Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Enlarged Thyroid


westy

Recommended Posts

westy Newbie

Hello,

I am newly diagnosed with Celiac Sprue. I was diagnosed through blood work and a small intestine biopsy. I have had symptoms for the last year or so, and feel very lucky that they were able to find out what was causing the problems. The biggest issue that I have been having is exhaustion and anemia. About 2 years ago they noticed that my thyroid was enlarged and I had an ultrasound to map the size, and check for any problems. Part of the treatment was to continue every year to have an ultrasound of it. This year they told me that I had several nodules on the thyroid and they were going to have to biopsy it. My thyroid is not causing me any problems that I know of, my blood work on this has always come back OK, but I am concerned that the Celiac and the enlarged thyroid are related.

I was wondering if anyone else has had similar issues, and what there diagnosis was in regard to the thyroid. My biopsy is in two weeks and I am extremely curious as to what it might be.

I have seen on line that Celiac and hyper or hypo thyroids is common, but I think that this has to do with an over active or under active thyroid, not enlarged.

I really was just curious if anyone else has had similar issues. Also, any thoughts as to how long it will take before my energy returns.

Trying to take it all in


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mommida Enthusiast

An enlarged thyroid, goiter, can be a symptom of an auto-immune thyroid disease. I have Hashimoto's thyroiditis. The thyroid enlargement for Hashimoto's shows that one side of the butterfly shape gland is larger.

Grave's disease is the other more common auto-immune thyroid disease.

I had a whole book on the subject, but loaned it out and never got it back.

I believe you could have hashimoto's or graves diagnosed without having a biopsy. You are haveing a biopsy to see if it is cancerous because of the nodules?

Good luck!

Laura

westy Newbie

Thanks for the info. I will look them up further.

I think that I am having the biopsy so that they can make sure it is not cancerous. The thing is they found the nodules and scheduled this biopsy before I was diagnosed with Celiac, so I don't know if they should be looking for something else now that they know I have celiac.

judy05 Apprentice

I had a large nodule on the left side of my thyroid. It was benign

but they removed the whole left side because the tissue was

all dead, the gland was destroying itself (autoimmune disease)

and I have to take Levoxyl everyday to keep the other side

from doing the same. When the nodule was growing (unknowingly)

I experienced a lot of tachycardia (rapid pulse) and fine tremors.

I've been ok but the complications from surgery ( bronchospasm)

earned me 4 days in the ICU unit and following this is what triggered my

gluten problems.

red345 Apprentice

--

Maggie1956 Rookie

I've had a couple of ultrasounds on my thyroid gland, once about five years ago, and about July this year. Also one fine needle biopsy done which was done around the time I had the first one done.

I have a 'multi-nodular goitre', which is mainly on the righthand side. My thyroid gland is quite noticeable B) which I hate, but the dr says it is still okay. My mum's family all had thyroid trouble, both hypo- and hyper. Mine is hypothyroid, which is under-active. My first cousin and my brother have both had to have theirs removed. I hope I don't ever have to follow suite.

  • 3 weeks later...
msserena Apprentice

Greetings All

Westy, I to have a enlarged thyroid, and a nodule in my left lobe.

This was determined in March 2004. My thyroid blood levels are still normal to the day, but... Dr. do say I will ultimitly become hypothyroid.

I go every 2 months to a Endocrinoligist.

Ive had it like this for years always feeling like something is stuck in my throat.

But I have also lugged around Celiac for years as well.(Dign in Nov 2004)

I was blaming my thyroid problem for my stomache problem.

And my understanding is Yes there is a tie between the thyroid and celiac.

But I have had both for so long without gettin a dign that they do not know which came first.

I also have Vitligo which also comes with thyroid problems. But is said that its not tied with celiac.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 1 month later...
ms-sillyak-screwed Enthusiast

Hi I'm a newbie here!

I have been living healthy gluten and dairy free with Celiac for 4 years. :D

Until the enormous stress hit me this time I'm even worse. I had this lump in my throat. My Celiac was back and this time with a vengeance. After 4 months of not getting better waiting for a doc appointment I got involve with my local support group and found a nurse who again guided me to a great book

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,860
    • Most Online (within 30 mins)
      7,748

