Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Long Does Dizziness Last If It's Cc?


Guest thatchickali

Recommended Posts

Guest thatchickali

I've seen my doctor for my dizziness that comes and goes and I've had all the tests. So right now we think it's either anxiety symptoms, or CC from gluten. I just don't know right now because I have stress that I'm dealing with (classes start tomorrow) but I've been so careful fixing my food and I've been sticking to only foods that are made to be gluten-free (not mainstream grocery store foods).

Anyway, the question is, how long does the dizziness last if I am getting glutened?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Cat5 Newbie

Whoa, I just saw your message about the Dizziness. I never equated dizziness with Celiac disease, but I am newly diagnosed so am still learning a lot about this.

However for months I have had off and on unexplained dizziness too. Some days its worse than others. I thought it was just due to old age, but perhaps not.

I sure would like to learn more about this. And pardon me for being old fashioned but what do you mean by "CC"? Is that short for Celiac something or other?

Thanks

Guest thatchickali

It's Cross- Contamination. I think people use it a lot on the site.

I'm only 19 with it, so I don't think mine is old age, although I do feel a lot older than my friends out here at college....not able to eat pizza and fast food and all.

Hope your dizziness is better!

Yellow Rose Explorer

My dizzyness from cross contamination (CC) or glutening myself usually lasts about a week. I will have it every time I stand up in the beginning and as the week progresses it gets less and less. It drove me nuts in the beginning. I thought I was having inner ear problems or like you was just getting old. But after I read about it on this web site I started noticing it came for me with an itch as well. Then the pain in my joints and muscles would get worse and I started looking to see what I had done wrong and found I was glutening myself.

Yellow Rose

  • 1 year later...
McRhonda Newbie
:o I'm so glad that I stumbled across this post!! I've had this problem for a long time and it's been driving me nuts. I didn't and think about connecting it to my Celiac. I guess I must be getting glutened somehow and I will have to figure out how. Thanks guys! :)
ShayFL Enthusiast

When I get CC my first reaction is vertigo. I have had vertigo for over 12 years. It has nearly disappeared gluten-free (and grain free). But if I get some, I get the vertigo. For me it only lasts a couple of days followed by a migraine. Thankfully it has only happened twice in the past 5+ months. Before gluten-free I would have migraines 2 times a month or more.

So this is a MAJOR improvement for me. :)

Hang on.....it gets better.

GFinDC Veteran

I have what I Think is something called sycope happening now. I just start to fall over in my chair and then snap back aware. I haven't figured out any certain relation to dizzynesss and glutening time frames. Could be you have an inner ear thing going on also. Allergies can do that and make a person dizzy.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



JNBunnie1 Community Regular
I have what I Think is something called sycope happening now. I just start to fall over in my chair and then snap back aware. I haven't figured out any certain relation to dizzynesss and glutening time frames. Could be you have an inner ear thing going on also. Allergies can do that and make a person dizzy.

Yeah, I couldn't stand up straight all last week, definitely an inner ear thing for me, I was NOT Cc'd. You might look into getting adjusted by a chiropractor, that always fixes my problem.

Treen Bean Apprentice

Me too! Whenever I get CC I get really dizzy, tired, and start losing feeling in my hands and feet. Then I get a migraine, etc....

I've learned to push through the symptoms (if it's only trace amounts of CC), but I still feel awful for days after.

Treen Bean

gluten-free for 2 years!

sickchick Community Regular

I had accidental glutening 2 nights in a row (my bad) and yesterday when I was on my walk, I literally had to grab onto the closest street sign until my head straightened back out....

mine last a while. hang in there toots!!!

utahlaura Apprentice
I've seen my doctor for my dizziness that comes and goes and I've had all the tests. So right now we think it's either anxiety symptoms, or CC from gluten. I just don't know right now because I have stress that I'm dealing with (classes start tomorrow) but I've been so careful fixing my food and I've been sticking to only foods that are made to be gluten-free (not mainstream grocery store foods).

Anyway, the question is, how long does the dizziness last if I am getting glutened?

Oh sure! That's a celiac thing. I get dizzyness, loss of balance, ringing in the ears, extreme irritability, disorentation,numbness and neuropathry in the extremities, and bone and joint pain all accompanied by extreme sleepiness and exhaustion. But you can't lay down cause it makes it worse. AAAUUGGHH!!!

My reations always get better in sequence. First I feel better mentally ( less sort of creeped out feeling or basic anxiety) then I know the dizzyness and and balance problem goes. Numbness next, but the joint pain lasts longer. Usually 24 hours or so, but the disorentation ( I call it the Jessica Simpson complex) and ringing in the head can go on for days with any food at all stirring things up and I have to be really careful eating too much at a time.

I'm losing too much weight and worry about being malnourished. I take good vitamins and calcium too because after a bad reaction I have to eat nearly nothing for a few days so as not to "stir things up again" I've been told that when this kind of thing happens some Celiacs take laxative to clear out whatever caused the darned crap in the first place cause it can take a few days to natually void it out. I haven't tried that yet. It seems so drastic! But I almost did that this weekend. My reaction ruined my weekend totally. I'm going to ask my doc about the laxative thing to make sure it's OK occasionally before I do that.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - JoJo0611 replied to JoJo0611's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      CT with contrast.

