Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Guess I'll Have Gallbladder Problems Forever


num1habsfan

Recommended Posts

num1habsfan Rising Star

Hey guys. I'm still feeling too upset to say much right now um...i went back to that doctor at the walk-in clinic and the stool samples/urine sample were negative. And typical stupid doctor, he says "it could just be IBS"...which its NOT. We all know that!! So he already ruled out the gallbladder without me even being tested for it, how is that possible??? And thats not all--turns out the only specialist for this kind of stuff is the same idiot who told me last time I seen him to "live with it". I know its an ultrasound, endoscopy, or MRI that I need to pick up the gallbladder problems. I'm going to make sure I get it somehow because I really can't hack this pain anymore. I can't fit all 3 diets either because then I starve and go crazy. And I keep getting attacks now at least once a week. 2 months with this was much too hard on me as it is, how am i supposed to live through more??

*cries more* :(:(:(

~ Lisa ~


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



JustMe75 Enthusiast

I'm sorry you are feeling bad and frustrated too. I had my gallbladder out about 9 years ago because they did an ultrasound and saw a stone stuck in the neck of the gallbladder. I only had one "attack" that I was aware of but it was so bad I was taken by ambulance to the ER. They didn't think to look for it there but a few days later my regular doctor did. I can't imagine why they wouldn't want to do an ultrasound, its a simple non-invasive test. I would push for it. I hope you feel better soon.

num1habsfan Rising Star
I'm sorry you are feeling bad and frustrated too. I had my gallbladder out about 9 years ago because they did an ultrasound and saw a stone stuck in the neck of the gallbladder. I only had one "attack" that I was aware of but it was so bad I was taken by ambulance to the ER. They didn't think to look for it there but a few days later my regular doctor did. I can't imagine why they wouldn't want to do an ultrasound, its a simple non-invasive test. I would push for it. I hope you feel better soon.

Thank you.....yeah I dont know why they are stupid enough to not do something as easy as an ultrasound. Do they not realize that if it is the gallbladder how it can affect your other organs if untreated?? Ahhh I dont know if I have ever felt this frustrated before :(

~ Lisa ~

ravenwoodglass Mentor

Lisa, Did they do any blood work on you? There are routine blood tests that would be done as a first step in diagnosing gallbladder problems. If they did these tests and the results were in normal ranges they may not feel the need to ultrasound again as according to your signature they did an abdominal ultrasound back in Sept. Here is a list of the blood tests and what they would be looking for:

Gallbladder problems are diagnosed through various tests. These may include:

Liver function tests (LFTs), which are blood tests that can show evidence of gallbladder disease.

A check of the blood's amylase or lipase levels to look for pancreatic inflammation. Amylase and lipase are enzymes produced in the pancreas.

A complete blood count (CBC), which looks at levels of different types of blood cells such as white blood cells. A high white blood cell count may indicate infection

This is from WebMD. They do of course list the ultrasound and ERCP etc also but if all blood work is in normal ranges the need for the other tests may be negated.

Generic Apprentice

I just had my gallbladder taken out, all my blood work tests were considered within normal range. They did an ultrasound because I asked for it. They found I had multiple stones, plus I still have one wedged in the common bile duct which is causing me to still be sick. I get the stone removed next week...in the mean time I suffer and they don't care. I feel your pain.

madwick Newbie
I just had my gallbladder taken out, all my blood work tests were considered within normal range. They did an ultrasound because I asked for it. They found I had multiple stones, plus I still have one wedged in the common bile duct which is causing me to still be sick. I get the stone removed next week...in the mean time I suffer and they don't care. I feel your pain.

