Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

High Gliadin


safyre

Recommended Posts

safyre Newbie

I've been reading this forum for a few days now since I got the results from an Adrenal Stress Index my chiropractor did on me via Diagnos-Tech.

I've always been a scientific type of person and having a chiropractor tell me I have this & that hasn't set well with me & thrown me into all sorts of confusion.

My gliadin was 66 & my TSH was 600. And I show adrenal fatigue.

(I don't have the results here otherwise I'd post everything, but those were the main problems.)

He told me I'm hypothyroid & Celiac. I headed to my physician & had them draw blood Friday. But no matter how much of a collision I am having in my head about my chiropractor, something set those numbers off and even if my physician comes back all normal, I'm reading that doesn't mean much.

The Celiac was out of no where to me. I have never noticed an issue with wheat, but now I realize it could be...

If you read the symptoms for hypothyroidism, that's pretty much me to a T except for the hairloss & dry patchy skin.

I've been having indigestion like no tomorrow recently. I have a bowel movement once every 4 days or more. I am so moody, depressed, apathetic, no libido at all, recently I've been itchy... I feel like I've been falling a part. My 'good' days are few & far between now a days. I will cry at the toss of a hat it seems out of pure frustration for no real reason at all. I'm withdrawn and just don't feel like doing anything at all. I can't lose weight no matter what I do. I also have anxiety attacks & migraines from time to time.

Sorry for the long post, I just seriously needed to vent. All I want is my life back and waiting for these tests to come back will be an eternity.... if they will be accurate or not. *sigh*

I have not altered my eating patterns for the time being. After talking to my mom, as far as she knew no one in our family has ever been diagnosed with it - but thyroid problems are there.

Thanks for letting me vent.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nora-n Rookie

Hi

I am hypothyroid too. My TSH was 2,5 but my free t4 was scratching the bottom of the normal range when I started thyroid meds......

If the TSH was 66, this was quite high. Are you sure it was not 6,00? But that is high too. I am sure the TSH will be abnormal at your doctor's too, because the numbers move very slow.

Gluten is known to trigger hypothyroidism. If you had been living in a place where they rarely eat gluten, you might not have gotten hypo.....

You might also ask for a test for the thyroid antibodies. This is because when you go gluten-free, the thyroid antibodies typically go down.

About the adrenals, they are usually stressed if you are hypo. This is normal.

nora

ravenwoodglass Mentor
I've been reading this forum for a few days now since I got the results from an Adrenal Stress Index my chiropractor did on me via Diagnos-Tech.

I've always been a scientific type of person and having a chiropractor tell me I have this & that hasn't set well with me & thrown me into all sorts of confusion.

My gliadin was 66 & my TSH was 600. And I show adrenal fatigue.

(I don't have the results here otherwise I'd post everything, but those were the main problems.)

He told me I'm hypothyroid & Celiac. I headed to my physician & had them draw blood Friday. But no matter how much of a collision I am having in my head about my chiropractor, something set those numbers off and even if my physician comes back all normal, I'm reading that doesn't mean much.

The Celiac was out of no where to me. I have never noticed an issue with wheat, but now I realize it could be...

If you read the symptoms for hypothyroidism, that's pretty much me to a T except for the hairloss & dry patchy skin.

I've been having indigestion like no tomorrow recently. I have a bowel movement once every 4 days or more. I am so moody, depressed, apathetic, no libido at all, recently I've been itchy... I feel like I've been falling a part. My 'good' days are few & far between now a days. I will cry at the toss of a hat it seems out of pure frustration for no real reason at all. I'm withdrawn and just don't feel like doing anything at all. I can't lose weight no matter what I do. I also have anxiety attacks & migraines from time to time.

Sorry for the long post, I just seriously needed to vent. All I want is my life back and waiting for these tests to come back will be an eternity.... if they will be accurate or not. *sigh*

I have not altered my eating patterns for the time being. After talking to my mom, as far as she knew no one in our family has ever been diagnosed with it - but thyroid problems are there.

Thanks for letting me vent.

Your celiac panels done by the lab your chiro uses are very high. They really leave no doubt and while he was the savvy person who ordered your tests they are diagnostic in themselves. Did you take copies of these labs to your regular doctor? He might not feel a need to do the same test over again.

Welcome to the ever expanding world of celiac. It does take some time to get used to but in the long run you will be so glad that this has been found. Your chiro may have not only saved your life in the long run he has also saved your quality of life. You have found a good place for info and support, don't be afraid to ask any question no matter how gross or silly you may think it to be.

safyre Newbie
Your celiac panels done by the lab your chiro uses are very high. They really leave no doubt and while he was the savvy person who ordered your tests they are diagnostic in themselves. Did you take copies of these labs to your regular doctor? He might not feel a need to do the same test over again.

Welcome to the ever expanding world of celiac. It does take some time to get used to but in the long run you will be so glad that this has been found. Your chiro may have not only saved your life in the long run he has also saved your quality of life. You have found a good place for info and support, don't be afraid to ask any question no matter how gross or silly you may think it to be.

I did take the results to my (ex)PCP. He was boggled that this 'quack' would be running these tests on me and throwing around 'unlicensed diagnoses'. He said it did warrant further testing but only tested TSH (no free t3 or 4's - will only do that if the TSH is off) and it was .38 with a reference of .40-4.0. He ordered a celiac, but it hasn't come back yet. I'm sure it was only one of the panels.

