Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Newly Diagnosed With celiac disease


msaz

Recommended Posts

msaz Newbie

Hello I am new to this site and also newly diagnosed, It took many doctors and many years of pain and confusion to finally find out what was wrong with me. I would greatly appreciate any and all information on this disease as I am just starting to realize how difficult it will be. I am still in pain and was wondering if anyone can tell me how long they continued to have pain after they were diagnosed. I also suffer from chronic neck pain due to hierniated disks. I have also had a lot of lower back pain and osteoarthritis. Does anyone else feel the back pain?

masz


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor
Hello I am new to this site and also newly diagnosed, It took many doctors and many years of pain and confusion to finally find out what was wrong with me. I would greatly appreciate any and all information on this disease as I am just starting to realize how difficult it will be. I am still in pain and was wondering if anyone can tell me how long they continued to have pain after they were diagnosed. I also suffer from chronic neck pain due to hierniated disks. I have also had a lot of lower back pain and osteoarthritis. Does anyone else feel the back pain?

masz

Welcome,

You have found a wonderful site to learn all that you need to know about Celiac.

The average diagnosis time is eleven years. You are in good company here.

The diet can certainly be overwhelming. But, good words of advise is to start simple. Simple, meaning meat, fish, rice, potatoes, fresh veggies, and fruit. No processed foods for a while. You can add food items a little at a time and more so when you have mastered the art of label reading.

A new toaster is a must, old wooden spoons and cutting boards should be replaced. Gluten can hide everywhere. That way you avoid contaminating your food with pre-celiac utensils.

Undiagnosed Celiac can lead to some unfortunate issues, but many have found that eliminating gluten from their diet, their issues have reversed themselves, or in the least improved. I doublt that the gluten free diet can help your disk issues, but it may very well help with the others.

This is a great site. Take some time to walk around.

luvs2eat Collaborator

And take your time. I was gluten-free for an entire year before my bowels returned to anything I'd consider normal... w/ lapses at any time!

There are plenty of gluten-free foods in your every day diet ... you don't have to go looking for pre-packaged convenience food.

Check out the bread threads... that's always an issue. I don't have a bread machine but make a loaf a week of either Anna's bread mix or Pamela's. They are awesome.

I'm still looking for a gluten-free bagel... haven't had one in more than 5 years!!

elye Community Regular
I'm still looking for a gluten-free bagel... haven't had one in more than 5 years!!

Kinnikinnik makes absolutely delicious bagels and english muffins (brace yourself for the cost, though!) You can order from them online, and they deliver. :)

Kathe Newbie
And take your time. I was gluten-free for an entire year before my bowels returned to anything I'd consider normal... w/ lapses at any time!

There are plenty of gluten-free foods in your every day diet ... you don't have to go looking for pre-packaged convenience food.

Check out the bread threads... that's always an issue. I don't have a bread machine but make a loaf a week of either Anna's bread mix or Pamela's. They are awesome.

I'm still looking for a gluten-free bagel... haven't had one in more than 5 years!!

Try Kinnikinnick sesame bagels. They are awesome! Order at kinnikinnick.com Kathe

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Shellly posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      New labs are now very elevated

    2. - Scott Adams replied to Elena1234's topic in Gluten-Free Restaurants
      3

      Is Cracker Barrel`s gluten-free menu safe for kids with celiac disease?

    3. - trents replied to Elena1234's topic in Gluten-Free Restaurants
      3

      Is Cracker Barrel`s gluten-free menu safe for kids with celiac disease?

    4. - Russ H replied to Elena1234's topic in Gluten-Free Restaurants
      3

      Is Cracker Barrel`s gluten-free menu safe for kids with celiac disease?

    5. - Elena1234 posted a topic in Gluten-Free Restaurants
      3

      Is Cracker Barrel`s gluten-free menu safe for kids with celiac disease?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,167
    • Most Online (within 30 mins)
      7,748

    Lindyloo590
    Newest Member
    Lindyloo590
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Shellly
      Hello, I was very stick,  with flu like symptoms, but my virus panel came back negative and we couldn’t figure out what’s going on. The doctor then added a celiac panel.  Has anyone ever had such a dramatic change?  What are the odds this is true celiac I am going to have an endoscopy, but it’s expensive and I just feel like why can’t the labs be enough? 
    • Scott Adams
      Eating out in general is full of risks, but this article may help:  
    • trents
      This kind of question is always difficult to give a definitive answer to because of so many variables. One such variable is the sensitivity of the individual celiac to small amounts of gluten cross contamination. An amount that causes a reaction in one celiac many not in another, or at least not be discernable which, of course, does not exactly equate to being "safe".
    • Russ H
      I don't live in the US, but based on this thread, I wouldn't risk it:   https://www.reddit.com/r/glutenfree/comments/1n2ehw8/cracker_barrel/   This app is helpful: https://www.findmeglutenfree.com/
    • Elena1234
      I see that Cracker Barrel restaurants have a gluten free menu (not all locations, but one confirmed that they do). I was wondering if it is safe for my 5 year old son with celiac disease? 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.