Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Chocolate Candy Precaution


debmidge

Recommended Posts

debmidge Rising Star

The holidays are coming up and I wanted to share this experience with you all

I purchased Belgium-style candy made in Vermont and after the purchase realized that it had wheat in it.

I had this happen last year (someone gave me candy from Germany that had barley in it).

I've noticed that some chocolates from U.S., Switzerland, Belgium and Germany may use wheat or barley -- so be forewarned. They might come in cute shapes (like Santas, animals, etc.) or in brightly colored packages or foils. They may even be more expensive that Hershey's or regular chocolate bars. Please read the label before purchasing or consuming.

If you happen to eat it first, you might find that it has a "strange" flavor; the texture may be smoother than let's say a Hershey's bar, but the flavor has a certain flavor that I can't describe but you'd know it when you tasted it -- it has a hint of something that just isn't chocolate. (I don't have celiac so I can eat it, but I don't care for that extra taste that the barley and wheat gives it, that's how I knew to read the label after I had it in my mouth. Had I realized that it had wheat in it, I would not have purchased it).

Anyway, just a warning as those holidays will soon be here....


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



blueeyedmanda Community Regular

I know what you mean I was in the Lindt store in King of Prussia and could not find a candy bar without wheat in it.

debmidge Rising Star

it makes the chocolate taste weird & dilutes the chocolate taste

Franceen Explorer

I was in COSTCO yesterday looking at all those holiday Belgian/Swiss/German etc candy offerings that I normally LOVE so much. MANY had wheat in them - mostly the filled candies. However, I did find (and buy) some truffles made in Belgium - Gavarny brand name, that do not have wheat or barley and are made in a facility that processes only tree nuts. VERY DELICIOUS, and quite expensive! They are in a fancy box too.

Doesn't have that "flavor" either! I know what you mean about the flavor - it is something that you can't describe, but as a kid, I loved it in the chocolate rabbits, bunnies, santas, etc! Now I don't like it.

We also have been able to get the "fancy Hershey's" dark chocolates - "Cacao Reserve" this time. They are gluten-free, but not European. It takes some time-consuming reading with a magnifying glass to find stuff, but I usually do manage to find fancy candies that are gluten-free. I also get a kick out of the people looking at me strangely when I spend so much time pouring over the ingredients lists! Oh well.

TimSpfd Newbie

In the US check for a local chocolatier, many smaller companies use purer chocolate recipes than the big ones that have to worry about shelf stability more. I work for one such and have never had any problems with our solid chocolate items. There are risks for cross contamination here, and many items that do contain gluten. Always avoid anything with rice in it - rice crunch bars etc. The rice they use with chocolate is malted (barley) to keep it crisper. Also watch out for items with other ingredients such as nuts or fruit since those may have gluten from a previous processer.

I wont post my employer here but if you search for "chocolate allergy information" it will show up on the first page. I've made an effort to put together a page for our website that gives the info as best as I can determine.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - nanny marley replied to nanny marley's topic in Related Issues & Disorders
      3

      Manitol and mri

    2. - Scott Adams replied to RDLiberty's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Toothpaste question.

    3. - Scott Adams replied to Theresa2407's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Probiotics

    4. - Scott Adams replied to Colleen H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Celiac attack confusion and anxiety

    5. - Scott Adams replied to nanny marley's topic in Related Issues & Disorders
      3

      Manitol and mri


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,789
    • Most Online (within 30 mins)
      7,748

    klholt
    Newest Member
    klholt
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • nanny marley
      Brilliant thankyou for the information I will contact them tomorrow, I was just concerned because I'm already in a bowel flare too , and I didn't want to take anything that would cause me more issues , especially with the way sweeteners make be feel I've had a really bad throat from this type of stuff before , and it upsets my digestive system too and I have a wedding in a week 😳
    • Scott Adams
      There is no scientific evidence to suggest that hydrated silica or its relative, silicon dioxide, triggers a celiac-specific immune response or causes intestinal damage in individuals with the condition. The concern you likely encountered online is a common misconception. Here’s the key distinction: the protein in gluten (gliadin) is what causes the autoimmune reaction in celiac disease. Hydrated silica and silicon dioxide are minerals, chemically inert compounds of silicon and oxygen, and are completely unrelated to gluten proteins. They are widely used as abrasives in toothpaste and anti-caking agents in food powders because they are stable and non-reactive. While any individual can have a unique sensitivity to any substance, there is no mechanism by which these silica compounds would mimic gluten or exacerbate celiac disease. Your diligence in using a certified gluten-free toothpaste is the correct and most important step, as it eliminates the risk of cross-contamination with wheat-derived ingredients like starch. Based on current scientific understanding, the hydrated silica in your toothpaste is not an issue for your celiac management.
    • Scott Adams
      There is no single "best" probiotic brand universally recommended for celiac disease. The goal of a probiotic in this context is to help support the gut microbiome, which can be disrupted by the damage caused by gluten exposure. The most important factor is not the brand name, but ensuring the product is certified gluten-free, as some probiotics use wheat-derived starches or are produced in facilities that handle gluten, posing a cross-contamination risk. Furthermore, the specific strains of bacteria can matter; some research suggests strains like Lactobacillus and Bifidobacterium may be beneficial, but individual responses vary greatly. Because the supplement industry is not tightly regulated, choosing a reputable brand that undergoes third-party testing for purity and potency is key. 
    • Scott Adams
      What you are describing, while terrifying and severe, is an experience that others in the celiac community have reported during a powerful reaction. The systemic inflammation triggered by gluten exposure in someone with celiac disease can absolutely extend far beyond the digestive tract, creating a cascade of symptoms that feel like your entire body is in revolt. The severe pain, neuropathy, muscle and jaw tension, and intense anxiety and confusion are all potential manifestations of this body-wide inflammatory and autoimmune response. It's a well-documented phenomenon that a celiac attack can provoke a significant neurological and psychological component, including "brain fog," disorientation, and panic-level anxiety. While your first step should always be to meticulously re-check all foods, medications, and even cross-contamination sources, it's also possible that a previously safe product has changed its formula or that you encountered a hidden source. 
    • Scott Adams
      The substance you're likely thinking of is "mannitol," which is a sugar alcohol, and it is indeed used as a sweetener in some "sugar-free" products. However, for an MRI, the drink is almost certainly "Mannite," which is a brand name for a laxative preparation used to cleanse the bowel before the scan. Its primary purpose is not to sweeten but to create a clear image by distending the bowel and stimulating a bowel movement. While the names sound similar, the function and formulation are very different from a small-quantity sweetener. That said, your concern is valid and should be addressed with your healthcare team. The most important step you can take is to call the MRI department or your referring doctor directly. Explain your specific reaction to sweeteners in detail—mentioning the throat and ear sensations is crucial as it could indicate a more significant sensitivity. They can confirm the exact drink they use, check its full ingredient list for you, and determine if an alternative prep is available or if pre-medication is recommended to ensure your safety and comfort during the procedure.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.