Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone Have Cold Sores And Unusual Symptoms After Being On Gluten-free Diet For 3 Weeks?

Discovery

By Discovery
in Coping with Celiac Disease

Recommended Posts

Discovery Rookie
Discovery
Posted

I was very happy after I started gluten-free diet and noticed marked improvement in many symptoms, however, as time (second week) went by I started getting things I've never gotten before and wonder if anyone else has had this experience. I now have a cold sore (haven't had one in many years), had skin/blister-type break-outs also, a few days with bad headache..anxiety showing it's ugly head, again (but not as bad). Does anyone know about this? Is this normal. Please reply.

am waiting for lab items to come and will have definitive description after findings

till then, self-diagnosed (my history and watching my dad) Celiac and worried in California

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


sickchick Community Regular
sickchick
Posted

Since going gluten & dairy free yes I have a cold sore almost 85% of the time since!! Healing one as I type this!! :lol::ph34r:

ravenwoodglass Mentor
ravenwoodglass
Posted

The skin break outs sound like DH. I will get cold sore type sores from lip products that have gluten, have you eliminated it from your toiletries, make up and such? You could have gotten CC somewhere along the line also, especially if you share your home with gluten eaters or have eaten at a restaurant.

Joni63 Collaborator
Joni63
Posted
I was very happy after I started gluten-free diet and noticed marked improvement in many symptoms, however, as time (second week) went by I started getting things I've never gotten before and wonder if anyone else has had this experience. I now have a cold sore (haven't had one in many years), had skin/blister-type break-outs also, a few days with bad headache..anxiety showing it's ugly head, again (but not as bad). Does anyone know about this? Is this normal. Please reply.

am waiting for lab items to come and will have definitive description after findings

till then, self-diagnosed (my history and watching my dad) Celiac and worried in California

YES! I got 2 cold sores right around the 3 - 4 week time frame of going gluten free too. I normally do not get them, but did also get them a couple weeks after I quit smoking (but that was many years ago). I think it's just our body's way of going through withdrawal. I also had the headaches.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,822
    • Most Online (within 30 mins)
      7,748
    CQkage
    Newest Member
    CQkage
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • sleuth
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By sleuth · Posted

      Of course my son is on a 100% gluten free diet.  I wish his symptoms were not debilitating as there are right now.  He cannot work, even when a miniscule of cross contamination occurs.  It's not just GI distress, but intense fatigue, brain fog, depression, anxiety, insomnia, etc.  It's literally neurological inflammation.  Not to be taken lightly here.  We have sought out many other possible ways to cope during this window of time (8 months!!!!)  without success.   AN-PEP does not help and seems like studies on this are not well researched.  So, we are trying this out because research shows some promising results.  And, all participants showed no cravings afterwards, no signs of addiction.  The patch is different than the oral route such as smoking, vaping, gum, pouch, etc. 
    • Scott Adams
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By Scott Adams · Posted

      Have you tried AN-PEP enzymes, for example, GlutenX (who is a sponsor here)? A lot of research has shown that it can break down small amounts of gluten in the stomach, before it reaches the intestines. It might be a better approach than risking nicotine addiction, and the questionable research around this. I also hope that he’s trying to be 100% Gluten-Free.
    • sleuth
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By sleuth · Posted

      @fatjacksonthecat I have been doing some digging about the topic of nicotine and celiac.  I came across many studies that showed that the nicotine patch helped many with long covid and chronic fatigue syndrome.  I have a son who was diagnosed with celiac and his symptoms are severe when he is glutened.  He shows a lot of neurological inflammation and suffered with fatigue, brain fog, depression, anxiety and insomnia. There have been studies revealing that nicotine smoke actually masking celiac symptoms.  I also read that microdosing with a nictoine patch prevents one from addiction.  We are currently trying this out and so far it has lifted the brain fog and helped with anxiety and mood.  One of the studies I have read showed that it's not so much the dose, but the length of time a person is on the patch that showed improvements.  Many showed significant improvement as early as week 3 and continued through week 12.  We are taking 3 day breaks in between to make sure we don't down regulate the nicotine receptors.   How have things been for you?  Are you still chewing nicotine gum?  Perhaps, try the patch?  And how long did it take to ease up on your symptoms when glutened?
    • cristiana
      New here

      By cristiana · Posted

      Hi @KathyR37 and a very warm welcome here.  I am so very sorry that you are going through all of this. I just wanted to check, have you ever been tested for any other gastrointestinal conditions? Cristiana  
    • trents
      New here

      By trents · Posted

      @KathyR37, I would suspect that in addition to gluten intolerance, you have other food intolerances/sensitivities. This is very common in the celiac community. The most common offenders are oats, dairy, soy, corn and eggs with dairy and oats being the big two. Have you considered this? Have you tried keeping a food diary to detect patterns?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.