I too had my gallbladder out in September after blood and ultrasounds all came back normal. My gallbladder was so scarred that you couldn't see any stones. I would ask for a HIDA scan--it is the only test that measures the functioning of the gallbladder. The other tests were a waste of time. Most hospitals are able to do this scan.

debmidge Rising Star

I had gallbladder out Aug 07. All my blood tests and HIDA scan and CT scan were OK, but ultra sound picked up possible polyps with stones. I had a few gall bladder attacks but I had gallbladder disease (a diseased gallbaldder and some stones). I did not have a stone lodged in ducts or anywhere: my gallbladder was just bad....similar to when you appendix is bad. I had Chronic Gallbaldder disease and my gallbladder HAD to be removed. It was making me sick (loss of appetite, back and front abdomen pain and soreness, fatigue). The next step would have been infection of the gallbladder. But all my lab tests were fine (until the week before the surgery and my liver enzymes went up). Oh and I had non stop diarrhea as a symptom, which they tell me is possible, but unusual.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



aprilh Apprentice

In some cases a gallbladder cleanse will correct gallbladder stones and help flush stuck stones. A lot of people have gallstones that are never a problem. Removing the gallbladder is unnessecarily removed in a lot of cases and this should be a last resort.

I have recently been having some pains in that area so I am drinking green apple juice (fresh made) because the malic acid helps dissolve the stones.

There is lots of good information on www.mercola.com.

debmidge Rising Star

Be careful about the "flush" because if you get a stone that passes thru the duct and it scratches the lining of the duct, it could make "scar damage" and ruin the duct. A damaged bile duct is serious and they cannot be replaced. They are delicate and only surgeons with a lot of bile duct experience should work on them. This is why doctors tell you not to get involved in those flushes. If you flush out stones you could have an even bigger problem.

Phyllis28 Apprentice

Lisa,

My Gallbladder was removed in Aug 07. My ultrasound was inconclusive and the CAT scan showed slug indicating a possible problem with stones. My bloodwork however showed elevated levels in my liver and pancreous which was do to the stones. I was diagnosed primarily on the symptoms during a gallbladder attack and the blood test results. The surgeon said that my gallbladder was full of stones when he pulled it out.

Keep pushing for the tests you know you need.

Is it possible to see a private practice doctor in Canada? If possible, you may get better care although I expect it would be expensive.

I hope you feel better soon.

tarnalberry Community Regular

do you have a regular general physician - the same person you see for general things - who keeps up on this who can help direct your care? they should be making sure you get the proper tests so that you aren't left in an unnecessary, debilitating position.

Alternative mama Apprentice

I too have done Hulda Clarks Liver cleanse and can't belive how great it went.

This is from www.curezone.com

there is direct link between intrahepatic stones, celiac disease and gallstones, not necessarily casual link.

Intrahepatic stones are usually the first to start forming, or in the same time as gallstones are forming.

Intrahepatic stones block liver function and intestinal function.

Intrahepatic stones cause allergies and celiac disease.

Open Original Shared Link

I had no idea I had gallstones until I did the flush. I was having alot of "acid reflux" indegestion and didn't know why. It completely went away after I flushed out about 70+ stones.

This is the recipe I used:

Open Original Shared Link

and yes......Hulda clark has you work up to the liver cleanse.

debmidge Rising Star
I have been using Dr. Hulda Clark's Liver Flush protocol for more than 15 years and it was a major factor in my survival since I didn't know I was intolerant of gluten. She does not recommend doing the Liver flush until you have (1) done a parasite cleanse to clear the parasites out of the gall bladder system. (2) Done a Kidney Cleanse to dissolve the hard calcuim gallstones which might get stuck in the bile ducts. As an ND she had guided many people through the process and nobody, even the elderly or children, had problems. I followed her advice and it took me a few years to work up to the Liver Cleanse. Since I had so many problems from the unidagnosed Celiac Disease and so many gall stones, at first I would feel quite ill during the flush but I recovered qickly and felt much better after a day or so. One of the gall stones came out with a big piece of metal filling embedded in it so maybe that sort of foreign object could cause scratching - the gall sones themselves are usually quite solt. And if you have done the Kidney Cleanse (the vegetable glycering may contain gluten so don't use it) the hard Calcium stones will either have dissolved or be very small. After a few years I began passing very large stones and I had to push them along to get them out of the common bile duct through my small intestine.

Although there are other Liver Cleanses and Gall Bladder Flushes most people have the best success with Dr. Clarks method but some of these other methods are not as difficult to do. I you do a web search for Liver Cleanses there is a website which lists many of them - one uses coca cola and it works for some people. A local ND conducts Liver Cleanse Weekends where her clients can do this as a group. There is also a Liver Cleanse Forum and I noticed that may celiacs do this procedure.