My PCP told the nurse to tell me "I must have been fighting a virus"

I hate the fact he doesn't explain test results to you unless you make an appointment to see him & MAKE him do it. It's time to find someone new.

I have no idea what to think anymore, but have an appointment with a specialist Monday.

The celiac possibility surprised me as I had never heard of it and only the last couple of weeks (aside from the ongoing constipation - is that even a celiac symptom? I thought D was) I have been having intestinal issues - namely gas & bouts of heartburn/indigestion that lasts days on end that antacids of any & all kinds don't relieve.

As I said - I have not changed my diet simply because I think I need more tests.

Maybe I should go for the stool test.

safyre Newbie

Here are the actual Diagnos-Tech results:

Adrenal Stress

7-8am 7 Depressed (REF: 13-24 nM)

11-Noon 7 Depressed (REF: 5-10 nM)

4-5PM 4 Normal (REF: 3-8 nM)

11-Midnight 3 Normal (REF: 1-4 nM)

(FLATLINED)

Cortisol Burden 21 (REF: 23-42)

DHEA 6 Normal (REF: 3-10 ng/ml)

Saliva Thyroid

TSH > 600 High (REF: Normal: 26-85 nIU/ml)

fT4 .22 Normal (REF: Normal: .17-.42 ng/dl)

fT3 .64 Normal (REF: Normal: .28-1.10 pg/ml)

TPO: Negative - Normal

Total Salivary

SIgA 39 Normal (REF: Normal: 25-60mg/dl)

Gliadin Ab, SIgA 66 Positive (REF: Borderline: 13-15 U/ml, Positive >15 U/ml)

Insulin

Fasting < 3 (REF: Normal: 3-12 uIU/mL)

Post-prandial < 3 (REF: Optimal: 5 to 20 uIU/mL)

Progesterone 19 (REF: Optimal: 22-100 pg/ml)

happygirl Collaborator

If you ask your doctor to test you for celiac, ask him to run the full Celiac panel, which consists of five tests:

From Columbia University: Open Original Shared Link

Serologic panel

Of the commercially available serologic tests that aid in the diagnosis of celiac disease, no one test is ideal. Using multiple serologies increases the diagnostic yield. Therefore, in the United States, screening in patients with possible celiac disease should consist of a panel of the following serologic tests:

Anti-gliadin antibodies (AGA) both IgA and IgG

Anti-endomysial antibodies (EMA) - IgA

Anti-tissue transglutaminase antibodies (tTG) - IgA

Total IgA level.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,353
    • Most Online (within 30 mins)
      7,748

    ace14219
    Newest Member
    ace14219
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • SilkieFairy
      It could be a fructan intolerance? How do you do with dates?  https://www.dietvsdisease.org/sorry-your-gluten-sensitivity-is-actually-a-fructan-intolerance/
    • Lkg5
      Thank’s for addressing the issue of mushrooms.  I was under the impression that only wild mushrooms were gluten-free.  Have been avoiding cultivated mushrooms for years. Also, the issue of smoked food was informative.  In France last year, where there is hardly any prepared take-out food that is gluten-free, I tried smoked chicken.  Major mistake!
    • catnapt
      my IGG is 815 IGA 203  but tTG-Iga is   <0.4!!!!!!!!!!!!!   oh my god- 13 days of agony and the test is negative?  I don't even know what to do next. There zero doubt in my mind that I have an issue with wheat and probably more so with gluten as symptoms are dramatically worse the more gluten a product has   I am going to write up the history of my issues for the past few years and start a food/symptom diary to bring with me to the GI doctor in March.   I googled like crazy to try to find out what other things might cause these symptoms and the only thing that truly fits besides celiac is NCGS   but I guess there are some other things I maybe should be tested for ...? like SIBO?   I will continue to eliminate any foods that cause me distress (as I have been doing for the past couple of years) and try to keep a record. Can anyone recommend an app or some form or something that would simplify this? I have a very full and busy life and taking the time to write out each symptom name in full would be tedious and time consuming- some sort of page with columns to check off would be ideal. I am not at all tech savvy so that's not something I can make myself ... I'm hoping there's some thing out there that I can just download and print out   do I give up on testing for celiac with such a low number? I am 70 yrs old I have been almost completely off gluten for the most part for about 2 yrs. I had a meal of vital wheat gluten vegan roast,  rolls and stuffing made from home baked bread and an apple pie- and had the worst pain and gas and bloating and odd rumblings in my gut etc - almost went to the ER it was so bad. I was thinking, since I'm spilling a lot of calcium in my urine, that perhaps this was a kidney stone (never had one before but there's always that first time, right?)    Saw my endo on Jan 20th and after hearing the story about the symptoms from eating that holiday meal, she suggested doing a gluten challenge. She said 2 weeks was fine- she said stopping it in the middle if symptoms got bad was fine- In the meantime I'd read that 2 weeks was not enough- called and argued with the nurse about this, but ultimately decided to stop the gluten on the 13th day and get the test done because I was in too much pain and almost suicidal and knew I could not continue.   so.............. that's where I am now I have had no bread since Sunday. I did have some rolled oats today and had some gas and bloating afterwards I did have some wheat germ in a smoothie on Tuesday and had a stomach ache later that night.   but overall I feel so much better! all the joint pain is gone! the nausea is gone. The stomach pain and gas and bloating are going away. Still a bit gassy but no more of that horrible odor. wow, that would clear a room if I was out in public!  I see a GI nurse March 4th  I hope she'll be able to help sort this out! can you think of what my next steps might be?
    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.