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Fertile After Going Gluten Free. Suprise!


JENinMICH

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JENinMICH Newbie

I'm 35 and have had 5 years of infertility. I had four doctors say never, ever and that I had bad eggs (menopause). I didn't even make any follicles despite fertility drugs.

I was very ill this year, terrible diarrhea, reflux, nausea, iron deficiency anemia, Vit D def, mouth sores, depression, bad fibromyalgia, and weakness. My antibody tests were negative (which I HAD to demand) and I diagnosed myself because my GI doc thought I was a hypochondriac.

I stopped eating wheat in July and almost all my symtpoms went away! November 10th, I started eating again because they wanted to do a biopsy. After three weeks I found out I was pregnant!!!!!!! I'm four months along and immediately went back to doing Gluten Free!

How can they not be related? Honestly!!! Doctors stink.

Now if I could just them to check my vitamin levels as well.

They won't do it!


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angel-jd1 Community Regular

Congrats on the pregnancy!!! I am sure you are super excited!! It is amazing what dietary changes can do for our bodies. Modern medicine doesn't ALWAYS know it all. Stay healthy and keep us posted on your progress!!

-Jessica

blueeyedmanda Community Regular

Congrats on the Pregnancy!!!!!!! Very exciting news!!!

skichikk18 Rookie

Congrats on being pregnant. I am also in a similar situation. I went gluten free about a month ago because of GI issues. My gastro actually suggested it though. I also have been trying for 2 1/2 years to get pregnant with no luck. Maybe this month will be my lucky one! I am going through all those wonderful shots. I am hoping it works, I feel so much better after going gluten free it has to help. Or so I keep telling myself!!!

lizard00 Enthusiast

Congratulations on your good news!!!! I'm pretty sure your going gluten-free had a huge hand in your situation turning around!

  • 2 weeks later...
alamaz Collaborator

Congrats! I went gluten-free in Feb. 2007, DH went gluten-free June 2007 and August 2007 I was pregnant :P I think going gluten-free is the best thing a woman with fertility issues can do! Good luck with your pregnancy!

Ursa Major Collaborator

Jen, that is exciting news! And it doesn't surprise me a bit.

If your doctor won't check your vitamin and mineral levels, it may be time to find yourself a new doctor.

In the meantime, take a good prenatal vitamin that has folic acid in it.


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loco-ladi Contributor
I'm 35 and have had 5 years of infertility. I had four doctors say never, ever and that I had bad eggs (menopause). I didn't even make any follicles despite fertility drugs.

I was very ill this year, terrible diarrhea, reflux, nausea, iron deficiency anemia, Vit D def, mouth sores, depression, bad fibromyalgia, and weakness. My antibody tests were negative (which I HAD to demand) and I diagnosed myself because my GI doc thought I was a hypochondriac.

I stopped eating wheat in July and almost all my symtpoms went away! November 10th, I started eating again because they wanted to do a biopsy. After three weeks I found out I was pregnant!!!!!!! I'm four months along and immediately went back to doing Gluten Free!

How can they not be related? Honestly!!! Doctors stink.

Now if I could just them to check my vitamin levels as well.

They won't do it!

Jen, that is exciting news! And it doesn't surprise me a bit.

If your doctor won't check your vitamin and mineral levels, it may be time to find yourself a new doctor.

In the meantime, take a good prenatal vitamin that has folic acid in it.

I recently went to my doctor and had them order blood test to check my levels, but then I didn't exactly "ask" I told... there is a difference

Take charge of your health its your life and your money they are using to play gold at the country club if they dont want to do what you want time to send a different doctor to play golf!

  • 1 month later...
caz999 Newbie

hi there i'm going through something very similar, i had problems getting pregnant 6 years ago the said it was just unexplained infertility i had no scans etc and they put me on clomid and luckily i fell pregnant 1st time.

My daughter whos 4 has been diagnosed with coeliac for 3 years, me and my husband have never been tested for it don't know why.

Well we have started trying again for another baby for the first 6 months onour own then my G.P put me back on clomid for 6 months with no joy.

They now think i have poly cystic ovaries but as before now follow up no scan etc just guessing they have put me on Metformin and have been on them for 4 months know.

After internet search etc and coeliac uk help, coeliac cans cause unexplained fertility, so approched my G.p today and after demanding a coeliac test (they did'nt even know it causes infertility) so have to wait 1 week for results, so hopefully there will be good news.