Dr. HUlda Clark- What is an N.D.?

Just be careful about the flushes.....kidney stones and gall stones are two different areas of the body and do not interchange with each other. I recommend talking to doctor & having tests done to confirm that you have stones in kidney or gall bladder before trying to do any type of flush as you could be making a bad situation worse. Gallstones come in different "varieties" and some can be broken down by medication and some can be flushed out. Unless you know you have one or the other you can be playing with fire. If you damage your common bile duct with a stone via a flush, there's little that can be done to "reconstruct" the bile duct. You need your bile duct to live. Also, you could have polyps in your gallbladder and they can be precursors to cancerous conditions (not likely but still exists).

lmvrbaby Newbie

I too had the ultra sound.....Nothing. Then they did the endoscopy to rule out ulsers and found hiatal hernie and gall bladder problems. We also went as far as to have the HIDA scan which came back with 12.8%. I asked what that meant and was told that is how much it was working. I asked out of 100%. I was told yes. THen told my choice to have it out or not. UMMMMM no brainer, live with pain and eat applesauce for the rest of my life or have it out????????? I had it out a couple weeks later, with all of the tests that is when I was diagnosed with Celiac. Then had a follow up blood test to confirm the rest of biopsies and such. Only one gall bladder attack that did not quit and ended up in the ER. Took two months from day one til surgery, but well worth getting out.

AliB Enthusiast

I had an attack 2 weeks or so ago that I thought was gallbladder. I had been getting terrible pain every time I ate and ended up in hospital with it, thinking my gallbladder was blocked, as my stools had suddenly turned pale and floaty and had then degenerated into liquid diarrhea.

When the Ultrasound was done, there was nothing there. Zilch. The gallbladder was slightly tender, but not leap when it was touched tender.

A few weeks prior to this I had been taking Milk Thistle for a few weeks in an attempt to boost my liver and and surrounding organs and stop my hair falling out which had worked. I had also been drinking lemon juice and water. I vaguely remember seeing a couple of little things floating in the loo that i am now wondering might have been stones as they looked like peas and I hadn't eaten any (I wish I'd captured them now!!!) but I didn't think much of it at the time and flushed the loo and went on my way.

Now I am wondering if I had had some stones, but the Milk Thistle and lemon just managed to clear them out gently without me realising. I am relieved as the last thing I would want is to have my gall-bladder out!

The fatty diarrhea has been a bit of a blessing as it has made me look for other possibilities and I have come up with Celiac for which I have now had a blood test done and am awaiting the results. My symptoms and family history all fit and a light bulb has gone on.

I stopped the gluten on Monday and the pain in my stomach subsided within a few hours although it is still getting bloated and is a little tender. The diarrhea I had for over a week also stopped. My main concern at the moment is symptoms of B12 deficiency which I need to know more about so that is subject for another topic.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

    2. - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      49

      Supplements for those Diagnosed with Celiac Disease

    3. - Florence Lillian replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

    5. - cristiana replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      21

      Insomnia help

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,355
    • Most Online (within 30 mins)
      7,748

