Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Muscle Amd Joint Pain

Janeti

Recommended Posts

Janeti Apprentice
Janeti
Posted

Help!!! I just don't understand why I still get the muscle pain that comes and goes. Sometimes mild, sometimes I get get my mind off of how uncomfortable I am. The joint pains comes and goes and sometimes I get swelling also. I am being so careful, and taking vitamins, including magnesium for my muscles. In the morning when I wake up, I just lay in bed and I can feel all the muscles twitching. Its been 6 months, and I don't know what else to do. Does anyone have this problem? Or does anyone have any suggestions? :( Janet

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


happygirl Collaborator
happygirl
Posted

Have you had a follow up appointment with your doctor? Have your antibody levels been checked to see how well you are responding to the diet? Are you getting glutened or are pretty much 100% gluten-free? Vitamin/mineral levels checked?

I would be concerned that something else is going on, and would see my doctor to talk about these issues. Sometimes we attribute all of our symptoms to Celiac, when there may be something else going on, that we overlook.

gfpaperdoll Rookie
gfpaperdoll
Posted

what types of food are you eating? Are you dairy free? soy free?

are you eating white potatoes? They are known to cause joint pain.

Are you eating a lot of beans? They are high in lectins. Are you cooking beans in a crockpot? not a good idea as they need a high heat to break down the lectins & they need to be cooked well done.

are you eating any of the gluten free grains???? gluten-free mixes for breads etc????

Janeti Apprentice
Janeti
Posted
  • Author
what types of food are you eating? Are you dairy free? soy free?

are you eating white potatoes? They are known to cause joint pain.

Are you eating a lot of beans? They are high in lectins. Are you cooking beans in a crockpot? not a good idea as they need a high heat to break down the lectins & they need to be cooked well done.

are you eating any of the gluten free grains???? gluten-free mixes for breads etc????

I should have mentioned that I also have candida. But the answer to most of the questions are yes.

I know better, I should be staying away from potatoes, but the gluten free mixes are not good also?Why are they a problem? I also ate out Saturday night, and as soon as we were done I had a stomach ache...glutened....I am sure. The next day, running to the bathroom, and muscle pains. I think that its leaky gut.

I hate going to the Dr, I get scared. I will stay away from potatoes, and see if it helps. I guess I know it's time for a Dr visit, but I just want this whole mess to go away...know what I mean? Janet

CarlaB Enthusiast
CarlaB
Posted

Could you be magnesium deficient? You can safely supplement mag., so I would to see if it helps. Don't get the kind mixed with calcium, get one that's all magnesium.

If this continues even when you're not glutened, I would be very concerned that something else is going on. Many of us have other problems along with our gluten intolerance.

I would get strictly on an anti-candida diet and take probiotics to see if that helps.

mftnchn Explorer
mftnchn
Posted

Hi Janet.

I think these are all good things to check out. You could keep a food diary and see if there was any change in symptoms.

If it was me, I would first do an elimination by food group. First dairy, if no relief then eliminate all grains, if no relief eliminate all legumes, if no relief eliminate all nightshades. The other food I would check is eggs. This approach would cover the most common food intolerances. If this doesn't bring any relief, you could consider additives, colorings, etc. Try only organic whole foods for 10 days and see if that makes a difference.

When you eliminate, make sure you have absolutely none for 5-10 days. I would suggest at least 7, because joint symptoms tend to be slower to clear and slower to come on. If you clear up, add an item one at a time and watch for symptoms (a cautious approach would be to add one item every 4 days). If you don't clear up, start eating the food group again for a week and see if you have any worsening of symptoms. If no change go to the next food group.

You can also consider the possibility of lyme disease which is also notorious for causing joint and muscle symptoms. Have you ever noticed that being on antibiotics improves your worsens your joint symtpoms?

Janeti Apprentice
Janeti
Posted
  • Author
Hi Janet.

I think these are all good things to check out. You could keep a food diary and see if there was any change in symptoms.

If it was me, I would first do an elimination by food group. First dairy, if no relief then eliminate all grains, if no relief eliminate all legumes, if no relief eliminate all nightshades. The other food I would check is eggs. This approach would cover the most common food intolerances. If this doesn't bring any relief, you could consider additives, colorings, etc. Try only organic whole foods for 10 days and see if that makes a difference.

