

Hello.

DIZZYNESS is what made me go to the dr. It was strange cause you dont hear much about the neuro. effect. Once I started digging, I knew. I found out in June and have 3 accidents since then and within that day the dizzy spells come back and IM VERY TIRED like OUT. all i can do is lay down.

Crazy.

shawnatony Newbie
shawnatony
Posted
You get this because for many of us gluten is a neurotoxin.

Hello.

DIZZYNESS is what made me go to the dr. It was strange cause you dont hear much about the neuro. effect. Once I started digging, I knew. I found out in June and have 3 accidents since then and within that day the dizzy spells come back and IM VERY TIRED like OUT. all i can do is lay down.

Crazy.

brendygirl Community Regular
brendygirl
Posted

I get VERTIGO and the dr. gives me RX kind of dramamine, but finally a new Dr. said I have fluid in my ears. Now I have an appt. with Ear/Nose/Throat specialist. So much to worry about. Sometimes I can't believe how hard it is to just take care of myself!!

  • 2 weeks later...
Cat5 Newbie
Cat5
Posted

I am freaking out here because I am newly diagnosed with Celiac disease and have read so much on this website today that describes Many and most of the symptom I have been suffereing with for years and chalked it up to just getting old! I am a product of the 60's hippie scene so am probably a lot older than most of you are, but we still suffer the same problems and symptoms which are not age specific.

I've had dizziness for the past 2 years which seems to coincide with what I now know was probably the worsening of my celiac disease.

I never would have thought that now when I get the dizziness that it could be due to Cross Contamination. Cripes, I have a lot to learn with this I can see that right now.

Thanks so much for posting about this.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to Jmartes71's topic in Dermatitis Herpetiformis
      1

      Natural remedies

      While it's always important to approach internal use of essential oils with caution and ideally under the guidance of a qualified professional, your experience highlights the potential of complementary approaches when traditional medicine falls short. Many in the community are also interested in the intersection of natural wellness and gluten-free living...
    2. Scott Adams
      - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Gluten and short-term memory.

      It's interesting how a single, clear moment—like struggling during a game—can suddenly connect all the dots and reveal the hidden impact of gluten exposure. Your experience with short-term memory fog is a very real and documented symptom for many individuals with gluten sensitivity, often occurring alongside the other issues you mentioned like mood disturbances, sl...
    3. Scott Adams
      - Scott Adams replied to Suze046's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Reintroduction of Gluten

      Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS. What you're describing is a very common and frustrating experience when reintroducing gluten after a period of avoidance, and your timeline is perfectly c...
    4. Scott Adams
      - Scott Adams replied to Rejoicephd's topic in Coping with Celiac Disease
      2

      Draft gluten-free ciders… can they be trusted ?

      Your suspicion is almost certainly correct, and you are wise to be cautious. Draft cider is a very common and often overlooked source of cross-contact because the same tap lines are frequently used for both beer and cider; unless a bar has a dedicated line for gluten-free beverages, which is rare, the cider will run through tubing that has previously contained...
    5. Scott Adams
      - Scott Adams replied to Mykidzz3's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      High Cost of Gluten-Free Foods

      Your post really highlights the financial and emotional struggle so many families face. You are not alone in feeling frustrated by the high cost of gluten-free specialty items and the frustrating waste when your daughter can't tolerate them. A great place to start is by focusing on naturally gluten-free whole foods that are often more affordable and...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,368
    • Most Online (within 30 mins)
      7,748
    Jdhunt
    Newest Member
    Jdhunt
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Natural remedies

      By Scott Adams · Posted

      While it's always important to approach internal use of essential oils with caution and ideally under the guidance of a qualified professional, your experience highlights the potential of complementary approaches when traditional medicine falls short. Many in the community are also interested in the intersection of natural wellness and gluten-free living, particularly for managing systemic inflammation and its various symptoms, so sharing your story is valuable. Your observation that it may also be helping with bloating is fascinating, as that could point to an overall reduction in inflammation. Thank you for sharing what is working for you!
    • Scott Adams
      Gluten and short-term memory.

