Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Free/casein Free Mentioned On Oprah Today

SofiEmiMom

By SofiEmiMom
in Publications & Publicity

Recommended Posts

SofiEmiMom Enthusiast
SofiEmiMom
Posted

It was in regards to autism...but it was mentioned more than once and it was amazing to hear Gluten Free mentioned on Oprah. It was also touched upon how Dr's need to listen to Mother's more and display more respect to parents and their gut instincts. This also is relevant to those of us with Celiac and parents of Celiac children.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


gfpaperdoll Rookie
gfpaperdoll
Posted

Wow, Gluten Free & Dairy Free made the Oprah show today in the discussion with two Hollywood moms re their oys that have autism. Not many details but they were very enthusiastic on how much it has helped their children.

they also mentioned how the pediatriations are clueless and actually insulting to moms. Guess we already knew that.

did anyone else see the show???

jerseyangel Proficient
jerseyangel
Posted

I only caught the last 10 minutes or so, but the first thing I heard was Holly Robinson-Peete say "gluten" and how when they removed wheat from her son's diet, he improved greatly (words to that effect).

I wish I had seen the whole show...

blueeyedmanda Community Regular
blueeyedmanda
Posted

I didn't see the show, but John's cousin who is 11 has downs syndrome and autism--recently diagnosed in the last few years. One thing they mentioned to her mother about autism was a gluten free diet. It was real nice to talk to her when we first met, we had something in common to talk about. Amy (the little girl) is the sweetest girl you would ever meet, she is enrolled into the school district, so she does go to classes. Her parents really work with her too, so she has come a long way just since I met her.

mama2 Apprentice
mama2
Posted

I happen to watch to the show and was so excited to here them talk about Gluten! I am hopeing that this leads to a oprah show about celiacs!

angel-jd1 Community Regular
angel-jd1
Posted
I only caught the last 10 minutes or so, but the first thing I heard was Holly Robinson-Peete say "gluten" and how when they removed wheat from her son's diet, he improved greatly (words to that effect).

I wish I had seen the whole show...

I was actually super disapointed in that part. I hated that she said that they had to remove gluten and then only mentioned removing wheat........bummer for the mis-information!!! Hopefully she knows that gluten is in more than JUST wheat....

-Jessica

blueeyedmanda Community Regular
blueeyedmanda
Posted
I was actually super disapointed in that part. I hated that she said that they had to remove gluten and then only mentioned removing wheat........bummer for the mis-information!!! Hopefully she knows that gluten is in more than JUST wheat....

-Jessica

Good point Jessica. It might confuse a lot of new celiacs or parents of new celiac children.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


gfpaperdoll Rookie
gfpaperdoll
Posted

Well she also mentioned her google degree...

AND - she did say how you heal the gut - you heal the brain & that it is all connected !!!!

& she did mention the complete yeast overgrowth from the whole body to the head...

floridanative Community Regular
floridanative
Posted
I was actually super disapointed in that part. I hated that she said that they had to remove gluten and then only mentioned removing wheat........bummer for the mis-information!!! Hopefully she knows that gluten is in more than JUST wheat....

-Jessica

Jessica - you're missing the point - I know you're smarter than that. You're very insightful for such a young person. Consider this: my first doctor (the one that was smart enough to run the Celiac panel on me) told me I'd have to stop eating bread if I had Celiac. He never mentioned gluten or wheat - EVER. The point is if people hear about the wheat free/dairy free diet for Autism, they'll Google it as well and figure out that gluten is in everything and is much more than just wheat. This exposure will help countless families with Autistic families and will give us a hand up as well - everyone on the gluten free diet will benefit because the more demand, the more power we have.

On the show Jenny said 'in laymens terms it means wheat free/dairy free' when Oprah asked about the diet. She said that because her purpose was not to explain the gluten-free/cf diet. She just wanted other Mothers to know how much it helped her son and that she could NOT believe none of her doctors told her about it. To that I say - why would they tell her about a diet that no industry benefits from financially? Except the gluten-free food companies I mean. No - doctors aren't going to tell people about any diet that can benefit them but they'll be the first to cram meds down our throats.

Though I don't have kids I felt so sad for all the Celiac Mothers out there who were made to feel dumb by doctor after doctor - just like Jenny and Holly were. They were talking about exactly what so many of you went through with your own kids. We owe a debt of gratitude to these two ladies. Do you know how many shows have been doing huge Autism stories lately? A LOT of them have aired in the last year and this is the first time anyone has mentioned the gluten-free/cf diet as a possible cure - though people with Celiac know all about the connection. It's a shame for all those stuggling families and if I had to pick a disease for anyone's kids to have it would be Celiac over Autism any day. Let's be happy about all the good the show did for the families with Autistic kids instead of being aggravted that the diet wasn't explained in full detail. We need to look at the big picture here.