When you eliminate, make sure you have absolutely none for 5-10 days. I would suggest at least 7, because joint symptoms tend to be slower to clear and slower to come on. If you clear up, add an item one at a time and watch for symptoms (a cautious approach would be to add one item every 4 days). If you don't clear up, start eating the food group again for a week and see if you have any worsening of symptoms. If no change go to the next food group.

You can also consider the possibility of lyme disease which is also notorious for causing joint and muscle symptoms. Have you ever noticed that being on antibiotics improves your worsens your joint symtpoms?

Hello,

I want to thank you all for your responses, especially GFPAPERDOLL, you were right!!!! It is the potatoes. I just can't tolerate them. I think that is the strangest thing, but it works. I haven't had any in a couple of days, and I am feeling much better.

I can't tell you all how much this site means to me. It is a source of comfort. Thank you all again :D Janet

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mftnchn Explorer
mftnchn
Posted

Good, thanks for letting us know. Potatoes are from the nightshade family, so if you continue to have problems you could check those. Most common beside potato would be tomato and green pepper.

  • 2 weeks later...
QTPYE4YOU Newbie
QTPYE4YOU
Posted
Help!!! I just don't understand why I still get the muscle pain that comes and goes. Sometimes mild, sometimes I get get my mind off of how uncomfortable I am. The joint pains comes and goes and sometimes I get swelling also. I am being so careful, and taking vitamins, including magnesium for my muscles. In the morning when I wake up, I just lay in bed and I can feel all the muscles twitching. Its been 6 months, and I don't know what else to do. Does anyone have this problem? Or does anyone have any suggestions? :( Janet

So does anyone know what is going on with you ? I kind of have the sdame thing goign on as you .... BTW I am Blair ---Let me know ?

Janeti Apprentice
Janeti
Posted
  • Author
So does anyone know what is going on with you ? I kind of have the sdame thing goign on as you .... BTW I am Blair ---Let me know ?

Hello Blair,

Yes, I also have systemic candida, which causes a host of problems. They include, muscle and joint pain. At one time, when I got out of bed, my arm was in such pain, I had to help lift it. brain fog, headaches, body rashes, canker sores, hormone problems, and the list goes on and on. It's amazing what it does to you, and it is closely linked with celiacs. I hope this helps you, and if you need any further info, you can always google it. Good luck, Janet

DeerGirl Apprentice
DeerGirl
Posted
Have you had a follow up appointment with your doctor? ......... Are you getting glutened or are pretty much 100% gluten-free? Vitamin/mineral levels checked?

I would second happygirl's comments here. Sounds like it could be any of a number of vitamin or mineral deficiencies, easy for your doctor to check this out.

Janeti Apprentice
Janeti
Posted
  • Author
I would second happygirl's comments here. Sounds like it could be any of a number of vitamin or mineral deficiencies, easy for your doctor to check this out.

It is time for some blood work to be done, probaly next week. The amazing thing about celiacs, is that since I have gone gluten free, my hasimotos is kind of at a stand still. I still have the antibodies, but my TSH has stabilized. Sounds crazy, I know. So the blood work should be interesting, but I still get nervous at the results...Janet

DeerGirl Apprentice
DeerGirl
Posted
It is time for some blood work to be done, probaly next week. The amazing thing about celiacs, is that since I have gone gluten free, my hasimotos is kind of at a stand still. I still have the antibodies, but my TSH has stabilized. Sounds crazy, I know. So the blood work should be interesting, but I still get nervous at the results...Janet

Janeti - good luck with the testing, hopefully your dr will have some ideas as to what is going on for you.

tom Contributor
tom
Posted

Yes good luck w/ the tests!

And I second the idea of keeping a food/symptom diary.

It can really make it easy to spot some of these things.

VRB Newbie
VRB
Posted

Hi

In response to following up with a doctor. Do you know what type of doctor would be best for getting the correct blood work done? I have found that a general doctor seems to only be interested in seeing if your vitamin D results are good. There are many many other vitamins and minerals that we are missing now that we are Gluten Free. In fact after being diagnosed with Osteoporisis at 45, my general doctor did not even mention malabsorption issues. He just perscribed Actonel and sent me home. I learned about gluten intolerance from a "Chiropractor".

