Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Which Of These Foods "glutened" Me?!

jewi0008

By jewi0008
in Coping with Celiac Disease

Recommended Posts

jewi0008 Contributor
jewi0008
Posted

Today is Monday. I have been gassy (silent & smelly today). I have also had a little joint pain. Yesterday when I woke up and for the whole day I was extremely fatigued (I slept almost all day!), had a major headache, joint pain and was gassy. I think it was something I ate on Saturday...but not sure what? Here are the questionable things I had on Saturday:

1. Pumpkin Spice Lattee (Starbucks) - Large w/ Soy

2. Wheat and Gluten Free free buns (made with cheese, egg and corn oil)

3. Popcorn at the movie theatre

Any thoughts?!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


confused Community Regular
confused
Posted

Do you have a problem with casein or lacotse, i would bet that is what is causing that. Many celiacs have to give it up when they are first healing.

paula

horsegirl Enthusiast
horsegirl
Posted

Those are symptoms I get when I eat soy or casein (dairy) products, because I'm also intolerant to both of those things. Have you ever been tested for either of those?

jewi0008 Contributor
jewi0008
Posted
  • Author
Those are symptoms I get when I eat soy or casein (dairy) products, because I'm also intolerant to both of those things. Have you ever been tested for either of those?

No, I have never been tested for either of those. The only "testing" I've actually ever had is like a 60 panel scratch test in which I was allergic to nothing. Odd. They then said perhaps I have delayed reactions, in which a scratch test would prove nothing.

Guest kivmom3
Guest kivmom3
Posted

I think it was the soy.

I would ask your docotor if he/she could do an allergy blood test for you for food sensitivities. That may help.

Gg

Luisa2552 Apprentice
Luisa2552
Posted

It could be casein or soy, except I bet Saturday wasn't the first time you've had those in your diet. I would wonder about the latte. Anyone know if the 'spice' in Pumpkin Pie Spice is gluten-free? Gosh I hope so, it isn't fall without my ps latte... :(

Jef Newbie
Jef
Posted

My guess is that you are not totally healed and are experiencing a degree of leaky---gut especially with the amount of carbohydrate you are consuming. RE-evaluate your consumption for gluten containing ingredients. Also, was there "butter" on the popcorn? It's not butter, you know, but a flavoring which may include modified food starch (made from wheat).

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


missy'smom Collaborator
missy'smom
Posted
Today is Monday. I have been gassy (silent & smelly today). I have also had a little joint pain. Yesterday when I woke up and for the whole day I was extremely fatigued (I slept almost all day!), had a major headache, joint pain and was gassy. I think it was something I ate on Saturday...but not sure what? Here are the questionable things I had on Saturday:

1. Pumpkin Spice Lattee (Starbucks) - Large w/ Soy

2. Wheat and Gluten Free free buns (made with cheese, egg and corn oil)

3. Popcorn at the movie theatre

Any thoughts?!

You're reaction sounds like a classic glutening.

I called 1-800-23LATTE and they were very helpful about providing info about gluten. The Latte should be gluten-free if no CC and highly unlikely to have CC issues with such a beverage. For beverages, they said that toppings like java chips and general chocolate flakes have gluten. Did yours have stuff sprinkled on top?

If I were you, I'd check into the popcorn. I don't eat alot but it is my understanding that not all microwave popcorn is gluten-free and if that's the case, then other flavored popcorns are potentially not gluten-free. Plus CC could be a problem at the theater with all the gluten goodies around. There have been some discussions on this board in the past about theater popcorn.

jewi0008 Contributor
jewi0008
Posted
  • Author
You're reaction sounds like a classic glutening.

I called 1-800-23LATTE and they were very helpful about providing info about gluten. The Latte should be gluten-free if no CC and highly unlikely to have CC issues with such a beverage. For beverages, they said that toppings like java chips and general chocolate flakes have gluten. Did yours have stuff sprinkled on top?

If I were you, I'd check into the popcorn. I don't eat alot but it is my understanding that not all microwave popcorn is gluten-free and if that's the case, then other flavored popcorns are potentially not gluten-free. Plus CC could be a problem at the theater with all the gluten goodies around. There have been some discussions on this board in the past about theater popcorn.

Thank you so much. I wonder if there is anyway to call that theatre to find out what type of "seasoning" they use on their popcorn because while there was NOT any butter on it...I guarantee it was seasoned with something. I'm feeling major after effects in my mouth for the past few days. It's just KILLING me!!!!

jewi0008 Contributor
jewi0008
Posted
  • Author
You're reaction sounds like a classic glutening.

