Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Free Diary Free


Worriedtodeath

Recommended Posts

Worriedtodeath Enthusiast

For some strange reason, I can't wrap my mind around diary free/casein free/whey free diet. GLuten came really easy but this is much harder for some reason.

I have 3 kids 10 yr, 7yr , 19 months. We know the 10 yr and 19 month old have lactose intolerance for sure. THey have both responded great to gluten free and due to the lactose need to be diary free for awhile. I haven't been able in the last week to get diary free. My middle son has not had much response to gluten free and after reading about milk allergies believe he may have a problem with the protein itself. SO now I am going to elimante diary out of everybody's system and see what happens. I've read removing diary should result in changes pronto so I am hoping he will have a great response to that soon.

BUt I can't wrap my head around it!!!! I bought lactaid milk but if it is protein for the middle child , he can't have that even if it is cooked in stuff, right?? So to cook and use butter/maragine what should I use?? I did switch to gluten free mixes that have no diary in them. Are there hidden sources or code names to watch out for _ And good god is it a smaller list than the gluten one....

And then what foods do I need to make sure they are getting a lot of to ensure they get plenty of calcium? I don't want to do supplements yet so I am looking at food. Where can I find a list of calcium rich foods?? The dr is always harping on how much milk they drink so I know when i walk in and say we are diary free, I had better have a list of how I am replacing that all mighty glass of milk.

Thanks

Stacie


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dandelionmom Enthusiast

I was dairy-free for years (I didn't know I had Celiac Disease, I thought I was lactose intolerant). It isn't as hard as it seems once you get into it.

Instead of lactaid, could you try soy milk? It really isn't that bad. I like the Silk plain (red box) but my girls really liked the Silk Vanilla (it is kind of sweet). You can cook with the soy milk too, it works fine in almost all of the recipes I tried it in.

Instead of butter, I often sub olive oil.

I'm pretty sure that milk is one of the things that has to be clearly labeled. This site has a pretty good list of what to look for one labels: Open Original Shared Link

Some good calcium foods:

salmon

tofu

rhubarb

sardines

leafy green veggies (like spinach, collard greens, turnip greens, bok choy)

beans

almonds

sesame seeds

And my favorite was the calcium enriched orange juice.

shayesmom Rookie

Avoiding both casein and whey can be tough. But it's not impossible, nor will bones begin disintegrating the minute dairy is removed from the diet.

If you think about it, the only mammal which continues to drink milk beyond weaning is the human. All other mammals manage to grow and thrive just fine without it. And you don't hear of elephants suffering from osteoporosis. ;)

Depending on the type of food you're making, there are several different butter substitutes. Olive and coconut oil are good for frying/sauteeing. Earth Balance buttery spread is good for mashed potatoes and to put on veggies (and I believe that Fleishmann's has one variety of margarine that would work). In lieu of regular shortening, try the Spectrum Organics shortening made with non-hydrogenated palm oil.

We use rice milk (not Rice Dreams) as a milk substitute. And in baking, I opt for light coconut milk because it adds moisture to the gluten-free flours that no other milk can duplicate.

In addition to the list the previous poster gave, things that are high in calcium are molasses and chia seeds (can be used to make "granola" bars). I also believe that amaranth contains more calcium than dairy, so you could work some amaranth flour into your baked goods. As for your doctor....I will share a tidbit that our dietician shared with us (she has her PhD). Most MDs are about 45 YEARS behind on nutrition. They only take one 3 credit hour class in nutrition which basically covers the difference between protein, carbs and fat. If your doctor expresses concern, ask for a referral to a dietician. End of story. If the discussion continues, ask your doctor about the benefits of anti-oxidants. Then ask him to name one oxidant. Dairy is an oxidant. Oxidation of the fats in dairy begins as it sits in the dairy case under fluorescent lights.

Worriedtodeath Enthusiast
nor will bones begin disintegrating the minute dairy is removed from the diet.

chia seeds (can be used to make "granola" bars).

I swear my ped is great and update on so much but just freaks whenever I go in and don't list the several glasses of milk, yougurt, cheese, and pudding. Must be her hang up. As she is intent on labeling the baby as Non Celiac even against the ped gi. So she's not bad.....probably has stock in the diary company :rolleyes:

Chia seeds as in Chia pets??? Those aren't safe to eat are they? Or do they come some other way???? Showing real ignorance here.

ANd aren't all those ancient skeletons of man before they settled to be diary farmers stockier and heavier than people today???

Thanks

Stacie

shayesmom Rookie
Chia seeds as in Chia pets??? Those aren't safe to eat are they? Or do they come some other way???? Showing real ignorance here.

ANd aren't all those ancient skeletons of man before they settled to be diary farmers stockier and heavier than people today???

Thanks

Stacie

Yes, chia seeds as in chia pets. Not only are they high in calcium, but they are an incredible form of fiber. I buy the food grade seeds and use them in "granola" bars. You can also soak them in water and take them that way....but there is no real flavor. Plus, they turn into a gelatinous mess once soaked....so they can be slimy going down. :( They are safe for people with diverticulitis as once soaked, they won't get stuck in the intestines while 1 TBSP is all you need for your daily intake of fiber.

