Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ucsd Celiac Center Video On Youtube


GFinDC

Recommended Posts

GFinDC Veteran

Hi all,

I am new to the forum as of today. I just found and watched this video from UCSD WM K Warren Medical Research Center for celiac Disease on yoututbe. It is long, 86 minutes. There are 3 doctors presenting information about celiac disease, nutrition, and testing./ detection for it.

Youtube video link:

Open Original Shared Link

Wm K Warren Center link:

Open Original Shared Link

They discuss a new law about labeling that is coming in play in 2008 kind of near the end. Anyway, I hope this doesn't violate any rules on the forum.

Paul


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



JennyC Enthusiast

Thanks. Maybe many of us should email these links to family & friends! ;)

blueeyedmanda Community Regular

Thank You for Sharing. :)

GFinDC Veteran

Hi Jenny and Amanda,

Sure thing, sharing is not so bad. I didn't know if there was already a listing of such links on the forum.

Here is another one to the University of Maryland celiac center.

Open Original Shared Link

This link below is to the same site but links to their page with video discussions of celiac disease.

Open Original Shared Link

So much easier to watch a video than read all that stuff...

I am glad I found this forum, seems like a good group of people here!

Mango04 Enthusiast

My dad caught the UCSD program on TV, and it somehow convinced him that cc is real :huh: . So, it must be good! Send it to all your friends and relatives! :lol:

UR Groovy Explorer
...

I just found and watched this video from UCSD WM K Warren Medical Research Center for celiac Disease on yoututbe. It is long, 86 minutes.

...

Paul

Thank You (& welcome to the forum). I've watched about 15 minutes so far. I'm so glad I saw this.

k

cmom Contributor

I watched the entire presentation and found two things interesting:

1. The only blood test they recommended or felt necessary was the ttg

2. When they answered an audience member's question regarding lactose intolerance, there was no mention made of the fact that the damaged tips of the villi are what digest the lactose. They just kind of left it up in the air as to why this was true, IMHO.

Anyone else notice this? :huh:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CMCM Rising Star

I watched the whole thing....it was good, and would be very interesting for someone who is new to this and who hasn't done a lot of reading yet.

For myself, having done a ton of reading the last 2 years, I didn't hear anything new in it. Just the basic info for the uninitiated. There were a lot of spots where more elaboration was needed. I have lots of unanswered questions that NEVER get brought up anywhere.

By the way,I went to their website (USSD) and noticed their comment saying they don't feel the stool testing (i.e. like Enterolab does) has any validity in testing as it is still unproved. I don't find that an enlightened comment, because there are numerous other specialists and centers in this country who have an interest in the stool testing. There are several books that are very positive about its possibilities.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,684
    • Most Online (within 30 mins)
      7,748

    Betty Siebert
    Newest Member
    Betty Siebert
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      I'd go with a vodka tonic, but that's just me😉
    • Rejoicephd
      That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth.  She said the combination of the alcohol and sugar would be very likely to worsen my candida problem.  She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry.   So in summary, I am giving ciders a rest.  Whether it's a gluten risk or sugars and yeast overgrowth, its just not worth it.
    • Inkie
      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.