Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Enterolab Results

ravenwoodglass

Recommended Posts

ravenwoodglass Mentor
ravenwoodglass
Posted

I have wondered for awhile what my genes were, I told DH that from what I have seen of others here that I thought I was DQ1, I was right, twice. He was sure I would have a 'celiac' gene because I was so extremely sick at diagnosis. I thought since my neuro symptoms were present since childhood but GI only became a problem after kids were born that I was going to have 'gluten intolerance' genes.

After my bout with diverticulitis I have just not been the same so I decided to test for other sensitivities. My worst fears are realized with soy and casien showing up. I have recently challenged soy so this was no surprise but I did think I would be okay with dairy. Not much let to eat, wish I had that pizza yesterday.

Egg, Yeast, and Soy Food Sensitivity Stool Panel

Fecal anti-ovalbumin (chicken egg) IgA antibody 6 Units (Normal Range <10 Units)

Fecal Anti-Saccharomyces cerevisiae (dietary yeast) IgA 6 Units (Normal Range <10 Units)

Fecal Anti-Soy IgA 11 Units (Normal Range <10 Units)

Cow's Milk Protein Sensitivity Stool Test

Fecal anti-casein (cow's milk) IgA antibody 12 Units (Normal Range <10 Units)

Gluten Sensitivity Gene Test

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


AndreaB Contributor
AndreaB
Posted

Isn't dq1 different from dq9?

I think you're the first I've read with a dq9.

ravenwoodglass Mentor
ravenwoodglass
Posted
  • Author
Isn't dq1 different from dq9?

I think you're the first I've read with a dq9.

I think it is the subtype that is 9,9 at the very end, is that what you refer to? I don't understand what exactly subtype means unless it is a further narrowing in the genetic pool. Hopefully someone will post with more insight.

EBsMom Apprentice
EBsMom
Posted
Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

Ravenwoodglass - I think you're a double DQ 3 (subtype 9), not DQ 1. My ds is a double 3 also (subtype 7.) He's 12 and his symptoms are only neurological at this point....no GI involvment. It sounds like the same pattern that you had (have.) I hear you about the no dairy, no soy....my dd and I are living that one right now, and it can be limiting. Thank goodness my dd is not a picky eater or I don't know what we'd do!!!

Rho

AndreaB Contributor
AndreaB
Posted
Ravenwoodglass - I think you're a double DQ 3 (subtype 9), not DQ 1.

That is correct. I don't know why the subtypes of three are referred as the dq but that is what I've read of everyone's posts.

I have DQ7 (or 3 subtype 7) along with the DQ2. The subtype 8 of the DQ3 is referred to as DQ8 the celiac gene. Makes me wonder why the DQ8 has been considered a celiac gene and not the 7 or the 9. Isn't DQ2 the most common celiac gene that they've identified though.

The 7 is 0301; 8 is 0302; and the 9 is 0303.

ravenwoodglass Mentor
ravenwoodglass
Posted
  • Author

Thanks for the attempt to clarify. So I am a double DQ3, I take it this means both my parents contributed one DQ3 gene, am I right on that?

AndreaB Contributor
AndreaB
Posted
Thanks for the attempt to clarify. So I am a double DQ3, I take it this means both my parents contributed one DQ3 gene, am I right on that?

Yep, you got one from each parent you all your children will have one copy. I'd probably refer to you as double DQ9 though since the subtypes are what are referred to with the three's anyway.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • 3 weeks later...
Miriam3 Rookie
Miriam3
Posted

Hi Ravenwoodglass,

In case you're feeling alone in gene land, here are my new results:

A) Gluten Sensitivity Stool and Gene Panel Complete *Best test/best value

Fecal Antigliadin IgA 10 (Normal Range <10 Units)

Fecal Antitissue Transglutaminase IgA 7 Units (Normal Range <10 Units)

Quantitative Microscopic Fecal Fat Score 893 Units (Normal Range <300 Units)

Fecal anti-casein (cow

  • 2 weeks later...
sfm Apprentice
sfm
Posted
Hi Ravenwoodglass,

In case you're feeling alone in gene land, here are my new results:

A) Gluten Sensitivity Stool and Gene Panel Complete *Best test/best value

Fecal Antigliadin IgA 10 (Normal Range <10 Units)

Fecal Antitissue Transglutaminase IgA 7 Units (Normal Range <10 Units)

Quantitative Microscopic Fecal Fat Score 893 Units (Normal Range <300 Units)

Fecal anti-casein (cow

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,855
    • Most Online (within 30 mins)
      7,748
    Tara M
    Newest Member
    Tara M
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • cristiana
      Ibuprofen

      By cristiana · Posted

      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
    • Me,Sue
      Knowing what to do when feeling unwell.

      By Me,Sue · Posted

      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed that I feel nauseous after possibly being glutened. I think the thing that I have got better at is knowing what to do when I feel wiped out after a gluten 'episode'. I drink loads of water, and have just started drinking peppermint tea. I also have rehydration powders to drink. I don't feel like eating much, but eventually feel like I need to eat. Gluten free flapjacks, or gluten free cereal, or a small gluten free kids meal are my go to. I am retired, so luckily I can rest, sometimes even going to bed when nothing else works. So I feel that I am getting better at knowing how to try and get back on track. I am also trying to stick to a simpler menu and eat mostly at home so that I can be more confident about what I am eating. THANKS TO THOSE WHO REPLIED ABOUT THE NAUSEA .
    • Francis M
      The Happy Tart review

      By Francis M · Posted

      Thanks. Since the back and forth and promises of review and general stalling went on for more than six months, the credit company will no longer investigate. They have a cutoff of maybe six months.
    • Scott Adams
      The Happy Tart review

      By Scott Adams · Posted

      Is this the same restaurant? https://www.facebook.com/TheHappyTartFallsChurch/ Is it too late to take this up with your credit card company? Normally you have a few months to do a chargeback with them. It seems very odd that they are taking this approach with someone who is likely to be a regular customer--not a good business-minded way of handling things!
    • Scott Adams
      Stomach burning and neuropathy

      By Scott Adams · Posted

      Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.