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After Going gluten-free Then If You Got Glutened Can It Feel Really Bad

seattlemama

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seattlemama Newbie
seattlemama
Posted

yesterday I started feeling a little like I had been glutened. then i made some gluten-free cookies as an experiment and had two. then i had some leftovers for dinner (turkey - not made by me) and I'm thinking it was the turkey. anyway, i was starting to feel a little worse. this was about 6 PM. By 10 PM i felt like i was going to vomit and have diarrhea and my tummy was so bloated. by 11 PM i had done both. my tummy finally settled and i sorta fell asleep on and off for the rest of the night. i haven't had any more vomiting but just a little diarrhea. doesn't really feel like a virus, but i don't know.

my question is if you get glutened since going off gluten, can your "attacks" be worse than you ever experienced before going gluten-free? I never had this reaction to gluten before i went gluten-free. just stomach aches, cramping, gas, etc.

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cruelshoes Enthusiast
cruelshoes
Posted

It has been my experience that my reactions to gluten get more severe the longer I am gluten-free. It has also been true for my son as well. He was asymptomatic when he was diagnosed. Now when he gets exposed to gluten, his reaction is swift and terrible.

Kinda seems unfair, doesn't it? The harder we try to be gluten-free, the worse the reaction to gluten gets. It really gives one a powerful incentive to remain totally gluten-free. ;)

Hope you feel better.

PS - When I am feeling poorly, I often immediately attribute it to gluten, when it may not be related at all. It is possible you just came down with a bug. A few confirmed glutenings should help you figure out exactly what your reactions are going to be so you can see the pattern of symptoms. Getting gluten happens to the best of us sometimes - even if we make superhuman effort to stay away from it.

cyberprof Enthusiast
cyberprof
Posted

Seattle Mama,

Yes, after going gluten free my reactions to even a small amount were extreme - worse than when I was on gluten all day, every day. Now after being gluten free for 9 months, I get a reaction but I don't get as sick. This is probably an individual thing, but perhaps the healing helps.

P.S. Both Colleen (Cruelshoes) and I are from Washington State too. Welcome to the forum!

babygirl1234 Rookie
babygirl1234
Posted

whenever i get gluten aka cheat omg i get sick to my stomach stomach cramps big time and it lasts for atleast a week maybe 2

loraleena Contributor
loraleena
Posted

Yes a thousand times worse for me.

kbtoyssni Contributor
kbtoyssni
Posted

I think it depends on the person. I'm one of the lucky ones whose reactions have decreased since going gluten-free. I have a hard time knowing if I got glutened or if I just have a bit of an upset stomach.

Rivergirl Apprentice
Rivergirl
Posted

Since going glutenfree, what I have noticed is my non-stomach and non-GI symptoms essentially have disappeared even after I have accidently glutened myself. So although my migraines, rashes, hand and finger tingling and numbing, brain fog, dizziness have gone away - what is WORSE THAN EVER when eating the tiniest speak of gluten is stomach cramps, bloating, and the big dreaded D. In fact those were my more minor symptoms before going glutenfree - now they are my worst.

On your other question - Turkey! Bad Turkey! There are many turkeys injected with all kinds of crap - including lots of fillers which have GLUTEN. Fortunately, many of the brands pride themselves on being preservative and gluten free - you just need to read those darn labels or read some of the historical notes on Turkey on this forum and others. This website was invaluable when I picked out my turkey this year.

Hope you get to feeling better soon.

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  • 3 weeks later...
rmlacoste Newbie
rmlacoste
Posted

^_^ My son (now 2, gluten free for 8 months now), has reacted three times now like he got "glutened".

This was, of course, a major fear for me as it was such a mess prior to finally having a Celiac diagnosis and not knowing what was making my son so ill.

Each time he has had such bad bouts I couldn't believe it as I have eliminated all traces of gluten in our home and have been so careful!

Each time, the only common denominator was turkey, once made my me, and twice at a Whole Foods deli.

As my son is dairy free as well, I was carefull that the turkey had no traces of butter, I could not varify the Whole Foods turkey.

Each time he got sick, I had it in the back of my mind "I wonder if it was the turkey?... no, couldn't be, that's weird."

Well, it seems the only connection.

Can't explain it, all I know is my son was SICK! He even woke up in the middle of the night to tell me his tummy hurt. I must have heard that every hour, and again after each time he ate.

I won't blame the turkey for certain, but I won't soon be giving it to him again.

???

arc Newbie
arc
Posted

I think that for me it is because I feel so much better since going gluten free that the symptoms are much more noticeable in comparison.

That said, I do feel that I am more sensitive now.

Rikki Tikki Explorer
Rikki Tikki
Posted
I think that for me it is because I feel so much better since going gluten free that the symptoms are much more noticeable in comparison.

That said, I do feel that I am more sensitive now.

DITTO!

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    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      during the gluten challenge I did not consume any wheat germ   the wheat germ is TOASTED - it's the only way it is sold now afiak doesn't matter I consume vast amounts of lectin containing foods PROPERLY prepared and have for well over a decade. They do not bother me in the least.    no anemia however the endo who ordered the celiac panel is the one who suggested the 2 week gluten challenge of eating at least 2 slices of bread per day or a serving of pasta- ALSO put me on a new drug at the same time (not a good idea)  I ate 4 slices because they were thin, or 2 English muffins, and just once some lasagna that someone else made since I stopped eating wheat pasta years ago. The English muffins caused some of the worst symptoms but that pc of lasagna almost killed me ( not literally but the pain was extreme) during those 12 days there were at least 3 times I considered going to Urgent Care.   This entire process was a waste of time TBH due to being on that new drug at the exact same time. it is impossible to tell if the drug I am taking for the possible renal calcium leak is working or not- given the dramatic response to the gluten challenge and resulting nausea (no vomiting) and eventually a loss of appetite and lower intake of foods so now I have a dangerously low potassium level   I don't have a simple case of celiac or no- I have an extremely complicated case with multiple variables I am seeing an endocrinologist for a problem with the calcium sensing glands - that system is very complicated and she has been unable to give me a firm diagnosis after many tests with confusing and often alarming results. She also appears to be inexperienced and unsure of herself. but I don't have the luxury of finding a new endo due to multiple issues of insurance, lack of drs in my area, money and transportation. so I'm stuck with her At least she hasn't given up    in any case I can assure you that lectins are not and never were the problem. I know they are a favorite villain in some circles to point to, but I have ZERO symptoms from my NORMAL diet which DOES NOT contain gluten. The longer I went without bread or foods with wheat like raisin bran cereal, the better I have felt. my body had been telling me for several years that wheat was the problem- or maybe specifically gluten, that remains to be seen- and stopping eating it was the best thing I could have done   I almost had unnecessary MAJOR SURGERY due to joint pain that I ONLY have if I am eating bread or related products I assumed it was the refined grains - never really suspected gluten but it does not matter I won't put that poison in my body ever again not that it is literally poison but it is def toxic to me        
    • knitty kitty
      results from 13 day gluten challenge - does this mean I can't have celiac?

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    • Wheatwacked
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    • xxnonamexx
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      I don't know if I am getting sufficient Omega Threes. I read about  phosphotidyl choline may cause heart issues. I will have o do further research on heathy Omega 3 supplements or from foods. Is there a blood test that can tell you everything level in your system such as Thiamine, Benfotiamine levels etc? Thanks
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