As for man being stockier and heavier before dairy farming....I don't know if that due to dairy or evolution. But if you look at how we evolved, dairy and grains were never really necessary to our evolution and are a fairly recent addition to our diet. Here's a "link" to a really great paper on why these foods are not necessary to our diet. I found the connection made between the two biggest plagues and where they came in connection with dairy farming and the agricultural age where grains became a staple to be very interesting. Type this into your search bar "The Answer. what in the world do I eat". You'll find a site maintained by doctorj....a veterinarian who has celiac along with other food sensitivities. His paper is eye-opening to say the least.

April in KC Apprentice

Soy milk doesn't taste bad, but some kids can't have it - my oldest Celiac son is allergic to soy and peanuts.

He drinks the Calcium enriched OJ. Also Almond Breeze almond milk has added calcium, and it cooks up great as a milk substitute. We like Almond Breeze Original and Chocolate.

When cooking cakes, sometimes I add an extra egg, replace milk with almond milk, and also add applesauce to help with some of the moisture. Instead of butter, I often split 50/50 between Spectrum shortening (health food stores) and olive or canola oil.

For cinnamon toast, we toast, brush on canola oil and top with cinnamon sugar.

Ghee is a type of clarified butter that is casein-free or has 99% of the casein protein removed. So - depending on your son's tolerance, you might be able to use a smear of ghee on toast. Ghee is commonly used in Indian cuisine, but you can find it in the fridge at health food stores.

dbmamaz Explorer

I used earth balance natural - i think the regular earth balance had some dairy in it? I use that everywhere i used to use butter or margerine.

I dont like the taste of soy milk, and i've been using plain rice milk (full circle, which is like a generic whole foods brand) and almond milk. I like to cook with the rice milk - it seemed to make almost no difference in gravies, mashed potatoes, that kind of thing. My son was OK with rice milk in his cereal, but preferred the almond milk (which costs 3x as much). but also i was buying vanilla almond milk, to put in my coffee, so it was totally yum! They are both fortified with calcium (make sure to shake before evry use)

There is a lot of buzz for Gluten-free Casein-free diet in the autism community, so if you search Gluten-free Casein-free diet (gluten free, casien free) you will find a lot of websites which include recipes. Also, if you search on You Tube for kimmykrocker, she is a mom who has made a series of home videos of her Gluten-free Casein-free cooking, very easy stuff.

I know every time i find another thing i need to remove from my diet, I kinda panic for a few days (or a week or so!) but eventually you'll figure it out!

GL


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



gfgypsyqueen Enthusiast

I have to agree...removing the dairy is a bugger! One health food store employee finally gave me the easy start method...look for Vegan dairy substitutes. If it says Vegan it CANNOT contain dairy, casein, whey, or any of those other names I couldn't remember. So I bought Vegan butter, cheese, etc. It worked to get us started. Now I am much more comfortable with the gluten-free/CF diet. I have to agree the Autism sites have some good info on gluten-free/CF. My kids love English Bay non-dairy milk. It is potato based. They LOVE this one. I use it for almost all baking and cooking.

taweavmo3 Enthusiast

It does take a bit to get used to, but it does get easier. For butter subs, we use Smart Balance made w/flax oil. I use this b/c I can get it at Walmart for less than $2. You can't bake with it though, so I try to find recipes that call for shortening or oil instead of butter. Or, I just buy a Namaste mix b/c those are allergen free, and super easy.

As far as food for the kiddies goes, I don't try to replace dairy products, we just do without. We do without cheese, yogurt, etc. and have actually gotten used to it. There are two flavors of Hunts snack pack puddings that are casein free...the lemon ane lemon meringue. And I always try to have some cookies, cake, or jelly beans on hand to satisfy those sweet cravings (that one is for me just as much as the kids, lol).

For calcium, we drink calcium fortified OJ, some almond milk, and I also give them a chewable calcium supplement (Nutrition Now Rhino Calcium). Another good milk sub is Vance's DariFree, it's a potato based milk that comes in a powder form. And I totally agree about checking out the autism sites, they are a great source of information not only on gluten-free/cf, but also supplements that may help our kids as well.

Our pediatrician isn't thrilled about my kids being casein free either, but he has also admitted that I probably know more about diet than he does. That made me smile. I honestly do NOT ask the pedi for nutrition advice, that is not the place to get info. And when the nurse asks me how much milk the kids drink, I tell her...I just don't go into detail about what kind of milk it is, lol.

slee Apprentice

Hi-

I didn't finish reading everyone's responses, but I do want to add mine quick. I saw someone mention Flishmans (sp) it's the unsalted margarine that is dairy free, and tastes just the same as regular in our opinion. Also, my kids like soy, and rice yougrt, there is a good dairy free cream cheese (I think tofutti makes it), and sour cream, you'd have to check if they are gluten free though... haven't gotten them since we became gluten free as well. Almond milk is great, my kids love the chocolate almond milk, and coconut milk is good for cream soups. My kids prefer rice milk to soy to drink, or on cereal.

