Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Just One Bite


Nyxie63

Recommended Posts

Nyxie63 Apprentice

You know how if sometimes you have an owie, you just have to poke it from time to time to see if it still hurts? Well, that's what its like right now.

I'm self dx'd due to my reaction to the wheat challenge a little over a week ago . Other than that, I've been gluten-free for a month. There's a part of me that really doesn't want to accept this and thinks "just one bite couldn't hurt". Sometimes its almost overwhelming. Its like I want to poke the owie to see if it still hurts. Logic tells me it'll still hurt, but I still want to poke it. Does that make any sense?

Now before you yell at me... No, I'm not going to do this. There's no way I want a repeat of the wheat challenge reaction.

But the urge is there.

Did anyone else go through this? Feeling the need to test yourself just one more time more before fully accepting the reality of this new dx?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



hathor Contributor

I frequently feel that way, particularly when I'm feeling well. Unfortunately, I have been accidentally glutened enough times ... and seen the result ... so my better judgement comes into play.

I did try to test casein recently. Although Enterolab says it is a permanent intolerance, I read here about someone who reached the point after some months of being able to tolerate it. I didn't eat much, just a trace in something I ordered at a restaurant.

Ah, stupidity. I won't be doing that again :(

I also tested soy the same way. Same result.

Ridgewalker Contributor
You know how if sometimes you have an owie, you just have to poke it from time to time to see if it still hurts? Well, that's what its like right now.

I'm self dx'd due to my reaction to the wheat challenge a little over a week ago . Other than that, I've been gluten-free for a month. There's a part of me that really doesn't want to accept this and thinks "just one bite couldn't hurt". Sometimes its almost overwhelming. Its like I want to poke the owie to see if it still hurts. Logic tells me it'll still hurt, but I still want to poke it. Does that make any sense?

Now before you yell at me... No, I'm not going to do this. There's no way I want a repeat of the wheat challenge reaction.

But the urge is there.

Did anyone else go through this? Feeling the need to test yourself just one more time more before fully accepting the reality of this new dx?

YES!!!! Omg, I completely agree, this is one drawback of being self dx'd (I am too.) I've been gluten-free for a few months now, and while I haven't really had any gluten withdrawal symptoms... I constantly am having to restrain myself from re-checking, and re-testing myself. I'm so used to thinking my symptoms are psychological!

I've gotten accidentally glutened a couple times, and that seriously should have been enough to get it through my head. Never the less, I have poked the owie a couple times... :angry: and it hurts worse every time I do it.

JNBunnie1 Community Regular
I've gotten accidentally glutened a couple times, and that seriously should have been enough to get it through my head. Never the less, I have poked the owie a couple times... :angry: and it hurts worse every time I do it.

HAHAHAHAHAHA!!!!!! We don't have small children, really..............

It's ok, me and my boyfriend say potty and we don't even have kids.

Nyxie63 Apprentice

Thank you!

Its nice to know I'm not the only one who feels the need to poke the owie. :D

-------------------

LOL JNB! Hubby and I don't have kids either but we use terms like potty and owie too. Then again, we both still love crayons and coloring books and playing with bubbles too!

Thank goodness maturity is optional. ;)

blueeyedmanda Community Regular

It is a very common feeling. I admit that I get that feeling still very frequently, if we are at the County Fair and you smell funnel cakes or you are walking through the mall and smell Auntie Ann's.

I always try my hardest to tell myself, remember what you went through and how far you have came.

JNBunnie1 Community Regular
Thank you!

Its nice to know I'm not the only one who feels the need to poke the owie. :D

-------------------

LOL JNB! Hubby and I don't have kids either but we use terms like potty and owie too. Then again, we both still love crayons and coloring books and playing with bubbles too!

Thank goodness maturity is optional. ;)

I know! we still play Uno and paint with watercolors, whenever my boyfriend plays with his legos (we're 23, by the way) I sing the Toys'r'us theme at him.