Judyin Philly Enthusiast
Judyin Philly
Posted
Well she also mentioned her google degree...

AND - she did say how you heal the gut - you heal the brain & that it is all connected !!!!

& she did mention the complete yeast overgrowth from the whole body to the head...

GOOD OVERVIEW PAPERDOLL

I WATCHED THE WHOLE SHOW AND IT WAS OUTSTANDING.

GENNY'S BOOK WOULD BE A 'MUST BUY' FOR ALL AUTISM PARENTS.

SHE WAS SO POWERFUL

SHE REALLY KEPT HITTING HOME THAT THE PARENTS HAVE TO BE THE CHILD'S ADVOCATE...AND THEY ARE THE ONES WHO WILL HEAL THEIR CHILDREN...OR...GET THEM TO THEIR POTENTIAL.

SHE HIT SO MANY GOOD POINTS

TOO MANY TO MENTION HERE BUT ALL THE THINGS WE KEEP SAYING OVER AND OVER...THE MAIN THING I CAME AWAY WITH WAS

'MOTHERS INTUITION' LISTEN TO YOUR GUT..YOU KNOW YOUR CHILD BETTER THAN AN DR.

IT IS HER PERSONAL OPINION...................AND SHE KEPT STRESSING THAT....THE CHILD SHE GOT BACK AFTER THE 'MMR' UNIONIZATIONS AT A YEAR I THINK...GAVE HER BACK A TOTALLY DIFFERENT CHILD WHO WAS LOST INSIDE HIMSELF AND SHE AND MS PETE KEPT STRESSING...YOU HAVE TO BREAK DOWN THE WALL PIECE BY PIECE.

ESP MS PETE WAS SO HAPPY THAT THE CDC HAS RELEASED A NEW STATEMENT IN REGARD TO THEIR POSITION ON THE IMMUNIZATIONS.

PLEASE DON'T LET THIS THREAD TURN INTO A BIG DEBATE ON THAT 'CAUSE' ISSUE

LET'S FOCUS ON THE GLUTEN AND CASEIN......BEING FOUND BY MOM'S HELPED THEIR KIDS...NOT THE MEDICAL PROFESSION.

AGAIN..I THOUGHT I WAS AN OUTSTANDING SHOW.

JUDY

Judyin Philly Enthusiast
Judyin Philly
Posted
Right on Judy! __________________________________________________________________________________

THANKS FOR THE KIND WORDS FLORIDANATIVE ...

I FOUND A GREAT LINK FOR THE SHOW AND IT LISTS SO MANY GOOD POINTS.

Open Original Shared Link

LOOK UNDER THAT SLIDE SHOW PHOTOS FOR THE TEXT FROM THE SHOW.

WHAT JENNY KEPT TALKING ABOUT WAS ..."MOMMY INSTINCTS"....

WHICH I KNOW WE ALL AGREE WITH.

ANXIOUS TO HEAR WHAT YOU ALL THINK OF THE TEXT.

JUDY

Ridgewalker Contributor
Ridgewalker
Posted

Judy, thank you for the link! I missed the episode, but just went and read the article. It was very inspiring.

I saw on the last page, there was a notice that said the message boards over there were so overwhelmed with responses from viewers, that Jenny and Holly were having trouble posting answers to questions! The website people are working on the technical problems, and it said that more from Jenny and Holly will be posted soon.

-Sarah

Judyin Philly Enthusiast
Judyin Philly
Posted
Judy, thank you for the link! I missed the episode, but just went and read the article. It was very inspiring.

I saw on the last page, there was a notice that said the message boards over there were so overwhelmed with responses from viewers, that Jenny and Holly were having trouble posting answers to questions! The website people are working on the technical problems, and it said that more from Jenny and Holly will be posted soon.

-Sarah

Sarah,

GLAD YOU PICKED THIS UP..ENCOURAGING THAT MORE GOOD GLUTEN FREE NEWS MANY FOLLOW.