Janeti Apprentice
Janeti
Posted
  • Author

I guess that a GI Dr should know what to look for. I just went to my primary Dr, he did a basic, vit

b12, d, cbc sed rate, thyroid(I have hashimotos). I guess from that they can tell if you are absorbing, or what you are missing. Maybe you should look into taking vitamis. Before I was diagnosed, my vit d was non existant. I take viactiv, magnesium, sublingual b12, co-q10. I also take probiotics. I think suppliments are so important while you are healing, and then some. Good luck, Janet

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to Mark Conway's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Have I got coeliac disease

      @Mark Conway, here is an article outlining the various tests that can be used to diagnose celiac disease. By far, the most popular one ordered by physicians is the tTG-IGA. But almost all of these tests are known by different names so the terminology will vary from place to place and lab to lab. The article gives common variant names for each test. In...
    2. JudyLou
      - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Seeking advice on potential gluten challenge

      Thank you so much @knitty kitty! My feet aren’t dry or ashy and I don’t have a rash that gets scaly. It’s like very itchy/burning vesicles that are symmetrical - on both arms, both legs, etc. They actually feel better in direct sunlight as long as it isn’t really hot or I’m not exercising outside, but gets worse if I sweat (especially if the area is covere...
    3. knitty kitty
      - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Seeking advice on potential gluten challenge

      Welcome, @JudyLou, Your rash sounds very similar to the one I experienced. Mine was due to a deficiency in Niacin B3, although I had deficiencies in other nutrients as well. Celiac disease causes malabsorption of all the essential nutrients, but eating a poor diet, taking certain medications, or drinking alcohol can result in deficiency diseases outside...
    4. Wheatwacked
      - Wheatwacked replied to Mark Conway's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Have I got coeliac disease

      This doctor is obviously under educated about Celiac Disease. Deficiencies that can cause oral thrush (Candidiasis) mouth ulcers: Thiamine B1 B12 Folate Zinc Vitamin C B2 B6 Iron Malabsorption Syndrome is often co-morbid with Celiac Disease causing multiple deficiencies of the essential vitamins...
    5. Jmartes71
      - Jmartes71 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Gluten tester

      I saw the thing for testing for gluten when at public places.I absolutely love but I wonder if they would come up with a bracelet or necklace that can detect gluten in the air.I would LOVE that, i know i get debilitating migraine from smelling gluten wheat what have you, all I know is when I go into places like Chevron- gluten Subway, migraine, Costco that...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,152
    • Most Online (within 30 mins)
      7,748
    SinnamonToasty
    Newest Member
    SinnamonToasty
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      Have I got coeliac disease

      By trents · Posted

      @Mark Conway, here is an article outlining the various tests that can be used to diagnose celiac disease. By far, the most popular one ordered by physicians is the tTG-IGA. But almost all of these tests are known by different names so the terminology will vary from place to place and lab to lab. The article gives common variant names for each test.  In addition to IGA tests there are IGG tests which are particularly useful in the case of IGA deficiency.  
    • JudyLou
      Seeking advice on potential gluten challenge

      By JudyLou · Posted

      Thank you so much @knitty kitty! My feet aren’t dry or ashy and I don’t have a rash that gets scaly. It’s like very itchy/burning vesicles that are symmetrical - on both arms, both legs, etc. They actually feel better in direct sunlight as long as it isn’t really hot or I’m not exercising outside, but gets worse if I sweat (especially if the area is covered up). It’s not usually on the outside of my elbows and knees which seems more typical of dermatitis herpetiformis (unless it spreads there). It tends to first hit the inside of those areas. Interestingly, twice the rash broke out soon after eating an unhealthy meal and having an alcoholic drink (I only drink a few times a year, no more alcohol content than a glass of wine).  So I wonder if there is a connection. I’m halfway considering doing a gluten challenge for a few months to see what happens, knowing I can stop if I have any symptoms, and asking for a full celiac disease panel at the end. I really appreciate your thoughts! 
    • knitty kitty
      Seeking advice on potential gluten challenge

