Fibromyalgia & Cronic Fatigue

[JUDI42MIL]

Seems a lot of us with celiac also have fibbromyalgia and or chronic fatigue. So I thought I would post this here. I myself am so tired of hearing fibro isnt real, etc........ I was just about wheel chair bound from fibro years ago, so yeah it is real. And the pain we have is real.

"House" reinforces outdated stereotypes about CFIDS/FM

Action Alert!

On Tuesday night, Fox network presented the debut of new medical drama, House. The premise of the series is described on the Fox website as follows:

[pixiegirl]

Thanks for that info, I didn't watch the show but my daughter did. I sent the e-mail letters to Fox. I was diagnosed with CFS when my daughter was born 13 years ago. I was very lucky to be able to have as my doctor Dr. David Bell, who really was the very first to recognize that people in his local town were all ill with the same thing. He went on to be at Harvard where I saw him, he's written tons of books on CFS and back then was considered the only real expert on the disease. (I don't keep up much on the research now)

For those of you that have CFS or fibromyalgia, Dr. Bell did tell me this, that most patients show much improvment after a period of time. For me it was 5 years, I was so sick some days and so tired I couldn't get out of bed, but after the 5 year point I slowly began to see improvement. I also did something that I felt was impossible when Dr. Bell told me to keep this in my daily routine.... exercise, even if all you can get is a short walk. I was able to increase my distance (I still walk daily now) and slowly things got better.

I know this isn't the case with everyone but if you have CFS really badly, just have hope because most people do show good improvement (and we learn how to cope). Now 13 years later, in my every day life I'm back to normal, I have less stamina then most people but that isn't really evident unless we go to disney world or some place that requires a lot of walking. On a day to day basis I'm doing really good.

Anyhow thanks for the heads up about Fox.

Susan

[fpd]

Since Thyroid Disease is often triggered by Coeliac and the blood tests for Thyroid are extremely unreliable way too many people are needlessly suffering so called CFS or Fibromyalgia for the simple reason no one has correctly diagnosed their Thyroid Disease

more info on www.drlowe.com

[jknnej]

Is Fibromyalgia different for everyone?

Recently I hurt in strange places..like my ribs on both sides, my back and shoulders. It feels like someone punched me and I'm bruised. It's extremely tender to the touch for no reason whatsoever. My chest is also frequently sore; I've always just played it off as "my lymph glands must be swollen, maybe I'm fighting off a cold."

Plus, I have the dizziness, brain fog, memory issues, etc. And, I've always had irritable bowel.

But it isn't so bad that I can't do my normal routine; I've kind of just ignored it.

Could this be fibromyalgia? my doctor did mention it once but then she left and another doctor came and we never discussed it b/c I was too busy trying to get my stomach problems under control. I just thought most of you seem to suffer worse than I; to the point that you can't get out of bed. Mine isnt' like that (at least not yet), so I wonder if I could have this. What else could explain these things?

I also don't have it in every place the internet said (my hips don't hurt or my feet).

I mainly feel it in my back, (shoulders and lower back) and my sides.

Any ideas?

[red345]

wrong one, sorry

[Guest jhmom]

I don't think Fibro is different for everyone, maybe not everyone has the same pressure points. Fibro is dx by the doctor checking your "pressure points" on each side of your spine in your lower back, shoulder blades, top of shoulders, chest, hips, knees and elbows.

Here is a website to check out:

Open Original Shared Link

I hope this helps