I think it pays to demand things from gp's if you think you might be right.

mommida Enthusiast

:D Congratulations!!!! :D

I think the gluten free diet had something to do with it too!

To all the others,

Good Luck!

Laura

kyga Rookie

I have a similar story. I went gluten-free at the end of January, just based on a hunch, and I found out last weekend that I'm pregnant after two years of trying! This is very fast. Could that be it?

My celiac blood panel was negative but I have one of the two genes. It could be a coincidence, but I doubt it. I can't know for sure because since I'm pregnant they can't do an endoscopy. My sister said she had heard of someone getting diagnosed via MRI. Has anyone heard of this?

  • 11 months later...
Gracie21 Newbie
I have a similar story. I went gluten-free at the end of January, just based on a hunch, and I found out last weekend that I'm pregnant after two years of trying! This is very fast. Could that be it?

My celiac blood panel was negative but I have one of the two genes. It could be a coincidence, but I doubt it. I can't know for sure because since I'm pregnant they can't do an endoscopy. My sister said she had heard of someone getting diagnosed via MRI. Has anyone heard of this?

Hi,

I have never had any gastro intestinal problems but my husband and I have been TTC for 11months now without any luck (I'm 36). We've both been tested for many things and everything is normal so I've been told it is "unxplained" infertility by my OBGYN. I recently heard of someone who struggled with unexplained iinfertility for 3 years saw a naturopath and went glutten free-3 months later she was pregnant. I know I am not gluten intolerant but maybe I am gluten sensitive? I am low iron even with supplements and I have low blood sugar though it tests normal but I go to the dark side if I don't eat often. My naturopath is teaching me how to balance my blood sugar. I am staring a gluten free diet now hoping this is the answer. I'm starting my third cycle of clomid but no luck so far.

I wonder if my urinary tract infections could be linked to this? Low iron, itchy skin, brain fog, blood sugar sensitivities? Unexplained infertility? Am I reaching?

  • 4 weeks later...
Mrs. Smith Explorer

I am literally crying while reading this. I had tried 3yrs to get pregnant with one misscarrage and finally gave up. About a week ago I realised that its all gluten related! I am so angry and sad but VERY hopeful. Im currently not trying but this makes me think after I heal some more I may just try again! Thank you!

  • 1 month later...
elm77 Newbie
Congrats on being pregnant. I am also in a similar situation. I went gluten free about a month ago because of GI issues. My gastro actually suggested it though. I also have been trying for 2 1/2 years to get pregnant with no luck. Maybe this month will be my lucky one! I am going through all those wonderful shots. I am hoping it works, I feel so much better after going gluten free it has to help. Or so I keep telling myself!!!

Wow, our stories are very similar also.....

My husband and I have been trying for 2.5 yrs and nothing. I had the tests, procedures, pills and everything else under the sun and still nothing. I was diagnosed as a Celiac 3 months ago (endoscopy) and have been gluten-free. We are still trying and i'm feeling much much better. I was trying not to get my hopes too high, but i honestly keep telling myself it is going to happen, much like you. I've had cysts before and know those pains. This week, i started to feel them again, went back to my doctor and had an US done. She actually had good news.....I was ovulating and not only that I had 3 follicles on my one ovary that looked good.....you know the rest of the story.

So i'm very excited to see what happens in a few weeks with my menstrual cycle or hopefully, lack thereof. Now my hopes are a little higher. I wonder however if i'm crazy and this is a little too soon for my body to be healed or if things could truly change that quickly.

Keep me posted on your progress.

  • 2 weeks later...
Jamie1763 Newbie

Congrats! I'm hopin for the same results for myself now that I am gluten-free! Wish you all the best of luck!

Aren Newbie

Wow - it's amazing what a diet change will do. I had been trying for two years to have a baby and thought nothing was happening due to the birth control I started on three years ago. Stopped that after feeling side effects :angry: !! Not knowing anything about the gluten/fertility connection, I went gluten free to lose weight and feel better (and boy did I!) Three months later!! Surprise - I was pregnant (thank you, Lord!) I was totally not expecting it!

I definitely feel there is a link. I am now trying to convince my fully in-love-with gluten sister who has been trying five years to have a baby. She is a total nonbeliever. She even just had a miscarriage (a first step in the long process doctors put you through to conceive), so she's pretty distraught. What a huge change to your diet - but so worth it!!

  • 5 weeks later...
shirleyujest Contributor

Congratulations on your joyful news! That must make it so worth it that you persisted.

