Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Should I Do?

shan

By shan
in Related Issues & Disorders

Recommended Posts

shan Contributor
shan
Posted

My daughter is a celiac, comfirmed with blood and biopsy (she's nearly three, been gluten free for 10 months). I have just found out i am pregnant. my gyn has no idea about celiac and couldn't answer. Should i go gluten free while pregnant and nursing or should i just let nature take its course? Since i found out i am pregnant, i have been really healthy, eating lots of salads, and veggies - really hardly any gluten. But i am not careful - i'll eat gluten chocolate, and if i want some cake, i'll eat it... You get what i mean - i can go 3-4 days without gluten, but then i'll just eat it.

Also, if i am in a right old mood, only good old gluten will calm me down :D

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


alamaz Collaborator
alamaz
Posted

Have you been tested for celiac since your daughters dx? I suggest you get yourself tested with the bloodwork immediatly if you haven't. Don't go gluten-free if you don't have to. Also, by going gluten-free before any testing you will raise the risk of false negative blood tests (you have to be consuming gluten to have the antibodies present).

If you OB/Gyn doesn't know what to do, ask your primary care physician or better yet your daughters GI doc. can refer you to some one or do the tests himself.

If you have been tested and are negative, you can consume gluten during pregnancy and breastfeeding although there are studies that researched when the best time is to introduce gluten/wheat to the babies diet (somewhere between 4-7 months of age). I've read other sources that say to wait one year to introduce wheat.

Congratulations and good luck!

kbtoyssni Contributor
kbtoyssni
Posted

I guess there's two issues here. This first is, do you have celiac? If so, I would absolutely go gluten-free for the health of the baby. Testing is going to be difficult with you being mostly gluten-free, but the fact that you can't go more than 3-4 days without gluten sounds almost like a celiac addiction to me.

The other issue is whether you eating gluten will affect whether the baby will develop celiac. I'm not sure about this one. It seems like if the baby is going to get celiac, there isn't much you can do about it.

shan Contributor
shan
Posted
  • Author

i got tested and i am not a celiac - i got tested about 6 months ago. See, the reason i chose to go gluten free is because then i watch what i put i n my mouth and automatically am dieting :D (don't worry, my byn told me i am 4.5 lbs less than last preg, and i am thin to begin with ;) ) So really i am using this as an excuse to diet, but i don't know if it is the a good idea... My hubby thinks i've lost it, can't understand why any normal person would choose to go gluten free, but i like it... except the baked goods!!!

pugluver31902 Explorer
pugluver31902
Posted

Here's my two cents.. ;) If you are concerened about getting an accurate test, you need to being eating gluten regularly for the blood test to be accurate. If you are gluten free, you will not have any antibody's in your system. But...the blood test is not always that accurate anyways, and Im not sure you can do a biopsy while pregnant. BUT...since you already have one child with celiac, and it is a genetic condition, chances are your second child could have it too. Celiac and autism have lately been proven to be very closely linked. They are finding most kids with autism have undiagnosed celiac. Im pregnant and have confirmed celiac so I am already gluten free, but I do plan to keep my baby gluten free until he is at least past the age of developing autism. (gluten is also passed through breastmilk)Then we will introduce wheat into his'her diet and see how he/she does. Also, there have been a lot of studies on celiac raising your risk of misscarriage, but I dont know enough on that to objectivly comment. But like I said, thats just my two cents.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,983
    • Most Online (within 30 mins)
      7,748
    CRae
    Newest Member
    CRae
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Wheatwacked
      Outgrow celiac?

      By Wheatwacked · Posted

      @Riley., Welcome to the forum.   It was once believed that Celiac Disease was only a childhood disease and it can be outgrown.  That was before 1951, before gluten was discovered to be cause of Celiac Disease, also called Infantilism.  Back then Cileac Disease was thought to be only a gastro intestinal disease, once you  "outgrew" the colicky phase, you were cured. You were so lucky to be diagnosed at 5 years old so your developing years were normal.  Gluten can affect multiple systems.  The nervous system, your intellegence. The muscules, skeleton. It can cause neurological issues like brain fog, anxiety, and peripheral neuropathy.  It can cause joint pain, muscle weakness, and skin rashes. Epilepsy is 1.8 times more prevalent in patients with celiac disease, compared to the general population. Because through malabsorption and food avoidances, it causes vitamin D and numerouus other essential nutrient deficiencies, it allows allergies, infections, poor growth, stuffy sinuses and eustacian tubes. There is even a catagory of celiac disease called "Silent Celiac".  Any symptoms are explained away as this, that or the other thing. Gluten is one of the most addictive substances we consume.  Activating the Opiod receptors in our cells, it can numb us to the damage that it, and other foods are causing.  It has become socially acceptable to eat foods that make us feel sick.  "There's a pill for that".   It is generally accepted that n fact you are weird if you don't. The hardest part is that if you don't eat gluten you will feel great and think why not.  But slowly it will effect you, you'll be diagnosed with real diseases that you don't have. You'll be more susseptable to other autoimmune diseases.  As you read through the posts here, notice how many are finally dianosed, after years of suffering at older ages.  Is it worth it? I think not. Perhaps this book will help:  Here is a list of possible symptoms:   
    • Riley.
      Outgrow celiac?