Like someone mentioned if it says vegan it's okay from the dairy standpoint. Also, Kosher (can't remember which, I think Pavre, but you'd have to check that too) is a helpful thing to look for.

ruthla Contributor
Also, Kosher (can't remember which, I think Pavre, but you'd have to check that too) is a helpful thing to look for.

Yes, Kosher Pareve cannot contain dairy, meat, or poultry, but it can contain eggs or fish (although items with fish in them are usually labeled kosher fish.) Many times kosher items will simply say kosher, or have the particular kosher symbol, if it's pareve, and will say "dairy" or "D" if it contains dairy, or "fish" or "meat" next to the symbol if it contains one of those.

However, all vegetable products are also pareve- including gluten! So you can't rely on kosher labeling for things to be gluten-free. Kosher pareve also includes many other allergens that some people need to avoid, such as eggs, soy, peanuts, and tree nuts.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen

    2. - Mari replied to KathyR37's topic in Coping with Celiac Disease
      5

      New here

    3. - Colleen H replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen

    4. - Colleen H posted a topic in Coping with Celiac Disease
      0

      Methylprednisone treatment for inflammation?

    5. - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,879
    • Most Online (within 30 mins)
      7,748

    Peta Dunn
    Newest Member
    Peta Dunn
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      Ferritin levels.  And see what your hemoglobin looks like too, that will tell you if you are anemic?  You can have 'low normal' levels that will not be flagged by blood tests.  I had 'low normal' levels, my lab reading was. c12, just over what was considered normal, but I had small benign lesion on my tongue, and sometimes a sore mouth, and a consultant maxillofacial ordered an iron infusion for me as he felt my levels were too low and if he  raised them to 40, it would help.   Because you are not feeling 100% it might be worth looking at your levels, then discussing with your doctor if they are low normal.  But I stress, don't supplement iron without your levels being monitored, too much is dangerous.
    • Mari
      Hi Katht -  I sympathize with your struggles in following a gluten-free diet and lifestyle. I found out that I had Celiac Disease a few months before I turned 70. I just turned 89 and it has taken me almost 20 years to attain a fairly normal intestinal  function. I also lost a lot of weight, down to 100 lb. down from about 140 lb. What Trents wrote you was very true for me. I am still elimination foods from my diet. One person suggested you keep a food diary and that is a good idea but it is probably best just to do an elimination diet. There are several ne and maybe one for celiacs. I used one for a while and started with plain rice and zucchini and then added back other foods to see if I reacted or not. That helped a great deal but what I did not realise that it would only very small amounts of some foods to cause inflammation in my intestine. Within the last few years I have stopped eating any trace amounts of hot peppers, corn and soy(mostly in supplements) and nuts, (the corn in Tylenol was giving me stomach aches and the nuts were causing foot pains). Starting an elimination diet with white rice is better than brown rice that has some natural toxins. In addition it is very important to drink sufficient plain water. You can find out how much to drink for your height and weight online. I do have difficulty drinking 48 ounces of water but just recently have found an electrolyte supplement that helps me stay well hydrated, Adding the water and electrolytes may reduce muscle cramps and gag spams you wrote about. . Also buy some anti-gluten enzyme capsules to take with meals. I use GliadinX advertised here. These are a lot of things to do at one time as they reflect my 20 years of experience. I hope you do what you can manage to do over time. Good luck and take care.
    • Colleen H
      Yes thyroid was tested.. negative  Iron ...I'm. Not sure ... Would that fall under red blood count?  If so I was ok  Thank you for the detailed response..☺️
    • Colleen H
      Hi all !! Did anyone ever get prescribed methylprednisone steroids for inflammation of stomach and intestines?  Did it work ??  Thank you !! 
    • cristiana
      Hi Colleen Are you supplementing B12/having injections? I have learned recently that sometimes when you start addressing a B12 deficiency, it can temporarily make your symptoms worse.  But it is important not to stop the treatment.  Regarding your problems with anxiety, again that is another symptom of a B12 deficiency.   I didn't know what anxiety was until it hit me like a train several months before gastrointestinal issues began, so I can certainly relate.   Two books which helped me hugely were At Last A Life by Paul David (there is a website you can look up) and The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi.  Although his book is aimed at people who have depression, following the principals he sets out was so helpful in lessening my anxiety.  Llardi suggests we need to focus on getting enough: - physical exercise - omega-3 fatty acids - natural sunlight exposure - restorative sleep - social connectedness - meaningful, engaging activity   ... and we should feel a lot better. That is not to stay you must stop taking medication for depression or anxiety if you have been prescribed it, but adopting the changes Dr Llardi sets out in the book should really help. Can I just ask two more questions:  1) you say that you are B12 deficient, did they test your iron levels too?  If not, you really ought to be checked for deficiency and, 2) did they check your thyroid function, as an overactive thyroid can be cause rapid heartbeat and a lot of coeliacs have thyroid issues? Cristiana        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.