Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Should I Get Tested?


Matty

Recommended Posts

Matty Rookie

Hi all,

Not sure if I


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor

Matty,

Celiac has over 200 symptoms and yes, you do have some. I would recommend that you have a full celiac blood panel. Your primary doctor can have it done. Some allergy testing may indicate some sensitivities as well. A low tolerance for cold can indicate a thyroid issue.

Read here and see if there is a fit .

Matty Rookie
Matty,

Celiac has over 200 symptoms and yes, you do have some. I would recommend that you have a full celiac blood panel. Your primary doctor can have it done. Some allergy testing may indicate some sensitivities as well. A low tolerance for cold can indicate a thyroid issue.

Read here and see if there is a fit .

Thanks Momma Goose.

I have taken some time to wander amongst the forums but I am getting somewhat overwhelmed and I

Lisa Mentor

Some people here are non-symptomatic. The only reason they were diagnosed with Celiac is because other issues raised their head like thyroid, diabetes, malabsorption, fibromyalgia....

You can try the diet for several weeks and see if you find improvements in your health. But to have the blood panel or the endoscopy exam with biopsy you must remain on gluten for the bet accuracy in the testing.

I would venture to say that about 50& of active members here are self diagnosed and they feel quite content with it. The gluten free diet is the best form of diagnoses in positive dietary response.

To be honest, with the help of this forum, the diet is not as daunting as it may appear.

BRUMI1968 Collaborator

It sounds like you should definitely have the test -- it is relatively inexpensive when compared to the chance that your ills could be fixed with diet change.

lunch meat and bacon and possibly cheese - sulfites? preservatives? gluten? sugar?

chocolate/coffee/coke- caffeine, sugar? (esp. since not diet coke)

pasta/cereal - gluten/wheat/simple starches?

I would get the celiac test. Then I might get a test to be sure I was able to digest carbs. This is some kind of breath test. There is also fructose intolrance. There are tests for these things - I think you should rule out celiac first, since it is so prevalent in our cultures.

I will tell you this. When I quit gluten, I stopped getting anxiety attacks. 100%. In fact, if I've been exposed to gluten, that is my first clue; within five minutes I feel the panic attack coming on. It is my belief that everyone that suffers from panic attacks/anxiety should be tested for celiac disease.

Take care. Good luck.

nmw Newbie

Because you have an opportunity to get tested, do it now before you cut out gluten. It sounds like you may have a gluten issue, and from your list of foods that cause reactions, probably a leaky gut as well. Before I went gluten-free I had similar symptoms to yours, and a relative lack of gastrointestinal symptoms. Gluten and other food intolerances seem to create a cascading effect of ill health in multiple body systems, a cascade you need to stop with a dietary overhaul. Have you done an elimination diet and food journal? This is a great tool for getting to the bottom of your issues.

The toxins your doctor spoke of = your food.

Joss Rookie

My main symptoms are asthma, excema, chronic low feritin levels, atrial fibrillation, osteoporosis, Graves Disease, migraines, depression and tiredness. I also had gas and bloating coupled with constipation.

I have been on a gluten free diet new fo 6 weeks and I feel much better. I did eat some gluten at 2 weeks and I came out in a generalised itchy rash all over my body, but mainly on my back. My current doctor won't accept that I had a positive antibody test done in 2001, so she considers me self diagnosed. I don't care much as I feel so much better.

For goodness sake stop eating those suspect foods. It seems that dairy is a problem at least. Maybe you have multiple food allergies and react to additives in foods. I have to eat carefully or I get palpitaions called atrial fibrillation. This is caused by monosodium glutinate and artificial colours in foods. when I abstain, the palpitations go away.

Maybe if you switch to a vegetarian diet and stop eating highly processed foods for a while the condition will correct itself. Clinical depression can lead to feelings of impending doom. I know because I often feel that way. It's then I realise that I am getting depressed.

Joss


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CarlaB Enthusiast

It's a good idea to get tested for Celiac and you should do it before you cut out gluten.

