Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Getting Glutened By My Vitamin... But Where's The Gluten?!


mesmerize

Recommended Posts

mesmerize Apprentice

For the past several weeks, I've been having TONS of tummy issues. It seemed like I would get sick almost every afternoon at work, no matter what I ate (even if I only had leftovers that hadn't bothered me the night before). I couldn't figure it out and it was driving me crazy!

Well two days ago, I had a lightbulb-moment... What else was I having at lunch? My VITAMIN! How dumb, I can't believe I didn't figure it out before this. It all makes sense now... A few weeks ago I spent several days away on vacation and forgot my vitamins -- I was so surprised that I didn't get sick once the whole trip! Now I quit taking them again 2 days ago, and I haven't had tummy problems since then. SUCH a relief.

Anyway, I'm sitting here looking at this bottle of vitamins (OneSource Women's) which I read online was supposed to be gluten-free. I've been doing this gluten-free thing long enough that I think I know what to look for on labels, and I can't see ANYTHING even remotely suspicious on this label. What the heck? Where's the gluten coming from?? I never even thought twice about taking these because all the ingredients seemed okay AND I read that they were gluten free.

It just kills me that I've been suffering for the past several weeks without realizing that I was doing it to myself! :(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



stargazer Rookie

Hi mesmerize, I had the same problem when I first went gluten free. I don't think they list all the inactive ingredients that they use to "stabalize" the tablet when making it. You have to call the company. If they aren't straight forward, then switch to another brand. Good luck. :)

somegirl2004 Newbie

I used to have the same problem. All of the supposedly gluten-free vitamins I was trying made me incredibly nauseous within an hour of taking them. I tried so many different kinds and they all made me sick, even though they were gluten free. I even refused to take vitamins for awhile!! After being lectured by my nurse practitioner and my mom, I decided to continue on my search for a vitamin that didn't make me feel like laying in the fetal position for hours! :) Anyway, I'm now on Nature Made Multi Daily, though I'm gonna try the kind made just for women after this bottle runs out. It even says "No Chmical Solvents, Yeast, or Gluten" on the back!

Anyway, good luck searching for a vitamin! I know it can be frustrating!!

-- Erin

Phyllis28 Apprentice

I only use vitamins that are labled on the bottle "No Gluten". I have used Nature Made without any problems. Please note Nature Made is sold at Costco in large sizes which reduces the cost.

mesmerize Apprentice

Awesome, I think I'm going to stop on my way home from work and try to find some Nature Made ones. Thanks so much for the recommendation!

I was also thinking that maybe there was something else in my vitamin that was making me sick... I mean, besides gluten. Like a reaction to one of the specific vitamins or something. I have no idea though -- any ideas?

-Sara-

ArtGirl Enthusiast

I've been having similar problems with vitamins, too. Just a week or so ago I decided the return of my GI symptoms and fatigue was related to my supplements. Which ones??? Not sure. So I stopped all of them. Now I'm giong to reintroduce them one at a time.

I am NOT, however, going to take the multi-vitamins again. I'm almost SURE I get a reaction to them. Probably not gluten, though. It's most likely related to my corn allergy (vit. c and e are usually made from corn, although the bottle says no corn).

Supplements can be real tricky for people with other food allergies - especially the multi-vitamins.

tiffjake Enthusiast

I have seen wheat and barley in some meds, which makes no sense to me, there are other starches and flavorings to use....but anyway, I use GNC multi's. They are gluten free, soy free, I think corn free, lots of stuff free. And they are pretty cheap, unlike a lot of "special" vitamins. :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dadoffiveboys Rookie

My new practice in identifying gluten in things.. I don't call.. I make the PHARMACIST do it (that's their job!!). Even if you buy an in-store product.. they are required to check for allergins for you. I also found they get much more knowledgable reps then you would!! BTW - most are switching to using Xanthum Gum and Corn starch for stabalizers but you do have to ask by brand.

I also made the Pharmacist stick in my file (and my children's file) gluten allergy and to make sure everything is gluten-free.

hathor Contributor

Hi, mesmorize ...

I see you are limiting soy. Do you react to it? If so, do your offending vitamins SAY they are soy free? Many vitamins do contain soy and may not list this in the ingredients. I was having a reaction to a new supplement & I emailed the company. Sure enough, soy.

buffettbride Enthusiast

My husband and I have problems with vitamins in general and we are not gluten-free, just our DD. We both get sick when we taking vitamins w/ Iron. We both puke within about 30 minutes of taking it.

