Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Am Going To Try Nixing The Soy...


FootballFanatic

Recommended Posts

FootballFanatic Contributor

I really didn't want to eliminate soy because my diet has just narrowed down so far since going gluten free...

BUT, I'm dizzier and dizzier and the B12 isn't helping.

I start my day off with gluten-free waffles(which contain soy)

Snack on an apple and some gluten-free pretzels(which contain soy)

Then I'm dizzy.

Those are really the only things I know have soy in them, but I don't know about my medicine...Do you think that eliminating the foods - going "soy lite" - would help or does it have to be completely removed. I'm not allergic to it, I had an allergy test.

I am asking for the full enterolab package for Christmas this year, how sad is that...but I want to be tested for soy, eggs, dairy and caseins....

I can't keep missing class due to feeling faint!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mango04 Enthusiast

There's nothing wrong with cutting out soy, but you might be getting dizzy from all the sugar. You can try balancing things out a bit with a little protein (hard boiled egg, nut butter etc.) and see if that helps. I don't eat much meat, but I get extremely dizzy if I just eat bread-type products and fruit and nothing else.

Also, are you on any medications that might cause dizziness?

EBsMom Apprentice

If you really think it might be the soy, then the only way to really find out is to eliminate it completely for a period of time and see how you feel. Then do a challenge if you want to. My dd had to eliminate soy to *really* get on the path to being well....first gluten, then dairy, then soy. I hear you about the restrictive diet....but it can be done. I'm really hoping that it's temporary for my dd, and that she can eat both dairy and soy again. But for now, it's out.

I also agree with Mango. You need more protein in your diet. Protein will keep your blood sugar level, instead of the highs and lows that come with eating only carbs. I ALWAYS get dizzy if I don't eat a good amount of protein. Eggs, meat, nuts, nut butters, beans....are all good protein sources. When I'm rushed, I grab a handful of walnuts or almonds, instead of snacking ONLY on carbs....it keeps me from needing to gorge on carbs again 30-40 minutes later, and starting the whole high/low blood sugar cycle all over again.

Hope you feel better soon!

Rhonda

psawyer Proficient

Soy intolerance is not uncommon in people with celiac. It can be harder to avoid than gluten, but as a listed allergen under FALCPA it must be clearly disclosed on the label.

If just being gluten-free is not doing it for you, soy might be the next thing to look at.

But first, as a recently diagnosed celiac, your villi may not be producing lactase. You need lactase in order to digest lactose (milk sugar). Many newly diagnosed celiacs need to be lactose free for as much as six months until their villi heal enough to resume the production of lactase. This condition is temporary and will disappear once the villi heal. Usually, though, the symtoms of lactose intolerance are abdominal: flatus (gas) and/or diarrhea.

Take care.

ravenwoodglass Mentor

Soy was the final piece of the puzzle for me. My ataxia which had improved greatly gluten free is now totally gone. I found eliminating soy harder than gluten, I never realized it was in so much. I am older and amazed at how much soy is in our foods. When I was growing up it was in almost nothing.

Offthegrid Explorer

I recently eliminated soy. I'm completley casein free, and challenged the soy idea a couple of times (both on purpose and by accident) and it's clearly the culprit. I was having some pretty sharp intestinal pain and that's completely gone. I'm very rarely gasey. And I've had more normal BMs this week than in 6 months. But still some symptoms now and then, so there might be a bit of soy slipping in.

It's in a lot of stuff, but at least it has to be on the label. So far luckily only one of my McCormick spices has soy (hamburger seasoning).

Ginsou Explorer

Did you know that Enterolab keeps your specimen for 6 months, and if you want an additional test it can be done ? I 've had lactose intolerance for 30 years, and tested positive for Celiac. Eliminated gluten from my diet. Still had some problems....and tested positive for dairy, and also soy!!! Most of my gluten free products also had soy in them......mayonnaise,tuna fish, wheat free soy sauce,salad dressings, dairy free cheese,dairy free ice cream,Crisco, Wesson oil, soup,dairy free margarine,Van's waffles, Pamela's Chocolate Chunk cookie mix etc. The list goes on and on.

So, here I am cleaning out the food supply again.I'm using Nutiva coconut oil for a margarine substitute and love it. Spectrum shortening is working out very well in baking. Canola mayonnaise replaces regular soy containing mayo.

Darn expensive, but I am now well and enjoying life so much more.

Yes, have the tests done if possible.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



hathor Contributor

Ick, I'm just imagining the storage facility. It isn't as if you send in a tiny bit ...

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

    2. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

    3. - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

    4. - Florence Lillian replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    5. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,355
    • Most Online (within 30 mins)
      7,748

