Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dr Returned Call !

barbara123

Recommended Posts

barbara123 Apprentice
barbara123
Posted

Hey everyone just wanted to get you guys up to date. My dr finally returned my call last night at 10.30 pm. :blink:

Said i still tested positive for celiac disease but my IGA is still really low. Now back in for more blood tests and another endo <_< really don't like the idea of yet another endo but what do you do?

Feeling somewhat better today, YES I AM OUT OF BED !!!

Think I will take myself to the store and get something good to eat :P

Barb

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted
Hey everyone just wanted to get you guys up to date. My dr finally returned my call last night at 10.30 pm. :blink:

Said i still tested positive for celiac disease but my IGA is still really low. Now back in for more blood tests and another endo <_< really don't like the idea of yet another endo but what do you do?

Feeling somewhat better today, YES I AM OUT OF BED !!!

Think I will take myself to the store and get something good to eat :P

Barb

I hope that something is gluten free or are you in the doctor prescribed 'let's poison you until we are absolutly sure that gluten is killing you because our tests don't show as positive as we want them to" stage that so many doctors needlessly do to us when our bodies are already screaming at us to get rid of the poison.

barbara123 Apprentice
barbara123
Posted
  • Author
I hope that something is gluten free or are you in the doctor prescribed 'let's poison you until we are absolutly sure that gluten is killing you because our tests don't show as positive as we want them to" stage that so many doctors needlessly do to us when our bodies are already screaming at us to get rid of the poison.

No i am still on the gluten-free diet. Still feeling well today (thats 3 days in a row) :D

I dont know if he will find anything on the endo after 3 months on diet but he said to stay on diet :blink:

Right now just happy :D to be able to get out of bed!!!

buffettbride Enthusiast
buffettbride
Posted
No i am still on the gluten-free diet. Still feeling well today (thats 3 days in a row) :D

I dont know if he will find anything on the endo after 3 months on diet but he said to stay on diet :blink:

Right now just happy :D to be able to get out of bed!!!

I'm glad you are feeling better and that gluten-free is working for you. YAY!

ravenwoodglass Mentor
ravenwoodglass
Posted
No i am still on the gluten-free diet. Still feeling well today (thats 3 days in a row) :D

I dont know if he will find anything on the endo after 3 months on diet but he said to stay on diet :blink:

Right now just happy :D to be able to get out of bed!!!

Great, isn't it wonderful when we finally start to feel better. If you were diagnosed by endoscopy the endo could be useful in seeing how much you have healed. If it comes back negative you know that you are on the right track, not that your dietary response has not shown that already. He may just want to check on your healing. I am relieved to hear he wasn't talking about a gluten challenge, that was my fear for you.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Mari
      - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      3

      Dumped

      Thanks, jmartes, for answering the question. You believe you still have active Celiac Disease. Right? You wrote that you are WHEAT free. Are you also BARLEY free and RYE free?I am asking this because to have an active reaction you must be putting gluten into your body, There are a few other foods that may cause some autoantibody production. Ask KnittyKitty...
    2. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      3

      Dumped

      NOOOOOO NO NOOOO I was 23 years old.i have Not eaten wheat sense diagnosed in 1994.Been reading labels ever sense and in 2007 found more food issues. Menopause has changed my body completely and asking for help has turned into a medical NIGHTMARE. Wondering why my skin and eyes are having issues. Is all on me learning because blood work fine.Yet again for...
    3. Mari
      - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      3

      Dumped

      Hi jmartes, In 1994, when you were in your 30s you were diagnosed with Celiac Disease at Kaiser. You went on a gluten free diet and still avoid eating wheat, barley and Rye. It seems that you recovered and you no longer have active Celiac Disease at age 54. If you started eating the gluten grains again you might again get back the symptoms and problems...
    4. Aretaeus Cappadocia
      - Aretaeus Cappadocia replied to Scott Adams's topic in Gluten-Free Foods, Products, Shopping & Medications
      86

      Study: 8% of Gluten-Free Products Test Over 20ppm, and 15% of "Gluten-Free" Products Certified by GFCO Contain Gluten at Over 10ppm

      Celiac is too common to be "rare" under the standard definition. Does this group do anything with Celiac?
    5. Lotte18
      - Lotte18 replied to Scott Adams's topic in Gluten-Free Foods, Products, Shopping & Medications
      86

      Study: 8% of Gluten-Free Products Test Over 20ppm, and 15% of "Gluten-Free" Products Certified by GFCO Contain Gluten at Over 10ppm

      😂
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,792
    • Most Online (within 30 mins)
      7,748
    Mrs
    Newest Member
    Mrs
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Mari
      Dumped

      By Mari · Posted

      Thanks, jmartes, for answering the question. You believe you still have active Celiac Disease. Right? You wrote that you are WHEAT free. Are you also BARLEY free and RYE free?I am asking this because to have an active reaction you must be putting gluten  into your body, There are a few other foods that may cause some autoantibody production. Ask KnittyKitty about this. In 2007 you had more food issues. Many Celiacs have this development and I think it is because while they hadthe active celiac disease and damage to their small intestine food allergies were caused because of the damage  while you had the active disease and not identified until years later. It is necessary to eliminate those foods from your diet. Scott Adams wrote that some people can start eating those foods after their intestine has healed. I have not been able to add any foods I react to back to my diet.      
    • Jmartes71
      Dumped

      By Jmartes71 · Posted

      NOOOOOO NO NOOOO I was 23 years old.i have Not eaten wheat sense diagnosed in 1994.Been reading labels ever sense and in 2007 found more food issues. Menopause has changed my body completely and asking for help has turned into a medical NIGHTMARE. Wondering why my skin and eyes are having issues. Is all on me learning because blood work fine.Yet again for some reason not acknowledging my digestive issues ive given copies of.As stated in pervious post I was given breath test which I was positive with that dr and prior to him a few months, still wanted me to do.
    • Mari
      Dumped

      By Mari · Posted

      Hi jmartes, In 1994, when you were in your 30s you were diagnosed with Celiac Disease at Kaiser. You went on a gluten free diet and still avoid eating wheat, barley and Rye. It seems that you recovered and you no longer have active Celiac Disease at age 54. If you started eating the gluten grains again you might again get back the symptoms and problems you had when you were in your 30s. The only cure for Celiac Disease is being strictly gluten free.  Your medical providers are correct in telling  you that you do not have active Celiac Disease. Do you understand that? You may have some other developing health problems and I can write  more if you  answer the question.                         the only cure for celiac disease is being  gluten gree.
    • Aretaeus Cappadocia
      Study: 8% of Gluten-Free Products Test Over 20ppm, and 15% of "Gluten-Free" Products Certified by GFCO Contain Gluten at Over 10ppm

      By Aretaeus Cappadocia · Posted

      Celiac is too common to be "rare" under the standard definition. Does this group do anything with Celiac?
    • Lotte18
      Study: 8% of Gluten-Free Products Test Over 20ppm, and 15% of "Gluten-Free" Products Certified by GFCO Contain Gluten at Over 10ppm

      By Lotte18 · Posted

      😂
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.