Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

A Question


just-curious

Recommended Posts

just-curious Newbie

Hello everyone,

I have read that celiac and gluten intolerance often goes undiagnosed, and often one's intestines are being damaged without even knowing it. My question: will the intolerance always eventually manifest itself with physical symptoms, and if not, why does it matter that a person like that should change their diet? (also, how would they know in the first place to get tested?)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor
Hello everyone,

I have read that celiac and gluten intolerance often goes undiagnosed, and often one's intestines are being damaged without even knowing it. My question: will the intolerance always eventually manifest itself with physical symptoms, and if not, why does it matter that a person like that should change their diet? (also, how would they know in the first place to get tested?)

Welcome!

Yes, it takes an average of 11 years to diagnose Celiac Disease. Celiac can be non-symptomatic although it will continue to cause damage and it is often discovered through thyroid, adrenal and other abnormalities.

Celiac is a disease that effects the small intestines. The autoimmune response to gluten can attack other vital organs as well.

If one is diagnosed with Celiac Disease or a Gluten Intolerance, the prescription is the same symptomatic or not - total gluten free diet.

Joss Rookie

I can answer this. I received an email from RnteroLab kust yesterday and this is what it said in part;

The IgA blood test that came out positive confirmed that you are sensitive to the gluten protein therefore, you should permanently remove gluten from your diet. The IgG test that was negative was to confirm an allergy not a sensitivity. There is a big difference between the two. If you are allergic to a food your body will produce the IgG or the IgE antibody and the symptoms are usually short lived. It is also possible to build up a tolerance to these foods over time and eventually reintroduce them into your diet. This is not possible with a food sensitivity. If you are sensitive to a food protein, your body does not have nor will it ever have the capability of breaking down and digesting the protein. This causes your immune system to begin producing the IgA antibody at above normal levels, thereby giving you a positive blood test. Once this process begins, the only way to stop it is to permanently remove the food from your diet. If you do not this can begin a "domino effect" of other health issues you could develope as a direct result of gluten sensitivity

This really made sense to me and I hope it helps you too.

Joss

ravenwoodglass Mentor
Hello everyone,

I have read that celiac and gluten intolerance often goes undiagnosed, and often one's intestines are being damaged without even knowing it. My question: will the intolerance always eventually manifest itself with physical symptoms, and if not, why does it matter that a person like that should change their diet? (also, how would they know in the first place to get tested?)

For most the reason to test is because of symptoms that may or may not be tummy related. The folks who are asymptomatic, no symptoms at all are often found when another member of the family is diagnosed and the doctor encourages the rest of the family to be tested. Celiac and gluten intolerance can affect many of the bodies systems before the usual 'celiac' symptoms develop. Some folks may have neurological issues like depression or anxiety or difficulty with movement and balance, some may have skin issues, some may have just heartburn but no constipation or diarrhea. Some may have arthritis of various forms. When you have a reaction to gluten it can cause many autoimmune disorders that you might not think are gluten related. It can also effect the ability to concieve and carry a child to term. Most of all it can cause cancers and things like kidney problems, gallbladder.... well you get the idea. The ideal is to get diagnosed before all the resulting damage can occur as going gluten free will greatly decrease if not eliminate the formation of more serious problems.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,855
    • Most Online (within 30 mins)
      7,748

    Tara M
    Newest Member
    Tara M
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
    • Me,Sue
      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed that I feel nauseous after possibly being glutened. I think the thing that I have got better at is knowing what to do when I feel wiped out after a gluten 'episode'. I drink loads of water, and have just started drinking peppermint tea. I also have rehydration powders to drink. I don't feel like eating much, but eventually feel like I need to eat. Gluten free flapjacks, or gluten free cereal, or a small gluten free kids meal are my go to. I am retired, so luckily I can rest, sometimes even going to bed when nothing else works. So I feel that I am getting better at knowing how to try and get back on track. I am also trying to stick to a simpler menu and eat mostly at home so that I can be more confident about what I am eating. THANKS TO THOSE WHO REPLIED ABOUT THE NAUSEA .
    • Francis M
      Thanks. Since the back and forth and promises of review and general stalling went on for more than six months, the credit company will no longer investigate. They have a cutoff of maybe six months.
    • Scott Adams
      Is this the same restaurant? https://www.facebook.com/TheHappyTartFallsChurch/ Is it too late to take this up with your credit card company? Normally you have a few months to do a chargeback with them. It seems very odd that they are taking this approach with someone who is likely to be a regular customer--not a good business-minded way of handling things!
    • Scott Adams
      Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.