Complications Of Cd?

[debmidge]

After many, many months of pleading with my husband to have endoscopy he did it. He was diagnosed thru blood test 9/03 & responded to gluten-free diet. He's been 100% gluten-free since then.

Endoscopy shows:

Esophagitis

Hiatal hernia

gastric polyp (stomach polyp)

gastritis in the antrum (where ever that is...)

ulcer in the bulb of duodenum

duodenitis in second portion duodenum

thin folds in the second portion duodenum

and of course, villi damage that has started to get better, Dr. concluded.

My question is to those who have celiac disease - is this a common diagnosis that goes along with celiac when it's misdiagnosed for many years? Did anyone else have these things along with celiac disease when they were diagnosed?

He's been on a 100% gluten-free diet but has even lost more weight since 9/03 diagnosis. I am at wit's end. We don't see the gastro about this test until 1/6/05 (earliest appointment we could get due to holidays).

I am just searching for answers in my quest to help my husband obtain a better quality of life.

Thanks in advance for any input.

[tarnalberry]

I didn't have an endo and haven't researched the common outcomes, so I can't speak to the first question, but wanted to respond to the second. (Though I would say, on the first question, that many "normal" people would probably have one or two things pop up on a thorough test like that - one or two things that don't really actually bother them in any way.)

As to the losing weight - do you know how much he's been eating, and how well? If he's not eating much, or not eating very nutritious foods, because he's having trouble finding the right foods that he can eat, that may be contributing to it. I know that has affected some of us on the board, from time to time, and thought I'd mention it, though I realize it might not be the case.

[debmidge]

Hi

Well he's eating foods with Ok calories; breakfast baby Gerber juice, baby fruit (sometimes) & gluten-free cold or hot cereal. Lunch gluten-free cornbread that I make with some plain broiled chicken; dinner meat & potatoes with gluten-free bread that I make from gluten-free Pantry mix; and each evening a gluten-free yogurt OR gluten-free vanilla ice cream with Hershey's syrup and whipped cream OR rice pudding with whipped cream.

He doesn't snack as much as he used to because much gluten-free food is fiberless to begin with & he doesn't want to add to a potential constipation problem. On old gluteny diet, he ate a lot of wheat fiber, wheat bran, etc. He cannot eat vegetables and raw fruits & cannot have a large amount of baby food fruit as he can't digest it.

Since he isn't working nor working out, his caloric needs are low anyway.

Would like to hear from celiacs that have similar additional gastro diagnoses as I'd like to ask you a specific question that concerns celiac With other gastro problems.

[darlindeb25]

morning deb--i dont know if i can help here or not--i can tell you about me---i dont eat beef--the red meat is just too hard for me to digest--i stick to chicken, fish, white pork, and i do occasionally eat a hamburger--i cant add much fiber to my diet, it does tend to constipate me--my sister always adds flax meal to muffins and it is just too harsh for me--i cant eat much in the line of gluten-free breads--cant eat much processed things--i have to stay away from too much soy--i for now am soy limited---maybe he needs more protein, does he like peanut butter, it is full of protein or cottage cheese--it is full of protein too and he could stir his baby food fruits into it and make it tasty---i made cornbread the other day and it was good, but hit my tummy like lead--it didnt make me sick, just uncomfortable like a big meal does---maybe he needs to eat several small meals a day--every 2 or 3 hours instead of 3 meals----keep your chin up---deb

[bmorrow]

Hi Deb,

Your husband sounds alot like me. I had a Nissan Fundoliplication procedure approximately two years ago, because my eshpohagitis was so bad. I had Gerd for a couple of years. I tried all of the acid reducers, but nothing helped. My last endo. which was approximately three months ago, still indicates that I have chronic gastritis and another hiatal hernia. There was one repaired during the Nissan surgery. No one had mentioned Celiac through all of this, but I was finally diagnosed in March 2004.

I have been gluten free since that time, or at least attempting to be. I still have chronic diarreha, that the doctors are looking for a way to control. I live on very bland foods, and eat very few fruits and nuts.

I have also had ulcers over the past few years. I feel that the Celiac has to have something to do with all of these medical conditions.

Beverly

[tarnalberry]

You mention he used to have a lot of wheat bran and the like... Ener-G makes a rice bran (that works well in combination with hot cerals - I mix it 1:1 with quinoa flakes) that's a good source of fiber and fat.