    Amy Immerman
    Newest Member
    Amy Immerman
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @catnapt, Wheat germ has very little gluten in it.  Gluten is  the carbohydrate storage protein, what the flour is made from, the fluffy part.  Just like with beans, there's the baby plant that will germinate  ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein.   Wheat germ is the baby plant inside a kernel of wheat, and bran is the protective covering of the kernel.   Little to no gluten there.   Large amounts of lectins are in wheat germ and can cause digestive upsets, but not enough Gluten to provoke antibody production in the small intestines. Luckily you still have time to do a proper gluten challenge (10 grams of gluten per day for a minimum of two weeks) before your next appointment when you can be retested.    
    • knitty kitty
      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3.  Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C.  Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine.   Weight gain with a voracious appetite is something I experienced while malnourished.  It's symptomatic of Thiamine B1 deficiency.   Conversely, some people with thiamine deficiency lose their appetite altogether, and suffer from anorexia.  At different periods on my lifelong journey, I suffered this, too.   When the body doesn't have sufficient thiamine to turn food, especially carbohydrates, into energy (for growth and repair), the body rations what little thiamine it has available, and turns the carbs into fat, and stores it mostly in the abdomen.  Consuming a high carbohydrate diet requires additional thiamine to process the carbs into energy.  Simple carbohydrates (sugar, white rice, etc.) don't contain thiamine, so the body easily depletes its stores of Thiamine processing the carbs into fat.  The digestive system communicates with the brain to keep eating in order to consume more thiamine and other nutrients it's not absorbing.   One can have a subclinical thiamine insufficiency for years.  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so the symptoms can wax and wane mysteriously.  Symptoms of Thiamine insufficiency include stunted growth, chronic fatigue, and Gastrointestinal Beriberi (diarrhea, abdominal pain), heart attack, Alzheimer's, stroke, and cancer.   Thiamine improves bone turnover.  Thiamine insufficiency can also affect the thyroid.  The thyroid is important in bone metabolism.  The thyroid also influences hormones, like estrogen and progesterone, and menopause.  Vitamin D, at optimal levels, can act as a hormone and can influence the thyroid, as well as being important to bone health, and regulating the immune system.  Vitamin A is important to bone health, too, and is necessary for intestinal health, as well.   I don't do dairy because I react to Casein, the protein in dairy that resembles gluten and causes a reaction the same as if I'd been exposed to gluten, including high tTg IgA.  I found adding mineral water containing calcium and other minerals helpful in increasing my calcium intake.   Malabsorption of Celiac affects all the vitamins and minerals.  I do hope you'll talk to your doctor and dietician about supplementing all eight B vitamins and the four fat soluble vitamins because they all work together interconnectedly.  
    • Florence Lillian
      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free.  I have a cupboard full of supplements that did not agree with me -  I just keep trying and have finally settled on Sports Research. I take NAKA Women's Multi full spectrum, and have not felt sick after taking 2 capsules per day -  it is a Canadian company. I buy both from Amazon. I wish you well in your searching, I know how discouraging it all is. Florence.  
    • catnapt
      highly unlikely  NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean ground turkey but not much) I was off dairy for years but recently had to add back plain yogurt to meet calcium needs that I am not allowed to get from supplements (I have not had any problem with the yogurt)   I eat almost no processed foods. I don't eat out. almost everything I eat, I cook myself I am going to keep a food diary but to be honest, I already know that it's wheat products and also barley that are the problem, which is why I gradually stopped eating and buying them. When I was eating them, like back in early 2024, when I was in the middle of moving and ate out (always had bread or toast or rolls or a sub or pizza) I felt terrible but at that time was so busy and exhausted that I never stopped to think it was the food. Once I was in my new place, I continued to have bread from time to time and had such horrible joint pain that I was preparing for 2 total knee replacements as well as one hip! The surgery could not go forward as I was (and still am) actively losing calcium from my bones. That problem has yet to be properly diagnosed and treated   anyway over time I realized that I felt better when I stopped eating bread. Back at least 3 yrs ago I noticed that regular pasta made me sick so I switched to brown rice pasta and even though it costs a lot more, I really like it.   so gradually I just stopped buying and eating foods with gluten. I stopped getting raisin bran when I was constipated because it made me bloated and it didn't help the constipation any more (used to be a sure bet that it would in the past)   I made cookies and brownies using beans and rolled oats and dates and tahini and I LOVE them and have zero issues eating those I eat 1 or more cans of beans per day easily can eat a pound of broccoli - no problem! Brussels sprouts the same thing.   so yeh it's bread and related foods that are clearly the problem  there is zero doubt in my mind    
    • cristiana
      Thank you for your post, @nanny marley It is interesting what you say about 'It's OK not to sleep'. Worrying about sleeping only makes it much harder to sleep.  One of my relatives is an insomniac and I am sure that is part of the problem.  Whereas I once had a neighbour who, if she couldn't sleep, would simply get up again, make a cup of tea, read, do a sudoku or some other small task, and then go back to bed when she felt sleepy again.  I can't think it did her any harm - she lived  well into her nineties. Last week I decided to try a Floradix Magnesium supplement which seems to be helping me to sleep better.  It is a liquid magnesium supplement, so easy to take.  It is gluten free (unlike the Floradix iron supplement).  Might be worth a try.        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.