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Dehydrated


holdthegluten

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holdthegluten Rising Star

I was glutened about a week ago and i having been having major dehydration. Is there a relation to celiac and being dehydrated. It seems to be mainly after a glutening. I have been dizzy and dry mouth for the last week. Why does stomach issues cause dizziness?


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GFhopeful Rookie

don't know why but i have dizziness and dehydration issues too since pre-dagnosis and then on and off since going gluten-free. just wanted to say you're not alone on this but wish I knew why and how to fix it, besides being extremely careful with food, like I already am and I'm sure you are too. it's a weird disease. recently (never before) i have to burp like crazy too. so much fun!

mamaw Community Regular

try re-hydration drops... they really work --you add them to water & drink through out the day.

GFhopeful Rookie

try re-hydration drops... they really work --you add them to water & drink through out the day.

CarlaB Enthusiast

I find that drinks designed to rehydrate help because they have a better electrolyte balance. I like Propel ... Gatorade is good, too, but has more sugar.

For dehydration a simple recipe is to use one quart of water, 1 tsp. salt (good quality sea salt with balanced minerals - like "Real Salt"), and 6 tsp. sugar. I sprinkle Real Salt in my water when I'm feeling slightly dehydrated ... it still has all the minerals in tact, unlike table salt.

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    • Rogol72
      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
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