Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Lacking Something?


carecare

Recommended Posts

carecare Enthusiast

My husband has now been gluten free for a little over a month and is feeling so much better. He still has had bouts of D but when that happens it's not as severe as it used to be. His gut hasn't been bothering him (except for yesterday for some reason) one bit either...compared to the years he suffered. He's not fatigued anymore. Anyway, I made a glutenfree pantry skillet meal (the asian one) it was very spicy and he said his gut was really bothering him after...so I wonder what he reacted to...probably just too spicy.

Anyway, this past week he's been getting foot cramps. He said his foot feel permanently cramping and wondered maybe going gluten free he's lacking something in his diet. He's not taking any vitamins. Another amazing thing....he knew bananas have potassium and that they are good for people who are getting muscle cramps so he ate one. He hasn't had a banana in a long long time because they bothered his gut too much. Well, he said it didn't bother him at all. Hmmm....however now that I'm thinking about it...he ate that banana yesterday I think...and he thought it was the gluten free pantry meal that bothered him...maybe it was the banana.

So, I think I asked this before but what nutrional value does wheat have? Without wheat and grains what vitamins are you lacking? We are trying to figure out if this is causing his feet cramping.

Carecare


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator

Well, some of the most common nutritional deficiencies (due to malabsorption) that come with celiac disease are magnesium and B12, either one (or both) could be causing the foot cramping.

It is advisable that your husband start taking a good vitamin B complex, vitamin D (best taken as cod liver oil, the Carlson brand is great and doesn't taste fishy) and calcium and magnesium, as well as a multi-vitamin. And extra vitamin B12, the sublingual kind (which doesn't have to go through the stomach and possibly still damaged intestines to be absorbed).

When I kept getting foot cramps I got myself a good sublingual vitamin B12 (with lower doses of the other B vitamins in the mix, since they all work together), and my foot cramps stopped within a few days.

Nancym Enthusiast

Lacking certain minerals seem to be associated with cramping like that. I'd make sure he is getting plenty of potassium, magnesium and calcium although I actually seem to have MORE cramping if I have too much calcium.

Ursa Major Collaborator

Oh, about potassium........ there are foods out there that have more potassium than bananas, like watermelon for example.

But yes, you can get too much calcium, most people need to supplement more with magnesium, because those two need to be balanced.

If you don't have enough vitamin D though, you can use neither the calcium nor the magnesium, because they need vitamin D to be used by the body.

Still, a lack of vitamin B12 is known to cause neuropathies, and it did cause cramps in my feet.

moldlady Rookie

Great advice already.....I agree with magnesium, potassium, and B12. I like the suggestion to get the potassium from another source. Many people have trouble with bananas as they are very sweet and will feed systemic fungus. They are also very high in latex if one has a latex allergy.

I'd like to suggest that cramping may be as simple as poor circulation due to athersclerosis in the arteries, dehydration.... not enough just pure water (not from the tap), or a pre diabetic situation.

See if warm (not hot) epsom salt foot baths seem to help at night before bed. I'm assuming that these cramps come during sleep or early morning???

Good luck and let us all know how it goes....

moldlady :)

kbtoyssni Contributor
So, I think I asked this before but what nutrional value does wheat have? Without wheat and grains what vitamins are you lacking? We are trying to figure out if this is causing his feet cramping.

Here's some info on the nutritional value of wheat flour: Open Original Shared Link

It's mostly carbs with a small amount of calcium and potassium. Note that the amount of potassium is 66mg for a half cup of flour (that's maybe 2 slices of bread?) versus 290mg in a banana so it's not like you're missing out on much in the vitamin department.

carecare Enthusiast

Thanks everyone. I knew I'd get some answers here. I told him he should probably take some supplements but not sure if he will. He's actually getting the cramping in his feet during the day so not always at night...more during the day actually. He drinks a lot of water, exercises a lot, drinks his milk and ummm...whatelse..LOL.

hmmm ...and the only other thing he took out of his diet which was last week was nuts. He eats peanuts every day at work to tide him over. He was wondering if the nuts could be also bothering him. Time to go see what nuts have in them too...thanks for the link above. :)

Carecare.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator

I see he 'drinks his milk'. That could be a huge problem right there. He may be dairy intolerant and should try eliminating milk. In reality you get NO calcium from milk, as the enzyme that would let us use the calcium is destroyed during pasteurization.