    2. - Scott Adams replied to Ginger38's topic in Related Issues & Disorders
      2

      Shingles - Could It Be Related to Gluten/ Celiac


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,398
    • Most Online (within 30 mins)
      7,748

    Megannnnn
    Newest Member
    Megannnnn
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • JoJo0611
      I didn’t know there were different types of CT. I’m not sure which I had. It just said CT scan with contrast. 
    • Scott Adams
    • Scott Adams
      I had the same thing happen to me at around your age, and to this day it's the most painful experience I've ever had. For me it was the right side of my head, above my ear, running from my nerves in my neck. For years before my outbreak I felt a tingling sensation shooting along the exact nerves that ended up exactly where the shingles blisters appeared. I highly recommend the two shot shingles vaccine as soon as your turn 50--I did this because I started to get the same tingling sensations in the same area, and after the vaccines I've never felt that again.  As you likely know, shingles is caused by chicken pox, which was once though of as one of those harmless childhood viruses that everyone should catch in the wild--little did they know that it can stay in your nervous system for your entire life, and cause major issues as you age.
    • trents
    • Clear2me
      Thanks for the info. I recently moved to CA from Wyoming and in that western region the Costco and Sam's /Walmart Brands have many nuts and more products that are labeled gluten free. I was told it's because those products are packaged and processed  in different  plants. Some plants can be labeled  gluten free because the plant does not also package gluten products and they know that for example the trucks, containers equipment are not used to handle wheat, barely or Rye. The Walmart butter in the western region says gluten free but not here. Most of The Kirkland and Members Mark brands in CA say they are from Vietnam. That's not the case in Wyoming and Colorado. I've spoken to customer service at the stores here in California. They were not helpful. I check labels every time I go to the store. The stores where I am are a Sh*tshow. The Magalopoly grocery chain Vons/Safeway/Albertsons, etc. are the same. Fishers and Planters brands no longer say gluten free. It could be regional. There are nuts with sugar coatings and fruit and nut mixes at the big chains that are labeled gluten free but I don't want the fruit or sugar.  It's so difficult I am considering moving again. I thought it would be easier to find safe food in a more populated area. It's actually worse.  I was undiagnosed for most of my life but not because I didn't try to figure it out. So I have had all the complications possible. I don't have any spare organs left.  No a little gluten will hurt you. The autoimmune process continues to destroy your organs though you may not feel it. If you are getting a little all the time and as much as we try we probably all are and so the damage is happening. Now the FDA has pretty much abandoned celiacs. There are no requirements for labeling for common allergens on medications. All the generic drugs made outside the US are not regulated for common allergens and the FDA is taking the last gluten free porcine Thyroid med, NP Thyroid, off the market in 2026. I was being glutened by a generic levothyroxin. The insurance wouldn't pay for the gluten free brand any longer because the FDA took them all off their approved formulary. So now I am paying $147 out of pocket for NP Thyroid but shortly I will have no safe choice. Other people with allergies should be aware that these foreign generic pharmaceutical producers are using ground shellfish shell as pill coatings and anti-desicants. The FDA knows this but  now just waits for consumers to complain or die. The take over of Wholefoods by Amazon destroyed a very reliable source of good high quality food for people with allergies and for people who wanted good reliably organic food. Bezos thought  he could make a fortune off people who were paying alot for organic and allergen free food by substituting cheap brands from Thailand. He didn't understand who the customers were who were willing to pay more for that food and why. I went from spending hundreds to nothing because Bezo removed every single trusted brand that I was buying. Now they are closing Whole foods stores across the country. In CA, Mill Valley store (closed July 2025) and the National Blvd. store in West Los Angeles (closed October 2025). The Cupertino store will close.  In recent years I have learned to be careful and trust no one. I have been deleberately glutened in a restaurant that was my favorite (a new employee). The Chef owner was not in the kitchen that night. I've had  a metal scouring pad cut up over my food.The chain offered gluten free dishes but it only takes one crazy who thinks you're a problem as a food fadist. Good thing I always look. Good thing they didn't do that to food going to a child with a busy mom.  I give big tips and apologize for having to ask in restaurants but mental illness seem to be rampant. I've learn the hard way.          I don't buy any processed food that doesn't say gluten free.  I am a life long Catholic. I worked for the Church while at college. I don't go to Church anymore because the men at the top decided Jesus is gluten. The special hosts are gluten less not gluten free. No I can't drink wine after people with gluten in their mouth and a variety of deadly germs. I have been abandoned and excluded by my Church/Family.  Having nearly died several times, safe food is paramount. If your immune system collapses as mine did, you get sepsis. It can kill you very quickly. I spent 5 days unconscious and had to have my appendix and gall bladder removed because they were necrotic. I was 25. They didn't figure out I had celiac till I was 53. No one will take the time to tell you what can happen when your immune system gets overwhelmed from its constant fighting the gluten and just stops. It is miserable that our food is processed so carelessly. Our food in many aspects is not safe. And the merging of all the grocery chains has made it far worse. Its a disaster. Krogers also recently purchased Vitacost where I was getting the products I could no longer get at Whole Foods. Kroger is eliminating those products from Vitacost just a Bezos did from WF. I am looking for reliable and certified sources for nuts. I have lived the worst consequences of the disease and being exposed unknowingly and maliciously. Once I was diagnosed I learned way more than anyone should have to about the food industry.  I don't do gray areas. And now I dont eat out except very rarely.  I have not eaten fast food for 30 years before the celiac diagnosis. Gluten aside..... It's not food and it's not safe.  No one has got our backs. Sharing safe food sources is one thing we can do to try to be safe.        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.