Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Coffee

dbuhl79

By dbuhl79
in Coping with Celiac Disease

Recommended Posts

dbuhl79 Contributor
dbuhl79
Posted

Can you handle coffee? Once I start, it kicks start my repeated runs to the bathroom too. Maybe I'm crazy, but is it just the caffiene or is there hidden gluten in here too?!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest jhmom
Guest jhmom
Posted

What kind of coffee are you drinking? According to my list, the following coffee's are gluten-free:

Folgers

Maxwell House

Sanka

Taster's choice

It could be the warmth of the coffee that makes you go or it could be the creamer (dairy). Just a thought.

Thomas Apprentice
Thomas
Posted

Tim Hortons is gluten free.

FreyaUSA Contributor
FreyaUSA
Posted

What coffees are NOT gluten-free? :blink: I had thought that we only had to stay away from flavored coffees (which I'm doing.) Have I been accidentally zapping myself every morning? :o

gf4life Enthusiast
gf4life
Posted

I personally have not been able to handle coffee, even the gluten-free ones with 100% dairy free creamer. I don't know what it is in coffee that doesn't agree with me. I am able to take headache pills with added caffeine, so I doubt that the caffeine is the problem...

lovegrov Collaborator
lovegrov
Posted

If you can't handle coffee it's something other than gluten. In three years, the only coffee I've EVER found not gluten-free are a couple of ones at Starbucks where they actually add brownies or something as they mix it. Plain unflavored coffee is absolutely unquestionably gluten-free.

richard

darlindeb25 Collaborator
darlindeb25
Posted
;) i agree with richard--i had diarrhea for years and years and now that i am gluten-free, i am still very much a coffee drinker--as i have posted before--the one coffee that made me sick was a hazelnut coffee that i got at a gas station/convience store--i use half & half creamer at work cause our coffee is so bitter, but i have read the ingreds on the box and there is nothing in them that can hurt us--so i agree--your problem with coffee may be something other then celiacs---please dont take my coffee away :P deb
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


dbuhl79 Contributor
dbuhl79
Posted
  • Author

Actually, I know alot of people that will drink coffee to "kick start" there bowels. In fact a joke is that its a natural laxative. So there has been times prior to recently that it would give me the urge to go.

However, I don't really know what brand it is I drink here at the office. In fact its something cheap and generic because that's all they'll buy. Out of desperation for a pick me up I was drinking it and it'll cause me to run to the restroom.

At home, we always have Folgers, and I never suffer from that.

Strange.. but thanks for everyone's input. I think I'll stick to water! :blink:

Guest gfinnebraska
Guest gfinnebraska
Posted

Does anyone know if Gevalia flavored coffees are gluten-free?? They are the only ones I drink, and only once a week or so.

stef-the-kicking-cuty Enthusiast
stef-the-kicking-cuty
Posted

Hello all,

i can't drink coffee either. But with me my old belly pain and the pain (at the same time) in the left of my foreheadbone starts again. Like i had it in the last days of my glutenlife. It can't be the warmth of the liquid either, because i add cold milk. In fact there is mostly milk in it, because i don't like the pure coffee taste. It's like 1/4 coffee and 3/4 milk or sometimes even less coffee.

It can't be the milk either, because I drink it together with the Nestle cocoa powder (which also is on the glutenfree list) and i don't have problems with that. Next i check the sugar and i didn't have problems with the sugar either. So i think it's the coffee. We always drink the Folgers coffee, which is supposed to be glutenfree. Last time my pain was so bad, i had to stay in bed all day. I don't know what it is in the coffee that bothers me, but i won't drink any coffee anymore. Whatever it is, it must be in pepsi, too. Cause i just drank a glass as i'm writing this here and i have my old foreheadbonepain again. Is coffein also in pepsi?

Lots of greetings, Stef

mommida Enthusiast
mommida
Posted

Gluten is added to some coffee. It is used to counter act some of the bitterness of the beans. Some people use a piece of bread to clean the grinders, takes the oil residue off the blades. I would avoid the coffees that say "special blended for a smooth rich flavor"

Laura

kabowman Explorer
kabowman
Posted

I can only drink a small amount of coffee - I am down to 1 1/2 cups of half-caf in the morning only. Otherwise, I get a "sour" stomach, bathroom problems, etc. I always assumed it was the acid. It got worse after GERD. I also must eat with my coffee or it is just as bad as if I had drank a full pot, which I used to do a LOT.

-Kate

dbuhl79 Contributor
dbuhl79
Posted
  • Author

Stef,

Too much caffeine (which is in sodas unless otherwise noted such a Pepsi) can cause headaches. Hav eyou tried elminating all caffeine from your diet? That might be the source! Worth a shot!

Dana

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

      @rei.b, I understand how frustrating starting a new way of eating can be. I tried all sorts of gluten-free processed foods and just kept feeling worse. My health didn't improve until I started the low histamine AIP diet. It makes a big difference. Gluten fits into opioid receptors in our bodies. So, removing gluten can cause withdrawal symptoms...
    2. captaincrab55
      - captaincrab55 replied to lmemsm's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Finding gluten free ingredients

      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal. My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet. I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free...
    3. rei.b
      - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and...
    4. knitty kitty
      - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long? DGP IgG antibodies are produced in response to a partial gluten molecule. This is different than what tissue transglutaminase antibodies are produced in response to. TTg IgA antibodies are produced in the intestines in response to...
    5. rei.b
      - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,132
    • Most Online (within 30 mins)
      7,748
    Exhausted-momma
    Newest Member
    Exhausted-momma
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
      Finding gluten free ingredients

      By captaincrab55 · Posted

      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.