Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

4 Weeks And I Am Worse Than Ever Today.

1965kid

By 1965kid
in Coping with Celiac Disease

Recommended Posts

1965kid Apprentice
1965kid
Posted

Hi, I am so glad to have found this board.

I was diagnosed a month or so ago and came here for advise. I got the best advise and am very grateful.

One of the tidbits I got was to avoid dairy for 2 months.

Well, I must say that it took a good 3 weeks of OCD type persistence to "get" the gluten free thing, so I just started the dairy free thing last week. And I must say, I did great. My poop was almost normal. At least it was as normal as I ever remember it being.

Then, last night I had a bowl of ice cream!

This morning, boom! Full blown Big D, and a horrible belly ache! Its the worst I could imagine! Its bad.

And mind you, I have had so called (IBS, big D) all my life (42 years old).

So I have figured out I have a Lactose intolerance too?

But I ate Doritos (Spicy Nacho, deemed safe) for the last 4 days with no problems. Actually its the best I have felt so far.

The Doritos say the have Whey in them. But they didnt seem to bother me.

My question:

Could I eat small amounts of Whey, as would be found in Frozen dinners, soups, and flavored chips, without a problem, and just stay away from the obvious?

I mean, I know cheese, milk, and the like are out, but should I worry about a little Whey in an item or two?

Could I have New England Clam Chowder for instance? (Progresso, Gluten Free)

Im am positive the Ice Cream caused this gut problem I am experiencing. But should I stay from Dairy forever too?

Sorry, must cut this short, as I am headed back to the bathroom for the 6th time today! :rolleyes:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cyberprof Enthusiast
cyberprof
Posted
Hi, I am so glad to have found this board.

I was diagnosed a month or so ago and came here for advise. I got the best advise and am very grateful.

One of the tidbits I got was to avoid dairy for 2 months.

Well, I must say that it took a good 3 weeks of OCD type persistence to "get" the gluten free thing, so I just started the dairy free thing last week. And I must say, I did great. My poop was almost normal. At least it was as normal as I ever remember it being.

Then, last night I had a bowl of ice cream!

This morning, boom! Full blown Big D, and a horrible belly ache! Its the worst I could imagine! Its bad.

And mind you, I have had so called (IBS, big D) all my life (42 years old).

So I have figured out I have a Lactose intolerance too?

But I ate Doritos (Spicy Nacho, deemed safe) for the last 4 days with no problems. Actually its the best I have felt so far.

The Doritos say the have Whey in them. But they didnt seem to bother me.

My question:

Could I eat small amounts of Whey, as would be found in Frozen dinners, soups, and flavored chips, without a problem, and just stay away from the obvious?

I mean, I know cheese, milk, and the like are out, but should I worry about a little Whey in an item or two?

Could I have New England Clam Chowder for instance? (Progresso, Gluten Free)

Im am positive the Ice Cream caused this gut problem I am experiencing. But should I stay from Dairy forever too?

Sorry, must cut this short, as I am headed back to the bathroom for the 6th time today! :rolleyes:

Hi Kid,

If you're sure that the ice cream was gluten free (and nothing else had gluten) then yes, it was probably the ice cream. Sometimes I can eat it, sometimes I can't. I would think the whey might be the same thing. If it's just a little bit (that's different from a little bit of gluten) it might be ok for some people.

I would advise against trying the chowder.

I kept dairy free (except some hard cheese and some milk in my morning tea) for about 7-8 months. Now I'm ok except with ice cream and some soft cheeses, though I'm ok with milk in baked goods and such. I have not yet tried a glass of milk.

Glad you're ok otherwise and that the OCD has been helpful! ;)

~Laura

aikiducky Apprentice
aikiducky
Posted

It does sound like you might be (possibly temporarily) lactose intolerant right now. That's not uncommon in recently diagnosed celiacs.

There is a lot of lactose in milk and ice cream, but less in for instance yoghurt, and very little in hard cheese. The chips were probably ok because whey is a different component of milk than lactose.

You might be ok with butter and hard cheese, and you could try yoghurt in a month or two, and save ice cream and milk for later when you've healed more.

Pauliina

Offthegrid Explorer
Offthegrid
Posted

Just a note that it's possible to be casein intolerant. Casein is a protein in milk. You could try Lactaid products, and see if you get sick? I personally cannot use Lactaid products, which is a bummer because Lactaid makes a delicious chocolate milk and cottage cheese.

JNBunnie1 Community Regular
JNBunnie1
Posted

It does sound like you have lactose issues right now, you just described how I felt after my last glutening when I was lactose intolerant for a week. If that's the case, then the whey wouldn't bother you. It's probably best to lay off anything with lactose, but if you MUST, take a lactase pill.

mftnchn Explorer
mftnchn
Posted

Could be lactose intolerant, in which case you might find some forms of milk you can tolerate. Or could be casein intolerant, in which case you'll have to avoid all milk. If lactose intolerant, this may resolve eventually.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions...
    2. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know. I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past...
    3. nanny marley
      - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I...
    4. David Blake
      - David Blake commented on Scott Adams's article in Product Labeling Regulations
      1

      FDA Moves to Improve Gluten Labeling—What It Means for People With Celiac Disease

      My question I have proposed to the FDA through their website is why Prescription and OTC drug manufacturers are not required to list what binding ingredients were used to bine the drug? They list this on Capsules which are made of cellulose but not on pills? As it stands I or my pharmacist must contact the manufacturer to find out and my list is long from...
    5. nanny marley
      - nanny marley replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      nothing has changed

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,343
    • Most Online (within 30 mins)
      7,748
    emoryprose
    Newest Member
    emoryprose
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Insomnia help

      By nanny marley · Posted

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      nothing has changed

      By nanny marley · Posted

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
    • trents
      Supplements for those Diagnosed with Celiac Disease

      By trents · Posted

      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.