In a study some scientists did they found that North America has the highest rate of osteoporosis in the world. We also have the highest dairy consumption in the world! Which shows that it is just a myth that we need dairy for calcium (and where do cows get their strong bones, or elephants?).

My husband's grandmother had a severe intolerance to dairy all of her life. When she fell and fractured her femur at the age of 98, her doctors were astonished that when they tested her bones, that she didn't even have a hint of osteoporosis (and she walked again within six months and moved back into her own apartment)!

The best source of calcium is dark green leafy vegetables.

kbtoyssni Contributor
In a study some scientists did they found that North America has the highest rate of osteoporosis in the world. We also have the highest dairy consumption in the world! Which shows that it is just a myth that we need dairy for calcium (and where do cows get their strong bones, or elephants?).

There's some great research about this in the book "Guns, Germs, and Steel". The book is super long, but the sections on agriculture are really interesting if you want to know about the origins of wheat production. There's some graphs showing the rate of osteoporosis versus the amount of cow's milk consumed for different countries. And guess what? As milk consumption increases, so does the rate of osteoporosis! Certainly surprised me.

  • 3 weeks later...
ccrrgn Newbie
My husband has now been gluten free for a little over a month and is feeling so much better. He still has had bouts of D but when that happens it's not as severe as it used to be. His gut hasn't been bothering him (except for yesterday for some reason) one bit either...compared to the years he suffered. He's not fatigued anymore. Anyway, I made a glutenfree pantry skillet meal (the asian one) it was very spicy and he said his gut was really bothering him after...so I wonder what he reacted to...probably just too spicy.

Anyway, this past week he's been getting foot cramps. He said his foot feel permanently cramping and wondered maybe going gluten free he's lacking something in his diet. He's not taking any vitamins. Another amazing thing....he knew bananas have potassium and that they are good for people who are getting muscle cramps so he ate one. He hasn't had a banana in a long long time because they bothered his gut too much. Well, he said it didn't bother him at all. Hmmm....however now that I'm thinking about it...he ate that banana yesterday I think...and he thought it was the gluten free pantry meal that bothered him...maybe it was the banana.

So, I think I asked this before but what nutrional value does wheat have? Without wheat and grains what vitamins are you lacking? We are trying to figure out if this is causing his feet cramping.

Carecare

Hi

Cramps spasems restless legs ect. are always a problem with calcium defficiency due to poor absorbtion. To absorb calcium you will absolutly need magnesium,& vitamin D, but a good multiple vitamin and mineral suppliment as well. Vitamin A blocks calcium absorbtion try to take the oil based vitamins at a different time, oils go well with your meals. I have for years struggled to find suppliments that not only are absorbed but allso utillized, and also careful as to the soarce that these nutrience come from, and be careful that they are gluten free as well. Through my profession I learned the value of a good calcium suppliment. Do you know that the lack of calcium can cause your heart to stop, and if it where know most young sports people especialy males have a high chance of having a heart attack due to calcium defficiency. I took prednisone several times due to skin loss due to drug allergy [penicillin]. It was do or die, and now I have very poor calcium absorbtion, prednizone is a calcium blocker. Your husband is probably suffering from stress and needs to take B vitamins as we get most of our B's from the grains in our diet, and be very carful of the soarce of the B's as this can be where they are derived.

I am getting tired and need to get away from my desk for a while, I have trouble sitting for long periods I hope this helps. I have spent years researching nutrition due to C.F. which if probably due to C.D.

