Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Just Got..


mouth

Recommended Posts

mouth Enthusiast

Hi all my rock leader gave me this.. i bought it and its great.. It is called "A Guide through the Medicine Cabinet.. It lists most drugs-- the woman who compiled and wrote this book her husband was a pharmacist - the last update was 2006 and alot of the drug co's are starting not to give her help anymore-- but it is still great.. it lists everything brand generic and even some store brands in it, and then in the back is a directory of ALL drug companies and phone numbers.. it cost me $45.. and next year only the directory will be coming out of course at a lesser cost.. if anybody wants the info let me know and i will post it.. I don't want to get into trouble (again) for posting .. i did when i first started here.. now i dont have to freak out everytime i have to take my daughter to the dr and i can take the book with me and make a simple call b4 i leave the dr's office..

lynn


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



2kids4me Contributor

That's great! The contact numbers will be of benefit because formulations change sometimes, it is nice to have abook to open up when drugs are prescribed.

Sandy

ravenwoodglass Mentor
Hi all my rock leader gave me this.. i bought it and its great.. It is called "A Guide through the Medicine Cabinet.. It lists most drugs-- the woman who compiled and wrote this book her husband was a pharmacist - the last update was 2006 and alot of the drug co's are starting not to give her help anymore-- but it is still great.. it lists everything brand generic and even some store brands in it, and then in the back is a directory of ALL drug companies and phone numbers.. it cost me $45.. and next year only the directory will be coming out of course at a lesser cost.. if anybody wants the info let me know and i will post it.. I don't want to get into trouble (again) for posting .. i did when i first started here.. now i dont have to freak out everytime i have to take my daughter to the dr and i can take the book with me and make a simple call b4 i leave the dr's office..

lynn

Perhaps if your really, really bored and have lots of time on your hands you could create a blog on the front page and list those numbers. :)

This was a great idea on your part but use caution when you bring it to the doctors with you, unless you really trust your doctors. There have been parents of celiac children whose doctors have thought that the parent was purposely making the child sick. This can really be a problem with kids who do not show up celiac under conventional tests. I may be a bit paranoid but trying to find out what was wrong with my DS when he was a baby almost got him taken away from me. He was finally diagnosed at 19 after years of misery. I wouldn't want them to think the same of you and I would check the scripts at home.

mouth Enthusiast
Perhaps if your really, really bored and have lots of time on your hands you could create a blog on the front page and list those numbers. :)

This was a great idea on your part but use caution when you bring it to the doctors with you, unless you really trust your doctors. There have been parents of celiac children whose doctors have thought that the parent was purposely making the child sick. This can really be a problem with kids who do not show up celiac under conventional tests. I may be a bit paranoid but trying to find out what was wrong with my DS when he was a baby almost got him taken away from me. He was finally diagnosed at 19 after years of misery. I wouldn't want them to think the same of you and I would check the scripts at home.

No worries here. Have know my peds. Dr. for more than 30 years. he did think something of the sort when my kate was young, because i would bring her in and he'd give her something and she wouldnt get better, get worse, bring her back, get worse bring her back etc, then finally something would show up that could be treated with meds.. then we started with the specialists and he never questioned anything again.. but he had not seen me since i was 17, and he was not her orig. dr either.. he old dr's never forwarded her records in completion..

mouth Enthusiast
Perhaps if your really, really bored and have lots of time on your hands you could create a blog on the front page and list those numbers. :)

This was a great idea on your part but use caution when you bring it to the doctors with you, unless you really trust your doctors. There have been parents of celiac children whose doctors have thought that the parent was purposely making the child sick. This can really be a problem with kids who do not show up celiac under conventional tests. I may be a bit paranoid but trying to find out what was wrong with my DS when he was a baby almost got him taken away from me. He was finally diagnosed at 19 after years of misery. I wouldn't want them to think the same of you and I would check the scripts at home.

No worries here. Have know my peds. Dr. for more than 30 years. he did think something of the sort when my kate was young, because i would bring her in and he'd give her something and she wouldnt get better, get worse, bring her back, get worse bring her back etc, then finally something would show up that could be treated with meds.. then we started with the specialists and he never questioned anything again.. but he had not seen me since i was 17, and he was not her orig. dr either.. he old dr's never forwarded her records in completion..

Also, i brought the book to my pharmacist, and he said "This is wonderful" it will go a long way in helping to make sure the meds are ok. He had a similar book made for pharma's but a whole lot bigger, and I HATE THIS PART-- he is the mgr of my pharma. and his boss came in from HQ when he was on vacation and thought HIS MEDS/MANUF. book looked like a mess and threw it ouT !!!!!!!!!!!!!!!!! HE WAS SO MAD-- HE WAS HELPING TO CREATE A SAFE LIST FOR ME AND MY PEDS, AND FOR I.C.E...

NO, BECAUSE, WHEN THE PEDS PRESCRIBES I OR HE CAN CALL THE PHARMA, SEE WHAT GENERIC THEY HAVE AND CALL THE CO RIGHT THERE AND THEN IF WE NEED TO DOUBLE CHECK.. NO SENSE IN WASTING TIME.. ... THEY BOTH AGREED.

THANK YOU SO MUCH FOR YOUR HELP THOUGH..

