Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

No More D

tmk

By tmk
in Coping with Celiac Disease

Recommended Posts

tmk Explorer
tmk
Posted

did anybody's D turn to C after starting gluten-free?

i used to have chronic D (several times a day) and i've been gluten-free for 2 1/2 weeks and am barely going now (maybe once a week -- so bloated!). Did this happen to anyone else?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mommyagain Explorer
mommyagain
Posted

I have the same problem... although after 5 weeks gluten-free, it is getting better. I now go 2-3 times a week. I don't know if that's normal or not, but I'm not in pain like I was when I was going once a week. I personally think that after having d for so long our colons have "forgotten" how to produce a normal bowel movement. Our bodies get so used to the gluten trigger that when the trigger goes away on the gluten-free diet our bodies have to relearn how to work normally.

Try to stick with simple foods, stay away from processed gluten-free foods for now until you no longer feel sick. Your intestines need time to heal.

Good luck, and I hope you feel better soon.

gfpaperdoll Rookie
gfpaperdoll
Posted

are ya'll eating a lot of dairy? try cutting out the dairy & see what happens..

add in some raisins, prunes or other dried fruit...

also - you are not eating any of the gluten free pastas & bread things are you? - not good in the beginning...

Ursa Major Collaborator
Ursa Major
Posted

I agree about the dairy. It is known to cause constipation, and could be the culprit. It is best to stick with simple, naturally gluten-free foods in the beginning, like meats, vegetables and fruits, and not start eating gluten-free substitutes until after some healing has taken place.

tmk Explorer
tmk
Posted
  • Author

thanks for all the replies -- I guess I never thought about the dairy as causing me constipation b/c I've never really been all that constipated before (when I was eating gluten I mainly had diarrhea ALL the time!) I do eat a couple of pieces of string cheese and a yogurt a day, so that may very well be my problem. I haven't done much w/ the gluten substitutes yet, except for a rice bar that I eat once a day at work b/c it's easy to grab in the morning.

I literally lost 4 pounds the other day after finally having a bm (sorry if tmi) -- then i gradually gain it back over the week when i don't "go".

I am having an awful time trying to figure out what to eat -- I was never really much of a chef b/c it's just me and it is hard to cook for one person (recipes always serve so many people). I guess I need to just start doing it b/c food is certainly starting to get real boring!

thanks for the ideas -- I think I will start eating some raisins too b/c I like raisins! :) I used to use psyllium husk pills for fiber to try to bulk up my diarrhea issues before, maybe I will go back to that (those are safe right??)

thanks again!

Dandelion Contributor
Dandelion
Posted

Have you tried adding a B12 vitamin to your diet? Before being diagnosed gluten sensitive I was told I had IBS with constipation. B12 seems to really help with it. I found the following in a Google search:

Signs, symptoms, and health problems associated with vitamin B12 deficiency:

Characteristic signs, symptoms, and health problems associated with vitamin B12 deficiency include anemia, fatigue, weakness, constipation, loss of appetite, and weight loss [1,3,12].

Deficiency also can lead to neurological changes such as numbness and tingling in the hands and feet [7,13].

Additional symptoms of vitamin B12 deficiency are difficulty in maintaining balance, depression, confusion, dementia, poor memory, and soreness of the mouth or tongue [14].

Signs of vitamin B12 deficiency in infancy include failure to thrive, movement disorders, delayed development, and megaloblastic anemia [15].

JNBunnie1 Community Regular
JNBunnie1
Posted

Yes, psyllium is safe as far as I know, I had a product with it in it confirmed gluten-free to me once. It probably would help. And drink more water when you take it, like a real whole lot of water, or it will not feel good.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


tmk Explorer
tmk
Posted
  • Author

thanks for the replies!

I think I will definitely go back to using the psyllium fiber.

I never thought about the B12 -- some of that definitely sounds like me -- anemia, fatigue -- and I have numbness/tingling in my hands and feet/legs ALL the time!!!! I had no idea what that was about!

Can you have too much B12??

Guest j_mommy
Guest j_mommy
Posted

I had the same issue! Now I would say I have close to normal bowel habits!I've been gluten-free since may!

mftnchn Explorer
mftnchn
Posted

There are some really good threads here on constipation with tons of ideas. A combo of vitamin C and magnesium works really well for many, and it good for you as well.

