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Should I Get Tested?


Matty

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Matty Rookie

Hi all,

Not sure if I


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Lisa Mentor

Matty,

Celiac has over 200 symptoms and yes, you do have some. I would recommend that you have a full celiac blood panel. Your primary doctor can have it done. Some allergy testing may indicate some sensitivities as well. A low tolerance for cold can indicate a thyroid issue.

Read here and see if there is a fit .

Matty Rookie
Matty,

Celiac has over 200 symptoms and yes, you do have some. I would recommend that you have a full celiac blood panel. Your primary doctor can have it done. Some allergy testing may indicate some sensitivities as well. A low tolerance for cold can indicate a thyroid issue.

Read here and see if there is a fit .

Thanks Momma Goose.

I have taken some time to wander amongst the forums but I am getting somewhat overwhelmed and I

Lisa Mentor

Some people here are non-symptomatic. The only reason they were diagnosed with Celiac is because other issues raised their head like thyroid, diabetes, malabsorption, fibromyalgia....

You can try the diet for several weeks and see if you find improvements in your health. But to have the blood panel or the endoscopy exam with biopsy you must remain on gluten for the bet accuracy in the testing.

I would venture to say that about 50& of active members here are self diagnosed and they feel quite content with it. The gluten free diet is the best form of diagnoses in positive dietary response.

To be honest, with the help of this forum, the diet is not as daunting as it may appear.

BRUMI1968 Collaborator

It sounds like you should definitely have the test -- it is relatively inexpensive when compared to the chance that your ills could be fixed with diet change.

lunch meat and bacon and possibly cheese - sulfites? preservatives? gluten? sugar?

chocolate/coffee/coke- caffeine, sugar? (esp. since not diet coke)

pasta/cereal - gluten/wheat/simple starches?

I would get the celiac test. Then I might get a test to be sure I was able to digest carbs. This is some kind of breath test. There is also fructose intolrance. There are tests for these things - I think you should rule out celiac first, since it is so prevalent in our cultures.

I will tell you this. When I quit gluten, I stopped getting anxiety attacks. 100%. In fact, if I've been exposed to gluten, that is my first clue; within five minutes I feel the panic attack coming on. It is my belief that everyone that suffers from panic attacks/anxiety should be tested for celiac disease.

Take care. Good luck.

nmw Newbie

Because you have an opportunity to get tested, do it now before you cut out gluten. It sounds like you may have a gluten issue, and from your list of foods that cause reactions, probably a leaky gut as well. Before I went gluten-free I had similar symptoms to yours, and a relative lack of gastrointestinal symptoms. Gluten and other food intolerances seem to create a cascading effect of ill health in multiple body systems, a cascade you need to stop with a dietary overhaul. Have you done an elimination diet and food journal? This is a great tool for getting to the bottom of your issues.

The toxins your doctor spoke of = your food.

Joss Rookie

My main symptoms are asthma, excema, chronic low feritin levels, atrial fibrillation, osteoporosis, Graves Disease, migraines, depression and tiredness. I also had gas and bloating coupled with constipation.

I have been on a gluten free diet new fo 6 weeks and I feel much better. I did eat some gluten at 2 weeks and I came out in a generalised itchy rash all over my body, but mainly on my back. My current doctor won't accept that I had a positive antibody test done in 2001, so she considers me self diagnosed. I don't care much as I feel so much better.

For goodness sake stop eating those suspect foods. It seems that dairy is a problem at least. Maybe you have multiple food allergies and react to additives in foods. I have to eat carefully or I get palpitaions called atrial fibrillation. This is caused by monosodium glutinate and artificial colours in foods. when I abstain, the palpitations go away.

Maybe if you switch to a vegetarian diet and stop eating highly processed foods for a while the condition will correct itself. Clinical depression can lead to feelings of impending doom. I know because I often feel that way. It's then I realise that I am getting depressed.

Joss


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CarlaB Enthusiast

It's a good idea to get tested for Celiac and you should do it before you cut out gluten.

Here's another thing to consider. Open Original Shared Link

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    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
    • Seaperky
      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
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