      By knitty kitty · Posted

      Welcome, @JudyLou, Your rash sounds very similar to the one I experienced.  Mine was due to a deficiency in Niacin B3, although I had deficiencies in other nutrients as well.  Celiac disease causes malabsorption of all the essential nutrients, but eating a poor diet, taking certain medications, or drinking alcohol can result in deficiency diseases outside of Celiac, too.  Symptoms can wax and wane depending on dietary intake.  I knew an alcoholic who had the "boots" of Pellagra, which would get worse when he was drinking more heavily, and improve when he was drinking less.   Niacin deficiency is called Pellagra.  Symptoms consist of dermatitis, diarrhea, dementia, and death (the four D's).  A scaly rash on the feet and hands and arms are called the "boots" and "gloves" of Pellagra.  Darkened skin around the neck exposed to the sun is Casal's necklace.  Poor farmers with niacin deficient diets were called "red necks" because of this.    Does your rash get worse if you're in the sun?  Mine did.  Any skin exposed to the sun got blistered and scaly.  Arms, legs, neck, head.  Do you have dry, ashy skin on your feet?  The itchiness was not only from the rash, but neuropathy.   My doctors were clueless.  They didn't put all my symptoms together into the three D's.  But I did.  I'd learned about Pellagra at university.  But there weren't supposed to be deficiency diseases anymore in the developed world.  Doubtful it could be that simple, I started supplementing with Niacin and other essential nutrients.  I got better.   One of Niacinamide functions is to help stop mast cells from releasing histamine.  Your allergist gave you doxepin, an antihistamine which stops mast cells from releasing histamine.   Since you do have a Celiac gene, staying on the gluten free diet can prevent Celiac disease from being triggered again.   Interesting Reading: These case studies have pictures... Pellgra revisited.  https://pmc.ncbi.nlm.nih.gov/articles/PMC4228662/ Steroid-Resistant Rash With Neuropsychiatric Deterioration and Weight Loss: A Modern-Day Case of Pellagra https://pmc.ncbi.nlm.nih.gov/articles/PMC12532421/#:~:text=Figure 2.,(right panel) upper limbs.&text=The distribution of the rash,patient's substantial response to treatment.   Cutaneous signs of nutritional disorders https://pmc.ncbi.nlm.nih.gov/articles/PMC8721081/#:~:text=Additional causes of yellow skin,the clinical features of Kwashiorkor.   Hello, @Staticgypsy, I would not recommend cutting so many nutritious foods out of ones diet.  Oxalates can cause problems like kidney stones, but our bodies can process oxalates out of our systems with certain vitamins like Vitamins A and D and Pyridoxine B 6.   People with Celiac disease are often low in fat soluble vitamins A and D, as well as the water soluble B vitamins like Pyridoxine B 6.  Focus on serving your granddaughter nutrient dense meals to ensure she gets essential vitamins and minerals that will help her grow. Micronutrient inadequacy and urinary stone disease: an analysis of the National Health and Nutrition Examination Survey 2007-2018 https://pubmed.ncbi.nlm.nih.gov/36976348/ Multivitamins co-intake can reduce the prevalence of kidney stones: a large-scale cross-sectional study https://pubmed.ncbi.nlm.nih.gov/38564076/
    • Wheatwacked
      Have I got coeliac disease

      By Wheatwacked · Posted

      This doctor is obviously under educated about Celiac Disease. Deficiencies that can cause oral thrush (Candidiasis) mouth ulcers: Thiamine B1 B12 Folate Zinc Vitamin C B2 B6 Iron Malabsorption Syndrome is often co-morbid with Celiac Disease causing multiple deficiencies of the essential vitamins and minerals.  Low or deficient  Vitamin D is almost always found in undiagnosed Celiac Disease. "Over 900 genes have been reported as regulated by vitamin D"  Possible Role of Vitamin D in Celiac Disease Onset  "The overall prevalence rate of vitamin D deficiency was 41.6%, with the highest rate seen in blacks (82.1%), followed by Hispanics (69.2%)."    Prevalence and correlates of vitamin D deficiency in US adults
    • Jmartes71
      Gluten tester

      By Jmartes71 · Posted

      I saw the thing for testing for gluten when at public places.I absolutely love but I wonder if they would come up with a bracelet or necklace that can detect gluten in the air.I would LOVE that, i know i get debilitating migraine from smelling gluten wheat what have you, all I know is when I go into places like Chevron- gluten Subway, migraine, Costco that food smell of nasty gluten- migraine and same with Walmart subway.I absolutely HATE im that sensitive, my body reacts.Sadly medical hasn't taken core issue of celiac being an issue considering glutenfree ever since 1994 and in their eyes not because they didn't diagnose me. I am and wish I wasn't. If there was a detector of gluten in the air it would make a world of difference. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.