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Ain't That The Truth


Darn210

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Darn210 Enthusiast

Shared by a member of our local support group:

YOU KNOW YOU HAVE CELIAC DISEASE:

if you read the ingredient label on green tea - plain green tea.

if you just discovered how to make flour out of turnips.

if you know that Xanthan Gum is not for chewing.

if you know exactly when Post added barley flavoring back to the

Fruity Pebbles and you're ticked.

if a 7 Course Meal is a 1 Course Meal for you. Lettuce.

if your mother is afraid to do the cooking.

if you don't lick stamps.

if you cry when you discover a new way to make gluten-free bread. And

call all your relatives.

if you sit on the phone with a pharmacy for an hour to find out what

type of starch they use just so that you can take a generic Tylenol

and be rid of your headache.

if you know that spelt is a distant cousin of wheat, but buckwheat is

not related to wheat at all.

if the construction workers working on the house next door to you can

EASILY substitute your bread for one of their bricks.

if your grandmother INSISTS that you don't have celiac, you're just

"suffering from malabsorption"

if you burst into tears of relief at the sight of the words "gluten

free" stamped on the corner of the Nestle hot cocoa mix.

if you actually KNOW what an anti-TTG and an IGA blood test are.

if you've disinherited loved ones for putting their knife in your mayo.

if you sold your house to buy groceries.

if you compare all of your food to "normal-people-food."

if you can find "hidden gluten" in food labels in the blink of an eye.

if your family couldn't find it if they had a magnifying glass,

dictionary, and Ph.D.

if you wept the first time you tried to make gluten free sugar cookies

if you get a medical exemption out of cooking class because they are

baking bread.

if at Christmas, visions of guar gum dance in your head.

if you've had to give a doctor a crash course in Celiac 101.

if you've "brown bagged it" to an elegant dinner engagement.

if you've installed floor-to-ceiling bookcases in your bathroom.

if you've ever driven more than 40 miles to buy flour or a cookie.

if you hold your breath when passing by the bakery counter.

if you've ever deliberately rammed your cart into a Shredded Wheat

display in a fit of rage.

if the centerpiece on your dining room table is a bread machine with

memorial candles.

if your bread looks like a moon rock and tastes like dried out Play Doh.

if your bread weighs more than any moon rock could possibly weigh.

if one of your primary goals in life is to create "Fake Oreo Cookies".

if you've brought a suitcase full of food with you on a cruise.

if you pace and circle the store three or four times when deciding on

a new product - pick it up and look at the ingredients each time -

only to leave without it, figuring why bother.

if your family thinks you're crazy for not tasting their new chocolate

chip cookie recipe, because surely a little nibble couldn't hurt,

right?

if you are up late at night trying to develop a recipe for pizza

without flour, cheese, yeast, tomatoes, beef, garlic and oregano.

if you can spell transglutaminase and dermatitis herpetiformis.

if you show up at the annual church pancake breakfast with a mask and

sardine lettuce rollups

if having solid poop is the highlight of your day.

if you have actually doodled a new cartoon dog on your notes named "Sprue".

if you have ever dreamt about Wonder Bread.

if you have considered using a gluten-free bagel for a hockey puck.

if you hide the gluten-free cookies when guests come over, so they

don't eat them.

if you cried when you saw your usually careful husband brushing the

crumbs off his hands (from making a gluten-containing sandwich) RIGHT

OVER the open utensil drawer

if you talk about your disease so much to your friends and

acquaintances that your husband tells you you need to get another

hobby

if you talk about endoscopies and colonoscopies like these are normal

everyday occurences that everyone gets nearly every year.

if you bring "special" beer to the party, and don't share.

if you see someone buying rice flour in the bulk section and you just

have to ask them if they are gluten intolerant too!


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Ridgewalker Contributor

Janet, I LOVE these! This one is my favorite--

if you've ever deliberately rammed your cart into a Shredded Wheat

display in a fit of rage.

:lol: :lol: :lol:

Totally me.

ptkds Community Regular

THanks for posting this! I really needed the laughs today! It is scary how I can relate to so many of those!

kbtoyssni Contributor

You mean these aren't normal-person behaviors??? :) Thanks for posting!

