Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Poo On Godiva!


ItchyMeredith

Recommended Posts

ItchyMeredith Contributor

My 2 year old son told my husband that he wanted to buy me chocolates for Christmas. Isn't that sweet!!!! This is the first gift that my son picked out. My husband took him to the mall and they got me a beautiful box of Godiva truffles. Well- my husband read the box 5 times to me sure and nothing looked like it contained gluten. I am proud that he worked so hard to make sure it was okay. Well- He brought it home to me and my son was so excited he couldn


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



darlindeb25 Collaborator

If he will read a book about celiac, get him The Gluten Connection, or The Gluten Free Bible, even Gluten Free for Dummies is a wonderful book--any of the 3 are wonderful reading material for anyone needing to know everything they need to know about this disease. He isn't alone in his belief, even some celiac's believe "just a little gluten can't hurt!" It's very difficult for people to understand when you have to give up a food completely, I mean even a diabetic doesn't have to give up sugar completely! Ask him to read one of the books I mentioned, see if he will.

loco-ladi Contributor

Seems to me your hubby needs a small life lesson!

lets see what we can think of........

Stubbing toe in middle of the night next to 2yo's door...... nope, not harsh enough.....

OOOHHHHHH I GOT ONE!!!

HE gets tested and finds out he has celiac disease also and lives thru a few months of "just a little wont hurt ya" before he realizes it does!

blueeyedmanda Community Regular

It is hard when they don't fully understand that a little can hurt....It took John a long time to understand this. Dont get me wrong, he was always supportive but sometimes he would throw the little hint out....you can cheat once in awhile. One night I gave in after a very frustrating week of life events (bad excuse and this was years ago) well I felt so bad and was on my death bed I swear....he really got the understanding then.

neesee Apprentice

I'd eat them! Or at least a couple of them. I'm so weak when it comes to beautiful expensive chocolates! I know, I'm bad! I'm glad no one bought anything like that for me. Stay strong.

Merry Christmas to you and your family!

neesee

sneezydiva Apprentice
My 2 year old son told my husband that he wanted to buy me chocolates for Christmas. Isn't that sweet!!!! This is the first gift that my son picked out. My husband took him to the mall and they got me a beautiful box of Godiva truffles. Well- my husband read the box 5 times to me sure and nothing looked like it contained gluten. I am proud that he worked so hard to make sure it was okay. Well- He brought it home to me and my son was so excited he couldn
ItchyMeredith Contributor

Thank you all for your advice.

In his defense- I was never sick. I had DH and got a celiac diagnosis from a skin biopsy and a blood test. Celiac and all that it can bring is all theoretical for him. Reality is an itchy rash. The rest of it is probably hard for him to wrap his head around.

I am thankful for him for reading the label and caring.

He is a sweetie.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



larry mac Enthusiast
In his defense- I was never sick. I had DH and got a celiac diagnosis from a skin biopsy and a blood test.

I'm starting to consider Celiac DH a whole 'nother thing from mostly gastrointestinal regular Celiac. Sometimes I wonder if I've been inadvertaintly cross contaminated if I have a minor case of diarrea. But, as my gastroenterologist say's, "non-Celiacs get diarrea too". Millions of people buy Immodium AD. Certainly only a tiny fraction are Celiacs.

But those of you with DH have to worry about skin reactions, eye inflammations, etc. I just can't feel I'm qualified to give advise regarding what's safe to eat for you guy's. If it was me, and there were NO gluten listed in the ingredients, I would "cautiously" risk eating one or two of those chocolates and seeing what happens. I'm of the opinion that a lot of companies are probably playing safe by not declaring gluten-free.

I wasn't aware you could get diagnosed with a skin biopsy. How does that tell if you have Celiac?

best regards,lm

ItchyMeredith Contributor

DH can only be confirmed with a skin biopsy. They find the IGA adjacent to the blisters. You have celiac if you have DH so no internal biopsy is needed. I also had a positive blood test as well.

Fiddle-Faddle Community Regular

My main reaction (at least, the one I was unable to ignore) to gluten was DH--and it was worse than poison ivy. It itched intensely, burned, oozed, and prickled constantly. I felt as though I was allergic to my own skin. I would have done ANYTHING to make it go away. I am generally strongly anti- prescription drugs, but I ended up on prednisone, which did help.

Then, when I went off gluten and it did go away--so did a host of other symptoms I had pretty much been able to ignore--alternating diarrhea and constipation, major bloating (but I assumed I was just fat--and it was about 2 clothing sizes' worth of bloating), MAJOR GERD (I had assumed it was the tomato sauce, never dreamed it could be the pasta under it), and joint pain. I also was able to cut my synthroid dose in half.

