Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Negative Enterolab Test

Sally's Mommy

Recommended Posts

Sally's Mommy Newbie
Sally's Mommy
Posted

I have posted here off and on, questioning whether or not my daughter and I have problems with gluten sensitivity. I finally ordered the Enterolab test, and it came back negative! I wanted to post this, because I know the question often comes up wondering whether or not anyone ever gets a negative test from them. Well, I did! I'm relieved, but still wondering what's up with me. I do have psoriasis, and I do have loose stool (in fact, that was the one "positive" on my Enterolab test--my fecal fat score). I'm not sure what to make of that, but I guess I'll have to play around with my diet and figure out what's up there.

Anyway, yes Enterolab DOES come back negative for some people! Hope that helps someone on the fence about testing with them.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


bakinghomesteader Contributor
bakinghomesteader
Posted

That is so weird! I was just going to post that question. "Has anyone ever gotten a negative result from Enterolab" I just got mine back today, they were positive. Just confirmed what I thought. Now my husband will be even more supportive. :P

CarlaB Enthusiast
CarlaB
Posted

You might look into bacterial dysbiosis, it can cause malabsorption and diarrhea, and a whole slew of other symptoms.

Congrats on the negative test!!!!

gfpaperdoll Rookie
gfpaperdoll
Posted

I would pursue other testing but I would also go back to enterolab & get the gene test.

Also, you can just do a dietary trial & see if you get better, if you do then there is your answer...

dally099 Contributor
dally099
Posted

hi there, my tests were negative as well, by one point, however my gene screening came back that im a DQ8, sooooo i talked to the nurse there and she told me that i probably caught it early a year from now the numbers would probably be higher, so i have been gluten free for 6 months now and feel much better. good luck in your search, i hope you are feeling better soon,

confused Community Regular
confused
Posted
I have posted here off and on, questioning whether or not my daughter and I have problems with gluten sensitivity. I finally ordered the Enterolab test, and it came back negative! I wanted to post this, because I know the question often comes up wondering whether or not anyone ever gets a negative test from them. Well, I did! I'm relieved, but still wondering what's up with me. I do have psoriasis, and I do have loose stool (in fact, that was the one "positive" on my Enterolab test--my fecal fat score). I'm not sure what to make of that, but I guess I'll have to play around with my diet and figure out what's up there.

Anyway, yes Enterolab DOES come back negative for some people! Hope that helps someone on the fence about testing with them.

Did you get the casein test to, or just the basic stool testing with the malabsorption. Casein could be causing the malabsorption. Would you mind posting all of your scores. It could be possible that maybe u are just IGa deficient and still be reacting to gluten.

paula

Sally's Mommy Newbie
Sally's Mommy
Posted
  • Author
Would you mind posting all of your scores. It could be possible that maybe u are just IGa deficient and still be reacting to gluten.

paula

Sure--here are my results:

Fecal Antigliadin IgA 9 (Normal Range <10 Units)

Fecal Antitissue Transglutaminase IgA 9 Units (Normal Range <10 Units)

Quantitative Microscopic Fecal Fat Score 399 Units (Normal Range <300 Units)

Cow's Milk Protein Sensitivity Stool Test

Fecal anti-casein (cow's milk) IgA antibody 8 Units (Normal Range <10 Units)

Acute/Chronic Colitis Stool Test

Fecal lactoferrin Negative (Normal - Negative)

I did not get the gene testing done. Maybe I should have, but from what I've seen on here (and several months back there was a big discussion about this) pretty much everyone shows up as having genes that could predispose them to celiac disease. Right? :blink:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


holiday16 Enthusiast
holiday16
Posted

Just have to add that I called and talked with the nurse at Enterolab because so many people in my family got tested and the results would be borderline postive except for one person that was borderline negative. My question to her was if it was possible that showed a trend towards possible low IGA since it is genetic. She thought it might so I went to my Dr. and had my total IGA tested. It came back as about 67 the first time and 71 the second time I had it rechecked, with the lower end of normal being 80. So it was low, but not super low. It would be enough to skew the results of the test however. Even though my symptoms were so severe and I am super sensitive to gluten I only scored an 11 which didn't quite match up, but having low IGA explained why my numbers were so low and yet I improved so much.