    Rena Celiac
    Newest Member
    Rena Celiac
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rogol72
      Some interesting articles regarding the use of Zinc Carnosine to help heal gastric ulcers, gastritis and intestinal permeability. I would consult a medical professional about it's use. https://www.nature.com/articles/ncpgasthep0778 https://www.rupahealth.com/post/clinical-applications-of-zinc-carnosine---evidence-review https://pmc.ncbi.nlm.nih.gov/articles/PMC7146259/ https://www.fallbrookmedicalcenter.com/zinc-l-carnosine-benefits-dosage-and-safety/
    • Jillian83
      He is. Which makes everything even more difficult. I’m not a believer in “staying for the kids” but I have nowhere to go and it’s not just me, it’s me plus my babies. We live in a beautiful place, lots of land in the country and me and the kids love the place we’ve called home for their entire lives. But Im seeing that he’ll never change, that my kids deserve a happy healthy Momma, and that staying in this as is will be the early death of me. Then I look at the scars covering my entire body…this disease and the chronic stress I’ve been enduring for years that tell me I’m no longer beautiful and no one will ever look at me with interest again. I try self care, try to give myself grace so I can just start loving myself enough to gain strength but the slightest sparkle in my eye and skip in my step attracts his wrath and it all comes crashing ten fold. Life is just absolutely railing me from every single direction leaving me wanting to wave that white flag bc I don’t feel like there’s much hope no matter what happens. 
    • trents
    • Jillian83
      Hi, I was recently diagnosed with Celiac and dermatitis herpetiformis after years of suffering without answers. I lost my mind. I lost my job. I lost so much time. I lost Me. Conventional doctors are opulent come near me and the one who did sat across the room, misdiagnosed me, pumped me full of steroids which collapsed my entire hip for 6 months. So without answers I began my holistic journey. Fast forward a couple of years and still struggling with a mysterious whole body itchy, crawling “skin hell”, perfect teeth now deteriorating, thick hair now thinning rapidly and no more than a day or 2 at most relief….An acquaintance opened up a functional medicine practice. Cash only, I found a way. Within a month tests clearly showing my off the charts gluten allergy/sensitivity as well as the depletion of vital nutrients due to leaky gut and intestinal damage. dermatitis herpetiformis was more than likely what I was experiencing with my skin. I was happy. I thought this is easy, eat healthy Whole Foods, follow the diet restrictions and I finally get to heal and feel confident and like myself again very soon! 😔 Supplements are very pricey but I got them and began my healing. Which leads to the other major issue: not working, stay at home Mom of young kids, entirely financially dependent on my man of 7 plus years. He’s never been supportive of anything I’ve ever done or been thru. He controls everything. I’m not given much money ever at a time and when he does leave money it’s only enough to possibly get gas. His excuse is that I’ll spend it on other things. So my “allowance” is inconsistent and has conditions. He withholds money from me as punishment for anything he wants. Since being diagnosed, he’s gained a new control tactic to use as punishment. He now is in control of when I get to eat. He asked for proof of my diagnosis and diet bc he said I made it up just to be able to eat expensive organic foods. Then after I sent him my file from my doctor he then said she wasn’t a real doctor. 😡. I go days upon days starving, sometimes breaking down and eating things I shouldn’t bc I’m so sick then I pay horribly while he gets annoyed and angry bc I’m not keeping up with all the duties I’m supposed to be doing. His abuse turns full on when I’m down and it’s in these desperate times when I need his support and care the most that I’m punished with silence, being starved, ignored, belittled. He will create more of a mess just bc I’m unable to get up and clean so that when I am better, I’m so overwhelmed with chores to catch up that the stress causes me to go right back into a flare from hell and the cycle repeats. I’m punished for being sick. I’m belittled for starving and asking for healthy clean water. I’m purposely left out of his life. He won’t even tell me he’s going to the grocery or to get dinner bc he doesn’t want me to ask him for anything. I have no one. I have nothing. Im not better. My supplements ran out and I desperately need Vitamin D3 and a methylated B complex at the very minimal just to function….he stares at me blankly…no, a slight smirk, no words. He’s happiest when im miserable and I am miserable.  this is so long and im condensing as much as I can but this situation is so complicated and disgusting. And it’s currently my life. The “IT” girl, the healthy, beautiful, perfect skin, perfect teeth, thick and curly locks for days, creative and talented IT girl….now I won’t even leave this house bc Im ashamed of what this has dont to my body, my skin. Im disgusted. The stress is keeping me from healing and I think he knows that and that’s why he continues to keep me in that state. He doesn’t want me confident or successful. He doesn’t want me healed and healthy bc then how would he put the blame of all his problems on me? This journey has been hell and I’ve been in Hell before. I’ve been killed by an ex, I’ve been raped, robbed, held hostage, abused beyond nightmares but the cruelty I’ve experienced from him bc of this disease is the coldest I’ve ever experienced. I’ve wanted to give up. Starving and in tears, desperate…I found a local food pantry in our small town so I reached out just saying I had Celiac and was on hard times. This woman is blessing me daily with prepared gluten free meals, donations, educational info, people who know this disease and how they manage life and the blessings just keep coming. But it’s overwhelming and I feel like I don’t deserve it at all. He just glared and I know he’s going to sabotage it somehow. I don’t even know what to do anymore. I’m so broken and just want peace and healing. 
    • cristiana
      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.