      By Riley. · Posted

      Hi! Im Riley, 18 years old and have been diagnosed for 13 years.. the testing started bc I stopped growing and didn’t gain any weight and was really small and thin for my age.  I got diagnosed when I was 5 and have been living gluten free since, in elementary and middle school it was hard for me and I kept contaminating myself bc I wanted to fit in with my friends so so badly. I ate gluten secretly at school and mostly regretted it 30 minutes later.  I’ve had symptoms like diarrhea, nausea, headaches, stomachaches, threw up a lot and was really emotional.  In 2022 I really started working on myself and tried to stay gluten free and if I did eat gluten I wouldn’t tell anyone and suffer in silence.  Last year in July I begged my mom to let me „cheat“ one day bc I just wanted to fit in… I ate a lot of different stuff, all the stuff I missed out on in my childhood like nuggets, pizza and all that.. I didn’t have symptoms that day and was doing really fine My mom and I wanted to test how far we can go and said we would test it for 12 weeks to get my blood taken after to see if I’m doing good or if symptoms start showing  As a now 18 year old girl who finally gained a normal weight and doesn’t get symptoms I’m to scared to get tested/my blood taken cuz I finally found comfort in food and it got so much easier for me and my family.  A year and 4 months later i still didn’t get any symptoms and have been eating gluten daily.  I’m scared to get tested/my blood taken cuz what if I’m actually not fine and have to go back to eating gluten free. Any tips to get over that fear and „suck it up“ cuz I know I could seriously damage my body… sorry if I seem like a idiot here… just don’t really know what to do :,)
    • Mari
      New Celiac Mama in My 30s

      By Mari · Posted

      There is much helpful 'truth' posted on this forum. Truths about Celiac Disease are based on scientific research and people's experience. Celiac disease is inherited. There are 2 main Celiac 'genes' but they are variations of one gene called HLa - DQ What is inherited when a person inherits one or both of the DQ2 or the DQ8 is a predisposition to develop celiac disease after exposure to a environmental trigger. These 2 versions of the DQ gene are useful in diagnosing  celiac disease but there are about 25 other genes that are known to influence celiac disease so this food intolerance is a multigenic autoimmune disease. So with so many genes involved and each person inheriting a different array of these other genes one person's symptoms may be different than another's symptoms.  so many of these other genes.  I don't think that much research on these other genes as yet. So first I wrote something that seem to tie together celiac disease and migraines.  Then you posted that you had migraines and since you went gluten free they only come back when you are glutened. Then Scott showed an article that reported no connection between migraines and celiac disease, Then Trents wrote that it was possible that celiacs had more migraines  and some believed there was a causal effect. You are each telling the truth as you know it or experienced it.   
    • tiffanygosci
      Aldi Pueblo Lindo Yellow Corn Tortillas

      By tiffanygosci · Posted

      Another annoying thing about trying to figure this Celiac life out is reading all of the labels and considering every choice. I shop at Aldi every week and have been for years. I was just officially diagnosed Celiac a couple weeks ago this October after my endoscopy. I've been encouraged by my local Aldi in that they have a lot of gluten free products and clearly labeled foods. I usually buy Milagro corn tortillas because they are cheap and are certified. However, I bought a package of Aldi's Pueblo Lindo Yellow Corn Tortillas without looking too closely (I was assuming they were fine... assuming never gets us anywhere good lol) it doesn't list any wheat products and doesn't say it was processed in a facility with wheat. It has a label that it's lactose free (hello, what?? When has dairy ever been in a tortilla?) Just, ugh. If they can add that label then why can't they just say something is gluten free or not? I did eat some of the tortillas and didn't notice any symptoms but I'm just not sure if it's safe. So I'll probably have to let my family eat them and stick with Milagro. There is way too much uncertainty with this but I guess you just have to stick with the clearly labeled products? I am still learning!
    • tiffanygosci
      New Celiac Mama in My 30s

      By tiffanygosci · Posted

      Thank you all for sharing your experiences! And I am very thankful for that Thanksgiving article, Scott! I will look into it more as I plan my little dinner to bring with on the Holiday I'm also glad a lot of research has been done for Celiac. There's still a lot to learn and discover. And everyone has different symptoms. For me, I get a bad headache right away after eating gluten. Reoccurring migraines and visual disturbances were actually what got my PCP to order a Celiac Panel. I'm glad he did! I feel like when the inflammation hits my body it targets my head, gut, and lower back. I'm still figuring things out but that's what I've noticed after eating gluten! I have been eating gluten-free for almost two months now and haven't had such severe symptoms. I ate a couple accidents along the way but I'm doing a lot better
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.