Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help Me Interpret My Enterolab Results?


Sheesh-

Recommended Posts

Sheesh- Newbie

Hello everyone. I'm new here. My username is a result of having typed in 5-6 different names and having them all be taken. In frustration I said, Sheesh!

Here's my story, I'll try to keep it brief. Saturday I'll be 38. I have 3 children. The youngest is 8 months. His birth was long and complicated. I was hospitalized 5 days. While hopitalized I contracted an intestinal infection called C dif. It took 3 months of antibiotics to get rid of it. After that I could tell things still weren't right. A couple months of making excuses and then I eliminated gluten and all was well again. Challenged accidentally once, very ugly. I know I should be gluten free and that's not a problem for me. I'm also vegan for 9 years.

My breastfed 8 month old was having GI distress and when I went gluten free his symptoms cleared. I have occasionally suspected gluten intolerance in my other 2 children. The oldest had blood tests that came back normal, as did mine.

Here are my results. I'm DBQ1 and DQB3, right? I think I want to have the kids tested. Do you think I should? DH is saying he doesn't want to be tested because he doesn't want it to be true. ;p Oh, also, my mom has terrible symptoms and her sister just died of colon cancer at 62.

A) Gluten Sensitivity Stool and Gene Panel Complete *Best test/best value

Fecal Antigliadin IgA 14 (Normal Range <10 Units)

Fecal Antitissue Transglutaminase IgA 10 Units (Normal Range <10 Units)

Quantitative Microscopic Fecal Fat Score <300 Units (Normal Range <300 Units)

Fecal anti-casein (cow


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kevieb Newbie

personally, i wouldn't assume anything based on those test scores. there is alot of controversy over enterolab-----and your test results are low compared to what most people seem to get from them. your Ttg levels, which would indicate celiac disease are normal and your antigliadin levels are only one point above normal----which could be caused by a number of different things. also, enterolab does not test total Iga serum levels.

gfpaperdoll Rookie

& then again there are some doctors and a lot of people that use Enterolab & like them very much.

You have two gluten intolerant genes. Which means that it comes with all the celiac problems in addition to possible neurological problems and other food problems.

You are probably not going to be able to eat dairy - ever - is my experience with the gluten intolerant genes, whereas it seems the celiac gene people have a larger portion of people that can tolerate dairy.

If you have not other food problems - you are lucky & maybe because you already have healthy eating habits.

I would get the kids tested at enterolab. That is the only place that is going to pick up the gluten intolerance. If you are gluten intolerant you will suffer symptoms, & it can develope into full blown celiac with villi damage at some point, maybe when they are old, or it might never happen. Or they just might get cancer before the villi are gone, if they are still eating gluten. I am double DQ1 & my mother died of colon cancer...

Sheesh- Newbie

It was my understanding that it doesn't matter how high or low the score is if it is in the 10+ range. It's like a pregnancy test - either you are or your aren't.

I've wondered if my levels were low because I only had symptoms for a couple of months before being tested and was gluten free for a month before testing. So maybe my body didn't build up really high levels yet.

gfpaperdoll Rookie

Sheesh, yes that is so & yes probably because you have not been sick for years & years before you got smart & went off gluten - now that gluten is on people's radar - that will be happening more & more

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,166
    • Most Online (within 30 mins)
      7,748

    melindakathleen
    Newest Member
    melindakathleen
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • DAR girl
      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
    • Scott Adams
      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
×
×
  • Create New...