Just another factor to consider as someone mentioned. I think celiacs are 10 times more likely to have low IGA if I remember right.

PeggyV Apprentice
PeggyV
Posted
Sure--here are my results:

Fecal Antigliadin IgA 9 (Normal Range <10 Units)

Fecal Antitissue Transglutaminase IgA 9 Units (Normal Range <10 Units)

Quantitative Microscopic Fecal Fat Score 399 Units (Normal Range <300 Units)

Cow's Milk Protein Sensitivity Stool Test

Fecal anti-casein (cow's milk) IgA antibody 8 Units (Normal Range <10 Units)

Acute/Chronic Colitis Stool Test

Fecal lactoferrin Negative (Normal - Negative)

I did not get the gene testing done. Maybe I should have, but from what I've seen on here (and several months back there was a big discussion about this) pretty much everyone shows up as having genes that could predispose them to celiac disease. Right? :blink:

I had the Enterolab test done also. I was in the normal range also, even though they told me my Fecal Fat score was 435. I had the gene test and they told me I had 2 gluten intolerant genes. HA-DQ 3,1 (subtype 9,5) they told me I had no active gluten sensitivity. I had been gluten free about 5 months and gluten light for years.

I have been gluten free almost a year now, and I do know that if I accidently consume gluten in even small amounts I bloat up, get D, get a sharp pain down my leg, get back aches and feel tired this lasts for days up to 2 weeks. I also break out in clusters of small blisters the itch terribly and turn bright red/purple, usually on my hands, arms, stomach, legs and recently foot. Despite what Entrolab says, I strongly suspect I have Celiacs and dont plan to change my diet. I cant even imagine what eating gluten again on purpose would do! I am not going to pursue a diagnosis because we are retiring in the next 5 years and will need to find insurance.

Good luck, I hope you find what is wrong.

Peggy

dally099 Contributor
dally099
Posted

i would say you are pretty borderline, talk with the nurse at entrolab and get her thoughts. their are pretty helpfull there, GOOD LUCK

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,393
    • Most Online (within 30 mins)
      7,748
    HeckelCrazy
    Newest Member
    HeckelCrazy
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Coeliac UK Research Conference 2025

      By Scott Adams · Posted

      Thanks for sharing this!
    • Scott Adams
      Shingles - Could It Be Related to Gluten/ Celiac

      By Scott Adams · Posted

      I had the same thing happen to me at around your age, and to this day it's the most painful experience I've ever had. For me it was the right side of my head, above my ear, running from my nerves in my neck. For years before my outbreak I felt a tingling sensation shooting along the exact nerves that ended up exactly where the shingles blisters appeared. I highly recommend the two shot shingles vaccine as soon as your turn 50--I did this because I started to get the same tingling sensations in the same area, and after the vaccines I've never felt that again.  As you likely know, shingles is caused by chicken pox, which was once though of as one of those harmless childhood viruses that everyone should catch in the wild--little did they know that it can stay in your nervous system for your entire life, and cause major issues as you age.
    • trents
      Blood tests low iGA 4 years later digestive issues