      By Scott Adams · Posted

      It's interesting how a single, clear moment—like struggling during a game—can suddenly connect all the dots and reveal the hidden impact of gluten exposure. Your experience with short-term memory fog is a very real and documented symptom for many individuals with gluten sensitivity, often occurring alongside the other issues you mentioned like mood disturbances, sleep disruption, and digestive irregularity. It's a frustrating and often invisible effect that can make you feel unlike yourself, so that moment of clarity, though born from a tough dominoes match, is actually a powerful piece of self-knowledge. Identifying a specific culprit like that steak strip is a huge win, as it arms you with the information needed to avoid similar pitfalls in the future and protect your cognitive clarity. You are definitely not alone in experiencing this particular set of neurological and physical symptoms; it's a strong reminder of gluten's profound impact on the entire body, not just the digestive system. Supplementation may help you as well.  The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.      
    • Scott Adams
      Reintroduction of Gluten

      By Scott Adams · Posted

      Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS. What you're describing is a very common and frustrating experience when reintroducing gluten after a period of avoidance, and your timeline is perfectly consistent with a non-celiac gluten sensitivity. While a celiac reaction can be more immediate, a sensitivity reaction is often delayed, sometimes taking several days to manifest as your body's inflammatory response builds up; the fact that your symptoms returned a few days after reintroduction is a strong indicator that gluten is indeed the culprit, not a coincidence. Your doctor's advice to reintroduce it was necessary to confirm the diagnosis, as the initial negative celiac test and subsequent improvement on a gluten-free diet pointed strongly towards sensitivity. Many in this community have gone through this exact same process of elimination and challenging, and it's wise to reintroduce gently as you did. Given your clear reaction, the best course of action is likely to resume a strict gluten-free diet, as managing a sensitivity is the primary way to control those debilitating symptoms and allow your body to heal fully.
    • Scott Adams
      Draft gluten-free ciders… can they be trusted ?

      By Scott Adams · Posted

      Your suspicion is almost certainly correct, and you are wise to be cautious. Draft cider is a very common and often overlooked source of cross-contact because the same tap lines are frequently used for both beer and cider; unless a bar has a dedicated line for gluten-free beverages, which is rare, the cider will run through tubing that has previously contained gluten-containing beer, contaminating your drink. The fact that you didn't react at a clean brewery suggests they may have had more meticulous practices or separate lines, but this is the exception, not the rule. Many in the community have had identical experiences, leading them to strictly avoid draft cider and opt for bottled or canned versions, which are poured directly from their sealed container and bypass the contaminated tap system entirely. Switching to bottles or cans is the safest strategy, and your plan to do so is a smart move to protect your health. PS - here are some articles on the topic:    
    • Scott Adams
      High Cost of Gluten-Free Foods

      By Scott Adams · Posted

      Your post really highlights the financial and emotional struggle so many families face. You are not alone in feeling frustrated by the high cost of gluten-free specialty items and the frustrating waste when your daughter can't tolerate them. A great place to start is by focusing on naturally gluten-free whole foods that are often more affordable and less processed, like rice, potatoes, beans, lentils, corn, eggs, and frozen fruits and vegetables—these are nutritional powerhouses that can form the basis of her meals. For the specialty items like bread and pasta, see if your local stores carry smaller, single-serving packages or allow returns if a product causes a reaction, as some companies understand this challenge. Regarding vitamins, that is an excellent next step; please ask her doctor to prescribe a high-quality gluten-free multivitamin, as insurance will often cover prescribed vitamins, making them much more affordable. Finally, connecting with a local celiac support group online can be a treasure trove of location-specific advice for finding the best and most affordable products in your area, saving you both time and money on the trial-and-error process. 
×
×
  • Create New...