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Hi all my rock leader gave me this.. i bought it and its great.. It is called "A Guide through the Medicine Cabinet.. It lists most drugs-- the woman who compiled and wrote this book her husband was a pharmacist - the last update was 2006 and alot of the drug co's are starting not to give her help anymore-- but it is still great.. it lists everything brand generic and even some store brands in it, and then in the back is a directory of ALL drug companies and phone numbers.. it cost me $45.. and next year only the directory will be coming out of course at a lesser cost.. if anybody wants the info let me know and i will post it.. I don't want to get into trouble (again) for posting .. i did when i first started here.. now i dont have to freak out everytime i have to take my daughter to the dr and i can take the book with me and make a simple call b4 i leave the dr's office..

lynn


Eat Well To Stay Well

Daughter Dx'd Celiac Jan 2007

Dx'd Aspergers June 2009

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That's great! The contact numbers will be of benefit because formulations change sometimes, it is nice to have abook to open up when drugs are prescribed.

Sandy


Sandy

Type 1 diabetes - 1986

hypothyroid -1993

pernicious anemia

premature atrial beats

neuropathy

retinopathy

daughter is: age 15

central hypotonia and developmental delay

balance issues (rides an adult 3 wheel bike)

hypothyroid 1996

dermatographia - a form of angioedema 2002

celiac 2004 - by endoscopy

diagnosed Aspergers at age 7 - responded very well (HUGE difference) to gluten-free diet

recovered from Kawasaki (2003)

lactose intolerant - figured out in Oct/06

Gilberts syndrome (April/07)

allergy to stinging insects

scoliosis Jan 2008

nightshade intolerance - figured out April 2008

allergy to Sulfa antibiotics

son is 13

type 1 diabetic - 2003 diagnosed on his 9th birthday

celiac - 2004 by endoscopy

lactose intolerant - figured out Nov/06

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Hi all my rock leader gave me this.. i bought it and its great.. It is called "A Guide through the Medicine Cabinet.. It lists most drugs-- the woman who compiled and wrote this book her husband was a pharmacist - the last update was 2006 and alot of the drug co's are starting not to give her help anymore-- but it is still great.. it lists everything brand generic and even some store brands in it, and then in the back is a directory of ALL drug companies and phone numbers.. it cost me $45.. and next year only the directory will be coming out of course at a lesser cost.. if anybody wants the info let me know and i will post it.. I don't want to get into trouble (again) for posting .. i did when i first started here.. now i dont have to freak out everytime i have to take my daughter to the dr and i can take the book with me and make a simple call b4 i leave the dr's office..

lynn

Perhaps if your really, really bored and have lots of time on your hands you could create a blog on the front page and list those numbers. :)

This was a great idea on your part but use caution when you bring it to the doctors with you, unless you really trust your doctors. There have been parents of celiac children whose doctors have thought that the parent was purposely making the child sick. This can really be a problem with kids who do not show up celiac under conventional tests. I may be a bit paranoid but trying to find out what was wrong with my DS when he was a baby almost got him taken away from me. He was finally diagnosed at 19 after years of misery. I wouldn't want them to think the same of you and I would check the scripts at home.


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

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Perhaps if your really, really bored and have lots of time on your hands you could create a blog on the front page and list those numbers. :)

This was a great idea on your part but use caution when you bring it to the doctors with you, unless you really trust your doctors. There have been parents of celiac children whose doctors have thought that the parent was purposely making the child sick. This can really be a problem with kids who do not show up celiac under conventional tests. I may be a bit paranoid but trying to find out what was wrong with my DS when he was a baby almost got him taken away from me. He was finally diagnosed at 19 after years of misery. I wouldn't want them to think the same of you and I would check the scripts at home.

No worries here. Have know my peds. Dr. for more than 30 years. he did think something of the sort when my kate was young, because i would bring her in and he'd give her something and she wouldnt get better, get worse, bring her back, get worse bring her back etc, then finally something would show up that could be treated with meds.. then we started with the specialists and he never questioned anything again.. but he had not seen me since i was 17, and he was not her orig. dr either.. he old dr's never forwarded her records in completion..


Eat Well To Stay Well

Daughter Dx'd Celiac Jan 2007

Dx'd Aspergers June 2009

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Perhaps if your really, really bored and have lots of time on your hands you could create a blog on the front page and list those numbers. :)

This was a great idea on your part but use caution when you bring it to the doctors with you, unless you really trust your doctors. There have been parents of celiac children whose doctors have thought that the parent was purposely making the child sick. This can really be a problem with kids who do not show up celiac under conventional tests. I may be a bit paranoid but trying to find out what was wrong with my DS when he was a baby almost got him taken away from me. He was finally diagnosed at 19 after years of misery. I wouldn't want them to think the same of you and I would check the scripts at home.

No worries here. Have know my peds. Dr. for more than 30 years. he did think something of the sort when my kate was young, because i would bring her in and he'd give her something and she wouldnt get better, get worse, bring her back, get worse bring her back etc, then finally something would show up that could be treated with meds.. then we started with the specialists and he never questioned anything again.. but he had not seen me since i was 17, and he was not her orig. dr either.. he old dr's never forwarded her records in completion..

Also, i brought the book to my pharmacist, and he said "This is wonderful" it will go a long way in helping to make sure the meds are ok. He had a similar book made for pharma's but a whole lot bigger, and I HATE THIS PART-- he is the mgr of my pharma. and his boss came in from HQ when he was on vacation and thought HIS MEDS/MANUF. book looked like a mess and threw it ouT !!!!!!!!!!!!!!!!! HE WAS SO MAD-- HE WAS HELPING TO CREATE A SAFE LIST FOR ME AND MY PEDS, AND FOR I.C.E...

NO, BECAUSE, WHEN THE PEDS PRESCRIBES I OR HE CAN CALL THE PHARMA, SEE WHAT GENERIC THEY HAVE AND CALL THE CO RIGHT THERE AND THEN IF WE NEED TO DOUBLE CHECK.. NO SENSE IN WASTING TIME.. ... THEY BOTH AGREED.

THANK YOU SO MUCH FOR YOUR HELP THOUGH..

LYNN


Eat Well To Stay Well

Daughter Dx'd Celiac Jan 2007

Dx'd Aspergers June 2009

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That's great! The contact numbers will be of benefit because formulations change sometimes, it is nice to have a book to open up when drugs are prescribed.

Sandy

HEY SANDY.

That is the idea.. and it is great FOR I.C.E. -- JUST BRING IT WITH YOU....


Eat Well To Stay Well

Daughter Dx'd Celiac Jan 2007

Dx'd Aspergers June 2009

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No worries here. Have know my peds. Dr. for more than 30 years. he did think something of the sort when my kate was young, because i would bring her in and he'd give her something and she wouldnt get better, get worse, bring her back, get worse bring her back etc, then finally something would show up that could be treated with meds.. then we started with the specialists and he never questioned anything again.. but he had not seen me since i was 17, and he was not her orig. dr either.. he old dr's never forwarded her records in completion..

I would not even begin to know which drug manufacturers to list.. there are page upon pages..

if you want any specific, email me and i will look them up for you.

BTW, the same woman, also makes a DIRECTORY-- it is just a list of all the manufacturers and their phone numbers.

lynn


Eat Well To Stay Well

Daughter Dx'd Celiac Jan 2007

Dx'd Aspergers June 2009

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