I called 1-800-23LATTE and they were very helpful about providing info about gluten. The Latte should be gluten-free if no CC and highly unlikely to have CC issues with such a beverage. For beverages, they said that toppings like java chips and general chocolate flakes have gluten. Did yours have stuff sprinkled on top?

If I were you, I'd check into the popcorn. I don't eat alot but it is my understanding that not all microwave popcorn is gluten-free and if that's the case, then other flavored popcorns are potentially not gluten-free. Plus CC could be a problem at the theater with all the gluten goodies around. There have been some discussions on this board in the past about theater popcorn.

Also, do you know exactly where on here it talks about Movie Theater Popcorn? THANKS!

Guest thatchickali
Guest thatchickali
Posted

I would give you a BIG FAT NO on the movie theatre popcorn. Bad move in my opinion.

Also they could have had a gluten containing drink in the same equipment as your starbucks drink.

missy'smom Collaborator
missy'smom
Posted
Also, do you know exactly where on here it talks about Movie Theater Popcorn? THANKS!

If you look at the box above that says example search and erase the words "tomato sauce" and type in "movie theater popcorn" or your choice of words and click "search", a screen will pop up with lists of dicussions on the topic and you can click on them to view them individually

  • 4 weeks later...
annie-is-GF Newbie
annie-is-GF
Posted

I don't know about anyone else but I get severe headaches every single time I drink a pumpkin spice latte from Starbucks. I know they supposedly are gluten-free but it never fails with the headaches, and a throbbing, unrelenting headache is for me THE unmistakeable sign of being glutened. I don't know. If S-bucks can guarantee this drink is gluten-free, maybe it's a caffeine sensitivity? But other types of caffeinated drinks from S-bucks seem to be fine. Could there be something in different drink syrups? I can't seem to have other flavoured drinks from there either like the cinnamon dolce latte but the regular latte is fine.... argh!

michelleL Apprentice
michelleL
Posted

I never never eat popcorn from the theater - just can't be sure what they put on it. It's not like you can read any ingredients anywhere. I always bring my own. I pop it at home, season with real buter and salt, put it into a plastic zip lock bag and stuff it in my purse (I have a big purse....) I betting it was the popcorn.

michelleL Apprentice
michelleL
Posted
I never never eat popcorn from the theater - just can't be sure what they put on it. It's not like you can read any ingredients anywhere. I always bring my own. I pop it at home, season with real butter and salt, put it into a plastic zip lock bag and stuff it in my purse (I have a big purse....) I'm betting it was the popcorn.

oops - something went wrong with my editing...

ravenwoodglass Mentor
ravenwoodglass
Posted
I don't know about anyone else but I get severe headaches every single time I drink a pumpkin spice latte from Starbucks. I know they supposedly are gluten-free but it never fails with the headaches, and a throbbing, unrelenting headache is for me THE unmistakeable sign of being glutened. I don't know. If S-bucks can guarantee this drink is gluten-free, maybe it's a caffeine sensitivity? But other types of caffeinated drinks from S-bucks seem to be fine. Could there be something in different drink syrups? I can't seem to have other flavoured drinks from there either like the cinnamon dolce latte but the regular latte is fine.... argh!

If the Starbucks coffee has a gluten additive like barley malt that tests out at a level that the government says is safe they can say it is gluten free even if it really isn't.

Also I used to work in a theatre running a popcorn machine. The amount of unrecognizable ingredients ie chemicals, is really disgusting IMHO. The theater should let you look at the ingredients list for the 'oil' and flavorings if you ask.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that y...
    2. Scott Adams
      - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid mul...
    3. Scott Adams
      - Scott Adams commented on Scott Adams's article in Multiple Sclerosis and Celiac Disease
      2

      Gluten-Free Diet Linked to Reduced Inflammation and Improved Outcomes in Multiple Sclerosis (+Video)

      Better to know late than never, and it is too bad they did not test you for it earlier!
    4. Scott Adams
      0

      Koikoi Trading Inc., Issues Allergy Alert on Undeclared Wheat and Sesame in FU ZHOU FISH BALL

    5. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after eating them. If it happens a few times after eating the same foods- I cut back...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,321
    • Most Online (within 30 mins)
      7,748
    James Minton
    Newest Member
    James Minton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Scott Adams
      IBS-D vs Celiac

      By Scott Adams · Posted

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Question

      By Scott Adams · Posted

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      IBS-D vs Celiac

      By trents · Posted

      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.