Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Uveitis, Also Called Arthritis Of The Eye

Fiddle-Faddle

By Fiddle-Faddle
in Related Issues & Disorders

Recommended Posts

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

I am convinced a friend of mine has gluten problems--her doctors are talking about fibromyalgia, and she has also been diagnosed with both rheumatoid arthritis and something they call "arthritis of the eye." I looked it up and found "Uveitis," yet another inflammatory, autoimmune disorder of "perplexing and unknown cause." (Yeah, right!)

Has anybody here ever been diagnosed with Uveitis or Arthritis of the Eye? Did it improve or resolve upon going off gluten?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted
I am convinced a friend of mine has gluten problems--her doctors are talking about fibromyalgia, and she has also been diagnosed with both rheumatoid arthritis and something they call "arthritis of the eye." I looked it up and found "Uveitis," yet another inflammatory, autoimmune disorder of "perplexing and unknown cause." (Yeah, right!)

Has anybody here ever been diagnosed with Uveitis or Arthritis of the Eye? Did it improve or resolve upon going off gluten?

It turns out there is a connection. Unfortunately a lot of the articles that came up require you to be a medical professional or a registered user of some of the sites to access the full reports but if you google "Uveitis and celiac" there were a number of articles that came up including many that reported this disease going into remission on a gluten free diet. I do hope your freind opens her eyes and smells the gluten free bread soon.

The One Apprentice
The One
Posted

I had eye issues since i was a kid, I was finally diagnosed with Uveitis, I have a lot of other issues that they always said could be autoimmune or genetic but never gave me a name for it [because they didnt know what it was], I also had arthritis as a kid, I talked to a rheumatologist not long ago and she told me I most likely had juvenile arthritis also called juvenile rheumathoid arthritis which causes Uveitis, and as it has been proven before, rehumathoid arthritis is linked to Celiac so I see how they could be co-related. I wish doctors were more aware of such things.

hayley3 Contributor
hayley3
Posted

The people at Kickas.org swear by a no-starch diet which would eliminate gluten as well.

Kickas includes all of the inflammatory diseases, including enteropathic arthritis which is what celiac disease is.

  • 1 year later...
BasqueMom Newbie
BasqueMom
Posted
I am convinced a friend of mine has gluten problems--her doctors are talking about fibromyalgia, and she has also been diagnosed with both rheumatoid arthritis and something they call "arthritis of the eye." I looked it up and found "Uveitis," yet another inflammatory, autoimmune disorder of "perplexing and unknown cause." (Yeah, right!)

Has anybody here ever been diagnosed with Uveitis or Arthritis of the Eye? Did it improve or resolve upon going off gluten?

BasqueMom Newbie
BasqueMom
Posted

My daughter has celiac disease and was diagnosed with uveitis. She had been eating gluten free at home but sometimes got gluten when eating out. One of her specialists was so interested in our family history of celiac/gluten intolerance and auto immune diseases that he went on one of the medlines and found an article in French with English heading that said uveitis umproved on a gluten free diet. She went gluten free and he has been astounded at the improvement in her eyesight. So for anyone out there with uveitis, take heart and stick to that gluten free diet.

  • 4 months later...
kbizzle13 Newbie
kbizzle13
Posted
I am convinced a friend of mine has gluten problems--her doctors are talking about fibromyalgia, and she has also been diagnosed with both rheumatoid arthritis and something they call "arthritis of the eye." I looked it up and found "Uveitis," yet another inflammatory, autoimmune disorder of "perplexing and unknown cause." (Yeah, right!)

Has anybody here ever been diagnosed with Uveitis or Arthritis of the Eye? Did it improve or resolve upon going off gluten?

I have had inflammation in my eyes since childhood. It became really bad when I was 19. At 21 I was finally correctly diagnosed with Uveitis. Once I started eliminating gluten free my diet my eyes have been given me much less trouble and I have eliminated the use of steroid eye drops to keep swelling down.

I would tell your friend to try the gluten free diet for a few months and I would bet her symptoms would improve. If not, at least she tried!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • 1 year later...
Lwceliac Newbie
Lwceliac
Posted

I have suffered from bi-lateral chronic uveitis for over a year. After much searching, I finally requested celiac test. My test came back positive and I have been gluten free for 6 weeks. A little early to tell.... But my eyes feel really good right now. I did a lot of digging about uveitis/celiac correlation and found some articles from outside the US that showed a connection. My retina specialist said she had a patient go gluten free which really helped his uveitis. Nevertheless, none of my doctors knew very much about celiac.

  • 2 weeks later...
SGWhiskers Collaborator
SGWhiskers
Posted

I've also read of a connection between uveitis and Chron's and Colitis.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. xxnonamexx
      - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    2. cristiana
      - cristiana replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result. I am interested to know, is your gastroenterologist concerned? Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous...
    3. trents
      - trents replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease...
    4. Scott Adams
      - Scott Adams replied to Aretaeus Cappadocia's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Brown Rice Vinegar (organic) from Eden Foods is likely gluten free

      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especia...
    5. Scott Adams
      - Scott Adams replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      nothing has changed

      Seven months can still be early in celiac healing, especially if you were mostly asymptomatic to begin with—symptoms like low iron, vitamin D deficiency, nail changes, and hair issues often take much longer to improve because the gut needs time to recover before absorption normalizes. A tTG-IgA of 69 is not “low” in terms of immune activity, and it can t...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,190
    • Most Online (within 30 mins)
      7,748
    Atl222
    Newest Member
    Atl222
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • xxnonamexx
      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      By xxnonamexx · Posted

      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By cristiana · Posted

      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By trents · Posted

      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      Brown Rice Vinegar (organic) from Eden Foods is likely gluten free

      By Scott Adams · Posted

      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
    • Scott Adams
      nothing has changed

      By Scott Adams · Posted

      Seven months can still be early in celiac healing, especially if you were mostly asymptomatic to begin with—symptoms like low iron, vitamin D deficiency, nail changes, and hair issues often take much longer to improve because the gut needs time to recover before absorption normalizes. A tTG-IgA of 69 is not “low” in terms of immune activity, and it can take 12–24 months (sometimes longer) for antibodies and the intestinal lining to fully heal, particularly in teens and young adults. Eating gluten again to “test” things isn’t recommended and won’t give you clear answers—it’s far more likely to cause harm than clarity. Weight not changing is also very common in celiac and doesn’t rule anything out. Please know that your frustration and sadness matter; this adjustment is hard, and feeling stuck can really affect mental health. You deserve support, and if you can, reaching out to a GI dietitian or mental health professional familiar with chronic illness could really help you through this phase. This study indicates that a majority of celiacs don't recover until 5 years after diagnosis and starting a gluten-free diet: Mucosal recovery and mortality in adults with celiac disease after treatment with a gluten-free diet However, it's also possible that what the study really shows is the difficulty in maintaining a 100% gluten-free diet. I suspect that if you looked closely at the diets of those who did not recover within 2 years might be that their diets were not 100% gluten-free. Perhaps they ate out more often, or didn't understand all of the hidden ingredients where gluten can hide. Either way, it shows how difficult recovery from celiac disease can be for most people. According to this study: This article explores other causes of flattened villi:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.