We loved the One A Day Carb Smart (I don't know if it is gluten-free or not) but they don't make it any more. It did not have any added iron assuming a low-carb eater would be eating a lot of lean meat w/ plenty of iron.

So, my point is, maybe find a low/no-iron vitamin that is gluten-free and give that a try.

tiffjake Enthusiast
My new practice in identifying gluten in things.. I don't call.. I make the PHARMACIST do it (that's their job!!). Even if you buy an in-store product.. they are required to check for allergins for you. I also found they get much more knowledgable reps then you would!! BTW - most are switching to using Xanthum Gum and Corn starch for stabalizers but you do have to ask by brand.

I also made the Pharmacist stick in my file (and my children's file) gluten allergy and to make sure everything is gluten-free.

Great advice, just be sure that it is actually the pharmacist that fills your script, and not the tech, like in most major chains (Wal-mart, Walgreens, etc). Also, pharmacists do not handle vitamins that are OTC, so that might pose a problem if you are counting on them to know that information......

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

    2. - knitty kitty replied to Jordan Carlson's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Fruits & Veggies

    3. - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

    4. - trents replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,017
    • Most Online (within 30 mins)
      7,748

    Kayy
    Newest Member
    Kayy
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed.   Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    • knitty kitty
      Hello, @Jordan Carlson, So glad you're feeling better.   Tecta is a proton pump inhibitor.  PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12.  Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the production of digestive juices (stomach acids).  This results in foods not being digested thoroughly.  If foods are not digested sufficiently, the vitamins and other nutrients aren't released from the food, and the body cannot absorb them.  This sets up a vicious cycle. Acid reflux and Gerd are actually symptoms of producing too little stomach acid.  Insufficient stomach acid production is seen with Thiamine and Niacin deficiencies.  PPI's like Tecta also block the transporters that pull Thiamine into cells, preventing absorption of thiamine.  Other symptoms of Thiamine deficiency are difficulty swallowing, gagging, problems with food texture, dysphagia. Other symptoms of Thiamine deficiency are symptoms of ADHD and anxiety.  Vyvanse also blocks thiamine transporters contributing further to Thiamine deficiency.  Pristiq has been shown to work better if thiamine is supplemented at the same time because thiamine is needed to make serotonin.  Doctors don't recognize anxiety and depression and adult onset ADHD as early symptoms of Thiamine deficiency. Stomach acid is needed to digest Vitamin C (ascorbic acid) in fruits and vegetables.  Ascorbic acid left undigested can cause intestinal upsets, anxiety, and heart palpitations.   Yes, a child can be born with nutritional deficiencies if the parents were deficient.  Parents who are thiamine deficient have offspring with fewer thiamine transporters on cell surfaces, making thiamine deficiency easier to develop in the children.  A person can struggle along for years with subclinical vitamin deficiencies.  Been here, done this.  Please consider supplementing with Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) which helps immensely with dysphagia and neurological symptoms like anxiety, depression, and ADHD symptoms.  Benfotiamine helps with improving intestinal health.  A B Complex and NeuroMag (a magnesium supplement), and Vitamin D are needed also.
    • knitty kitty
      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1.   There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine.   In Thiamine deficiency, the body burns its stored fat as a source of fuel.  That fat pad between the aorta and digestive system gets used as fuel, too. Ask for an Erythrocyte Transketolace Activity test to look for thiamine deficiency.  Correction of thiamine deficiency can help restore that fat pad.   Best wishes for your recovery!   Interesting Reading: Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pubmed.ncbi.nlm.nih.gov/31089433/#:~:text=Affiliations,tissue and results in SMAS.  
    • trents
      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an attack on the villous lining of the small bowel. This is the section of the intestines where all our nutrition is absorbed. It is made up of billions of tiny finger-like projections that create a tremendous surface area for absorbing nutrients. For the person with celiac disease, unchecked gluten consumption generates inflammation that wears down these fingers and, over time, greatly reduces the nutrient absorbing efficiency of the small bowel lining. This can generate a whole host of other nutrient deficiency related medical problems. We also now know that the autoimmune reaction to gluten is not necessarily limited to the lining of the small bowel such that celiac disease can damage other body systems and organs such as the liver and the joints and cause neurological problems.  It can take around two years for the villous lining to completely heal but most people start feeling better well before then. It's also important to realize that celiac disease can cause intolerance to some other foods whose protein structures are similar to gluten. Chief among them are dairy and oats but also eggs, corn and soy. Just keep that in mind.
    • pothosqueen
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.