MedicMan Newbie

Thank you. I really needed that today. It's good to know that I'm not alone in this new adventure.

See ya'

MedicMan

mommyagain Explorer
YOU KNOW YOU HAVE CELIAC DISEASE:

if you've "brown bagged it" to an elegant dinner engagement.

This is me! In just 2 months I've brown-bagged it to a bridal shower, a wedding, a baby shower, a fall festival, and countless meetings for work where "lunch is provided".

blueeyedmanda Community Regular

You know you have celiac if you can pinpoint all the bathrooms between point A and point B of your trip.


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mamaw Community Regular

Too cute!!!! The sad thing it is all true..........

Silly Yak Pete Rookie

That just describes me so accurately and funny to.

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    • Mari
      There is much helpful 'truth' posted on this forum. Truths about Celiac Disease are based on scientific research and people's experience. Celiac disease is inherited. There are 2 main Celiac 'genes' but they are variations of one gene called HLa - DQ What is inherited when a person inherits one or both of the DQ2 or the DQ8 is a predisposition to develop celiac disease after exposure to a environmental trigger. These 2 versions of the DQ gene are useful in diagnosing  celiac disease but there are about 25 other genes that are known to influence celiac disease so this food intolerance is a multigenic autoimmune disease. So with so many genes involved and each person inheriting a different array of these other genes one person's symptoms may be different than another's symptoms.  so many of these other genes.  I don't think that much research on these other genes as yet. So first I wrote something that seem to tie together celiac disease and migraines.  Then you posted that you had migraines and since you went gluten free they only come back when you are glutened. Then Scott showed an article that reported no connection between migraines and celiac disease, Then Trents wrote that it was possible that celiacs had more migraines  and some believed there was a causal effect. You are each telling the truth as you know it or experienced it.   
    • tiffanygosci
      Another annoying thing about trying to figure this Celiac life out is reading all of the labels and considering every choice. I shop at Aldi every week and have been for years. I was just officially diagnosed Celiac a couple weeks ago this October after my endoscopy. I've been encouraged by my local Aldi in that they have a lot of gluten free products and clearly labeled foods. I usually buy Milagro corn tortillas because they are cheap and are certified. However, I bought a package of Aldi's Pueblo Lindo Yellow Corn Tortillas without looking too closely (I was assuming they were fine... assuming never gets us anywhere good lol) it doesn't list any wheat products and doesn't say it was processed in a facility with wheat. It has a label that it's lactose free (hello, what?? When has dairy ever been in a tortilla?) Just, ugh. If they can add that label then why can't they just say something is gluten free or not? I did eat some of the tortillas and didn't notice any symptoms but I'm just not sure if it's safe. So I'll probably have to let my family eat them and stick with Milagro. There is way too much uncertainty with this but I guess you just have to stick with the clearly labeled products? I am still learning!
    • tiffanygosci
      Thank you all for sharing your experiences! And I am very thankful for that Thanksgiving article, Scott! I will look into it more as I plan my little dinner to bring with on the Holiday I'm also glad a lot of research has been done for Celiac. There's still a lot to learn and discover. And everyone has different symptoms. For me, I get a bad headache right away after eating gluten. Reoccurring migraines and visual disturbances were actually what got my PCP to order a Celiac Panel. I'm glad he did! I feel like when the inflammation hits my body it targets my head, gut, and lower back. I'm still figuring things out but that's what I've noticed after eating gluten! I have been eating gluten-free for almost two months now and haven't had such severe symptoms. I ate a couple accidents along the way but I'm doing a lot better
    • trents
      @Mari, did you read that second article that Scott linked? It is the most recently date one. "Researchers comparing rates of headaches, including migraines, among celiac patients and a healthy control group showed that celiac subjects experienced higher rates of headaches than control subjects, with the greatest rates of migraines found in celiac women.  Additionally, celiacs had higher rates of migraine than control subjects, especially in women. In fact, four out of five women with celiac disease suffered from migraines, and without aura nearly three-quarters of the time."
    • Mari
      As far as I know and I have made severalonline searches, celiac disease disease has not been recognized as a cause of migraines or any eye problems. What I wrote must have been confusing.
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