LYNN

mouth Enthusiast
That's great! The contact numbers will be of benefit because formulations change sometimes, it is nice to have a book to open up when drugs are prescribed.

Sandy

HEY SANDY.

That is the idea.. and it is great FOR I.C.E. -- JUST BRING IT WITH YOU....

mouth Enthusiast
No worries here. Have know my peds. Dr. for more than 30 years. he did think something of the sort when my kate was young, because i would bring her in and he'd give her something and she wouldnt get better, get worse, bring her back, get worse bring her back etc, then finally something would show up that could be treated with meds.. then we started with the specialists and he never questioned anything again.. but he had not seen me since i was 17, and he was not her orig. dr either.. he old dr's never forwarded her records in completion..

I would not even begin to know which drug manufacturers to list.. there are page upon pages..

if you want any specific, email me and i will look them up for you.

BTW, the same woman, also makes a DIRECTORY-- it is just a list of all the manufacturers and their phone numbers.

lynn


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Mihai's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      16

      Pain in the right side of abdomen

    2. - knitty kitty replied to Heatherisle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      39

      Blood results

    3. - Heatherisle replied to Mihai's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      16

      Pain in the right side of abdomen

    4. - knitty kitty replied to dsfraley's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      12

      9 y/o Son Diagnosed with Celiac Disease; Persistent Symptoms: Does this Sound Familiar?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,569
    • Most Online (within 30 mins)
      7,748

    Denise F
    Newest Member
    Denise F
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Heatherisle, I'm so happy that your daughter had her B12 checked! B12 needs all the B vitamins to work properly.  A B Complex should be taken to ensure there are plenty of B vitamins to allow B12 to function properly.  It's very rare to have only one or two low vitamins in Celiac Disease.  B vitamins are water soluble, so any excess is easily excreted in urine.  Tingling in feet and hands is symptomatic of deficiencies in B vitamins like thiamine, Pyridoxine, and niacin. September 19 2025, "Your daughter needs to be checked for Vitamin B12 deficiency as soon as possible!   The nitrogen compounds in anesthesia can precipitate a B12 deficiency resulting in severe depression.  Please have her checked immediately! The nitrogen compounds in anesthesia (both gas and injected anesthesia) bind irrevocably with the Cobalt in Cobalamine Vitamin B12.  This precipitates a B12 deficiency in people with a low B12 level.  This can happen immediately, within days or weeks or months depending on B12 stores.    I've had medical procedures that required anesthesia and been struck down by deep dark depression and uncontrollable crying immediately, and also within weeks of the exposure.  My doctor put me on antidepressants which only made things worse.  Antidepressants don't correct a vitamin deficiency.   Please have her checked for B12 deficiency as soon as possible!"  
    • knitty kitty
      I'm so glad your daughter got her B12 level checked at last!  
    • Heatherisle
      Hi  Daughter finally had her B12 checked and her level was 30, normal range 180-200 so GP has prescribed medication for 4 weeks then further blood test so that probably accounts for how awful she’s been feeling recently. Folate was 2.2 just below the range of 3.0 - 20 so will need folic acid. Think iron levels were borderline but don’t know the numbers. Not sure if it was Ferritin levels they did. History of haemochromatosis in family , my husband has it and other daughter is a carrier. She still has a few more blood tests to be taken including Vit D levels. Has had deficiency in that last year and had 6 month course as had back pain and tingling in feet and hands. Anyway thank you everyone for all your previous replies and help!!!!
    • knitty kitty
      I found some articles that illustrate the immune reaction to casein and gluten. Bovine milk caseins and transglutaminase-treated cereal prolamins are differentially recognized by IgA of celiac disease patients according to their age https://pubmed.ncbi.nlm.nih.gov/19290628/   Gliadin and Casein Metabolism: Synthesis of Gliadomorphin and Casomorphin and Their Biological Consequences https://www.researchgate.net/publication/397908713_Gliadin_and_Casein_Metabolism_Synthesis_of_Gliadomorphin_and_Casomorphin_and_Their_Biological_Consequences   Effects of milk containing only A2 beta casein versus milk containing both A1 and A2 beta casein proteins on gastrointestinal physiology, symptoms of discomfort, and cognitive behavior of people with self-reported intolerance to traditional cows’ milk https://pmc.ncbi.nlm.nih.gov/articles/PMC4818854/#:~:text=Results,lactose tolerant and intolerant subjects.   Casomorphins and Gliadorphins Have Diverse Systemic Effects Spanning Gut, Brain and Internal Organs https://pmc.ncbi.nlm.nih.gov/articles/PMC8345738/   Brain Opioid Activity and Oxidative Injury: Different Molecular Scenarios Connecting Celiac Disease and Autistic Spectrum Disorder https://pmc.ncbi.nlm.nih.gov/articles/PMC7407635/  
    • Mari
      Ijmartes71 I  son't think you are crazy by any psycoligical s=defination but you are obsessive. you may have considerable brain fog  , a problem that affects celiacs and many other people. . With this obsession you have abd being braun dogged you arw not abke to take any advice people are giving you to help you. To take advice you need to reduce your anxieties abd think more clearly. .Stop taking your herbs for at least one week because some of them will have side ellectsif you take them too long. You can add them back if you don't notice any good changes. Be more careful about being strictly gluten free.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.