Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Any Experience With Numb Fingers?


Guest thatchickali

Recommended Posts

Guest thatchickali

So this morning I woke up, and I ate a banana on my way to our area's Race for the Cure. On the way my right pinky got numb, then my ring finger, and eventually my middle finger. It was mostly numb at the tips. It felt like a tightening numb, not too tingley, but very tight.

My mom thinks it was due to Calcium deficiency. It went away after about an hour, but it had me pretty scared of like a blood clot or something serious.

Other new symptoms I've been experiencing are headaches and pain after eating anything. And more frequent hunger.

I'm having a blood draw on Tuesday to check all my levels. Anyway I'm rambling,

Any thoughts on numb fingers????


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Renth Newbie

I was told by my doctor whom I trust very much that B12 is the best solution to numb and tingly fingers toes etc. And a lot of Celiacs are B12 deficient. I would give it a try it can't hurt! Hope it helps, or you find something that does!

Guest thatchickali

I drink Blue Goodness smoothies everyday, which has all the B vitamins in high amounts. I think my problem is that my intestines are SO bad that I'm not absorbing what I'm taking in. I feel like my body is wasting away.

mamaw Community Regular

What is a blue goodness smoothie? do you buy these or make them?

Guest thatchickali

They are made by Bolthouse Farms.

Naked juice also makes one called Blue Machine if your grocery store doesn't carry the Bolthouse brand.

Both brands are Gluten Free except for the green ones that are made with wheat grass.

ravenwoodglass Mentor

The problem with the smoothies is that right now your digestive system can not absorb B12 through your intestines. You also have mentioned you drink a lot of them. You may want to cut them out for at least week or two if they have any dairy in them. You also may want to call the company and ask if they are gluten free by ingredients or gluten free by government standards. They may add things like barley grass that comes in below the level of the government standards but still at a level that will make us sick. For example Rice Dreams new 'Organic gluten free' label on a product that has barley at low levels has brought this danger to the forefront on us. Barley warnings are now gone, legally but the product is no more gluten-free than it ever was. In other words the product hasn't changed, just the label. You also need to make sure that the gluten containing items are not produced on the same machines that produce the gluten free ones, there is always a risk of CC when a company makes both. It is possible when CC is taken into account that these smoothies are no more gluten free than most of the Lays products that are on their lists but still make many of us sick. I only drank the Bolthouse products a couple times and got sick both times and have never dared to try them since.

Anyway whether you cut them out for a bit or not you NEED to get a sublingual B12 that is gluten-free. You can't take too much of it, it is not toxic and your body will pass any excess that is not absorbed. It will help a great deal.

Guest thatchickali

I learned that they are gluten free from postings like this:

Open Original Shared Link

I will call the manufacturer and ask.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor
I learned that they are gluten free from postings like this:

Open Original Shared Link

I will call the manufacturer and ask.

They do say on their website that they are gluten free also, but now-a-days with the labeling laws and especially when new to the diet and healing it is good to ask.

You could also be sensitive to something else that is in it. Smooties are quick and easy to make if you discover by eliminateing the Bolthouse and then adding them back in a couple weeks later that they just don't agree with you maybe you could just grab some frozen fruit like blueberrys and whir them in a blender with some milk, juice or yogurt. You can add a safe protein powder to them also for extra nutrition.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - NanceK replied to Jmartes71's topic in Related Issues & Disorders
      9

      My only proof

    2. - knitty kitty replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Is this celiac?

    3. - Trish G replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Fiber Supplement

    4. - trents replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Is this celiac?

    5. - trents replied to kpf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      15

      ttg iga high (646 mg/dl) other results are normal


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,355
    • Most Online (within 30 mins)
      7,748

    tealangel09
    Newest Member
    tealangel09
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • NanceK
      Oh wow! Thanks for this information! I’m going to try the Benfotiamine again and will also add a B-complex to my supplements. Presently, I just take sublingual B12 (methylcobalomin). Is supplementation for celiacs always necessary even though you remain gluten-free and you’re healing as shown on endoscopy? I also take D3, mag glycinate, and try to get calcium through diet. I am trying to bump up my energy level because I don’t sleep very well and feel fatigued quite often. I’m now hopeful that adding the Benfotiamine and B-complex will help. I really appreciate your explanation and advice! Thanks again Knitty Kitty!
    • knitty kitty
      @Hmart, The reason why your intestinal damage was so severe, yet your tTg IgA was so minimal can be due to cutting back on gluten (and food in general) due to worsening symptoms.  The tTg IgA antibodies are made in the intestines.  While three grams of gluten per day for several weeks are enough to cause gastrointestinal symptoms, ten grams of gluten per day for for several weeks are required to provoke sufficient antibody production so that the antibodies move out of the intestines and into the blood stream where they can be measured in blood tests.  Since you reduced your gluten consumption before testing, the antibody production went down and did not leave the intestines, hence lower than expected tTg IgA.   Still having abdominal pain and other symptoms this far out is indicative of nutritional deficiencies.  With such a severely damaged small intestine, you are not absorbing sufficient nutrients, especially Thiamine Vitamin B 1, so your body us burning stored fat and even breaking down muscle to fuel your body.   Yes, it is a very good idea to supplement with vitamins and minerals during healing.  The eight essential B vitamins are water soluble and easily lost with diarrhea.  The B vitamins all work together interconnectedly, and should be supplemented together.  Taking vitamin supplements provides your body with greater opportunity to absorb them.  Thiamine and the other B vitamins cannot be stored for long, so they must be replenished every day.  Thiamine tends to become depleted first which leads to Gastrointestinal Beriberi, a condition that doctors frequently fail to recognize.  Symptoms of Gastrointestinal Beriberi are abdominal pain and nausea, but neuropathy can also occur, as well as body and joint pain, headaches and more.  Heart rhythm disruptions including tachycardia are classic symptoms of thiamine deficiency.  Heart attack patients are routinely administered thiamine now.   Blood tests for vitamins are notoriously inaccurate.  You can have "normal" blood levels, while tissues and organs are depleted.  Such is the case with Gastrointestinal Beriberi, a thiamine deficiency in the digestive tract.  Eating a diet high in carbohydrates, like rice, starches, and sugar, can further deplete thiamine.  The more carbohydrates one eats, the more thiamine is required per calorie to turn carbs into energy.  Burning stored fats require less thiamine, so in times of thiamine shortage, the body burns fat and muscles instead.  Muscle wasting is a classic symptoms of thiamine deficiency.  A high carbohydrate diet may also promote SIBO and/or Candida infection which can also add to symptoms.  Thiamine is required to keep SIBO and Candida in check.   Thiamine works with Pyridoxine B 6, so if Thiamine is low and can't interact with Pyridoxine, the unused B 6 accumulates and shows up as high.   Look into the Autoimmune Protocol diet.  Dr. Sarah Ballantyne is a Celiac herself.  Her book "The Paleo Approach" has been most helpful to me.  Following the AIP diet made a huge improvement in my symptoms.  Between the AIP diet and correcting nutritional deficiencies, I felt much better after a long struggle with not feeling well.   Do talk to your doctor about Gastrointestinal Beriberi.  Share the article linked below. Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Keep us posted on your progress!
    • Trish G
      Thanks, that's a great addition that I hadn't thought of. 
    • trents
      Other diseases, medical conditions, medications and even (for some people) some non-gluten foods can cause villous atrophy. There is also something called refractory celiac disease but it is pretty uncommon.
    • trents
      knitty kitty asks a very relevant question. So many people make the mistake of experimenting with the gluten free diet or even a reduced gluten diet soon before getting formally tested.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.