      By trents · Posted

      Keep us posted.
    • Clear2me
      Gluten free nuts

      By Clear2me · Posted

      Thanks for the info. I recently moved to CA from Wyoming and in that western region the Costco and Sam's /Walmart Brands have many nuts and more products that are labeled gluten free. I was told it's because those products are packaged and processed  in different  plants. Some plants can be labeled  gluten free because the plant does not also package gluten products and they know that for example the trucks, containers equipment are not used to handle wheat, barely or Rye. The Walmart butter in the western region says gluten free but not here. Most of The Kirkland and Members Mark brands in CA say they are from Vietnam. That's not the case in Wyoming and Colorado. I've spoken to customer service at the stores here in California. They were not helpful. I check labels every time I go to the store. The stores where I am are a Sh*tshow. The Magalopoly grocery chain Vons/Safeway/Albertsons, etc. are the same. Fishers and Planters brands no longer say gluten free. It could be regional. There are nuts with sugar coatings and fruit and nut mixes at the big chains that are labeled gluten free but I don't want the fruit or sugar.  It's so difficult I am considering moving again. I thought it would be easier to find safe food in a more populated area. It's actually worse.  I was undiagnosed for most of my life but not because I didn't try to figure it out. So I have had all the complications possible. I don't have any spare organs left.  No a little gluten will hurt you. The autoimmune process continues to destroy your organs though you may not feel it. If you are getting a little all the time and as much as we try we probably all are and so the damage is happening. Now the FDA has pretty much abandoned celiacs. There are no requirements for labeling for common allergens on medications. All the generic drugs made outside the US are not regulated for common allergens and the FDA is taking the last gluten free porcine Thyroid med, NP Thyroid, off the market in 2026. I was being glutened by a generic levothyroxin. The insurance wouldn't pay for the gluten free brand any longer because the FDA took them all off their approved formulary. So now I am paying $147 out of pocket for NP Thyroid but shortly I will have no safe choice. Other people with allergies should be aware that these foreign generic pharmaceutical producers are using ground shellfish shell as pill coatings and anti-desicants. The FDA knows this but  now just waits for consumers to complain or die. The take over of Wholefoods by Amazon destroyed a very reliable source of good high quality food for people with allergies and for people who wanted good reliably organic food. Bezos thought  he could make a fortune off people who were paying alot for organic and allergen free food by substituting cheap brands from Thailand. He didn't understand who the customers were who were willing to pay more for that food and why. I went from spending hundreds to nothing because Bezo removed every single trusted brand that I was buying. Now they are closing Whole foods stores across the country. In CA, Mill Valley store (closed July 2025) and the National Blvd. store in West Los Angeles (closed October 2025). The Cupertino store will close.  In recent years I have learned to be careful and trust no one. I have been deleberately glutened in a restaurant that was my favorite (a new employee). The Chef owner was not in the kitchen that night. I've had  a metal scouring pad cut up over my food.The chain offered gluten free dishes but it only takes one crazy who thinks you're a problem as a food fadist. Good thing I always look. Good thing they didn't do that to food going to a child with a busy mom.  I give big tips and apologize for having to ask in restaurants but mental illness seem to be rampant. I've learn the hard way.          I don't buy any processed food that doesn't say gluten free.  I am a life long Catholic. I worked for the Church while at college. I don't go to Church anymore because the men at the top decided Jesus is gluten. The special hosts are gluten less not gluten free. No I can't drink wine after people with gluten in their mouth and a variety of deadly germs. I have been abandoned and excluded by my Church/Family.  Having nearly died several times, safe food is paramount. If your immune system collapses as mine did, you get sepsis. It can kill you very quickly. I spent 5 days unconscious and had to have my appendix and gall bladder removed because they were necrotic. I was 25. They didn't figure out I had celiac till I was 53. No one will take the time to tell you what can happen when your immune system gets overwhelmed from its constant fighting the gluten and just stops. It is miserable that our food is processed so carelessly. Our food in many aspects is not safe. And the merging of all the grocery chains has made it far worse. Its a disaster. Krogers also recently purchased Vitacost where I was getting the products I could no longer get at Whole Foods. Kroger is eliminating those products from Vitacost just a Bezos did from WF. I am looking for reliable and certified sources for nuts. I have lived the worst consequences of the disease and being exposed unknowingly and maliciously. Once I was diagnosed I learned way more than anyone should have to about the food industry.  I don't do gray areas. And now I dont eat out except very rarely.  I have not eaten fast food for 30 years before the celiac diagnosis. Gluten aside..... It's not food and it's not safe.  No one has got our backs. Sharing safe food sources is one thing we can do to try to be safe.        
    • Mmoc
      Blood tests low iGA 4 years later digestive issues

      By Mmoc · Posted

      Thank you kindly for your response. I have since gotten the other type of bloods done and am awaiting results. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.