Regarding vitamin testing, why not go to a nutritionist? With all your symptoms I would think your insurance would cover food allergy and vit. deficiency testing, and especially now that you're pregnant you can justify making sure all bases are covered. In meantime I'm betting you're started taking multiples w/folic acid.

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    • catnapt
      so do you have celiac or not? 🤔 why are your vision issues undiagnosed? 😢 what does your ophthalmologist say?  do you have a serious vit A deficiency? what do you take for it? how long have you had celiac disease and how long did  it take to get a diagnosis?   if you are legally blind there are adaptive devices that will help you. I have vision difficulties as well but did not qualify (at least not yet)   do you have a vit A deficiency? why are you undiagnosed? what does your ophthalmologist say? I have a retinal specialist and he tells me my eye condition can not be fixed- until/unless it gets to the point of where surgery is safer since the surgery can leave me actually blind... so you want to wait til it gets really bad 🤪     I hope you find what works for you.    PS   the medication I started at the same time as the gluten challenge is obvious from the condition it's trying to treat. you can google it 😉 it is not an for any auto immune condition.   
    • knitty kitty
      @catnapt,  I apologize.  Obviously I've confused you with someone else.  I have vision problems due to undiagnosed Celiac complications.  Being legally blind, y'all look the same from here.   You still have not said which new medication you started taking.  Parathyroid disorders can affect antibody production.  Bone Loss Correlated with Parathyroid Hormone Levels in Adult Celiac Patients https://pubmed.ncbi.nlm.nih.gov/36619734/ Effect of vitamin B1 supplementation on bone turnover markers in adults: an exploratory single-arm pilot study https://pmc.ncbi.nlm.nih.gov/articles/PMC12075007/
    • catnapt
      during the gluten challenge I did not consume any wheat germ   the wheat germ is TOASTED - it's the only way it is sold now afiak doesn't matter I consume vast amounts of lectin containing foods PROPERLY prepared and have for well over a decade. They do not bother me in the least.    no anemia however the endo who ordered the celiac panel is the one who suggested the 2 week gluten challenge of eating at least 2 slices of bread per day or a serving of pasta- ALSO put me on a new drug at the same time (not a good idea)  I ate 4 slices because they were thin, or 2 English muffins, and just once some lasagna that someone else made since I stopped eating wheat pasta years ago. The English muffins caused some of the worst symptoms but that pc of lasagna almost killed me ( not literally but the pain was extreme) during those 12 days there were at least 3 times I considered going to Urgent Care.   This entire process was a waste of time TBH due to being on that new drug at the exact same time. it is impossible to tell if the drug I am taking for the possible renal calcium leak is working or not- given the dramatic response to the gluten challenge and resulting nausea (no vomiting) and eventually a loss of appetite and lower intake of foods so now I have a dangerously low potassium level   I don't have a simple case of celiac or no- I have an extremely complicated case with multiple variables I am seeing an endocrinologist for a problem with the calcium sensing glands - that system is very complicated and she has been unable to give me a firm diagnosis after many tests with confusing and often alarming results. She also appears to be inexperienced and unsure of herself. but I don't have the luxury of finding a new endo due to multiple issues of insurance, lack of drs in my area, money and transportation. so I'm stuck with her At least she hasn't given up    in any case I can assure you that lectins are not and never were the problem. I know they are a favorite villain in some circles to point to, but I have ZERO symptoms from my NORMAL diet which DOES NOT contain gluten. The longer I went without bread or foods with wheat like raisin bran cereal, the better I have felt. my body had been telling me for several years that wheat was the problem- or maybe specifically gluten, that remains to be seen- and stopping eating it was the best thing I could have done   I almost had unnecessary MAJOR SURGERY due to joint pain that I ONLY have if I am eating bread or related products I assumed it was the refined grains - never really suspected gluten but it does not matter I won't put that poison in my body ever again not that it is literally poison but it is def toxic to me        
    • knitty kitty
      @catnapt,  I'm sorry you're having such a rough time.   How much wheat germ and how much gluten were you eating? Lectins in beans can be broken down by pressure cooking them.  Do you pressure cook your beans?  Were you pressure cooking your wheat germ? What drugs are you taking?  Some immunosuppressive drugs affect IgA production.  Do you have anemia?
    • catnapt
      oops my gluten challenge was only 12 days It started Jan 21s and ended Feb 1st   worst 12 days of my life   Does not help that I also started on a thiazide-like drug for rule in/out renal calcium leak at the exact same time No clue if that could have been symptoms worse 🤔
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