From what I understand about DH, many DH sufferers DO have intestinal damage, but those symptoms may or may not be on the mild side. Some do not have intestinal damage. But the blood test results are apparently the same as those of intestinal-only celiac sufferers--and, as mentioned above, IgA deposits are found next to the rash.

larry mac Enthusiast

FF,

I really feel for you guys. I have enough problems without all the extra ones you have. The only thing I can compare it too is when I make my homemade salsa/hot sause. I try to wash my hands well after cutting up the serranos, jalapinos, papitas, and habaneros. But those oils aren't water soluble and tend to stay on your hands.

I always forget and rub my eyes, ouch! Not to mention going to the bathroom, double ouch! :o

best regards, lm

pixiegirl Enthusiast

I just want to sort of correct something that a poster sort of said above. It was about how people with nut allergies have the same problem as people with gluten issues in that some manufacturers put warning labels on their food to cover their butts.

I don't think that any manufacturer does this unless they feel there is a slight chance, regardless of how small, that the forbidden food could end up in the product. And I'm one person that, although it does limit our choices, I'm glad they do it. If they are not entirely sure they can't keep say peanuts out of their food I want to know about it.

Please don't ever think that a warning label can be ignore for people that have food allergies... many of them are anaphylactic, my daughter is and when we see those cover your butt warning labels we steer clear of that product. Just the slightest hint of peanut would send her to the hospital, she could easily die, the epi pen does not work for every single person, every single time. She actually has severe reactions to peanut oil in the air (so any place that serves peanuts is out, like a baseball game).

We both have to be gluten-free so I do understand how sick just a tiny bit of gluten can make me, but I'm not anaphylactic and when someone is, its a whole different ball game. I had a neighbor once do just what the poster above spoke about, she was giving my daughter candy canes that clearly said on the package that they were made in the same factory as peanuts products and that there was a chance of cross contamination. I asked her what the heck she was thinking and she said, "really what is the chance that there is a peanut in a candy cane? You know that chance might be VERY small but I'm sure not willing to bet my daughters life on it!

So its not quite the same, but I get the point she was making. In regards to gluten I can't tell you how many times I've tried items that have that cross contamination warning on them and have ended up sick. Not always but its happened a number of times.

Susan :)

bakingbarb Enthusiast
It is hard when they don't fully understand that a little can hurt....It took John a long time to understand this. Dont get me wrong, he was always supportive but sometimes he would throw the little hint out....you can cheat once in awhile. One night I gave in after a very frustrating week of life events (bad excuse and this was years ago) well I felt so bad and was on my death bed I swear....he really got the understanding then.

I am with you on this....

I know my honey doesn't fully understand and it isn't for a lack of trying. He is sympathetic also and he asks for me and tells for me, so he really does try.

I think they just don't understand because they don't walk in the shoes. It doesn't hurt me, it is just one of those things.

Sorta like they only bring flowers on your birthday when they could bring them anytime. Its just the way they are but it isn't meant to be hurtful.

sneezydiva Apprentice
I just want to sort of correct something that a poster sort of said above. It was about how people with nut allergies have the same problem as people with gluten issues in that some manufacturers put warning labels on their food to cover their butts.

I don't think that any manufacturer does this unless they feel there is a slight chance, regardless of how small, that the forbidden food could end up in the product. And I'm one person that, although it does limit our choices, I'm glad they do it. If they are not entirely sure they can't keep say peanuts out of their food I want to know about it.

Please don't ever think that a warning label can be ignore for people that have food allergies... many of them are anaphylactic, my daughter is and when we see those cover your butt warning labels we steer clear of that product. Just the slightest hint of peanut would send her to the hospital, she could easily die, the epi pen does not work for every single person, every single time. She actually has severe reactions to peanut oil in the air (so any place that serves peanuts is out, like a baseball game).

We both have to be gluten-free so I do understand how sick just a tiny bit of gluten can make me, but I'm not anaphylactic and when someone is, its a whole different ball game. I had a neighbor once do just what the poster above spoke about, she was giving my daughter candy canes that clearly said on the package that they were made in the same factory as peanuts products and that there was a chance of cross contamination. I asked her what the heck she was thinking and she said, "really what is the chance that there is a peanut in a candy cane? You know that chance might be VERY small but I'm sure not willing to bet my daughters life on it!

So its not quite the same, but I get the point she was making. In regards to gluten I can't tell you how many times I've tried items that have that cross contamination warning on them and have ended up sick. Not always but its happened a number of times.

Susan :)

Please don't misunderstand me. I totally understand the severity of peanut allergies and the dangers of them. It's just that in my opinion the "manufactured in the same facility" is causing some unneccessary fear and paranoia. I have a friend with a peanut allergy. And foods she has eaten without incident for years, like your candy cane example, suddenly have these new warnings, and she doesn't know what to do. In some instances, she can just choose the next brand over without the warning. In other instances, the exact food and brand she has always eaten now has a new warning, and does she trust her past experience with this food or heed this new warning? By putting this warning on their product is the comapny giving themselves permission to be more lax in their control standards? Ironcally, that would make the food less safe for her, not more so. While it is intended to be helpful, it is a frustrating experience for her. To her "Manufactured in the same facility" warnings is a gray area of uncertainty.

