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Should I Get Tested?

Matty

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Matty Rookie
Matty
Posted

Hi all,

Not sure if I

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Lisa Mentor
Lisa
Posted

Matty,

Celiac has over 200 symptoms and yes, you do have some. I would recommend that you have a full celiac blood panel. Your primary doctor can have it done. Some allergy testing may indicate some sensitivities as well. A low tolerance for cold can indicate a thyroid issue.

Read here and see if there is a fit .

Matty Rookie
Matty
Posted
  • Author
Matty,

Celiac has over 200 symptoms and yes, you do have some. I would recommend that you have a full celiac blood panel. Your primary doctor can have it done. Some allergy testing may indicate some sensitivities as well. A low tolerance for cold can indicate a thyroid issue.

Read here and see if there is a fit .

Thanks Momma Goose.

I have taken some time to wander amongst the forums but I am getting somewhat overwhelmed and I

Lisa Mentor
Lisa
Posted

Some people here are non-symptomatic. The only reason they were diagnosed with Celiac is because other issues raised their head like thyroid, diabetes, malabsorption, fibromyalgia....

You can try the diet for several weeks and see if you find improvements in your health. But to have the blood panel or the endoscopy exam with biopsy you must remain on gluten for the bet accuracy in the testing.

I would venture to say that about 50& of active members here are self diagnosed and they feel quite content with it. The gluten free diet is the best form of diagnoses in positive dietary response.

To be honest, with the help of this forum, the diet is not as daunting as it may appear.

BRUMI1968 Collaborator
BRUMI1968
Posted

It sounds like you should definitely have the test -- it is relatively inexpensive when compared to the chance that your ills could be fixed with diet change.

lunch meat and bacon and possibly cheese - sulfites? preservatives? gluten? sugar?

chocolate/coffee/coke- caffeine, sugar? (esp. since not diet coke)

pasta/cereal - gluten/wheat/simple starches?

I would get the celiac test. Then I might get a test to be sure I was able to digest carbs. This is some kind of breath test. There is also fructose intolrance. There are tests for these things - I think you should rule out celiac first, since it is so prevalent in our cultures.

I will tell you this. When I quit gluten, I stopped getting anxiety attacks. 100%. In fact, if I've been exposed to gluten, that is my first clue; within five minutes I feel the panic attack coming on. It is my belief that everyone that suffers from panic attacks/anxiety should be tested for celiac disease.

Take care. Good luck.

nmw Newbie
nmw
Posted

Because you have an opportunity to get tested, do it now before you cut out gluten. It sounds like you may have a gluten issue, and from your list of foods that cause reactions, probably a leaky gut as well. Before I went gluten-free I had similar symptoms to yours, and a relative lack of gastrointestinal symptoms. Gluten and other food intolerances seem to create a cascading effect of ill health in multiple body systems, a cascade you need to stop with a dietary overhaul. Have you done an elimination diet and food journal? This is a great tool for getting to the bottom of your issues.

The toxins your doctor spoke of = your food.

Joss Rookie
Joss
Posted

My main symptoms are asthma, excema, chronic low feritin levels, atrial fibrillation, osteoporosis, Graves Disease, migraines, depression and tiredness. I also had gas and bloating coupled with constipation.

I have been on a gluten free diet new fo 6 weeks and I feel much better. I did eat some gluten at 2 weeks and I came out in a generalised itchy rash all over my body, but mainly on my back. My current doctor won't accept that I had a positive antibody test done in 2001, so she considers me self diagnosed. I don't care much as I feel so much better.

For goodness sake stop eating those suspect foods. It seems that dairy is a problem at least. Maybe you have multiple food allergies and react to additives in foods. I have to eat carefully or I get palpitaions called atrial fibrillation. This is caused by monosodium glutinate and artificial colours in foods. when I abstain, the palpitations go away.

Maybe if you switch to a vegetarian diet and stop eating highly processed foods for a while the condition will correct itself. Clinical depression can lead to feelings of impending doom. I know because I often feel that way. It's then I realise that I am getting depressed.

Joss

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CarlaB Enthusiast
CarlaB
Posted

It's a good idea to get tested for Celiac and you should do it before you cut out gluten.

Here's another thing to consider. Open Original Shared Link

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    • trents
      Why now?