    Amy Immerman
    Newest Member
    Amy Immerman
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Wheatwacked
      Raising you vitamin D will increase absorption of calcium automatically without supplementation of calcium.  A high PTH can be caused by low D causing poor calcium absorption; not insuffient calcium intake.  With low D your body is not absorbing calcium from your food so it steals it from your bones.  Heart has priority over bone. I've been taking 10,000 IU D3 a day since 2015.  My doctor says to continue. To fix my lactose intolerance, lots of lactobacillus from yogurts, and brine fermented pickles and saurkraut and olives.  We lose much of our ability to make lactase endogenosly with maturity but a healthy colony of lactobacillus in our gut excretes lactase in exchange for room and board. The milk protein in grass fed milk does not bother me. It tastes like the milk I grew up on.  If I drink commercial milk I get heartburn at night. Some experts estimate that 90% of us do not eat Adequite Intake of choline.  Beef and eggs are the principle source. Iodine deficiency is a growing concern.  I take 600 mcg a day of Liquid Iodine.  It and NAC have accelerated my healing all over.  Virtually blind in my right eye after starting antihypertensive medication and vision is slowly coming back.  I had to cut out starches because they drove my glucose up into the 200+ range.  I replaced them with Red Bull for the glucose intake with the vitamins, minerals and Taurine needed to process through the mitochodria Krebs Cycle to create ATP.  Went from A1c 13 down to 7.9.  Work in progress. Also take B1,B2,B3,B5,B6. Liquid Iodine, Phosphatidyl Choline, Q10, Selenium, D and DHEA.     Choline supplemented as phosphatidylcholine decreases fasting and postmethionine-loading plasma homocysteine concentrations in healthy men +    
    • knitty kitty
      @catnapt, Wheat germ has very little gluten in it.  Gluten is  the carbohydrate storage protein, what the flour is made from, the fluffy part.  Just like with beans, there's the baby plant that will germinate  ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein.   Wheat germ is the baby plant inside a kernel of wheat, and bran is the protective covering of the kernel.   Little to no gluten there.   Large amounts of lectins are in wheat germ and can cause digestive upsets, but not enough Gluten to provoke antibody production in the small intestines. Luckily you still have time to do a proper gluten challenge (10 grams of gluten per day for a minimum of two weeks) before your next appointment when you can be retested.    
    • knitty kitty
      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3.  Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C.  Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine.   Weight gain with a voracious appetite is something I experienced while malnourished.  It's symptomatic of Thiamine B1 deficiency.   Conversely, some people with thiamine deficiency lose their appetite altogether, and suffer from anorexia.  At different periods on my lifelong journey, I suffered this, too.   When the body doesn't have sufficient thiamine to turn food, especially carbohydrates, into energy (for growth and repair), the body rations what little thiamine it has available, and turns the carbs into fat, and stores it mostly in the abdomen.  Consuming a high carbohydrate diet requires additional thiamine to process the carbs into energy.  Simple carbohydrates (sugar, white rice, etc.) don't contain thiamine, so the body easily depletes its stores of Thiamine processing the carbs into fat.  The digestive system communicates with the brain to keep eating in order to consume more thiamine and other nutrients it's not absorbing.   One can have a subclinical thiamine insufficiency for years.  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so the symptoms can wax and wane mysteriously.  Symptoms of Thiamine insufficiency include stunted growth, chronic fatigue, and Gastrointestinal Beriberi (diarrhea, abdominal pain), heart attack, Alzheimer's, stroke, and cancer.   Thiamine improves bone turnover.  Thiamine insufficiency can also affect the thyroid.  The thyroid is important in bone metabolism.  The thyroid also influences hormones, like estrogen and progesterone, and menopause.  Vitamin D, at optimal levels, can act as a hormone and can influence the thyroid, as well as being important to bone health, and regulating the immune system.  Vitamin A is important to bone health, too, and is necessary for intestinal health, as well.   I don't do dairy because I react to Casein, the protein in dairy that resembles gluten and causes a reaction the same as if I'd been exposed to gluten, including high tTg IgA.  I found adding mineral water containing calcium and other minerals helpful in increasing my calcium intake.   Malabsorption of Celiac affects all the vitamins and minerals.  I do hope you'll talk to your doctor and dietician about supplementing all eight B vitamins and the four fat soluble vitamins because they all work together interconnectedly.  
    • Florence Lillian
      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free.  I have a cupboard full of supplements that did not agree with me -  I just keep trying and have finally settled on Sports Research. I take NAKA Women's Multi full spectrum, and have not felt sick after taking 2 capsules per day -  it is a Canadian company. I buy both from Amazon. I wish you well in your searching, I know how discouraging it all is. Florence.  
    • catnapt
      highly unlikely  NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean ground turkey but not much) I was off dairy for years but recently had to add back plain yogurt to meet calcium needs that I am not allowed to get from supplements (I have not had any problem with the yogurt)   I eat almost no processed foods. I don't eat out. almost everything I eat, I cook myself I am going to keep a food diary but to be honest, I already know that it's wheat products and also barley that are the problem, which is why I gradually stopped eating and buying them. When I was eating them, like back in early 2024, when I was in the middle of moving and ate out (always had bread or toast or rolls or a sub or pizza) I felt terrible but at that time was so busy and exhausted that I never stopped to think it was the food. Once I was in my new place, I continued to have bread from time to time and had such horrible joint pain that I was preparing for 2 total knee replacements as well as one hip! The surgery could not go forward as I was (and still am) actively losing calcium from my bones. That problem has yet to be properly diagnosed and treated   anyway over time I realized that I felt better when I stopped eating bread. Back at least 3 yrs ago I noticed that regular pasta made me sick so I switched to brown rice pasta and even though it costs a lot more, I really like it.   so gradually I just stopped buying and eating foods with gluten. I stopped getting raisin bran when I was constipated because it made me bloated and it didn't help the constipation any more (used to be a sure bet that it would in the past)   I made cookies and brownies using beans and rolled oats and dates and tahini and I LOVE them and have zero issues eating those I eat 1 or more cans of beans per day easily can eat a pound of broccoli - no problem! Brussels sprouts the same thing.   so yeh it's bread and related foods that are clearly the problem  there is zero doubt in my mind    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.