On the other hand, she considers "manufactured on same equipment" enormously helpful. Many companies were already putting "may contain peanuts" on products that were manufactured on equipment that made products with peanuts, such as plain M&M's. But now it is required, and that is a good thing.

I'd like to know exactly what "manufactured in the same facility" entails. Does it mean the machine right next to it is processing peanuts? Or a machine on a different floor? What exactly is the regulation for "same facility"?

Anaphylaxisis aside, IMO, I would feel confident eating foods "made in the same facility" as gluten products while using caution with "made on the same equipment."

larry mac Enthusiast

I'd like to add something here. Many companies are no longer manufacturing the products themselves, finding it advantagous to farm it out. But they still put their name on it and it's extemely difficult for consumers to know who makes what anymore.

Perfect example, the peanut butter fiasco last year. Nobody really knew that Con-Agra produced all these different peanut butters that other companies put their name on until a bunch of people got sick.

Then it comes out that Walmart, Peter Pan and a bunch of other brands are all made in the same plant. I'm not claiming a conspiracy or anything, it's just they're not going to advertise stuff like that.

It's no wonder some companies are putting disclaimers on the label. They don't have that much control over the manufacturing process.

Those candy canes might be made in China now for all we know. :o

best regards, lm

Cam's Mom Contributor
Those candy canes might be made in China now for all we know. :o

Not to hijack here but - i bought some cany canes that were "all natural" blah, blah, gluten free, yada, yada at whole foods around the holidays thinking they would be safer . . . sure enough, I get them home and there is indeed fine print that says made in china! amazing. :huh:

b.

casnco Enthusiast
My 2 year old son told my husband that he wanted to buy me chocolates for Christmas. Isn't that sweet!!!! This is the first gift that my son picked out. My husband took him to the mall and they got me a beautiful box of Godiva truffles. Well- my husband read the box 5 times to me sure and nothing looked like it contained gluten. I am proud that he worked so hard to make sure it was okay. Well- He brought it home to me and my son was so excited he couldn
VioletBlue Contributor

Tell them to go to the See's store next time. A friend bought me a small sampler from See's for Christmas. She did good. The ingredient list on the box was in plain English so I ate without fear. I hadn't had See's in so long since the nearest store is over an hour away now. I liked the sampler and miss See's so much I decided to order from their website. First I sent them an email about their dark chocolates just to be sure before I ordered. I don't see the point in milk chocolate, LOL. Why dilute a good thing. Got this response:

"Thank you for visiting Sees.com. In response to your request for information about the presence of gluten in our candies, our Quality Assurance Manager has advised that we have reformulated our products and eliminated wheat as a direct ingredient in all of our candies packed in standard boxes. We also do not use rye, barley, oats or malt as ingredients in our candies. Therefore, none of our Custom Mix pieces contain gluten as a direct ingredient and cross contact is no longer a possibility. This would include our Peanut Brittle, Krispys, and our recently introduced Sugar Free products.

You may have noticed that we do have some products which are manufactured for us. Some of these items that do not contain gluten are our Milk Chocolate Drops, Milk Chocolate and Dark Chocolate Foil Novelties, Super Chips, Sugar Sticks and Sour Chews. As we've noted, most of our products are gluten free.

However, we do have a few items which our Quality Assurance Department does not consider to be gluten free because of their decorations or they are produced in a facility that processes gluten. These are the Climber Canes (decoration), decorated 0.8 oz. Easter Eggs (decoration), decorated Chocolate Butters (decoration), all candy canes, and the 3 oz. Bordeaux, Chocolate Walnut, and Dark Raspberry Hearts (decorations). Also, we wish to advise that the distilled apple cider vinegar used in our Butterscotch Lollypops and Little Pops is grain based.

I hope this information is helpful. Thank you for your interest in See's Candies and we hope to have the opportunity to serve you soon."

Tree Rookie

When it comes to chocolate, US labelling laws require that wheat in any amount be disclosed (since it's one of the Big Eight allergens), but barley malt does not have to be disclosed if it's less than 2% of the weight of the product. Unfortunately, it's not at all uncommon to find said malt in chocolate.

Therefore, chocolate is one product that I won't eat unless I've checked with the manufacturer, first. Remember: the old Lindt labels gave the appearance of safety, until they started listing the barley malt.

joystar6 Newbie

Sorry for your gift. It is very hard for family to sometimes understand. You just have to let a lot go. Suggest a gift of nice warm fuzzy slippers instead. You don't know where things are made anymore. At least there is more awareness so that things are being labeled. We saw an ad on TV last night for Godiva Chocolates and my husband asked me if that was something I might like sometime. Now I have to tell him they are off limits to us both, he is gluten-free too. Maybe in future they could use rice flour spray instead of wheat? I make truffles, and never ever thought of using any type of flour in them. Thank goodness for the forum. I keep learning.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,331
    • Most Online (within 30 mins)
      7,748

    Kristy2026
    Newest Member
    Kristy2026
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.