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Should I Get Tested?

Matty

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Matty Rookie
Matty
Posted

Hi all,

Not sure if I

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Lisa Mentor
Lisa
Posted

Matty,

Celiac has over 200 symptoms and yes, you do have some. I would recommend that you have a full celiac blood panel. Your primary doctor can have it done. Some allergy testing may indicate some sensitivities as well. A low tolerance for cold can indicate a thyroid issue.

Read here and see if there is a fit .

Matty Rookie
Matty
Posted
  • Author
Matty,

Celiac has over 200 symptoms and yes, you do have some. I would recommend that you have a full celiac blood panel. Your primary doctor can have it done. Some allergy testing may indicate some sensitivities as well. A low tolerance for cold can indicate a thyroid issue.

Read here and see if there is a fit .

Thanks Momma Goose.

I have taken some time to wander amongst the forums but I am getting somewhat overwhelmed and I

Lisa Mentor
Lisa
Posted

Some people here are non-symptomatic. The only reason they were diagnosed with Celiac is because other issues raised their head like thyroid, diabetes, malabsorption, fibromyalgia....

You can try the diet for several weeks and see if you find improvements in your health. But to have the blood panel or the endoscopy exam with biopsy you must remain on gluten for the bet accuracy in the testing.

I would venture to say that about 50& of active members here are self diagnosed and they feel quite content with it. The gluten free diet is the best form of diagnoses in positive dietary response.

To be honest, with the help of this forum, the diet is not as daunting as it may appear.

BRUMI1968 Collaborator
BRUMI1968
Posted

It sounds like you should definitely have the test -- it is relatively inexpensive when compared to the chance that your ills could be fixed with diet change.

lunch meat and bacon and possibly cheese - sulfites? preservatives? gluten? sugar?

chocolate/coffee/coke- caffeine, sugar? (esp. since not diet coke)

pasta/cereal - gluten/wheat/simple starches?

I would get the celiac test. Then I might get a test to be sure I was able to digest carbs. This is some kind of breath test. There is also fructose intolrance. There are tests for these things - I think you should rule out celiac first, since it is so prevalent in our cultures.

I will tell you this. When I quit gluten, I stopped getting anxiety attacks. 100%. In fact, if I've been exposed to gluten, that is my first clue; within five minutes I feel the panic attack coming on. It is my belief that everyone that suffers from panic attacks/anxiety should be tested for celiac disease.

Take care. Good luck.

nmw Newbie
nmw
Posted

Because you have an opportunity to get tested, do it now before you cut out gluten. It sounds like you may have a gluten issue, and from your list of foods that cause reactions, probably a leaky gut as well. Before I went gluten-free I had similar symptoms to yours, and a relative lack of gastrointestinal symptoms. Gluten and other food intolerances seem to create a cascading effect of ill health in multiple body systems, a cascade you need to stop with a dietary overhaul. Have you done an elimination diet and food journal? This is a great tool for getting to the bottom of your issues.

The toxins your doctor spoke of = your food.

Joss Rookie
Joss
Posted

My main symptoms are asthma, excema, chronic low feritin levels, atrial fibrillation, osteoporosis, Graves Disease, migraines, depression and tiredness. I also had gas and bloating coupled with constipation.

I have been on a gluten free diet new fo 6 weeks and I feel much better. I did eat some gluten at 2 weeks and I came out in a generalised itchy rash all over my body, but mainly on my back. My current doctor won't accept that I had a positive antibody test done in 2001, so she considers me self diagnosed. I don't care much as I feel so much better.

For goodness sake stop eating those suspect foods. It seems that dairy is a problem at least. Maybe you have multiple food allergies and react to additives in foods. I have to eat carefully or I get palpitaions called atrial fibrillation. This is caused by monosodium glutinate and artificial colours in foods. when I abstain, the palpitations go away.

Maybe if you switch to a vegetarian diet and stop eating highly processed foods for a while the condition will correct itself. Clinical depression can lead to feelings of impending doom. I know because I often feel that way. It's then I realise that I am getting depressed.

Joss

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CarlaB Enthusiast
CarlaB
Posted

It's a good idea to get tested for Celiac and you should do it before you cut out gluten.

Here's another thing to consider. Open Original Shared Link

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      I think your initial idea, eat gluten and be tested, was excellent. Now you have fear of that testing, but isn’t there also a fear each time you eat gluten that you’re injuring your body? Possibly affecting future fertility, bone health and more? Wouldn’t it be better to know for sure one way or the other? If you test negative, then you celebrate and get tested occasionally to make sure the tests don’t turn positive again. If you test positive, of course the recommendation from me and others is to stop gluten entirely.  But if you’re unable to convince yourself to do that, could a positive test at least convince you to minimize your gluten consumption?  Immune reactions are generally what is called dose response, the bigger the dose, the bigger the response (in this case, damage to your intestines and body). So while I am NOT saying you should eat any gluten with a positive test, the less the better.  
    • knitty kitty
      Outgrow celiac?

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      @Riley., Welcome to the forum, but don't do it!  Don't continue to eat gluten!  The health problems that will come if you continue to eat gluten are not worth it.  Problems may not show up for years, but the constant inflammation and nutritional losses will manifest eventually.  There's many of us oldsters on the forum who wish they'd been diagnosed as early.    Fertility problems, gallbladder removal, diabetes, osteoporosis and mental health challenges are future health issues you are toying with.   To dispel fear, learn more about what you are afraid of.  Be proactive.  Start or join a Celiac group in your area.  Learn about vitamins and nutrition.   Has your mother been checked for Celiac?  It's inherited.  She may be influencing you to eat gluten as a denial of her own symptoms.  Don't let friends and family sway you away from the gluten-free diet.  You know your path.  Stick to it.  Be brave. 
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