I do that 'poke the owie' thing too, but have not ever felt tempted with gluten. I'm self diagnosed too, but a glutening takes too much away from me. I think you may find that this feeling fades with time. Try to keep some Whole Foods cookies (gluten-free Bakehouse choc chip are UNBELIEVABLE, my uncle fights me for em) and something crunchy around to fight the urge!

Oh, I wanted to mention, don't go too crazy with the low-cal mentality for a few months. You need those calories to repair your body, you need the nutrients. Like we were talking about though, try to get them from raw dairy and goods veggie fats and organic meats. You're right about the bread, it won't really provide any nutrients.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Nyxie63 Apprentice

Manda,

I guess its not so much a matter of wanting a forbidden food as much as wondering if I'm really GI or not and wanting to test it (again) for my own satisfaction. My dx was made by a single measly challenge with cream of wheat. My dr has taken my word regarding the reaction and has no interest in pursuing testing as confirmation. I should be thankful for that, but a huge question mark still hangs over my head like a little black cloud. A couple of accidental glutenings will probably help to clear all that up.

------------------------

JNB,

LOL! Hubby and I are in our 40s and still do that! Like I said, thank goodness maturity is optional. ;)

I've recently discovered Pamela's Pecan Sandies. Oooooh! A little greasy for my taste, but ITS A COOKIE!!!! :P Those things are dangerous.

I guess I worry more than I should about the calorie content of food. I've lost quite a bit of weight (started at 185 and am now down to 167) and don't want to go back up again. In spite of the occasional commercially-processed gluten-free goodie, I'm still sticking with a good basic diet. The great news is that I haven't had to take the Omeprazole (for reflux) in almost 2 weeks! The combination of the gluten-free diet, digestive enzymes, and probiotics must be working. And no stomach cramps since switching over to white rice. Yay! And thank you! :)

JNBunnie1 Community Regular

Your body probably had the starvation: save everything! reaction. Some people, when not absorbing nutrients, will save every calorie, valuable or not. Some people will lose all their weight, the stereotypical celiac (me). Even though you're getting more calories, you're getting the nutrients you need now, so your body won't hold on to all those unnecessary calories now.

I still think you should wait a while longer and have a bit of barley soup or something. Just to see if it's Celiac or wheat. Although that was quite humorous, that a couple of accidental glutenings should clear things right up for you!

Nyxie63 Apprentice
I still think you should wait a while longer and have a bit of barley soup or something. Just to see if it's Celiac or wheat. Although that was quite humorous, that a couple of accidental glutenings should clear things right up for you!

Yeah, I think you're right. To be honest, I'd rather be wheat-intolerant than gluten-intolerant. At least that way I wouldn't be quite so limited. I'm also hoping once the deficiencies and dysbiosis are cleared up, my reaction won't be quite as severe either. I really don't want to have to carry around an epi pen the rest of my life. <_<

confusedks Enthusiast

I jsut wanted to say. There is someone on this board who had a Gluten Intolerance (NOT celiac) and it was a product of another health problem. Now that she has "fixed" the other problem, she is able to eat gluten. She told me that it is NOT as good as she remembers...at all!

I thought this might help. Personally, I think I get more bummed about the other intolerances than I do gluten. I also think most of the time we miss the convenience of eating gluten. Before we could go anywhere and not bring food, now we have to bring food wherever we go or call ahead, etc.

Hang in there! It is totally normal to feel what you are feeling.

Kassandra

babygirl1234 Rookie

if i have anything with gutlen in it im done for because i feel like i want to tose mt cookies after that, so i try to stay away from anything with gulten in it. But its hard sometimes you do it with reallizeing it

dandelionmom Enthusiast

I've been tempted but I think that if I actually tried to eat gluten I wouldn't be able to actually go through with it.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    2. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    3. - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

    4. - David Blake commented on Scott Adams's article in Product Labeling Regulations
      1

      FDA Moves to Improve Gluten Labeling—What It Means for People With Celiac Disease

    5. - nanny marley replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      nothing has changed

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,343
    • Most Online (within 30 mins)
      7,748

    emoryprose
    Newest Member
    emoryprose
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • asaT
      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
    • trents
      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.