JUDY

blueeyedmanda Community Regular
blueeyedmanda
Posted

Thanks for the link :) I was unable to catch the show but the article was great. :)

Judyin Philly Enthusiast
Judyin Philly
Posted

EDITED BY JUDY

Judyin Philly Enthusiast
Judyin Philly
Posted

EDITED BY JUDY

blueeyedmanda Community Regular
blueeyedmanda
Posted
Open Original Shared Link
Judyin Philly Enthusiast
Judyin Philly
Posted
Open Original Shared Link

Thanks Amanda.

that link said you had to sign in--THIS ONE YOU DO NOT

Open Original Shared Link

OK THANKS TO OUR AMAZING LEADER MODERATOR EXTRODINARE.....PATTI

--I WILL NOT COMMIT MYSELF INTO NUT BIN ...AT LEAST FOR TODAY :lol:

I GUESS WHILE I WAS ON VACATION I THOUGHT THAT THE FORMAT CHANGED ON THE FORUM.

NOPE...PATTI TOLD ME SOMEHOW I'D PROBABLY CHANGED THE 'OPTIONS' FROM 'STANDARD'

THAT'S WHY YOU GUYS CAN SEE IT AND I COULDN'T

THANKS FOR BEARING WITH ME IN MY 'MELT DOWN'

HUGS

JUDY

rock on Apprentice
rock on
Posted
It was in regards to autism...but it was mentioned more than once and it was amazing to hear Gluten Free mentioned on Oprah. It was also touched upon how Dr's need to listen to Mother's more and display more respect to parents and their gut instincts. This also is relevant to those of us with Celiac and parents of Celiac children.

I was thrilled to see that episode! I had just emailed a friend of mine who's son has Asperger's & told him about my research on celiac as it relates to autism. He said he'd check into it, but I heard through my mom that he hadn't followed through...then came yesterday's Oprah episode. Now, my friend & his wife are out buying gluten free things & looking into changing thier son's diet. Although I have thought of Oprah & her fan base as almost fanatical, I am sooooo glad that she has the power to make people really think about issues.

Thank goodness for Jenny Mcarthy's enthusiasm!!

Crystalkd Contributor
Crystalkd
Posted

I don't usually get to see the show because I'm at work but my nephew was sick so I was taking care of him. I about came up off the sofa when they said something about gluten-free. It's so hard to make people understand. To clarify Holly's comment she said that her son wa allegic to wheat so they took it out. My friend has a sister that is autistic and after going gluten-free I passed the info on to her mom and I think the now have her on the diet as well but I'm not sure what the out come will be since she's 18 now. All in all I thought it was at the least a very good over view.

Judyin Philly Enthusiast
Judyin Philly
Posted

FOUND IN ..........Google News Alert for: gluten free........EMAI ALERT

Your Dinner Secret Gluten-free Casein-free Expert Supports Jenny McCarthy Book on ...

Business Wire (press release) - San Francisco,CA,USA

One of the most important tools that Jenny describes in her book is the Gluten-Free, Casein-Free diet on which she placed her child. ...

See all stories on this topic

hi

just found this but our forum deleted the link.

i do not know anything about this company nor do i support it.........this is just info...bet you could google it and see what it is about.

i read the article that was attached and they really talked about the cc issue and how important it was was for companies who were doing mail order meals to protect their customers from this.

just some more info.

judy

Nikki'smom Apprentice
Nikki'smom
Posted

I saw the show and was very excited to see gluten-free mentioned!

Canadian Karen Community Regular
Canadian Karen
Posted

Holy Jeepers!

There sure are alot of parents of children with autism that are TOTALLY unaware of the fact that gluten is, indeed, poison.

Open Original Shared Link

I keep praying for the day that Cornell some other prestigious Ivy League university comes out with definite proof and puts the doubt to rest finally! (My niece is studying Environmental Studies at Cornell and is in her fourth year - I keep on telling her to direct her research into this area!!!!)

Karen

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,679
    • Most Online (within 30 mins)
      7,748
    mark mcdonald
    Newest Member
    mark mcdonald
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Draft gluten-free ciders… can they be trusted ?

      By Scott Adams · Posted

      I'd go with a vodka tonic, but that's just me😉
    • Rejoicephd
      Draft gluten-free ciders… can they be trusted ?

      By Rejoicephd · Posted

      That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth.  She said the combination of the alcohol and sugar would be very likely to worsen my candida problem.  She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry.   So in summary, I am giving ciders a rest.  Whether it's a gluten risk or sugars and yeast overgrowth, its just not worth it.
    • Inkie
      Tea Bags and Gluten

      By Inkie · Posted

      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      Tea Bags and Gluten

      By Scott Adams · Posted

      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      Inconclusive results

      By Scott Adams · Posted

      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.