Norma

RiceGuy Collaborator
So, I think I asked this before but what nutrional value does wheat have? Without wheat and grains what vitamins are you lacking?

Just to be thorough here, there are numerous grains which do not contain gluten. For example; Buckwheat, millet, rice, amaranth, t'eff, corn, quinoa, and sorghum.

Some people might end up with less fiber or protein when not eating grains I suppose. Unless they add other foods to make up for them of course.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Thoughtidjoin's topic in Gluten-Free Foods, Products, Shopping & Medications
      5

      Dried Chickpeas

    2. - trents replied to ainsleydale1700's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Confused about HLA-DQ Celiac gene test result

    3. - Scott Adams replied to ainsleydale1700's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Confused about HLA-DQ Celiac gene test result

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,438
    • Most Online (within 30 mins)
      7,748

    Thomasine
    Newest Member
    Thomasine
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      Hello, @Aretaeus Cappadocia, My favorite source of B12 is liver.  😺 I react to nutritional yeast the same way as if I were glutened.  Casein, a protein in dairy, and nutritional yeast have protein segments that match certain antigenic protein segments in gluten.  The proteins in rice, corn (maize), and chicken meat have them as well.   Some people with Celiac might tolerate them without a problem, but I need to avoid them.  For those still having symptoms, cutting these out of our diet may improve symptoms. 
    • trents
      Welcome to the celiac.com community, @ainsleydale1700! First, it is very unlikely, given your genetic results, that you have celiac disease. But it is not a slam dunk. Second, there are some other reasons besides having celiac disease that your blood antibody testing was positive. There are some diseases, some medications and even (for some people) some foods (dairy, the protein "casein") that can cause elevated celiac blood antibody test scores. Usually, the other causes don't produce marginally high test scores and not super high ones. Having said that, by far, the most common reason for elevated tTG-IGA celiac antibody test scores (this is the most common test ordered by doctors when checking for celiac disease) is celiac disease itself. Please post back and list all celiac blood antibody tests that were done with their scores and with their reference ranges. Without the reference ranges for negative vs. positive we can't tell much because they vary from lab to lab. Third, and this is an terrible bum steer by your doc, for the biopsy results to be valid, you need to have been eating generous amounts of gluten up to the day of the procedure for several weeks.  Having said all that, it sounds most likely that you have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. The two share many common symptoms but NCGS is not autoimmune in nature and doesn't damage the lining of the small bowel. What symptoms do you have? Do you have any blood work that is out of norm like iron deficiency that would suggest celiac disease?
    • ainsleydale1700
    • Scott Adams
      HLA testing can definitely be confusing. Classic celiac disease risk is most strongly associated with having the full HLA-DQ2 or HLA-DQ8 heterodimer, which requires specific DQA1 and DQB1 genes working together. Your report shows you are negative for the common DQ2 and DQ8 combinations, but positive for DQB102, which is one component of the DQ2 pair. On its own, DQB102 does not usually form the full DQ2 molecule most strongly linked to celiac disease, which is likely why your doctor said you do not carry the typical “celiac genes.” However, genetics are only part of the picture. A negative gene test makes celiac disease much less likely, but not absolutely impossible in rare cases. More importantly, both antibody testing and biopsy are only reliable when someone is actively eating gluten; being gluten-free for four years before testing can cause both bloodwork and intestinal biopsy to appear falsely negative. Given your positive antibodies and ongoing symptoms, it may be reasonable to seek clarification from a gastroenterologist experienced in celiac disease about whether proper gluten exposure was done before testing and whether additional evaluation is needed.
    • Aretaeus Cappadocia
      I agree with your post and have had similar experiences. I'm commenting to add the suggestion of also using nutritional yeast as a supplement. It's a rich source of B vitamins and other nutrients, and some brands are further supplemented with additional B12. I sprinkle a modest amount in a variety of savory recipes.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.