      By trents · Posted

      Yes, other health challenges and even severe prolonged emotional distress are thought to be potential triggers for the latent celiac genes. Let me encourage you to get tested for celiac disease as soon as possible so that you can get on with eliminating gluten from your diet, which itself will involve a considerable learning curve in order to become consistent at it. Even pills and meds can contain gluten because wheat starch can be used as a filler. It's important to know if you have celiac disease for two reasons. First, it damages the lining of the small bowel and, over time, wears down those billions of little fingers that make up the lining and produce a huge surface area for absorbing nutrients from the food we eat. The small bowel is essentially the place where all of our nutrition is absorbed. Long term undiagnosed/ignored celiac disease therefore results in nutritional deficiencies even when we are eating well. You don't need that with the other health issues you are dealing with.  Second, many or most people find it difficult to be consistent with the gluten free diet if they don't have a formal diagnosis of celiac disease. It is just too inconvenient and limiting and they begin to rationalize that, "Well, maybe my problems are due to something else." Human nature has a remarkable capacity to rationalize. It can be argued that you can cheat a little bit on the gluten free diet with NCGS because it only creates a little discomfort and distress but not damage. That doesn't work with celiac disease. So, I feel it is important to know which you are dealing with, especially in the case where you have not yet begun the gluten free diet and you are a good candidate for beginning testing. Many people make the mistake of experimenting with the gluten free diet before they get tested for celiac disease and then they have to go back on gluten for weeks or months, the so-called "gluten challenge", in order to achieve valid test results. By the way, autoimmune diseases tend to cluster. When you get one, it is very common to develop others in time. 
    • ainsleydale1700
      Confused about HLA-DQ Celiac gene test result

      By ainsleydale1700 · Posted

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    • heart390
      Why now?

      By heart390 · Posted

      THANK YOU Trents!!!  No, I have not been tested - but have several autoimmune diseases ( MS over 50 yrs.) MAJOR GAS  & fatigue are my most severe problems.  Possibility STRESS helped kick it off?  It's a sad additional problem to add to the latter part of my life!
    • Scott Adams
      Collecting all possibly related lab work?

      By Scott Adams · Posted

      It’s absolutely worth bringing all of this to your GI appointment. The 2013 CT note about thickening in the second and third portions of the duodenum is especially important, since that area is directly involved in celiac disease and other inflammatory conditions, even if it wasn’t followed up at the time. The weak positive HLA-B27, joint pain, stiffness, numbness, and burning sensations could suggest an autoimmune or inflammatory process, which sometimes overlaps with celiac disease or other gut-related immune conditions. Your periods of neurological symptoms (balance issues, numbness, confusion), low vitamin D, and fluctuating levels despite supplementation are also relevant, as malabsorption can contribute to deficiencies and neurologic complaints. Even “normal” labs are helpful for pattern recognition over time. I’d suggest organizing your records into categories—GI imaging, autoimmune labs, vitamin/mineral levels, neurological evaluations, and symptom timelines—so your GI doctor can see the bigger picture. This kind of long-term pattern can be very useful in connecting dots.
    • trents
      Why now?

      By trents · Posted

      Welcome to the celiac.com community @heart390! Genes connected with the development of celiac disease remain latent until triggered or activated by some biological stressor. The stressor can be many things and our knowledge in this area is incomplete. Suspects include viral infections, antibiotics, pesticides, preservatives and other harmful chemicals in the environment. The onset of celiac disease can happen at any stage in life. It is a long outdated misconception that gluten intolerance is a childhood phenomenon that you eventually outgrow. You use the term "gluten problems". What do you mean by that? Have you been formally diagnosed with celiac disease (aka, "gluten intolerance")? There is also NCGS (Non Celiac Gluten Sensitivity or "gluten sensitivity") for which there is not yet any testing available. It shares many of the same symptoms with celiac disease but is not autoimmune in nature and does not damage the lining of the small bowel. A diagnosis of NCGS depends on first ruling out celiac disease for which we do have tests. If you would seek testing for celiac disease, you must not begin the gluten free diet until all testing is done with or you will have invalidated the testing. There are two stages to the testing. The first stage involves a simple blood draw to check for certain antibodies produced by celiac disease. If the antibody testing is positive, doctors normally order an endoscopy with biopsy of the small bowel lining which checks for damaged caused by the inflammation associated with the autoimmune response. That is the second stage of diagnostic testing.
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