Here's another thing to consider. Open Original Shared Link

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,199
    • Most Online (within 30 mins)
      7,748

    Stacy M
    Newest Member
    Stacy M
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Fayeb23
      Thank you. These were the results TTG ABS NUMERICAL: > 250.0 U/mL [< 14.99]  Really don’t understand the results!
    • Scott Adams
      Clearly from what you've said the info on Dailymed is much more up to date than the other site, which hasn't been updated since 2017. The fact that some companies might be repackaging drugs does not mean the info on the ingredients is not correct.
    • RMJ
      To evaluate the TTG antibody result we’d need to know the normal range for that lab.  Labs don’t all use the same units.  However, based on any normal ranges that I’ve seen and the listed result being greater than a number rather than a specific number, I’d say yes, that is high! Higher than the range where the test can give a quantitative result. You got good advice not to change your diet yet.  If you went gluten free your intestines would start to heal, confusing any further testing,
    • Bev in Milw
      Scott is correct….Thank you for catching that!      Direct link for info  of fillers.    http://www.glutenfreedrugs.com/Excipients.htm Link is on 2nd page  of www.glutenfreedrugs.com   Site was started by a pharmacist (or 2) maybe 15-20 yrs ago with LAST updated in  2017.  This makes it’s Drug List so old that it’s no longer relevant. Companies & contacts, along with suppliers &  sources would need to be referenced, same amount effort  as starting with current data on DailyMed      That being said, Excipient List is still be relevant since major changes to product labeling occurred prior ’17.           List is the dictionary that sources the ‘foreign-to-us’ terms used on pharmaceutical labels, terms we need to rule out gluten.    Note on DailyMed INFO— When you look for a specific drug on DailyMed, notice that nearly all of companies (brands/labels) are flagged as a ‘Repackager’… This would seem to suggest the actual ‘pills’ are being mass produced by a limited number of wholesaler suppliers (esp for older meds out of  patent protection.).      If so, multiple repackager-get  bulk shipments  from same supplier will all  be selling identical meds —same formula/fillers. Others repackager-could be switching suppliers  frequently based on cost, or runs both gluten-free & non- items on same lines.  No way to know  without contacting company.     While some I know have  searched pharmacies chasing a specific brand, long-term  solution is to find (or teach) pharmacy staff who’s willing help.    When I got 1st Rx ~8 years ago, I went to Walgreens & said I needed gluten-free.  Walked  out when pharmacist said  ‘How am I supposed  to know…’  (ar least he as honest… ). Walmart pharmacists down the block were ‘No problem!’—Once, they wouldn’t release my Rx, still waiting on gluten-free status from a new supplier. Re: Timeliness of DailyMed info?   A serendipitous conversation with cousin in Mi was unexpectedly reassuring.  She works in office of Perrigo, major products of OTC meds (was 1st to add gluten-free labels).  I TOTALLY lucked out when I asked about her job: “TODAY I trained a new full-time employee to make entries to Daily Med.’  Task had grown to hours a day, time she needed for tasks that couldn’t be delegated….We can only hope majorities of companies are as  conscientious!   For the Newbies…. SOLE  purpose of  fillers (possible gluten) in meds is to  hold the active ingredients together in a doseable form.  Drugs  given by injection or as IV are always gluten-free!  (Sometimes drs can do antibiotics w/ one-time injection rather than 7-10 days of  pills .) Liquid meds (typically for kids)—still read labels, but  could be an a simpler option for some products…
    • Ginger38
      So I recently had allergy testing for IGE antibodies in response to foods. My test results came back positive to corn, white potatoes, egg whites. Tomatoes, almonds and peanuts to name a few.  I have had obvious reactions to a few of these - particularly tomatoes and corn- both GI issues. I don’t really understand all this allergy versus celiac stuff. If the food allergies are mild do I have to avoid these foods entirely? I don’t know what I will eat if I can’t  have corn based gluten free products 
×
×
  • Create New...