If you try magnesium, go with the same dose for 4-5 days before each increase as it usually can take a few days to have an impact.

Canadian Karen Community Regular
Canadian Karen
Posted
did anybody's D turn to C after starting gluten-free?

i used to have chronic D (several times a day) and i've been gluten-free for 2 1/2 weeks and am barely going now (maybe once a week -- so bloated!). Did this happen to anyone else?

Oh God, I wish! :lol:

jerseyangel Proficient
jerseyangel
Posted
Oh God, I wish! :lol:

Karen--I'm almost embarassed to ask, because I know that you've tried everything and your issues go further than Celiac--but have you tried the calcium carbonate with every meal?

It's worked like nothing short of a miracle for me.

peter99ff Rookie
peter99ff
Posted

I agree w/ the milk cheese etc. Im trying the soy milk as per this diet by blood type i was looking into. It made alot of difference beyond the gluten free. Hope that helps

confusedks Enthusiast
confusedks
Posted

peter99ff,

Be careful with the amount of soy you take in as a replacement. I built an intolerance to it really quickly. You might want to try almond milk instead of soy milk, just to reduce the amount of soy you take in.

Everybody with C,

I have been gluten-free since May and it has JUST gotten better. I am drinking 4-5 times the amount of water I used to drink and WALKING!!!! You have to be active otherwise things just sit in there. These things have helped me a lot also. I think part of the reason I got C instead of D when I went gluten-free is because I used to get a lot of fiber from whole wheat, fiber enriched products, and I can't do that anymore. Most gluten-free replacement foods are really low in fiber, so we must make up for it somewhere else.

Dairy could be the culprit, but that wasn't it for me. I stay off of all dairy just as strictly as gluten because it makes me feel like crap and actually gives me D sometimes. But I suggest anyone who is newly gluten free should get off of dairy because when your villi get blunted, your villi no longer produce the enzyme to break down dairy as it is at the tip of your villi which is usually gone when you're diagnosed.

Good luck!

Kassandra

peter99ff Rookie
peter99ff
Posted

thanks for the insight on the soy, confused. I was never that big on dairy products and have been light with the soy milk, famous last words, I've been doing well so far. LOL :lol:

Nancym Enthusiast
Nancym
Posted

Dairy constipates the heck out of me.

Canadian Karen Community Regular
Canadian Karen
Posted
Karen--I'm almost embarassed to ask, because I know that you've tried everything and your issues go further than Celiac--but have you tried the calcium carbonate with every meal?

It's worked like nothing short of a miracle for me.

Yep, it's on the long list of things I've tried....

I have long since given up on anything working "miracles" on me! <_<

Keep the suggestions coming though - you guys know me well enough to know I will try anything once! :PB)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,855
    • Most Online (within 30 mins)
      7,748
    Tara M
    Newest Member
    Tara M
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • cristiana
      Ibuprofen

      By cristiana · Posted

      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
    • Me,Sue
      Knowing what to do when feeling unwell.

      By Me,Sue · Posted

      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed that I feel nauseous after possibly being glutened. I think the thing that I have got better at is knowing what to do when I feel wiped out after a gluten 'episode'. I drink loads of water, and have just started drinking peppermint tea. I also have rehydration powders to drink. I don't feel like eating much, but eventually feel like I need to eat. Gluten free flapjacks, or gluten free cereal, or a small gluten free kids meal are my go to. I am retired, so luckily I can rest, sometimes even going to bed when nothing else works. So I feel that I am getting better at knowing how to try and get back on track. I am also trying to stick to a simpler menu and eat mostly at home so that I can be more confident about what I am eating. THANKS TO THOSE WHO REPLIED ABOUT THE NAUSEA .
    • Francis M
      The Happy Tart review

      By Francis M · Posted

      Thanks. Since the back and forth and promises of review and general stalling went on for more than six months, the credit company will no longer investigate. They have a cutoff of maybe six months.
    • Scott Adams
      The Happy Tart review

      By Scott Adams · Posted

      Is this the same restaurant? https://www.facebook.com/TheHappyTartFallsChurch/ Is it too late to take this up with your credit card company? Normally you have a few months to do a chargeback with them. It seems very odd that they are taking this approach with someone who is likely to be a regular customer--not a good business-minded way of handling things!
    • Scott Adams
      Stomach burning and neuropathy

      By Scott Adams · Posted

      Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.