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Can Someone Describe Dh?


missmelissa21

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missmelissa21 Rookie

For as long as I can remember, my father has had different types of rashes. Dermatologists call it atopic dermatitis or atopic eczema, but I'm not sure if this is what it is. He's always had breakouts on his hands, leading to them becoming itchy and cracking open. He also gets pink patches behind his knees and in his armpits. He has some spots on his scalp that you can see if he cuts his hair too short.

The newest symptom is what concerns me the most though. He has a HUGE breakout on his torso of pimply-type spots all on his stomach and back. They look like chicken pox! I can't remember if they are itchy or painful or both. He's convinced something is biting him in his bedroom, but my mom doesn't have any spots.

No one in my family, including myself, is a diagnosed celiac. I am visiting a doctor in December for persistent GI problems that have been going on on and off for about 3.5 years.

Any help would be amazing. Thank you!


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missy'smom Collaborator

There are descripions and photos of DH on the Celiac Sprue Association website.

lovegrov Collaborator

The most common presentation is really itchy blisters filled with clear fluid.

richard

missmelissa21 Rookie

Thank you. My dad says his rash is itchy, but it isn't blistery.

  • 1 month later...
radgirl Enthusiast
The most common presentation is really itchy blisters filled with clear fluid.

richard

I've had this problem since I can remember. Always thought it was a heat rash, hives, or something else. Good grief!

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    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
    • Seaperky
      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
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