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u396

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u396 Newbie

My husband was just diagnosed with gluten allergies after 29 years of many tests that didn't lead to the culprit. We are thankful it wasn't a stomach tumor, cancer etc. We will be leaving for FL next week and driving from Massachusetts. Breakfast on the road seems like it might be a problem. Does anyone know of a list from Mc Donald's that would list any gluten free products they might have. Thanks in advance and I hope everyone has a nice holiday.


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lovegrov Collaborator

First, I would urge you to carry whatever foods you can. I fill a large cooler whenever I travel. For breakfast I hardboil eggs ahead, take O'bertos beef jerky (read ingredients; two flavors have wheat), yogurt, cheese sticks, ham slices, and even cook sausage ahead and heat it up in the motel microwave.

I don't know how sick your husband has been but eating at fast-food places is very risky because of contamination, and even more so when you're trying to heal. However, if you need to, just about every fast food place I know of has either a gluten-free list or a site where you can read EVERY ingredient of every food. McDonald's has both. Usually you look under "menu" or "nutrition." Beware of the McDonald's bacon; it is NOT gluten-free. Also beware of omelets at IHOP; they have pancake batter in them. Denny's has a list behind the counter that shows the top eight allergens in each dish.

As strange is it sounds, one of my top places for breakfast is the Waffle House. The omelets or eggs are cooked right there in front of you and they use Jimmy Dean sausage, which is gluten-free.

richard

tarnalberry Community Regular

I'm sure others will chime in, but wanted to note that you can bring food with you (what I do on long car trips and business travel). I'll pack things like dried fruits and nuts, rice cakes, fruit, raw veggies, and the like. (I'd pack cheese in a little lunch cooler, but I'm dairy-intolerant as well, so I can't do that any more.)

celiac3270 Collaborator

McDonald's gluten-free list--for the USA is here: Open Original Shared Link

Many chains have gluten-free menus for us....i don't eat out or travel much so i don't remember many, but if you look around, you're sure to find five or six.

I prefer to bring a lot of my own food, cause I'd rather not put my intestinal health in the hands of a stranger. When we travel by car, we usually have a cooler in the trunk, as well as a toaster oven and george foreman grill--all for use in a hotel room. Our oven literally melted and nearly exploded a couple weeks ago, so while we wait for the company to give a replacement for the faulty oven, we got a hotplate...two burners.... B) . With those three things...and perhaps a mini fridge in the hotel room, you can eat nearly everything you'd have at home....even w/o a hotplate, you can have meat, potatoes, Ore Ida french fries, and even heat up any leftovers you may have brought in tin foil....

u396 Newbie

Thanks to all of you for helping me with the traveling question. My husband is doing so well on this new diet. He had cut out most food except crackers and bread, thinking they were bland and wouldn't upset his stomach. Just shows how wrong you can be. After 29 years and 6 colonoscopys plus numerous other tests we find out this. A new Dr. couldn't believe he hadn't been check for allergies. The endoscopy plus he had the test where he swallowed the camera confirmed it. He's adjusting to the diet nicely while we are at home but eating out will be a slight problem. This is a man that ate at least one whole sleeve of Ritz crackers with peanut butter every day. We will take most food along but have to make coffee stops. Our van is packed to the hilt as we do antique shows in FL so don't have a lot of room to carry much extra equipment. We're okay once we get there as we have a travel trailer in FL. with oven, fridge etc. Marry Christmas to all and thanks for the information. So glad I found this site.

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    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
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