Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Blood Test Positive-wait To Go Gluten Free?

tumtumsmom

Recommended Posts

tumtumsmom Newbie
tumtumsmom
Posted

Hi All, this is new to me but from what I've seen and read so far I think this website and messageboard might be the key to my sanity...

My 13 yr old son has had stomach problems for years and just last week went through a barrage of tests scheduled by his pediatrician. She called yesterday and said that his bloodwork shows he's positive for Celiac and that he also had blood in his stool. We've got an appt. with a GI doctor on Tuesday but my question is: Does my son need to keep eating glutens until we see the GI? I was going to start him gluten-free free immediatly but after reading books and such I'm guessing there will be further tests. I would call the Doctor but they are closed for the 3 day weekend.

I'm so glad to have found this site. Yesterday was such a shock and emotional time. At least I feel more calm and in control today. Reading these wonderful posts answers so many questions although I'm sure I'll have thousands of questions.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


confused Community Regular
confused
Posted

It is best to wait to talk to the gi dr, unless you dont want to do an scope. But since there is blood in his stool, i would think it is best to have all the test that the gi dr wants to do, that way you will get more accurate results. During this weekend, it would be best to read up as much as you can on what is safe and what is not safe. Get new pots and pans and get rid of plastic dishes, so when you are ready to go gluten free you will already be ready. Do things in bb steps so you will not be overwhelmed. Get yourself and spouse tested and if you have any other kids get them tested asap. Do you plan on everyone going gluten free or just your 13 yr old. My stepson was diagnosed at 13, and it has been so rough. He cheats all the time and it is hard on the whole family. IS your 13 yr old willing to go gluten free?

paula

MySuicidalTurtle Enthusiast
MySuicidalTurtle
Posted

When I was 17 my doctor told me to go gluten-free after my blood test and I never saw anyone else. My Brother, however, continued eating gluten and saw a specialist to get another postive. So, it is really up to you and him. The diet worked fine for me right away, so, I didn't want to go back on it for another test. It's a personal thing.

tumtumsmom Newbie
tumtumsmom
Posted
  • Author

Thanks for the responses. I think I'll just let him continue and eat gluten foods until we see the GI. I want to have any tests needed especially since he has blood in his stool. Both my husband and I are scheduled for a blood test and my other two sons will be next.

I'm a confused as to why I need to buy new pots and pans? Isn't dishwashing them enough? Or are these new ones to just be kept gluten free? I still have so much reading to do....

gfpaperdoll Rookie
gfpaperdoll
Posted

welcome to our group. The reason that you want new pots & pans is that if you have non stick ones or cast iron they are porous & have gluten hidden in the scratches, even dishwasher will not get that stuff out, same thing with plastic & wooden cutting boards, plastic spatulas, wooden spoons. So you might want to wait till you get the whole family tested to see if you are going to have a gluten-free kitchen or a "mixed" kitchen. Either way the flour canister has to go, because wheat flour will poof up & get into everything, not counting breathing it in. There are a lot of threads here on these issues...

Most newbies are very skeptical of this but then they learn the hard way & hence the many posts on these issues. Plus this info is also in most books on Celiac...

I have a gluten-free house & use stainless steel & glass pans & baking dishes. Well, I have some baking pans not stainless steel - new ones from Walmart. You will need things like parchment paper & cup cake liners (& I do suggest new muffin pans) because you will want to learn to bake gluten-free because it is healthier & better than bought gluten-free stuff... There is a learning curve but we have recipe sections etc. & we have all been there & are available to walk you though your first efforts. One of the easiest things to convert is a banana bread recipe or a carrot cake or an apple cake, that kind of stuff.

Just read a lot & take it one day at a time. This journey will surely result in healthier meals for everyone.

sickchick Community Regular
sickchick
Posted

Very good luck on your journey. B)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,516
    • Most Online (within 30 mins)
      7,748
    Charlotte and Tara
    Newest Member
    Charlotte and Tara
    Joined
  • Celiac.com Sponsor (A20):

  • Celiac.com Sponsor (A22):



  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Russ H
      Shingles - Could It Be Related to Gluten/ Celiac

      By Russ H · Posted

      I hope you are on the mend soon. About 1 in 5 people who contracted chicken pox as a child go on to develop shingles in later life - it is not uncommon. There are 5 known members of the herpes virus family including chicken pox that commonly infect humans, and they all cause lifelong infections. The exact cause of viral reactivation as in the case of shingles or cold sores is not well understood, but stress, sunburn and radiotherapy treatment are known triggers. Some of the herpes viruses are implicated in triggering autoimmune diseases: Epstein-Barr virus is suspected of triggering multiple sclerosis and lupus, and there is a case where it is suspected of triggering coeliac disease. As to whether coeliac disease can increase the likelihood of viral reactivation, there have been several cohort studies including a large one in Sweden suggesting that coeliac disease is associated with a moderate increase in the likelihood of developing shingles in people over the age of 50. US 2024 - Increased Risk of Herpes Zoster Infection in Patients with Celiac Disease 50 Years Old and Older Sweden 2018 - Increased risk of herpes zoster in patients with coeliac disease - nationwide cohort study
    • Russ H
      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      By Russ H · Posted

      BFree bread is fortified with vitamins and minerals as is ASDA own-brand gluten-free bread. All the M&S bread seems to be fortified also.
    • Flash1970
      Shingles - Could It Be Related to Gluten/ Celiac

      By Flash1970 · Posted

      You might try Heallix.  It's a silver solution with fulvic acid. I just put the solution on with a cotton ball.  It seemed to stop the nerve pain. Again,  not in your eyes or ears.   Go to heallix.com to read more about it and decide for yourself Also,  I do think nerve and celiac combined have a lot to do with your susceptibility to shingles breaking out. 
    • trents
      GI DX celiac despite neg serology and no biopsy

      By trents · Posted

      Celiac disease requires both genetic potential and a triggering stress event to activate the genes. Otherwise it remains dormant and only a potential problem. So having the genetic potential is not deterministic for celiac disease. Many more people have the genes than actually develop the disease. But if you don't have the genes, the symptoms are likely being caused by something else.
    • Roses8721
      GI DX celiac despite neg serology and no biopsy

      By Roses8721 · Posted

      Yes, i pulled raw ancetry data and saw i have 2/3 markers for DQ2.2 but have heard from friends in genetics that this raw data can be wildly innacurate
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.