Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Low Vitamin D Levels

horsegirl

By horsegirl
in Coping with Celiac Disease

Recommended Posts

horsegirl Enthusiast
horsegirl
Posted

I recently asked my doctor to test my vitamin B12 and vitamin D levels since I'm "free" of several

different major food groups now. My B12 was in the "normal" range, but the D was quite low

("optimum functioning" is 35, & I was 18). The doctor recommended bumping up my intake to 1200 units daily. But how do I do that? Supplements? Certain foods?

Any suggestions?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


dlp252 Apprentice
dlp252
Posted

Mine was also just tested and found to be below optimal. They're having me take a vitamin D3 supplement with 50,000 IU of Vitamin D3...I'm taking one of those a day for a month...don't know what happens after that though, I need to ask tomorrow. She said the idea behind the megadose is to "flood the receptors" whatever that means. I don't think I could get that much with just food alone. You might call your doctor and ask about the best way to get it.

hathor Contributor
hathor
Posted

I believe someone recently posted a link to an article about how D3 supplements are better than the usual D2 ones.

A number of foods are supplemented with D. I see my hemp milk has D2 and my orange juice has D3.

I wouldn't recommend taking more than what your doctor personally prescribes. You don't want to overdose.

Do you get much sunlight? This is the way humans have traditionally gotten their Vitamin D. Here's an article I recently read:

Open Original Shared Link

Nancym Enthusiast
Nancym
Posted

This site has some good information: Open Original Shared Link

This cardiac doctor blogs about the importance of D3 and has specific recommendations on which sort to take in this posting: Open Original Shared Link

JNBunnie1 Community Regular
JNBunnie1
Posted

I'd try an hour outside in the sun every day. Of course, some of us don't have the time for that (ha ha) but it's a noble idea.

Ursa Major Collaborator
Ursa Major
Posted

Unless you live quite near the equator, you won't get enough vitamin D through sun in the winter, no matter how long you stay in the sun.

The best and healthiest source of vitamin D is still good old cod liver oil. And there is a good tasting one now that even tastes good, not fishy. I am taking Carlson cod liver oil, and went from 24 to 150 within a year, and had to cut back, as it was getting too high. Optimal is about 120.

Cod liver oil gives you also high doses of omega 3 fatty acids, which are essential to health, as well as vitamin A and E.

elye Community Regular
elye
Posted
Unless you live quite near the equator, you won't get enough vitamin D through sun in the winter, no matter how long you stay in the sun.

The best and healthiest source of vitamin D is still good old cod liver oil. And there is a good tasting one now that even tastes good, not fishy. I am taking Carlson cod liver oil, and went from 24 to 150 within a year, and had to cut back, as it was getting too high. Optimal is about 120.

Cod liver oil gives you also high doses of omega 3 fatty acids, which are essential to health, as well as vitamin A and E.

I'm with Ursula...it's cheap, too!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


JNBunnie1 Community Regular
JNBunnie1
Posted
I'm with Ursula...it's cheap, too!

Oh yeah, that! I forgot about the whole winter thing...

I got glutened this past weekend, my IQ still hasn't recovered. I take Dr Ron's cod liver oil, but it's pretty expensive, Carlson is the next best. And you said it doesn't taste bad?

dlp252 Apprentice
dlp252
Posted

I've tried taking a few different brands of EFAs (essential fatty acids) and fish oils and haven't tolerated any of them (also tried Flax seed oil and meal and hemp for some Omega 3s with no luck in the tolerance department)...I'm wondering if the cod liver would do any better for me? :unsure: Just thinking in cyberspace. :P

Ursa Major Collaborator
Ursa Major
Posted
I got glutened this past weekend, my IQ still hasn't recovered. I take Dr Ron's cod liver oil, but it's pretty expensive, Carlson is the next best. And you said it doesn't taste bad?

Carlson cod liver oil is lemon flavoured, and really doesn't taste bad. My husband claims it tastes great, I wouldn't go that far myself. But I am one of those people who will absolutely not take anything that tastes bad (I just can't make myself stick with something I hate). So, if I've taken it for two years now, you better believe it tastes okay!

Gentleheart Enthusiast
Gentleheart
Posted

Before I found out I was intensely intolerant of dairy, I enjoyed adding a tablespoon of Carlson's lemon cod liver oil to 8 oz. of plain yogurt, along with a packet of Stevia Plus (or some other acceptable sweetener). It tasted like a wonderful lemon pudding! Honestly. It may sound bad, but it's actually really good! I miss it.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Seaperky
      - Seaperky replied to lizzie42's topic in Traveling with Celiac Disease
      2

      Trip to Anaheim/Disney

      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease. Thier gluten free options are awesome.
    2. Scott Adams
      0

      When Gluten-Free Food Is Unavailable: A Child's Struggle Highlights the Hidden Risks for People with Celiac Disease

    3. Churley
      - Churley replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
    4. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions...
    5. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know. I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,349
    • Most Online (within 30 mins)
      7,748
    Sarah S
    Newest Member
    Sarah S
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Seaperky
      Trip to Anaheim/Disney

      By Seaperky · Posted

      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Churley · Posted

      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Insomnia help

      By nanny marley · Posted

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.